Re: SUPPORT GROUP TO PUSH AWARENESS/ CURE

[Guest guest]

Welcome back Fran and congrats on your soon to be baby! I have been toying

with an idea about notifying a news station that would really do a good story

on rosacea...what about SheTV on Discovery health? They say you can directly

email them with your ideas...if we all did this perhaps they would do a good

job of it....and I think we need to mention that we don't want them doing an

ad for gladerm products! If we mentioned Dr. Nase's website and book and Dr.

Sy and all her work on special products...who knows?

What does everyone think?

Darlene

[Guest guest]

Darlene,

I commend you for wanting to contact a news reporter to do an honest, maybe

even revealing piece on cea. I don't want to be a wet blanket, but

consider the following:

Even the best health reporters rely on physicians and major medical

organizations or teaching hospitals for their information...so they would be

tapping into the very sources which have frustrated so many of us! This

does not necessarily constitute bad journalism, it's just not what would be

helpful to us. What we really need is a

Stossel-type of investigative report focusing on the story behind the story.

But then, you'd have to convince someone like that that such a story is

worthwhile. I am skeptical (and yes, perhaps a bit cynical) that they would.

Good Luck!

Beth

[Guest guest]

Darlene,

I commend you for wanting to contact a news reporter to do an honest, maybe

even revealing piece on cea. I don't want to be a wet blanket, but

consider the following:

Even the best health reporters rely on physicians and major medical

organizations or teaching hospitals for their information...so they would be

tapping into the very sources which have frustrated so many of us! This

does not necessarily constitute bad journalism, it's just not what would be

helpful to us. What we really need is a

Stossel-type of investigative report focusing on the story behind the story.

But then, you'd have to convince someone like that that such a story is

worthwhile. I am skeptical (and yes, perhaps a bit cynical) that they would.

Good Luck!

Beth

[Guest guest]

Darlene,

I commend you for wanting to contact a news reporter to do an honest, maybe

even revealing piece on cea. I don't want to be a wet blanket, but

consider the following:

Even the best health reporters rely on physicians and major medical

organizations or teaching hospitals for their information...so they would be

tapping into the very sources which have frustrated so many of us! This

does not necessarily constitute bad journalism, it's just not what would be

helpful to us. What we really need is a

Stossel-type of investigative report focusing on the story behind the story.

But then, you'd have to convince someone like that that such a story is

worthwhile. I am skeptical (and yes, perhaps a bit cynical) that they would.

Good Luck!

Beth

[Guest guest]

The idea is to get a -Stossel type person interested. I've seen a lot more

boring topics on these programs. I'm not losing hope - if I were to lose hope,

I may as well stop posting. It is so important to stay postive about a cure -

for me, this is what keeps me going. Thanks for the feedback

BADAMS6663@... wrote:

Darlene,

I commend you for wanting to contact a news reporter to do an honest, maybe

even revealing piece on cea. I don't want to be a wet blanket, but

consider the following:

Even the best health reporters rely on physicians and major medical

organizations or teaching hospitals for their information...so they would be

tapping into the very sources which have frustrated so many of us! This

does not necessarily constitute bad journalism, it's just not what would be

helpful to us. What we really need is a

Stossel-type of investigative report focusing on the story behind the story.

But then, you'd have to convince someone like that that such a story is

worthwhile. I am skeptical (and yes, perhaps a bit cynical) that they would.

Good Luck!

Beth

---------------------------------

[Guest guest]

Hi Darlene - Thanks so much for the positive feedback and the warm welcome.

This is a great lead! I know that we can push this because we have a lot of

numbers. I'm going to make a list of good suggestions and then come up with an

action plan. All other suggestions welcomed!

T7421@... wrote:

Welcome back Fran and congrats on your soon to be baby! I have been toying

with an idea about notifying a news station that would really do a good story

on rosacea...what about SheTV on Discovery health? They say you can directly

email them with your ideas...if we all did this perhaps they would do a good

job of it....and I think we need to mention that we don't want them doing an

ad for gladerm products! If we mentioned Dr. Nase's website and book and Dr.

Sy and all her work on special products...who knows?

What does everyone think?

Darlene

---------------------------------

[Guest guest]

Beth makes an excellent point. I would be in favor of waiting to do

anything until Dr. Nase's book gets published. He has just the right

clout to make the medical community listen.

Matija

> Darlene,

>

> I commend you for wanting to contact a news reporter to do an

honest, maybe

> even revealing piece on cea. I don't want to be a wet

blanket,

but

> consider the following:

>

> Even the best health reporters rely on physicians and major medical

> organizations or teaching hospitals for their information...so they

would be

> tapping into the very sources which have frustrated so many of us!

This

> does not necessarily constitute bad journalism, it's just not what

would be

> helpful to us. What we really need is a

> Stossel-type of investigative report focusing on the story behind

the story.

