Re: Friend having a rejection episode

[Guest guest]

Thank you for the information, Rita, and I hope that they are able

to save your friends kidney.

The same issue was brought up by my old dialysis center that I still

keep in touch with. They recently got a young girl there on

emergency dialysis that had had her kidney for 1 year. Supposedly

she lost the kidney after a bout with the flu, when she couldn't

keep all of her anti-rejection meds down. She did not call her tx

center, in which they would've done something to help her. So that

was another good warning that I need to always keep in contact with

the tx center and NEVER miss a dosage of the medication or the time

of day that I take it.

>

> Dear all,

>

> This is a warning message for all of you who have a transplant or

> who will one in future. My friend has a kidney transplant for 7

> years. The kidney was working great (creatinine about 1.4-1.5) all

> the past 7 years. He was strong and healthy, probably he felt so

> well that he forgot sometimes about his condition and he was not

so

> careful during the last month with medication. As a result he felt

> bad and rush into hospital and found that his creatinine was 7.5.

> Now he is still at hospital, the doctors are trying to save his

> kidney. He is on a crazy dosis of corticosteroids. He is also

having

> dialysis again. There is still some hope that they can save his

> kidney. His doctor was very angry with him, it is a hard work for

> the renal team to keep working a transplant which implies regular

> follows up and when this happens they felt that their patient has

> failed to the commitment. I am also very angry with him, because

> form me it was very encorouging seeing him doing so well, and all

> this could be avoided.

> So this a warning for those people with a transplant, " you should

> never miss any dossage of your medication " .

> Take care,

> Rita

[Guest guest]

Thank you for the information, Rita, and I hope that they are able

to save your friends kidney.

The same issue was brought up by my old dialysis center that I still

keep in touch with. They recently got a young girl there on

emergency dialysis that had had her kidney for 1 year. Supposedly

she lost the kidney after a bout with the flu, when she couldn't

keep all of her anti-rejection meds down. She did not call her tx

center, in which they would've done something to help her. So that

was another good warning that I need to always keep in contact with

the tx center and NEVER miss a dosage of the medication or the time

of day that I take it.

>

> Dear all,

>

> This is a warning message for all of you who have a transplant or

> who will one in future. My friend has a kidney transplant for 7

> years. The kidney was working great (creatinine about 1.4-1.5) all

> the past 7 years. He was strong and healthy, probably he felt so

> well that he forgot sometimes about his condition and he was not

so

> careful during the last month with medication. As a result he felt

> bad and rush into hospital and found that his creatinine was 7.5.

> Now he is still at hospital, the doctors are trying to save his

> kidney. He is on a crazy dosis of corticosteroids. He is also

having

> dialysis again. There is still some hope that they can save his

> kidney. His doctor was very angry with him, it is a hard work for

> the renal team to keep working a transplant which implies regular

> follows up and when this happens they felt that their patient has

> failed to the commitment. I am also very angry with him, because

> form me it was very encorouging seeing him doing so well, and all

> this could be avoided.

> So this a warning for those people with a transplant, " you should

> never miss any dossage of your medication " .

> Take care,

> Rita

[Guest guest]

Thank you for the information, Rita, and I hope that they are able

to save your friends kidney.

The same issue was brought up by my old dialysis center that I still

keep in touch with. They recently got a young girl there on

emergency dialysis that had had her kidney for 1 year. Supposedly

she lost the kidney after a bout with the flu, when she couldn't

keep all of her anti-rejection meds down. She did not call her tx

center, in which they would've done something to help her. So that

was another good warning that I need to always keep in contact with

the tx center and NEVER miss a dosage of the medication or the time

of day that I take it.

>

> Dear all,

>

> This is a warning message for all of you who have a transplant or

> who will one in future. My friend has a kidney transplant for 7

> years. The kidney was working great (creatinine about 1.4-1.5) all

> the past 7 years. He was strong and healthy, probably he felt so

> well that he forgot sometimes about his condition and he was not

so

> careful during the last month with medication. As a result he felt

> bad and rush into hospital and found that his creatinine was 7.5.

