Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Marty, That is not good at all. Has your creatinine level dropped back down? Please keep us posted when you get your results of the JC and BK virus. You and take care of yourselves! In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, mrbluize2003@... writes: > What a coincidence. I was just looking at the site on your link last > week. I was in the hospital for 3 days because of pain at the > transplant site and decreased output. They sent my blood to a > reference lab to test for JC and BK viruses. I haven't gotten the > results yet. My serum creatinine went up to 2.1 and it normally runs > around 1.8. > > Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Marty, That is not good at all. Has your creatinine level dropped back down? Please keep us posted when you get your results of the JC and BK virus. You and take care of yourselves! In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, mrbluize2003@... writes: > What a coincidence. I was just looking at the site on your link last > week. I was in the hospital for 3 days because of pain at the > transplant site and decreased output. They sent my blood to a > reference lab to test for JC and BK viruses. I haven't gotten the > results yet. My serum creatinine went up to 2.1 and it normally runs > around 1.8. > > Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Marty, That is not good at all. Has your creatinine level dropped back down? Please keep us posted when you get your results of the JC and BK virus. You and take care of yourselves! In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, mrbluize2003@... writes: > What a coincidence. I was just looking at the site on your link last > week. I was in the hospital for 3 days because of pain at the > transplant site and decreased output. They sent my blood to a > reference lab to test for JC and BK viruses. I haven't gotten the > results yet. My serum creatinine went up to 2.1 and it normally runs > around 1.8. > > Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 That makes me feel better Marty. I am relieved it came back down to your baseline. In a message dated 3/18/2004 8:01:44 PM Pacific Standard Time, mrbluize2003@... writes: > The SCr did come back down to baseline and I'm feeling better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 That makes me feel better Marty. I am relieved it came back down to your baseline. In a message dated 3/18/2004 8:01:44 PM Pacific Standard Time, mrbluize2003@... writes: > The SCr did come back down to baseline and I'm feeling better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 That makes me feel better Marty. I am relieved it came back down to your baseline. In a message dated 3/18/2004 8:01:44 PM Pacific Standard Time, mrbluize2003@... writes: > The SCr did come back down to baseline and I'm feeling better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 , Your sisters just didn't want you to have the corner on all the medical fun :-) What a trying time for your family. I hope things settle down for all three of you, and very soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 , Your sisters just didn't want you to have the corner on all the medical fun :-) What a trying time for your family. I hope things settle down for all three of you, and very soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Hi , What a coincidence. I was just looking at the site on your link last week. I was in the hospital for 3 days because of pain at the transplant site and decreased output. They sent my blood to a reference lab to test for JC and BK viruses. I haven't gotten the results yet. My serum creatinine went up to 2.1 and it normally runs around 1.8. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Hi , What a coincidence. I was just looking at the site on your link last week. I was in the hospital for 3 days because of pain at the transplant site and decreased output. They sent my blood to a reference lab to test for JC and BK viruses. I haven't gotten the results yet. My serum creatinine went up to 2.1 and it normally runs around 1.8. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Thanks , The SCr did come back down to baseline and I'm feeling better. They gave me a bunch of IV Cipro because at one time, they thought I was septic. They later decided that the blood culture had been contaminated. Love, Marty > Marty, > > That is not good at all. Has your creatinine level dropped back down? > Please keep us posted when you get your results of the JC and BK virus. > > You and take care of yourselves! > > > > In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, > mrbluize2003@y... writes: > > > What a coincidence. I was just looking at the site on your link last > > week. I was in the hospital for 3 days because of pain at the > > transplant site and decreased output. They sent my blood to a > > reference lab to test for JC and BK viruses. I haven't gotten the > > results yet. My serum creatinine went up to 2.1 and it normally runs > > around 1.8. > > > > Marty > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Thanks , The SCr did come back down to baseline and I'm feeling better. They gave me a bunch of IV Cipro because at one time, they thought I was septic. They later decided that the blood culture had been contaminated. Love, Marty > Marty, > > That is not good at all. Has your creatinine level dropped back down? > Please keep us posted when you get your results of the JC and BK virus. > > You and take care of yourselves! > > > > In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, > mrbluize2003@y... writes: > > > What a coincidence. I was just looking at the site on your link last > > week. I was in the hospital for 3 days