Re: One More Week!!!!!!!!!!!!!!!!!

[Guest guest]

,

How exciting, you must be on top of the world.Yay Jack for sitting

up!!! You keep us posted on graduation day and post his pics so

everyone can see his " perfect head " .

CAROLG

--- In Plagiocephaly , " pennylac " <pennylac@y...>

wrote:

> We just got back from our weekly appointment at CT and Jack has

just

> one more week left -- maybe even less if he keeps growing like he

has

> been. We are so excited. And he is starting to sit so Mommy is

telling

> everyone she meets about her " perfect " child. My husband suggested

for

> his last helmet decoration that we put " If you believed the People

> article, you don't know Jack! "

>

> Giving some of the recent posts, I just wanted to say something

about

> this board. I want to thank everyone, especially the moderators, on

> this board. Reading about everyone's experience (good and bad),

> questions, issues, progress has been so helpful, inspiring, and,

sadly,

> at times, heartbreaking. Having a group of parents who are going

the

> through the same thing -- I can't express how helpful that has been

and

> how much it has helped me. Seeing those cute faces and the amazing

> improvements (no matter what method - repo, hanger, starband, doc)

> really helped in the beginning of this process. Before I knew much

> about his severity or what the helmet would be like, those pictures

> gave me the hope I was looking for, I knew he could be fixed and

made,

> to quote People Magazie, " PERFECT " again. For me, that is one of

the

> important functions of this board as well. Giving us parents the

outlet

> and hope we need to help our children.

>

>

> Mom to Jack (5 months, tort/plagio)

> Doc Band 6/2/05 -- grad hopefully 6/13/05

[Guest guest]

,

I absolutely love your husband's idea for the final helmet

decoration, how hilarious!

Wow, only a week more, I know you all must be so excited!! Will you

be doing an exit cast? How would you say Jack's rounding has been

overall now that his treatment is nearly finished?

Please update us if he graduates early,

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " pennylac " <pennylac@y...>

wrote:

> We just got back from our weekly appointment at CT and Jack has

just

> one more week left -- maybe even less if he keeps growing like he

has

> been. We are so excited. And he is starting to sit so Mommy is

telling

> everyone she meets about her " perfect " child. My husband suggested

for

> his last helmet decoration that we put " If you believed the People

> article, you don't know Jack! "

>

> Giving some of the recent posts, I just wanted to say something

about

> this board. I want to thank everyone, especially the moderators,

on

> this board. Reading about everyone's experience (good and bad),

> questions, issues, progress has been so helpful, inspiring, and,

sadly,

> at times, heartbreaking. Having a group of parents who are going

the

> through the same thing -- I can't express how helpful that has

been and

> how much it has helped me. Seeing those cute faces and the amazing

> improvements (no matter what method - repo, hanger, starband, doc)

> really helped in the beginning of this process. Before I knew much

> about his severity or what the helmet would be like, those

pictures

> gave me the hope I was looking for, I knew he could be fixed and

made,

> to quote People Magazie, " PERFECT " again. For me, that is one of

the

> important functions of this board as well. Giving us parents the

outlet

> and hope we need to help our children.

>

>

> Mom to Jack (5 months, tort/plagio)

> Doc Band 6/2/05 -- grad hopefully 6/13/05

[Guest guest]

,

I absolutely love your husband's idea for the final helmet

decoration, how hilarious!

Wow, only a week more, I know you all must be so excited!! Will you

be doing an exit cast? How would you say Jack's rounding has been

overall now that his treatment is nearly finished?

Please update us if he graduates early,

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " pennylac " <pennylac@y...>

wrote:

> We just got back from our weekly appointment at CT and Jack has

just

> one more week left -- maybe even less if he keeps growing like he

has

> been. We are so excited. And he is starting to sit so Mommy is

telling

> everyone she meets about her " perfect " child. My husband suggested

for

> his last helmet decoration that we put " If you believed the People

> article, you don't know Jack! "

>

> Giving some of the recent posts, I just wanted to say something

about

> this board. I want to thank everyone, especially the moderators,

on

> this board. Reading about everyone's experience (good and bad),

> questions, issues, progress has been so helpful, inspiring, and,

sadly,

> at times, heartbreaking. Having a group of parents who are going

the

> through the same thing -- I can't express how helpful that has

been and

> how much it has helped me. Seeing those cute faces and the amazing

> improvements (no matter what method - repo, hanger, starband, doc)

> really helped in the beginning of this process. Before I knew much

> about his severity or what the helmet would be like, those

pictures

> gave me the hope I was looking for, I knew he could be fixed and

made,

> to quote People Magazie, " PERFECT " again. For me, that is one of

the

> important functions of this board as well. Giving us parents the

outlet

> and hope we need to help our children.

