Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 just wait until talking about how foamy or not foamy your urine is at any given time becomes " normal " . My husband still gets that surreal feeling when that subject comes up in 'normal' conversation. You'll tend to find what's normal for this disease changes on a daily basis. Somedays you feel great, other days you can barely pull yourself out from under the covers. Somedays you get hit hard with depression and grief and other days you are walking on cloud nine. It's good to hear that you are talking about it with your family, don't forget to let them know about your fears and anxieties too, it will help them understand better how you are feeling about all of this. It's also very normal to have daily discussions regarding a newly diagnosed chronic illness. It's the human way to cope with a major change in life, as time goes by and you settle into the " new normal " those conversations will get further and further between....at least until your next set of lab results comes in. Amy it's surreal > I know it's late, at least it is in Texas, but I just wanted to say, > it's kinda surreal, sin't it. I was talking to a co-worker the other > day. I told her one of the strangest things about having t his > disease is that talking about kidneys and kidney function has become > an every day conversational topic. You know, at dinner and such. I > f someone had told me 5 years ago that I was gonna talk about kidneys > over the dinner table almost every night, I would have said they were > crazy. It's just constant talk and conjecture about the prognosis, > etc and lots of questions, and wondering what's normal. Anyways, my > friend sypathized. I told her I can't feel too sorry for myself > because everybody has some problem they have to deal with. Not > everyone has kidney failure, but everyone does worry about finances, > or has someone in their family with cancer, or a child who is not > turning out the way they would have liked. So, I guess I do the best > I can. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 just wait until talking about how foamy or not foamy your urine is at any given time becomes " normal " . My husband still gets that surreal feeling when that subject comes up in 'normal' conversation. You'll tend to find what's normal for this disease changes on a daily basis. Somedays you feel great, other days you can barely pull yourself out from under the covers. Somedays you get hit hard with depression and grief and other days you are walking on cloud nine. It's good to hear that you are talking about it with your family, don't forget to let them know about your fears and anxieties too, it will help them understand better how you are feeling about all of this. It's also very normal to have daily discussions regarding a newly diagnosed chronic illness. It's the human way to cope with a major change in life, as time goes by and you settle into the " new normal " those conversations will get further and further between....at least until your next set of lab results comes in. Amy it's surreal > I know it's late, at least it is in Texas, but I just wanted to say, > it's kinda surreal, sin't it. I was talking to a co-worker the other > day. I told her one of the strangest things about having t his > disease is that talking about kidneys and kidney function has become > an every day conversational topic. You know, at dinner and such. I > f someone had told me 5 years ago that I was gonna talk about kidneys > over the dinner table almost every night, I would have said they were > crazy. It's just constant talk and conjecture about the prognosis, > etc and lots of questions, and wondering what's normal. Anyways, my > friend sypathized. I told her I can't feel too sorry for myself > because everybody has some problem they have to deal with. Not > everyone has kidney failure, but everyone does worry about finances, > or has someone in their family with cancer, or a child who is not > turning out the way they would have liked. So, I guess I do the best > I can. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 just wait until talking about how foamy or not foamy your urine is at any given time becomes " normal " . My husband still gets that surreal feeling when that subject comes up in 'normal' conversation. You'll tend to find what's normal for this disease changes on a daily basis. Somedays you feel great, other days you can barely pull yourself out from under the covers. Somedays you get hit hard with depression and grief and other days you are walking on cloud nine. It's good to hear that you are talking about it with your family, don't forget to let them know about your fears and anxieties too, it will help them understand better how you are feeling about all of this. It's also very normal to have daily discussions regarding a newly diagnosed chronic illness. It's the human way to cope with a major change in life, as time goes by and you settle into the " new normal " those conversations will get further and further between....at least until your next set of lab results comes in. Amy it's surreal > I know it's late, at least it is in Texas, but I just wanted to say, > it's kinda surreal, sin't it. I was talking to a co-worker the other > day. I told