> Now he is still at hospital, the doctors are trying to save his

> kidney. He is on a crazy dosis of corticosteroids. He is also

having

> dialysis again. There is still some hope that they can save his

> kidney. His doctor was very angry with him, it is a hard work for

> the renal team to keep working a transplant which implies regular

> follows up and when this happens they felt that their patient has

> failed to the commitment. I am also very angry with him, because

> form me it was very encorouging seeing him doing so well, and all

> this could be avoided.

> So this a warning for those people with a transplant, " you should

> never miss any dossage of your medication " .

> Take care,

> Rita

[Guest guest]

Hi Rita,

Thank you so much for this warning. It is one I certainly take to heart

because I hate taking meds so much, and have been known to forget from time to

time! Very bad of me, I know. I actually had a dream the other night that I

went to my neph and threw all my meds at him and told him I was sick of taking

all these pills and that he could pick two and that is all I was going to take

:-) Guess it is that little rebellious side of me coming out in my dreams :-)

I will have to make sure when I get my transplant to be very disciplined.

Hope you are doing OK Rita.

[Guest guest]

I hope they can save the kidney. I guess anyone of us could get a little

lackadaisical about the medication after many years like that. I recall last

year when I had my transplant evaluation, they really stressed that in every

interview I had with every member of the team.

Pierre

Re: Friend having a rejection episode

> Thank you for the information, Rita, and I hope that they are able

> to save your friends kidney.

> The same issue was brought up by my old dialysis center that I still

> keep in touch with. They recently got a young girl there on

> emergency dialysis that had had her kidney for 1 year. Supposedly

> she lost the kidney after a bout with the flu, when she couldn't

> keep all of her anti-rejection meds down. She did not call her tx

> center, in which they would've done something to help her. So that

> was another good warning that I need to always keep in contact with

> the tx center and NEVER miss a dosage of the medication or the time

> of day that I take it.

>

>

>

>

[Guest guest]

I hope they can save the kidney. I guess anyone of us could get a little

lackadaisical about the medication after many years like that. I recall last

year when I had my transplant evaluation, they really stressed that in every

interview I had with every member of the team.

Pierre

Re: Friend having a rejection episode

> Thank you for the information, Rita, and I hope that they are able

> to save your friends kidney.

> The same issue was brought up by my old dialysis center that I still

> keep in touch with. They recently got a young girl there on

> emergency dialysis that had had her kidney for 1 year. Supposedly

> she lost the kidney after a bout with the flu, when she couldn't

> keep all of her anti-rejection meds down. She did not call her tx

> center, in which they would've done something to help her. So that

> was another good warning that I need to always keep in contact with

> the tx center and NEVER miss a dosage of the medication or the time

> of day that I take it.

>

>

>

>

[Guest guest]

I hope they can save the kidney. I guess anyone of us could get a little

lackadaisical about the medication after many years like that. I recall last

year when I had my transplant evaluation, they really stressed that in every

interview I had with every member of the team.

Pierre

Re: Friend having a rejection episode

> Thank you for the information, Rita, and I hope that they are able

> to save your friends kidney.

> The same issue was brought up by my old dialysis center that I still

> keep in touch with. They recently got a young girl there on

> emergency dialysis that had had her kidney for 1 year. Supposedly

> she lost the kidney after a bout with the flu, when she couldn't

> keep all of her anti-rejection meds down. She did not call her tx

> center, in which they would've done something to help her. So that

> was another good warning that I need to always keep in contact with

> the tx center and NEVER miss a dosage of the medication or the time

> of day that I take it.

>

>

>

>

[Guest guest]

Coming back agian to my friend´s rejection episode, he said to me

that he was very stressed lately with things related to work, also

he lost his father recently, and all this plays its roll and he was

not so careful with meds. Also keep in mind that he is still a young

man of 39 years old, with an active social life which implies he

goes out at night and he can not take medications in the time they

should be taken or he misses them. The funiest thing is that he is

an educated person, he is medical doctor!!!. But I think that if one

feels well like us with a mild IGAN or with a good transplant, we

tend to relax and forget about our conditions. We are humans and we

can not be thinking that we are ill the 24 h of the day. But again

we are sometimes stressed by the daily little things and forget

about big issues like our health.