>

>

> Mom to Jack (5 months, tort/plagio)

> Doc Band 6/2/05 -- grad hopefully 6/13/05

[Guest guest]

Thanks for your post !! That was very sweet and I feel the exact

same way. It seems like yesterday when I was faced with the begining

of Plagio, and finding this site was a blessing in my book! There's

no one better to talk to about Plagio than the parents that are going

through it with you!

Great news on Jack by the way and I hope that you do decorate the

helmet that way!! That's a cute saying!! Congrats on his sitting up

too! That was the funnest thing to see them sitting by hiself!! Big

Boy!!

Lacy

Waydon's mom 8.5 months

DOC band 2 weeks

> We just got back from our weekly appointment at CT and Jack has just

> one more week left -- maybe even less if he keeps growing like he has

> been. We are so excited. And he is starting to sit so Mommy is telling

> everyone she meets about her " perfect " child. My husband suggested for

> his last helmet decoration that we put " If you believed the People

> article, you don't know Jack! "

>

> Giving some of the recent posts, I just wanted to say something about

> this board. I want to thank everyone, especially the moderators, on

> this board. Reading about everyone's experience (good and bad),

> questions, issues, progress has been so helpful, inspiring, and, sadly,

> at times, heartbreaking. Having a group of parents who are going the

> through the same thing -- I can't express how helpful that has been and

> how much it has helped me. Seeing those cute faces and the amazing

> improvements (no matter what method - repo, hanger, starband, doc)

> really helped in the beginning of this process. Before I knew much

> about his severity or what the helmet would be like, those pictures

> gave me the hope I was looking for, I knew he could be fixed and made,

> to quote People Magazie, " PERFECT " again. For me, that is one of the

> important functions of this board as well. Giving us parents the outlet

> and hope we need to help our children.

>

>

> Mom to Jack (5 months, tort/plagio)

> Doc Band 6/2/05 -- grad hopefully 6/13/05

[Guest guest]

Thanks for your post !! That was very sweet and I feel the exact

same way. It seems like yesterday when I was faced with the begining

of Plagio, and finding this site was a blessing in my book! There's

no one better to talk to about Plagio than the parents that are going

through it with you!

Great news on Jack by the way and I hope that you do decorate the

helmet that way!! That's a cute saying!! Congrats on his sitting up

too! That was the funnest thing to see them sitting by hiself!! Big

Boy!!

Lacy

Waydon's mom 8.5 months

DOC band 2 weeks

> We just got back from our weekly appointment at CT and Jack has just

> one more week left -- maybe even less if he keeps growing like he has

> been. We are so excited. And he is starting to sit so Mommy is telling

> everyone she meets about her " perfect " child. My husband suggested for

> his last helmet decoration that we put " If you believed the People

> article, you don't know Jack! "

>

> Giving some of the recent posts, I just wanted to say something about

> this board. I want to thank everyone, especially the moderators, on

> this board. Reading about everyone's experience (good and bad),

> questions, issues, progress has been so helpful, inspiring, and, sadly,

> at times, heartbreaking. Having a group of parents who are going the

> through the same thing -- I can't express how helpful that has been and

> how much it has helped me. Seeing those cute faces and the amazing

> improvements (no matter what method - repo, hanger, starband, doc)

> really helped in the beginning of this process. Before I knew much

> about his severity or what the helmet would be like, those pictures

> gave me the hope I was looking for, I knew he could be fixed and made,

> to quote People Magazie, " PERFECT " again. For me, that is one of the

> important functions of this board as well. Giving us parents the outlet

> and hope we need to help our children.

>

>

> Mom to Jack (5 months, tort/plagio)

> Doc Band 6/2/05 -- grad hopefully 6/13/05

[Guest guest]

Christie,

His first quote didn't use Jack but a bad word ... I

said don't think I can put that word on his helmet. So

then he came up with the idea of Jack.

We will be doing an exit cast. After hearing 's

story of regression, which I know only 1% regress, I

want that reassurance that I can go in and see if his

head has changed. And he did well with the first

casting so I think he can handle another one.

His rounding has been amazing. We did repo from his

diagnosis at 2 months to when he got the helmet at 4

months. And we saw improvement from that. So I highly

encourage parents, even if they decide to band, to try

to repo as much as possible, no matter the age. He was

young so it was easy or rather easier. I think at

first I was kinda like, okay we are going to band so I

don't have to worry about it anymore and then kicked

myself after a few minutes saying anything I can do to

improve him before we band is less time in the band.