her one of the strangest things about having t his > disease is that talking about kidneys and kidney function has become > an every day conversational topic. You know, at dinner and such. I > f someone had told me 5 years ago that I was gonna talk about kidneys > over the dinner table almost every night, I would have said they were > crazy. It's just constant talk and conjecture about the prognosis, > etc and lots of questions, and wondering what's normal. Anyways, my > friend sypathized. I told her I can't feel too sorry for myself > because everybody has some problem they have to deal with. Not > everyone has kidney failure, but everyone does worry about finances, > or has someone in their family with cancer, or a child who is not > turning out the way they would have liked. So, I guess I do the best > I can. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Amy, that was a wonderful post! Thanks for reminding us. Cy it's surreal > > > > I know it's late, at least it is in Texas, but I just wanted to say, > > it's kinda surreal, sin't it. I was talking to a co-worker the other > > day. I told her one of the strangest things about having t his > > disease is that talking about kidneys and kidney function has become > > an every day conversational topic. You know, at dinner and such. I > > f someone had told me 5 years ago that I was gonna talk about kidneys > > over the dinner table almost every night, I would have said they were > > crazy. It's just constant talk and conjecture about the prognosis, > > etc and lots of questions, and wondering what's normal. Anyways, my > > friend sypathized. I told her I can't feel too sorry for myself > > because everybody has some problem they have to deal with. Not > > everyone has kidney failure, but everyone does worry about finances, > > or has someone in their family with cancer, or a child who is not > > turning out the way they would have liked. So, I guess I do the best > > I can. > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Amy, that was a wonderful post! Thanks for reminding us. Cy it's surreal > > > > I know it's late, at least it is in Texas, but I just wanted to say, > > it's kinda surreal, sin't it. I was talking to a co-worker the other > > day. I told her one of the strangest things about having t his > > disease is that talking about kidneys and kidney function has become > > an every day conversational topic. You know, at dinner and such. I > > f someone had told me 5 years ago that I was gonna talk about kidneys > > over the dinner table almost every night, I would have said they were > > crazy. It's just constant talk and conjecture about the prognosis, > > etc and lots of questions, and wondering what's normal. Anyways, my > > friend sypathized. I told her I can't feel too sorry for myself > > because everybody has some problem they have to deal with. Not > > everyone has kidney failure, but everyone does worry about finances, > > or has someone in their family with cancer, or a child who is not > > turning out the way they would have liked. So, I guess I do the best > > I can. > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Amy, that was a wonderful post! Thanks for reminding us. Cy it's surreal > > > > I know it's late, at least it is in Texas, but I just wanted to say, > > it's kinda surreal, sin't it. I was talking to a co-worker the other > > day. I told her one of the strangest things about having t his > > disease is that talking about kidneys and kidney function has become > > an every day conversational topic. You know, at dinner and such. I > > f someone had told me 5 years ago that I was gonna talk about kidneys > > over the dinner table almost every night, I would have said they were > > crazy. It's just constant talk and conjecture about the prognosis, > > etc and lots of questions, and wondering what's normal. Anyways, my > > friend sypathized. I told her I can't feel too sorry for myself > > because everybody has some problem they have to deal with. Not > > everyone has kidney failure, but everyone does worry about finances, > > or has someone in their family with cancer, or a child who is not > > turning out the way they would have liked. So, I guess I do the best > > I can. > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi , I haven't been diagnosed yet but am suspected with IgAN. I know what you mean but I made a conscious decision NOT to let it take over my life - I've changed little about my lifestyle so far - I need to stop smoking and will but otherwise lead a relatively healthy life but have my wee blips - ie crisps and beer - I'm being more sensible but NOT letting it rule my life - saying that, my serum creatinine is still good - 104 altho my proteinuria is certainly worse that it was 6 months ago - who put the washing up liquid down the toilet??? ) It's not on the tip of my tongue - it's not going to be the be all and end all for me until it has to be!! Dave it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi , I haven't been diagnosed yet but am suspected with IgAN. I know what you mean but I made a conscious decision NOT to let it take over my life - I've changed little about my lifestyle so far - I need to stop smoking and will but otherwise lead a relatively healthy life but have my wee blips - ie crisps and beer - I'm being more sensible but NOT letting it rule my life - saying that, my serum creatinine is still good - 104 altho my proteinuria is certainly worse that it was 6 months ago - who put the washing up liquid down the toilet??? ) It's not on the tip of my tongue - it's not going to be the be all and end all for me until it has to be!! Dave it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi , I haven't been diagnosed yet but am suspected with IgAN. I know what you mean but I made a conscious decision NOT to let it take over my life - I've changed little about my lifestyle so far - I need to stop smoking and will but otherwise lead a relatively healthy life but have my wee blips - ie crisps and beer - I'm being more sensible but NOT letting it rule my life - saying that, my serum creatinine is still good - 104 altho my proteinuria is certainly worse that it was 6 months ago - who put the washing up liquid down the toilet??? ) It's not on the tip of my tongue - it's not going to be the be all and end all for me until it has to be!! Dave it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 LOL Amy - I I know what you mean ) Re: it's surreal just wait until talking about how foamy or not foamy your urine is at any given time becomes " normal " . ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.225 / Virus Database: 262.5.4 - Release Date: 18/03/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 LOL Amy - I I know what you mean ) Re: it's surreal just wait until talking about how foamy or not foamy your urine is at any given time becomes " normal " . ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.225 / Virus Database: 262.5.4 - Release Date: 18/03/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 LOL Amy - I I know what you mean ) Re: it's surreal just wait until talking about how foamy or not foamy your urine is at any given time becomes " normal " . ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.225 / Virus Database: 262.5.4 - Release Date: 18/03/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Thanks, Dave, I am just looking forward to getting the procrit shots, once I have a little energy and can work o.k, I won't worry too much about the rest. Are you one of the Canadians? _____ From: Dave Sent: Friday, March 19, 2004 5:29 PM To: iga-nephropathy Subject: Re: it's surreal Hi , I haven't been diagnosed yet but am suspected with IgAN. I know what you mean but I made a conscious decision NOT to let it take over my life - I've changed little about my lifestyle so far - I need to stop smoking and will but otherwise lead a relatively healthy life but have my wee blips - ie crisps and beer - I'm being more sensible but NOT letting it rule my life - saying that, my serum creatinine is still good - 104 altho my proteinuria is certainly worse that it was 6 months ago - who put the washing up liquid down the toilet??? ) It's not on the tip of my tongue - it's not going to be the be all and end all for me until it has to be!! Dave it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Thanks, Dave, I am just looking forward to getting the procrit shots, once I have a little energy and can work o.k, I won't worry too much about the rest. Are you one of the Canadians? _____ From: Dave Sent: Friday, March 19, 2004 5:29 PM To: iga-nephropathy Subject: Re: it's surreal Hi , I haven't been diagnosed yet but am suspected with IgAN. I know what you mean but I made a conscious decision NOT to let it take over my life - I've changed little about my lifestyle so far - I need to stop smoking and will but otherwise lead a relatively healthy life but have my wee blips - ie crisps and beer - I'm being more sensible but NOT letting it rule my life - saying that, my serum creatinine is still good - 104 altho my proteinuria is certainly worse that it was 6 months ago - who put the washing up liquid down the toilet??? ) It's not on the tip of my tongue - it's not going to be the be all and end all for me until it has to be!! Dave it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Thanks, Dave, I am just looking forward to getting the procrit shots, once I have a little energy and can work o.k, I won't worry too much about the rest. Are you one of the Canadians? _____ From: Dave Sent: Friday, March 19, 2004 5:29 PM To: iga-nephropathy Subject: Re: it's surreal Hi , I haven't been diagnosed yet but am suspected with IgAN. I know what you mean but I made a conscious decision NOT to let it take over my life - I've changed little about my lifestyle so far - I need to stop smoking and will but otherwise lead a relatively healthy life but have my wee blips - ie crisps and beer - I'm being more sensible but NOT letting it rule my life - saying that, my serum creatinine is still good - 104 altho my proteinuria is certainly worse that it was 6 months ago - who put the washing up liquid down the toilet??? ) It's not on the tip of my tongue - it's not going to be the be all and end all for me until it has to be!! Dave it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Dave, you are correct in not letting IgaN take over your life. I've been diagnosed with this disease for the last 2-3 years and I take the position that as long as I am able, I will continue living as I did before