Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Regarding a question from Jing son about alternative treatments: Pierre Lachaine wrote:The short answer is: No, they don't help. I wish there were things like that that did help. Fish oil is sort of an alternative treatment though. It was a health supplement long before it came into use for IgAN. Pierre Pierre, do you really think it is helpful to patients to make a blanket dismissal of alternative treatments, particularly when you appear to know so little about them? There are alternative treatments that will help some patients, just as there are those that won't help some. There are treatments that will palliate but not cure. (The same is true of CellCept, prednisone, Cytoxan, methyl prednisolone, ACE inhibitors, and all the orthodox medical treatments for IgAN: none of them is curative.) And there are treatments, like acupuncture, that may help ease pain or other problems but won't affect the underlying disease process. (Ditto for orthodox treatments.) IMHO, anyone with IgAN should read up on alternative as well as orthodox treatments. If I were in their shoes (and I was as the mother of a child with IgAN), I'd opt for the least toxic, least potentially harmful treatment first and see what the results were before going for bigger guns. Unfortunately for most in this situation, the least toxic and least potentially harmful treatments are likely to be found in alternative medicine, not in the offices of most nephrologists. I'm partial to homeopathy because it worked for my son and it worked for me and it most recently worked for my dog, who now no longer has lymphoma. Please don't be so dismissive of what you don't understand. Peace, Dale Hellegers IgA Nephropathy Support Network Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Actually, Dale, after 26 years with IgAN, I think I understand what is out there quite well, and a lot more than you give me credit for. Everyone here is free to research, pay for, and try whatever they want. However, I will not allow this group to be swamped by pointless and inflammatory discussions and arguments about alternative treatments that can't be proven or disproven except by anecdotal evidence and number of 1 trials, as has happened in the past with IgAN groups like this one. Please re-read the terms of reference you agreed to when you subscribed to this group. To prove to you that I'm not completely adverse to these complementary and alternative treatments, there is a free forum in the IgAN Cafe exactly for that purpose, and anything goes except for purposes of selling something. It's been there from the very start. If you've been around for a while, you know that I'm all in favour of harmless complementary activities like acupuncture, meditation, progressive relaxation, etc., but for their effect on stress and tension, which in turn can benefit IgAN patients as well as anyone else. Pierre Alternative treatments > Regarding a question from Jing son about alternative treatments: > > > Pierre, do you really think it is helpful to patients to make a blanket > dismissal of alternative treatments, particularly when you appear to know so > little about them? There are alternative treatments that will help some > patients, just as there are those that won't help some. There are > treatments that will palliate but not cure. (The same is true of CellCept, > prednisone, Cytoxan, methyl prednisolone, ACE inhibitors, and all the > orthodox medical treatments for IgAN: none of them is curative.) And there > are treatments, like acupuncture, that may help ease pain or other problems > but won't affect the underlying disease process. (Ditto for orthodox > treatments.) > > IMHO, anyone with IgAN should read up on alternative as well as orthodox > treatments. If I were in their shoes (and I was as the mother of a child > with IgAN), I'd opt for the least toxic, least potentially harmful treatment > first and see what the results were before going for bigger guns. > Unfortunately for most in this situation, the least toxic and least > potentially harmful treatments are likely to be found in alternative > medicine, not in the offices of most nephrologists. > > I'm partial to homeopathy because it worked for my son and it worked for me > and it most recently worked for my dog, who now no longer has lymphoma. > Please don't be so dismissive of what you don't understand. > > Peace, > Dale Hellegers > IgA Nephropathy Support Network > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Actually, Dale, after 26 years with IgAN, I think I understand what is out there quite well, and a lot more than you give me credit for. Everyone here is free to research, pay for, and try whatever they want. However, I will not allow this group to be swamped by pointless and inflammatory discussions and arguments about alternative treatments that can't be proven or disproven except by anecdotal evidence and number of 1 trials, as has happened in the