because of pain at the > > transplant site and decreased output. They sent my blood to a > > reference lab to test for JC and BK viruses. I haven't gotten the > > results yet. My serum creatinine went up to 2.1 and it normally runs > > around 1.8. > > > > Marty > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Thanks , The SCr did come back down to baseline and I'm feeling better. They gave me a bunch of IV Cipro because at one time, they thought I was septic. They later decided that the blood culture had been contaminated. Love, Marty > Marty, > > That is not good at all. Has your creatinine level dropped back down? > Please keep us posted when you get your results of the JC and BK virus. > > You and take care of yourselves! > > > > In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, > mrbluize2003@y... writes: > > > What a coincidence. I was just looking at the site on your link last > > week. I was in the hospital for 3 days because of pain at the > > transplant site and decreased output. They sent my blood to a > > reference lab to test for JC and BK viruses. I haven't gotten the > > results yet. My serum creatinine went up to 2.1 and it normally runs > > around 1.8. > > > > Marty > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Marty, it is an interesting thing. They say that it only gets about 5% of transplanted kidneys. Hope nether of us are in that group. Though, my doc says that it can be treated, but she says that the med is toxic. (tooooo?) sarah Re: BK virus Hi , What a coincidence. I was just looking at the site on your link last week. I was in the hospital for 3 days because of pain at the transplant site and decreased output. They sent my blood to a reference lab to test for JC and BK viruses. I haven't gotten the results yet. My serum creatinine went up to 2.1 and it normally runs around 1.8. Marty To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Marty, it is an interesting thing. They say that it only gets about 5% of transplanted kidneys. Hope nether of us are in that group. Though, my doc says that it can be treated, but she says that the med is toxic. (tooooo?) sarah Re: BK virus Hi , What a coincidence. I was just looking at the site on your link last week. I was in the hospital for 3 days because of pain at the transplant site and decreased output. They sent my blood to a reference lab to test for JC and BK viruses. I haven't gotten the results yet. My serum creatinine went up to 2.1 and it normally runs around 1.8. Marty To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 What has kind of ticked me is that it took a call from ME to get the docs to do something. I have gone from 1.2 to 1.7 is the since mid September. Your doc gets you at a much lower climb. I told the nurses that I wouldn't be concerned if my creatinine had started higher. Re: BK virus Thanks , The SCr did come back down to baseline and I'm feeling better. They gave me a bunch of IV Cipro because at one time, they thought I was septic. They later decided that the blood culture had been contaminated. Love, Marty > Marty, > > That is not good at all. Has your creatinine level dropped back down? > Please keep us posted when you get your results of the JC and BK virus. > > You and take care of yourselves! > > > > In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, > mrbluize2003@y... writes: > > > What a coincidence. I was just looking at the site on your link last > > week. I was in the hospital for 3 days because of pain at the > > transplant site and decreased output. They sent my blood to a > > reference lab to test for JC and BK viruses. I haven't gotten the > > results yet. My serum creatinine went up to 2.1 and it normally runs > > around 1.8. > > > > Marty > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 What has kind of ticked me is that it took a call from ME to get the docs to do something. I have gone from 1.2 to 1.7 is the since mid September. Your doc gets you at a much lower climb. I told the nurses that I wouldn't be concerned if my creatinine had started higher. Re: BK virus Thanks , The SCr did come back down to baseline and I'm feeling better. They gave me a bunch of IV Cipro because at one time, they thought I was septic. They later decided that the blood culture had been contaminated. Love, Marty > Marty, > > That is not good at all. Has your creatinine level dropped back down? > Please keep us posted when you get your results of the JC and BK virus. > > You and take care of yourselves! > > > > In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, > mrbluize2003@y... writes: > > > What a coincidence. I was just looking at the site on your link last > > week. I was in the hospital for 3 days because of pain at the > > transplant site and decreased output. They sent my blood to a > > reference lab to test for JC and BK viruses. I haven't gotten the > > results yet. My serum creatinine went up to 2.1 and it normally runs > > around 1.8. > > > > Marty > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Thank you . I want all of us to start taking good health seriously. Re: BK virus , Your sisters just didn't want you to have the corner on all the medical fun :-) What a trying time for your family. I hope things settle down for all three of you, and very soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 In my case, I went to the emergency room because I had been having pain around the transplant site. I didn't know what my S Cr was running. The docs basically wrote it off as being underhydrated when they discharged me. Funny thing is that I drink about 4 liters of water minimum per day. Marty > > Marty, > > > > That is not good at all. Has your creatinine level dropped back > down? > > Please keep us posted when you get your