diagnosis. I'm 71 and extremely actively retired. Wintering in Florida, I am able to play tennis 4-5 times a week and golf once a week. Watch my diet and take the meds. What ever happens in the future will happen; I have no control over that. Jack (NY) In a message dated 3/19/2004 6:32:26 PM Eastern Standard Time, garradh@... writes: Hi , I haven't been diagnosed yet but am suspected with IgAN. I know what you mean but I made a conscious decision NOT to let it take over my life - I've changed little about my lifestyle so far - I need to stop smoking and will but otherwise lead a relatively healthy life but have my wee blips - ie crisps and beer - I'm being more sensible but NOT letting it rule my life - saying that, my serum creatinine is still good - 104 altho my proteinuria is certainly worse that it was 6 months ago - who put the washing up liquid down the toilet??? ) It's not on the tip of my tongue - it's not going to be the be all and end all for me until it has to be!! Dave it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Dave, you are correct in not letting IgaN take over your life. I've been diagnosed with this disease for the last 2-3 years and I take the position that as long as I am able, I will continue living as I did before diagnosis. I'm 71 and extremely actively retired. Wintering in Florida, I am able to play tennis 4-5 times a week and golf once a week. Watch my diet and take the meds. What ever happens in the future will happen; I have no control over that. Jack (NY) In a message dated 3/19/2004 6:32:26 PM Eastern Standard Time, garradh@... writes: Hi , I haven't been diagnosed yet but am suspected with IgAN. I know what you mean but I made a conscious decision NOT to let it take over my life - I've changed little about my lifestyle so far - I need to stop smoking and will but otherwise lead a relatively healthy life but have my wee blips - ie crisps and beer - I'm being more sensible but NOT letting it rule my life - saying that, my serum creatinine is still good - 104 altho my proteinuria is certainly worse that it was 6 months ago - who put the washing up liquid down the toilet??? ) It's not on the tip of my tongue - it's not going to be the be all and end all for me until it has to be!! Dave it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 HI leslie No, I'm a little further east that that, I'm in Scotland ) What about you? it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 HI leslie No, I'm a little further east that that, I'm in Scotland ) What about you? it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 HI leslie No, I'm a little further east that that, I'm in Scotland ) What about you? it's surreal I know it's late, at least it is in Texas, but I just wanted to say, it's kinda surreal, sin't it. I was talking to a co-worker the other day. I told her one of the strangest things about having t his disease is that talking about kidneys and kidney function has become an every day conversational topic. You know, at dinner and such. I f someone had told me 5 years ago that I was gonna talk about kidneys over the dinner table almost every night, I would have said they were crazy. It's just constant talk and conjecture about the prognosis, etc and lots of questions, and wondering what's normal. Anyways, my friend sypathized. I told her I can't feel too sorry for myself because everybody has some problem they have to deal with. Not everyone has kidney failure, but everyone does worry about finances, or has someone in their family with cancer, or a child who is not turning out the way they would have liked. So, I guess I do the best I can. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Jack! You play tennis at 71? You're putting me to shame ) Well done you! Dave it's surreal ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.225 / Virus Database: 262.5.4 - Release Date: 18/03/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Jack! You play tennis at 71? You're putting me to shame ) Well done you! Dave it's surreal ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.225 / Virus Database: 262.5.4 - Release Date: 18/03/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Jack, You never cease to amaze me. Do you mean you are playing tennis and golf that much on top of your running? You continually inspire me :-) In a message dated 3/20/2004 6:51:32 AM Pacific Standard Time, phyljack1@... writes: > I am able to play > tennis 4-5 times a week and golf once a week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Jack, You never cease to amaze me. Do you mean you are playing tennis and golf that much on top of your running? You continually inspire me :-) In a message dated 3/20/2004 6:51:32 AM Pacific Standard Time, phyljack1@... writes: > I am able to play > tennis 4-5 times a week and golf once a week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Jack, You never cease to amaze me. Do you mean you are playing tennis and golf that much on top of your running? You continually inspire me :-) In a message dated 3/20/2004 6:51:32 AM Pacific Standard Time, phyljack1@... writes: > I am able to play > tennis 4-5 times a week and golf once a week. Quote Link to comment Share on other sites More sharing options...
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