Re: Calling all Silly Yaks ! )

[Guest guest]

I am typing this for my daughter Lucy, who is 5.

>Independent Study Survey For Those Affected With Celiac Disease

>

>

>1. What is your age?

>

> A. 12 and younger 5yrs old

>

>2. What is your gender?

>

> B. Female

>

>3. What is your description of Celiac Disease?

> " I have to be gluten free. If I eat gluten it will hurt my tummy and I

will get sick. "

>4. What have been your symptoms before diagnosis?

" My tummy hurt some and I never told Mommy. " I didn't know then that Lucy

was in pain, but now that I look back it makes sense. She was becoming more

clingy and needy of me (her mother). She would cry when I dropped her off at

classes with people she's known all her life. I couldn't figure out what was

going on. Now I realize she wasn't feeling good. Lucy was very sleepy and hard

to wake up, lethargic, distracted, very shy and quiet. She had bad

constipation, almost no appetite, and has been growing less as she got older.

She is on the short side, but not unusually so. Our pediatrician wasn't worried

about her height, said that was probably her build. I was planning to ask about

the other issues at her yearly check up, but then we took the blood test because

her cousin has CD, and I started reading about CD, and I had a strong suspicion

that's what it was. We had the blood test in May and Lucy's diagnoses was

completed via endoscopy and biopsy in July. She has been GF since Aug. Now she

is happy, lively, talkative, energetic. People have said she seems " completely

different " and " healthy. " Her bowel problems are gone, she eats much more than

ever, she's gained weight and grown since the summer. While I am not happy she

has CD, I couldn't be more pleased with the results of her GF diet.

>5. How many people do you know that have Celiac Disease?

>

> A. 0-2 My cousin and my Daddy

>6. How long did it take for Celiac Disease to become your diagnosis?

>

> A. 1-6 months

>7. Have you been to a restaurant since you were diagnosed?

>

> B. No

>

>8. Have you had any bad experiences with uncooperative restaurants?

>

> B. No

>

>9. How long have you been diagnosed and gluten free?

>

> B. 2-6 months

>

>10. Have you ever heard of Celiac Disease before your diagnosis?

>

> A. Yes From my cousin

>

>11. Do you think there is enough awareness about Celiac Disease?

>

> B. No

>

>12. Do you eat a lot of mainstream foods?

>

> A. Yes (snack foods) and B. No (regular meals)

>

>Any other comments or opinions?

" I am sad that I don't get to eat other food that I like, but sometimes I am

happy because I get to have some things I like, like M & Ms. And I like having

Celiac with my Daddy. I love my Daddy. The food my Mommy makes is very

delicious. Sometimes I get to have things that I really like and nobody else

can have. I like pretending my dollies have Celiac too. "

>

>Thank You for completing my survey!

>

>~

>

>

>

>

>

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[Guest guest]

Filling this out for my daughter

Independent Study Survey For Those Affected With Celiac Disease1. What is your age? A. 12 and younger

2. What is your gender? B. Female3. What is your description of Celiac Disease?An autoimmune disorder where the body attacks itself when gluten is ingested. ______________________________________________________________________4. What have been your symptoms before diagnosis?___Severe diarrhea (up to 12 BM's a day), rashes, unable to be potty trained, speech delay (improved when on the diet), decreased concentration, malnourishment and decreased growth, excess hunger, reflux, decreased immune system and multiple infections. ___________________________________________________________________5. How many people do you know that have Celiac Disease?

D. 10 or above6. How long did it take for Celiac Disease to become your diagnosis? E. 3 years or longer7. Have you been to a restaurant since you were diagnosed? A. Yes

8. Have you had any bad experiences with uncooperative restaurants? A. Yes

9. How long have you been diagnosed and gluten free? C. 7-12 months 10. Have you ever heard of Celiac Disease before your diagnosis? A. Yes 11. Do you think there is enough awareness about Celiac Disease? B. No12. Do you eat a lot of mainstream foods? B. NoAny other comments or opinions?________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________Thank You for completing my survey!~

[Guest guest]

Independent Study Survey For Those Affected With Celiac Disease1. What is your age? 52

2. What is your gender? female 3. What is your description of Celiac Disease?An autoimmune disorder where the body attacks itself when gluten is ingested. ______________________________________________________________________4. What have been your symptoms before diagnosis?___Severe diarrhea (up to 12 BM's a day), rashes, decreased immune system and multiple infections. ___________________________________________________________________5. How many people do you know that have Celiac Disease?

D. 10 or above6. How long did it take for Celiac Disease to become your diagnosis? E. 3 years or longer7. Have you been to a restaurant since you were diagnosed? A. Yes

8. Have you had any bad experiences with uncooperative restaurants? A. no

9. How long have you been diagnosed and gluten free? C. 3 1/2 years 10. Have you ever heard of Celiac Disease before your diagnosis? A. Yes 11. Do you think there is enough awareness about Celiac Disease? B. No12. Do you eat a lot of mainstream foods? B. Yes, as long as it is GFAny other comments or opinions?________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________Thank You for completing my survey!~

[Guest guest]

Independent Study Survey For Those Affected With Celiac Disease1. What is your age? 52

2. What is your gender? female 3. What is your description of Celiac Disease?An autoimmune disorder where the body attacks itself when gluten is ingested. ______________________________________________________________________4. What have been your symptoms before diagnosis?___Severe diarrhea (up to 12 BM's a day), rashes, decreased immune system and multiple infections. ___________________________________________________________________5. How many people do you know that have Celiac Disease?