Anyway he is staying positive. He was surprised about how

immunossupresants have developed since he had his transplant in 97.

Before for a second transplant it was more difficult to get a good

match because of the antobodies of the prior transplant. However

this problem seems to have been solved with the new meds. So this is

encorouging. I met my friend two years ago at the same time I joined

this forum and both have been a valuable support for me. So this

situation is affecting me quite a lot.

Well again the aim of me telling you this story is that we have to

learn from other people´s mistake and NEVER NEVER miss the

medication. A transplant is too precious!!! and give the oportunity

of having again almost a normal life.

Rita

I hope they can save the kidney. I guess anyone of us could get a

little

> lackadaisical about the medication after many years like that. I

recall last

> year when I had my transplant evaluation, they really stressed

that in every

> interview I had with every member of the team.

> Pierre

>

> Re: Friend having a rejection episode

>

>

> > Thank you for the information, Rita, and I hope that they are

able

> > to save your friends kidney.

> > The same issue was brought up by my old dialysis center that I

still

> > keep in touch with. They recently got a young girl there on

> > emergency dialysis that had had her kidney for 1 year.

Supposedly

> > she lost the kidney after a bout with the flu, when she couldn't

> > keep all of her anti-rejection meds down. She did not call her

tx

> > center, in which they would've done something to help her. So

that

> > was another good warning that I need to always keep in contact

with

> > the tx center and NEVER miss a dosage of the medication or the

time

> > of day that I take it.

> >

> >

> >

> >

[Guest guest]

In a message dated 3/29/2004 10:11:25 AM Central Standard Time,

garymattcohen@... writes:

Post tx, the transplant team drums it into your head about the meds and

missing a dose. I think I left the hospital chanting " must take meds, must take

meds... "

I agree. I was 22 when I was transplanted - young enough for the transplant

team to emphasize that people just slightly younger had a bad habit of stopping

their meds. Lots of adolescents feel they are being disfigured by the meds,

especially if they are taking prednisone to prevent rejection.

Robin s

[Guest guest]

In a message dated 3/29/2004 10:11:25 AM Central Standard Time,

garymattcohen@... writes:

Post tx, the transplant team drums it into your head about the meds and

missing a dose. I think I left the hospital chanting " must take meds, must take

meds... "

I agree. I was 22 when I was transplanted - young enough for the transplant

team to emphasize that people just slightly younger had a bad habit of stopping

their meds. Lots of adolescents feel they are being disfigured by the meds,

especially if they are taking prednisone to prevent rejection.

Robin s

[Guest guest]

In a message dated 3/29/2004 10:11:25 AM Central Standard Time,

garymattcohen@... writes:

Post tx, the transplant team drums it into your head about the meds and

missing a dose. I think I left the hospital chanting " must take meds, must take

meds... "

I agree. I was 22 when I was transplanted - young enough for the transplant

team to emphasize that people just slightly younger had a bad habit of stopping

their meds. Lots of adolescents feel they are being disfigured by the meds,

especially if they are taking prednisone to prevent rejection.

Robin s

[Guest guest]

Same with me, since I was 22 when transplanted. I even get calls

from my old dialysis center telling me to keep on taking the meds.

I definitely will not stop doing it....life is WAY too good now

> In a message dated 3/29/2004 10:11:25 AM Central Standard Time,

> garymattcohen@y... writes:

> Post tx, the transplant team drums it into your head about the

meds and

> missing a dose. I think I left the hospital chanting " must take

meds, must take

> meds... "

>

> I agree. I was 22 when I was transplanted - young enough for the

transplant

> team to emphasize that people just slightly younger had a bad

habit of stopping

> their meds. Lots of adolescents feel they are being disfigured by

the meds,

> especially if they are taking prednisone to prevent rejection.

>

> Robin s

>

>

>

[Guest guest]

Wow, what a dream! You are so generous in your dreams! I read your post to

and both of us had a good laugh.