past with IgAN groups like this one. Please re-read the terms of reference you agreed to when you subscribed to this group. To prove to you that I'm not completely adverse to these complementary and alternative treatments, there is a free forum in the IgAN Cafe exactly for that purpose, and anything goes except for purposes of selling something. It's been there from the very start. If you've been around for a while, you know that I'm all in favour of harmless complementary activities like acupuncture, meditation, progressive relaxation, etc., but for their effect on stress and tension, which in turn can benefit IgAN patients as well as anyone else. Pierre Alternative treatments > Regarding a question from Jing son about alternative treatments: > > > Pierre, do you really think it is helpful to patients to make a blanket > dismissal of alternative treatments, particularly when you appear to know so > little about them? There are alternative treatments that will help some > patients, just as there are those that won't help some. There are > treatments that will palliate but not cure. (The same is true of CellCept, > prednisone, Cytoxan, methyl prednisolone, ACE inhibitors, and all the > orthodox medical treatments for IgAN: none of them is curative.) And there > are treatments, like acupuncture, that may help ease pain or other problems > but won't affect the underlying disease process. (Ditto for orthodox > treatments.) > > IMHO, anyone with IgAN should read up on alternative as well as orthodox > treatments. If I were in their shoes (and I was as the mother of a child > with IgAN), I'd opt for the least toxic, least potentially harmful treatment > first and see what the results were before going for bigger guns. > Unfortunately for most in this situation, the least toxic and least > potentially harmful treatments are likely to be found in alternative > medicine, not in the offices of most nephrologists. > > I'm partial to homeopathy because it worked for my son and it worked for me > and it most recently worked for my dog, who now no longer has lymphoma. > Please don't be so dismissive of what you don't understand. > > Peace, > Dale Hellegers > IgA Nephropathy Support Network > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Actually, Dale, after 26 years with IgAN, I think I understand what is out there quite well, and a lot more than you give me credit for. Everyone here is free to research, pay for, and try whatever they want. However, I will not allow this group to be swamped by pointless and inflammatory discussions and arguments about alternative treatments that can't be proven or disproven except by anecdotal evidence and number of 1 trials, as has happened in the past with IgAN groups like this one. Please re-read the terms of reference you agreed to when you subscribed to this group. To prove to you that I'm not completely adverse to these complementary and alternative treatments, there is a free forum in the IgAN Cafe exactly for that purpose, and anything goes except for purposes of selling something. It's been there from the very start. If you've been around for a while, you know that I'm all in favour of harmless complementary activities like acupuncture, meditation, progressive relaxation, etc., but for their effect on stress and tension, which in turn can benefit IgAN patients as well as anyone else. Pierre Alternative treatments > Regarding a question from Jing son about alternative treatments: > > > Pierre, do you really think it is helpful to patients to make a blanket > dismissal of alternative treatments, particularly when you appear to know so > little about them? There are alternative treatments that will help some > patients, just as there are those that won't help some. There are > treatments that will palliate but not cure. (The same is true of CellCept, > prednisone, Cytoxan, methyl prednisolone, ACE inhibitors, and all the > orthodox medical treatments for IgAN: none of them is curative.) And there > are treatments, like acupuncture, that may help ease pain or other problems > but won't affect the underlying disease process. (Ditto for orthodox > treatments.) > > IMHO, anyone with IgAN should read up on alternative as well as orthodox > treatments. If I were in their shoes (and I was as the mother of a child > with IgAN), I'd opt for the least toxic, least potentially harmful treatment > first and see what the results were before going for bigger guns. > Unfortunately for most in this situation, the least toxic and least > potentially harmful treatments are likely to be found in alternative > medicine, not in the offices of most nephrologists. > > I'm partial to homeopathy because it worked for my son and it worked for me > and it most recently worked for my dog, who now no longer has lymphoma. > Please don't be so dismissive of what you don't understand. > > Peace, > Dale Hellegers > IgA Nephropathy Support Network > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.