D. 10 or above6. How long did it take for Celiac Disease to become your diagnosis? E. 3 years or longer7. Have you been to a restaurant since you were diagnosed? A. Yes

8. Have you had any bad experiences with uncooperative restaurants? A. no

9. How long have you been diagnosed and gluten free? C. 3 1/2 years 10. Have you ever heard of Celiac Disease before your diagnosis? A. Yes 11. Do you think there is enough awareness about Celiac Disease? B. No12. Do you eat a lot of mainstream foods? B. Yes, as long as it is GFAny other comments or opinions?________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________Thank You for completing my survey!~

[Guest guest]

Independent Study Survey For Those Affected With Celiac Disease1. What is your age? 52

2. What is your gender? female 3. What is your description of Celiac Disease?An autoimmune disorder where the body attacks itself when gluten is ingested. ______________________________________________________________________4. What have been your symptoms before diagnosis?___Severe diarrhea (up to 12 BM's a day), rashes, decreased immune system and multiple infections. ___________________________________________________________________5. How many people do you know that have Celiac Disease?

D. 10 or above6. How long did it take for Celiac Disease to become your diagnosis? E. 3 years or longer7. Have you been to a restaurant since you were diagnosed? A. Yes

8. Have you had any bad experiences with uncooperative restaurants? A. no

9. How long have you been diagnosed and gluten free? C. 3 1/2 years 10. Have you ever heard of Celiac Disease before your diagnosis? A. Yes 11. Do you think there is enough awareness about Celiac Disease? B. No12. Do you eat a lot of mainstream foods? B. Yes, as long as it is GFAny other comments or opinions?________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________Thank You for completing my survey!~

[Guest guest]

,

Good luck with your project. Here are my answers to your survey:

> Independent Study Survey For Those Affected With Celiac Disease

> 1. What is your age?

D. 31 or older

> 2. What is your gender?

> B. Female

>

> 3. What is your description of Celiac Disease?

>

> Celiac Disease is an auto-immune disorder caused by a genetic

intolerance to gluten, a protein chain found in wheat, barley, and

rye.>

>

> 4. What have been your symptoms before diagnosis?

>

>Daily low-level nausea, a malfunctioning gall bladder, fatigue,

anemia, osteopenia, ADHD

>

> 5. How many people do you know that have Celiac Disease?

>

> B. 3-6

> >

> 6. How long did it take for Celiac Disease to become your

diagnosis?

>

> E. 3 years or longer

>

> 7. Have you been to a restaurant since you were diagnosed?

>

> A. Yes

>

>

> 8. Have you had any bad experiences with uncooperative restaurants?

>

> B. No

>

> 9. How long have you been diagnosed and gluten free?

>

> C. 7-12 months>

> 10. Have you ever heard of Celiac Disease before your diagnosis?

>

> A. Yes

>

> 11. Do you think there is enough awareness about Celiac Disease?

>

> B. No

>

> 12. Do you eat a lot of mainstream foods?

>

> A. Yes

>

> Any other comments or opinions?

>

> I'm really wishing for a non-contaminated oatmeal, really good

bread, and more restaurants with gluten-free menus!>

> >

[Guest guest]

,

Good luck with your project. Here are my answers to your survey:

> Independent Study Survey For Those Affected With Celiac Disease

> 1. What is your age?

D. 31 or older

> 2. What is your gender?

> B. Female

>

> 3. What is your description of Celiac Disease?

>

> Celiac Disease is an auto-immune disorder caused by a genetic

intolerance to gluten, a protein chain found in wheat, barley, and

rye.>

>

> 4. What have been your symptoms before diagnosis?

>

>Daily low-level nausea, a malfunctioning gall bladder, fatigue,

anemia, osteopenia, ADHD

>

> 5. How many people do you know that have Celiac Disease?

>

> B. 3-6

> >

> 6. How long did it take for Celiac Disease to become your

diagnosis?

>

> E. 3 years or longer

>

> 7. Have you been to a restaurant since you were diagnosed?

>

> A. Yes

>

>

> 8. Have you had any bad experiences with uncooperative restaurants?

>

> B. No

>

> 9. How long have you been diagnosed and gluten free?

>

> C. 7-12 months>

> 10. Have you ever heard of Celiac Disease before your diagnosis?

>

> A. Yes

>

> 11. Do you think there is enough awareness about Celiac Disease?

>

> B. No

>

> 12. Do you eat a lot of mainstream foods?

>

> A. Yes

>

> Any other comments or opinions?

>

> I'm really wishing for a non-contaminated oatmeal, really good

bread, and more restaurants with gluten-free menus!>

> >