He was hard to repo at night but for the rest of the

time we tried really hard to keep him off the spot and

tons of tummy time. Now I can't keep him on his back.

He immediately rolls to tummy. I think it cut down his

time somewhat from a possible 8 weeks to 6. (I have

pics posted from his initial consult to the day we

casted under Jack so you can see the improvement from

repo there.). At the mid way point I said to my

husband " If this is as good as it gets, I am happy. "

So we just have a little corner in the back and behind

the ears and I am also hoping for some post band

rounding as well. The ears have really improved, not

perfect but so much better.

--- redlocks2003 <redlocks@...> wrote:

> ,

>

> I absolutely love your husband's idea for the final

> helmet

> decoration, how hilarious!

>

> Wow, only a week more, I know you all must be so

> excited!! Will you

> be doing an exit cast? How would you say Jack's

> rounding has been

> overall now that his treatment is nearly finished?

>

> Please update us if he graduates early,

>

> Take care,

>

> Christie (Mom to Repo'd Remy)

>

>

> > We just got back from our weekly appointment at CT

> and Jack has

> just

> > one more week left -- maybe even less if he keeps

> growing like he

> has

> > been. We are so excited. And he is starting to sit

> so Mommy is

> telling

> > everyone she meets about her " perfect " child. My

> husband suggested

> for

> > his last helmet decoration that we put " If you

> believed the People

> > article, you don't know Jack! "

> >

> > Giving some of the recent posts, I just wanted to

> say something

> about

> > this board. I want to thank everyone, especially

> the moderators,

> on

> > this board. Reading about everyone's experience

> (good and bad),

> > questions, issues, progress has been so helpful,

> inspiring, and,

> sadly,

> > at times, heartbreaking. Having a group of parents

> who are going

> the

> > through the same thing -- I can't express how

> helpful that has

> been and

> > how much it has helped me. Seeing those cute faces

> and the amazing

> > improvements (no matter what method - repo,

> hanger, starband, doc)

> > really helped in the beginning of this process.

> Before I knew much

> > about his severity or what the helmet would be

> like, those

> pictures

> > gave me the hope I was looking for, I knew he

> could be fixed and

> made,

> > to quote People Magazie, " PERFECT " again. For me,

> that is one of

> the

> > important functions of this board as well. Giving

> us parents the

> outlet

> > and hope we need to help our children.

> >

> >

> > Mom to Jack (5 months, tort/plagio)

> > Doc Band 6/2/05 -- grad hopefully 6/13/05

>

>

>

____________________________________________________

Sell on Auctions – no fees. Bid on great items.

http://auctions./

[Guest guest]

Christie,

His first quote didn't use Jack but a bad word ... I

said don't think I can put that word on his helmet. So

then he came up with the idea of Jack.

We will be doing an exit cast. After hearing 's

story of regression, which I know only 1% regress, I

want that reassurance that I can go in and see if his

head has changed. And he did well with the first

casting so I think he can handle another one.

His rounding has been amazing. We did repo from his

diagnosis at 2 months to when he got the helmet at 4

months. And we saw improvement from that. So I highly

encourage parents, even if they decide to band, to try

to repo as much as possible, no matter the age. He was

young so it was easy or rather easier. I think at

first I was kinda like, okay we are going to band so I

don't have to worry about it anymore and then kicked

myself after a few minutes saying anything I can do to

improve him before we band is less time in the band.

He was hard to repo at night but for the rest of the

time we tried really hard to keep him off the spot and

tons of tummy time. Now I can't keep him on his back.

He immediately rolls to tummy. I think it cut down his

time somewhat from a possible 8 weeks to 6. (I have

pics posted from his initial consult to the day we

casted under Jack so you can see the improvement from

repo there.). At the mid way point I said to my

husband " If this is as good as it gets, I am happy. "

So we just have a little corner in the back and behind

the ears and I am also hoping for some post band

rounding as well. The ears have really improved, not

perfect but so much better.

--- redlocks2003 <redlocks@...> wrote:

> ,

>

> I absolutely love your husband's idea for the final

> helmet

> decoration, how hilarious!

>

> Wow, only a week more, I know you all must be so

> excited!! Will you

> be doing an exit cast? How would you say Jack's

> rounding has been

> overall now that his treatment is nearly finished?