> But then, you'd have to convince someone like that that such a

story is

> worthwhile. I am skeptical (and yes, perhaps a bit cynical) that

they would.

>

> Good Luck!

>

> Beth

[Guest guest]

Beth makes an excellent point. I would be in favor of waiting to do

anything until Dr. Nase's book gets published. He has just the right

clout to make the medical community listen.

Matija

> Darlene,

>

> I commend you for wanting to contact a news reporter to do an

honest, maybe

> even revealing piece on cea. I don't want to be a wet

blanket,

but

> consider the following:

>

> Even the best health reporters rely on physicians and major medical

> organizations or teaching hospitals for their information...so they

would be

> tapping into the very sources which have frustrated so many of us!

This

> does not necessarily constitute bad journalism, it's just not what

would be

> helpful to us. What we really need is a

> Stossel-type of investigative report focusing on the story behind

the story.

> But then, you'd have to convince someone like that that such a

story is

> worthwhile. I am skeptical (and yes, perhaps a bit cynical) that

they would.

>

> Good Luck!

>

> Beth

[Guest guest]

And maybe when Dr. Nase's book comes out - HE can/would be the perfect

" scientific " mind to add credibility to what we are going through! And it

would be publicity for his book.

Patty

Subject: Re: SUPPORT GROUP TO PUSH AWARENESS/ CURE

> The idea is to get a -Stossel type person interested. I've seen a lot

more boring topics on these programs. I'm not losing hope - if I were to

lose hope, I may as well stop posting. It is so important to stay postive

about a cure - for me, this is what keeps me going. Thanks for the feedback

>

>

>

> BADAMS6663@... wrote:

> Darlene,

>

> I commend you for wanting to contact a news reporter to do an honest,

maybe

> even revealing piece on cea. I don't want to be a wet blanket, but

> consider the following:

>

> Even the best health reporters rely on physicians and major medical

> organizations or teaching hospitals for their information...so they would

be

> tapping into the very sources which have frustrated so many of us! This

> does not necessarily constitute bad journalism, it's just not what would

be

> helpful to us. What we really need is a

> Stossel-type of investigative report focusing on the story behind the

story.

> But then, you'd have to convince someone like that that such a story is

> worthwhile. I am skeptical (and yes, perhaps a bit cynical) that they

would.

>

> Good Luck!

>

> Beth

>

>

> ---------------------------------

>

[Guest guest]

And maybe when Dr. Nase's book comes out - HE can/would be the perfect

" scientific " mind to add credibility to what we are going through! And it

would be publicity for his book.

Patty

Subject: Re: SUPPORT GROUP TO PUSH AWARENESS/ CURE

> The idea is to get a -Stossel type person interested. I've seen a lot

more boring topics on these programs. I'm not losing hope - if I were to

lose hope, I may as well stop posting. It is so important to stay postive

about a cure - for me, this is what keeps me going. Thanks for the feedback

>

>

>

> BADAMS6663@... wrote:

> Darlene,

>

> I commend you for wanting to contact a news reporter to do an honest,

maybe

> even revealing piece on cea. I don't want to be a wet blanket, but

> consider the following:

>

> Even the best health reporters rely on physicians and major medical

> organizations or teaching hospitals for their information...so they would

be

> tapping into the very sources which have frustrated so many of us! This

> does not necessarily constitute bad journalism, it's just not what would

be

> helpful to us. What we really need is a

> Stossel-type of investigative report focusing on the story behind the

story.

> But then, you'd have to convince someone like that that such a story is

> worthwhile. I am skeptical (and yes, perhaps a bit cynical) that they

would.

>

> Good Luck!

>

> Beth

>

>

> ---------------------------------

>

[Guest guest]

And maybe when Dr. Nase's book comes out - HE can/would be the perfect

" scientific " mind to add credibility to what we are going through! And it

would be publicity for his book.

Patty

Subject: Re: SUPPORT GROUP TO PUSH AWARENESS/ CURE

> The idea is to get a -Stossel type person interested. I've seen a lot

more boring topics on these programs. I'm not losing hope - if I were to

lose hope, I may as well stop posting. It is so important to stay postive

about a cure - for me, this is what keeps me going. Thanks for the feedback

>

>

>

> BADAMS6663@... wrote:

> Darlene,

>

> I commend you for wanting to contact a news reporter to do an honest,

maybe

> even revealing piece on cea. I don't want to be a wet blanket, but

> consider the following:

>

> Even the best health reporters rely on physicians and major medical

> organizations or teaching hospitals for their information...so they would

be

> tapping into the very sources which have frustrated so many of us! This

> does not necessarily constitute bad journalism, it's just not what would

be

> helpful to us. What we really need is a

> Stossel-type of investigative report focusing on the story behind the

story.

> But then, you'd have to convince someone like that that such a story is

> worthwhile. I am skeptical (and yes, perhaps a bit cynical) that they

would.

>

> Good Luck!

>

> Beth

>

>

> ---------------------------------

>