results of the JC and BK > virus. > > > > You and take care of yourselves! > > > > > > > > In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, > > mrbluize2003@y... writes: > > > > > What a coincidence. I was just looking at the site on your link > last > > > week. I was in the hospital for 3 days because of pain at the > > > transplant site and decreased output. They sent my blood to a > > > reference lab to test for JC and BK viruses. I haven't gotten > the > > > results yet. My serum creatinine went up to 2.1 and it normally > runs > > > around 1.8. > > > > > > Marty > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 In my case, I went to the emergency room because I had been having pain around the transplant site. I didn't know what my S Cr was running. The docs basically wrote it off as being underhydrated when they discharged me. Funny thing is that I drink about 4 liters of water minimum per day. Marty > > Marty, > > > > That is not good at all. Has your creatinine level dropped back > down? > > Please keep us posted when you get your results of the JC and BK > virus. > > > > You and take care of yourselves! > > > > > > > > In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, > > mrbluize2003@y... writes: > > > > > What a coincidence. I was just looking at the site on your link > last > > > week. I was in the hospital for 3 days because of pain at the > > > transplant site and decreased output. They sent my blood to a > > > reference lab to test for JC and BK viruses. I haven't gotten > the > > > results yet. My serum creatinine went up to 2.1 and it normally > runs > > > around 1.8. > > > > > > Marty > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 In my case, I went to the emergency room because I had been having pain around the transplant site. I didn't know what my S Cr was running. The docs basically wrote it off as being underhydrated when they discharged me. Funny thing is that I drink about 4 liters of water minimum per day. Marty > > Marty, > > > > That is not good at all. Has your creatinine level dropped back > down? > > Please keep us posted when you get your results of the JC and BK > virus. > > > > You and take care of yourselves! > > > > > > > > In a message dated 3/18/2004 7:39:58 PM Pacific Standard Time, > > mrbluize2003@y... writes: > > > > > What a coincidence. I was just looking at the site on your link > last > > > week. I was in the hospital for 3 days because of pain at the > > > transplant site and decreased output. They sent my blood to a > > > reference lab to test for JC and BK viruses. I haven't gotten > the > > > results yet. My serum creatinine went up to 2.1 and it normally > runs > > > around 1.8. > > > > > > Marty > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 hi im new to the site my partner is having a transplant this year what am i to expect after the op Re: BK virus Hi , What a coincidence. I was just looking at the site on your link last week. I was in the hospital for 3 days because of pain at the transplant site and decreased output. They sent my blood to a reference lab to test for JC and BK viruses. I haven't gotten the results yet. My serum creatinine went up to 2.1 and it normally runs around 1.8. Marty To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 That is certainly an understatement! Thank goodness that you are an informed patient. Especially today, I feel that one has to be involved in the entire process. You can't take anything for granted when it comes to your health. Let us know how your test comes out next month. Connie BK virus Well the blood test is back and I do show mild BK virus. The docs want me to stop my celcep and then get tested next month. They say that it is the immunosuppressant that let this virus bother the transplanted kidney. If, when I am tested next month, I show no virus, they will slowly start me on the celep again. Isn't it interesting that I was the one that brought it to the doctor's attention. Sometime they need us laymen. So, there, take that you docs.!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 That is certainly an understatement! Thank goodness that you are an informed patient. Especially today, I feel that one has to be involved in the entire process. You can't take anything for granted when it comes to your health. Let us know how your test comes out next month. Connie BK virus Well the blood test is back and I do show mild BK virus. The docs want me to stop my celcep and then get tested next month. They say that it is the immunosuppressant that let this virus bother the transplanted kidney. If, when I am tested next month, I show no virus, they will slowly start me on the celep again. Isn't it interesting that I was the one that brought it to the doctor's attention. Sometime they need us laymen. So, there, take that you docs.!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 That is certainly an understatement! Thank goodness that you are an informed patient. Especially today, I feel that one has to be involved in the entire process. You can't take anything for granted when it comes to your health. Let us know how your test comes out next month. Connie BK virus Well the blood test is back and I do show mild BK virus. The docs want me to stop my celcep and then get tested next month. They say that it is the immunosuppressant that let this virus bother the transplanted kidney. If, when I am tested next month, I show no virus, they will slowly start me on the celep again. Isn't it interesting that I was the one that brought it to the doctor's attention. Sometime they need us laymen. So, there, take that you docs.!!!!! Quote Link to comment Share on other sites More sharing options...
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