Re: Hello, I'm new

[Guest guest]

Greta,

I have so much to share with you, but I'll do that when I send Dom's

story. We have feeding issues, some sensory integration issue, and

vision issues still at this time and we are now facing a small set

back in ROM(this can happen), but Dominick threw all thier goals out

the window when we really got going with PT. He was supposed to be

able to sit up unassisted by June, well he did that in April,lol. I

hope you get the same results. Why doesn't he eat, does he have

problems with eating( gagging, crying,texture in food)? I would look

more towards the toddler Ensure shakes or that sort of product rather

than extra fats. I am trying to finish Dominick's website this

weekend, so if I get it done I will send you the link, if not I will

e-mail you his whole story.

CAROLG

> > Hello. I'm new to this group thanks to reading all the comments

on

> > plagio.org. I guess People magazine may have done one good

thing,

> > brining more parents w/plagio children together. My son Adam

is

> > turning 1yr old in a week. Unfortunately we are getting a late

> start

> > on treatment but are very hopeful. Initially we were sent for

> > physical therapy because he was not sitting up yet at 9mo. It

was

> > his P.T. who suggested we consult about a helmet. Of course my

> first

> > thought was No, I'm not putting my son through that, but then I

got

> > right on the internet and learned more about positional plagio.

In

> a

> > short time it was YES. It feels like we've been through a lot,

but

> > we keep in mind Adam doesn't need surgery so we are grateful.

Adam

> > was diagnosed w/severe plagiocephaly, severe torticolis, he has

> > delayed gross motor and fine motor skills. I was shocked to

hear

> > the shape of his head was the major factor in all of this. We

did

> > get sent for genetic consultation to rule out the genetic

factor &

> > we got the all clear there. Physical therapy alone has already

done

> > wonders for Adam. He will get his helmet 7/12 & everyone is

> hopeful.

> > At first it was hard for me to imagine not seeing my beautiful

boy

> > w/o a helmet. He has such cute fly away hair but as I look at

other

> > kids in their helmets, they are so darn cute too & the helmets

> don't

> > look at all like I had imagined. I'm so glad they no longer

have

> > the straps. I actually can't wait to see how cute Adam will be

> > w/his helmet on, a smile on his face, and his blue eyes

sparkling!

> > His helmet will be light blue to compliment his eyes! I can't

tell

> > you what a comfort it has already been to read the comments on

the

> > plagio website and how much more I have learned. Thank you all

for

> > sharing and you'll never know how much it means to us parents

who

> > are just getting into this. I hope Adam adjusts easily because

it

> is

> > so hard not to do exactly what he wants. I would love to hear

from

> > anyone, but if there is someone who started their child as late

as

> > we are I'd love to hear your results and story. - Greta

>

>

>

>

> For more plagio info