Cy

Re: Friend having a rejection episode

> Hi Rita,

>

> Thank you so much for this warning. It is one I certainly take to heart

> because I hate taking meds so much, and have been known to forget from

time to

> time! Very bad of me, I know. I actually had a dream the other night

that I

> went to my neph and threw all my meds at him and told him I was sick of

taking

> all these pills and that he could pick two and that is all I was going to

take

> :-) Guess it is that little rebellious side of me coming out in my dreams

:-)

>

> I will have to make sure when I get my transplant to be very disciplined.

>

> Hope you are doing OK Rita.

>

>

>

>

>

[Guest guest]

Wow, what a dream! You are so generous in your dreams! I read your post to

and both of us had a good laugh.

Cy

Re: Friend having a rejection episode

> Hi Rita,

>

> Thank you so much for this warning. It is one I certainly take to heart

> because I hate taking meds so much, and have been known to forget from

time to

> time! Very bad of me, I know. I actually had a dream the other night

that I

> went to my neph and threw all my meds at him and told him I was sick of

taking

> all these pills and that he could pick two and that is all I was going to

take

> :-) Guess it is that little rebellious side of me coming out in my dreams

:-)

>

> I will have to make sure when I get my transplant to be very disciplined.

>

> Hope you are doing OK Rita.

>

>

>

>

>

[Guest guest]

Wow, what a dream! You are so generous in your dreams! I read your post to

and both of us had a good laugh.

Cy

Re: Friend having a rejection episode

> Hi Rita,

>

> Thank you so much for this warning. It is one I certainly take to heart

> because I hate taking meds so much, and have been known to forget from

time to

> time! Very bad of me, I know. I actually had a dream the other night

that I

> went to my neph and threw all my meds at him and told him I was sick of

taking

> all these pills and that he could pick two and that is all I was going to

take

> :-) Guess it is that little rebellious side of me coming out in my dreams

:-)

>

> I will have to make sure when I get my transplant to be very disciplined.

>

> Hope you are doing OK Rita.

>

>

>

>

>

[Guest guest]

Cy,

Serves the thieves right to pop some of 's pills! What a violation to

go through getting your car broken into. I am sorry you and had to go

through that.

In a message dated 3/31/2004 7:53:02 PM Pacific Standard Time,

cyashleywebb@... writes:

> Somehow, I don't think it was quite the drug score that the thieves were

> looking for!

> Cy

>

[Guest guest]

Cy,

Serves the thieves right to pop some of 's pills! What a violation to

go through getting your car broken into. I am sorry you and had to go

through that.

In a message dated 3/31/2004 7:53:02 PM Pacific Standard Time,

cyashleywebb@... writes:

> Somehow, I don't think it was quite the drug score that the thieves were

> looking for!

> Cy

>

[Guest guest]

Thanks !

Cy

W4JC@... wrote:

Cy,

Serves the thieves right to pop some of 's pills! What a violation to

go through getting your car broken into. I am sorry you and had to go

through that.

In a message dated 3/31/2004 7:53:02 PM Pacific Standard Time,

cyashleywebb@... writes:

> Somehow, I don't think it was quite the drug score that the thieves were

> looking for!

> Cy

>

[Guest guest]

Thanks !

Cy

W4JC@... wrote:

Cy,

Serves the thieves right to pop some of 's pills! What a violation to

go through getting your car broken into. I am sorry you and had to go

through that.

In a message dated 3/31/2004 7:53:02 PM Pacific Standard Time,

cyashleywebb@... writes:

> Somehow, I don't think it was quite the drug score that the thieves were

> looking for!

> Cy

>

[Guest guest]

Thanks !

Cy

W4JC@... wrote:

Cy,

Serves the thieves right to pop some of 's pills! What a violation to

go through getting your car broken into. I am sorry you and had to go

through that.

In a message dated 3/31/2004 7:53:02 PM Pacific Standard Time,

cyashleywebb@... writes:

> Somehow, I don't think it was quite the drug score that the thieves were

> looking for!

> Cy

>