>

> Please update us if he graduates early,

>

> Take care,

>

> Christie (Mom to Repo'd Remy)

>

>

> > We just got back from our weekly appointment at CT

> and Jack has

> just

> > one more week left -- maybe even less if he keeps

> growing like he

> has

> > been. We are so excited. And he is starting to sit

> so Mommy is

> telling

> > everyone she meets about her " perfect " child. My

> husband suggested

> for

> > his last helmet decoration that we put " If you

> believed the People

> > article, you don't know Jack! "

> >

> > Giving some of the recent posts, I just wanted to

> say something

> about

> > this board. I want to thank everyone, especially

> the moderators,

> on

> > this board. Reading about everyone's experience

> (good and bad),

> > questions, issues, progress has been so helpful,

> inspiring, and,

> sadly,

> > at times, heartbreaking. Having a group of parents

> who are going

> the

> > through the same thing -- I can't express how

> helpful that has

> been and

> > how much it has helped me. Seeing those cute faces

> and the amazing

> > improvements (no matter what method - repo,

> hanger, starband, doc)

> > really helped in the beginning of this process.

> Before I knew much

> > about his severity or what the helmet would be

> like, those

> pictures

> > gave me the hope I was looking for, I knew he

> could be fixed and

> made,

> > to quote People Magazie, " PERFECT " again. For me,

> that is one of

> the

> > important functions of this board as well. Giving

> us parents the

> outlet

> > and hope we need to help our children.

> >

> >

> > Mom to Jack (5 months, tort/plagio)

> > Doc Band 6/2/05 -- grad hopefully 6/13/05

>

>

>

____________________________________________________

Sell on Auctions – no fees. Bid on great items.

http://auctions./

[Guest guest]

" If you believed the People

article, you don't know Jack! "

,

I love it!! lol Let us know when your little man is an official grad.

--- In Plagiocephaly , " pennylac " <pennylac@y...>

wrote:

> We just got back from our weekly appointment at CT and Jack has

just

> one more week left -- maybe even less if he keeps growing like he

has

> been. We are so excited. And he is starting to sit so Mommy is

telling

> everyone she meets about her " perfect " child. My husband suggested

for

> his last helmet decoration that we put " If you believed the People

> article, you don't know Jack! "

>

> Giving some of the recent posts, I just wanted to say something

about

> this board. I want to thank everyone, especially the moderators, on

> this board. Reading about everyone's experience (good and bad),

> questions, issues, progress has been so helpful, inspiring, and,

sadly,

> at times, heartbreaking. Having a group of parents who are going

the

> through the same thing -- I can't express how helpful that has been

and

> how much it has helped me. Seeing those cute faces and the amazing

> improvements (no matter what method - repo, hanger, starband, doc)

> really helped in the beginning of this process. Before I knew much

> about his severity or what the helmet would be like, those pictures

> gave me the hope I was looking for, I knew he could be fixed and

made,

> to quote People Magazie, " PERFECT " again. For me, that is one of

the

> important functions of this board as well. Giving us parents the

outlet

> and hope we need to help our children.

>

>

> Mom to Jack (5 months, tort/plagio)

> Doc Band 6/2/05 -- grad hopefully 6/13/05

[Guest guest]

" If you believed the People

article, you don't know Jack! "

,

I love it!! lol Let us know when your little man is an official grad.

--- In Plagiocephaly , " pennylac " <pennylac@y...>

wrote:

> We just got back from our weekly appointment at CT and Jack has

just

> one more week left -- maybe even less if he keeps growing like he

has

> been. We are so excited. And he is starting to sit so Mommy is

telling

> everyone she meets about her " perfect " child. My husband suggested

for

> his last helmet decoration that we put " If you believed the People

> article, you don't know Jack! "

>

> Giving some of the recent posts, I just wanted to say something

about

> this board. I want to thank everyone, especially the moderators, on

> this board. Reading about everyone's experience (good and bad),

> questions, issues, progress has been so helpful, inspiring, and,

sadly,

> at times, heartbreaking. Having a group of parents who are going

the

> through the same thing -- I can't express how helpful that has been

and

> how much it has helped me. Seeing those cute faces and the amazing

> improvements (no matter what method - repo, hanger, starband, doc)

> really helped in the beginning of this process. Before I knew much

> about his severity or what the helmet would be like, those pictures

> gave me the hope I was looking for, I knew he could be fixed and

made,

> to quote People Magazie, " PERFECT " again. For me, that is one of

the

> important functions of this board as well. Giving us parents the

outlet

> and hope we need to help our children.

>

>

> Mom to Jack (5 months, tort/plagio)

> Doc Band 6/2/05 -- grad hopefully 6/13/05