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Re: peritoneal dialysis canula insertion

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Hi Connie, I hope that my experiance doesnt put you

off, I have learnt that in my case that the procedure

was only just succesful. All the problems I have had

can be put down to the extended time I was having

surgery 2 hrs in total and the fact that they could

not find a good placement for the canuala. Its a new

procedure at this hospital and I was one of the first

recipiants so it seems they havnt got it down to fine

art yet and I payed the price :)

I hope things are diferant for you, I am sure it will

be. For me things are greatly improved now..

Mark

--- Connie Sink wrote: > Hi

Mark,

> I enjoyed reading about your canula insertion. I'm

> sorry that the

> experience was painful though. Ouch, something that

> I don't really like to

> hear since this is the direction I am considering

> when the time comes. I

> wasn't really sure though if the surgery was more

> painful or the sexy string

> underpants. :)

>

> When using the gas to extend your abdomen it does

> and can be painful. It

> many times is more painful than the after-pain from

> the actual surgery.

>

> Keep us posted on your training and how you're

> doing. You're in my

> thoughts...

>

> Connie

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Hi Connie, I hope that my experiance doesnt put you

off, I have learnt that in my case that the procedure

was only just succesful. All the problems I have had

can be put down to the extended time I was having

surgery 2 hrs in total and the fact that they could

not find a good placement for the canuala. Its a new

procedure at this hospital and I was one of the first

recipiants so it seems they havnt got it down to fine

art yet and I payed the price :)

I hope things are diferant for you, I am sure it will

be. For me things are greatly improved now..

Mark

--- Connie Sink wrote: > Hi

Mark,

> I enjoyed reading about your canula insertion. I'm

> sorry that the

> experience was painful though. Ouch, something that

> I don't really like to

> hear since this is the direction I am considering

> when the time comes. I

> wasn't really sure though if the surgery was more

> painful or the sexy string

> underpants. :)

>

> When using the gas to extend your abdomen it does

> and can be painful. It

> many times is more painful than the after-pain from

> the actual surgery.

>

> Keep us posted on your training and how you're

> doing. You're in my

> thoughts...

>

> Connie

____________________________________________________________

Yahoo! Messenger - Communicate instantly... " Ping "

your friends today! Download Messenger Now

http://uk.messenger.yahoo.com/download/index.html

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Mark I'm happy to hear things are looking up for you! I truly admire your

ability to keep your sense of humor about all of this. It's a good thing to

be able to do that in the midst of pain and having your flesh munched on by

nasty little buggers. Thanks for posting all you have about your surgery

and recovery. Eventhough it's been a bit of a horrific time for you, your

reserve shines thru in your posts and helps give others strength in dealing

with their own troubles. :o)

I'm so glad you are doing better.

Amy

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Mark I'm happy to hear things are looking up for you! I truly admire your

ability to keep your sense of humor about all of this. It's a good thing to

be able to do that in the midst of pain and having your flesh munched on by

nasty little buggers. Thanks for posting all you have about your surgery

and recovery. Eventhough it's been a bit of a horrific time for you, your

reserve shines thru in your posts and helps give others strength in dealing

with their own troubles. :o)

I'm so glad you are doing better.

Amy

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Guest guest

Mark I'm happy to hear things are looking up for you! I truly admire your

ability to keep your sense of humor about all of this. It's a good thing to

be able to do that in the midst of pain and having your flesh munched on by

nasty little buggers. Thanks for posting all you have about your surgery

and recovery. Eventhough it's been a bit of a horrific time for you, your

reserve shines thru in your posts and helps give others strength in dealing

with their own troubles. :o)

I'm so glad you are doing better.

Amy

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Yikes it is good to hear from you. Don't apologize for the whinging... I

wouldn't exactly call your previous posts whinging; moreover, you were

faced with a life threatening situation that needed to be taken seriously

(rather than with the false drama that the " flesh eating virus " doc seemed

to give). It's great to hear that things have stablized. I think the

credit is to you for being so assertive in your your own care. I'm glad you

got a chance to see a more positive face of the medical machine... It does

exist, but there are days it's just hard to find.

Cy

RE: Re: peritoneal dialysis canula insertion

>

> Thank you all for your wonderful responses, you must be getting fed up

with my whinging mails :)

>

> The latest news is good news, my peritonitious bugs are definately beeing

surrounded by the antibiotics and being pummeled into surrender, the pd pags

are very nearly clear...

>

> I cannot give enough praise to the staff on 6pdu at the Liverpool Royal

Hospital, they are kind, listen to all my daft questions and your well being

is number 1 priority stuff the cost.. last week I did a silly thing and

lightly touched the end of my line, in my training I was told if that

happens you need to phone the ward and they will tell you to come in change

the line as well as start you on antibiotics..

>

> I rang in and spoke to someone on another ward because it was evening and

6pdu is not open 24hrs so the call is transferred. This man I spoke to told

me to wipe it with an alcoholic wipe and come in the nesxt day. I questioned

him a couple of times about this and in the end he said he was going to seek

advice of his superior, the superior said for me to get in asap. I came in

and got my line changed, crises over..

>

> Next day I was in again on 6pdu and told this nurse what had happened in

passing and she took off, stormed out of the ward made a note of it in the

ward concerned book ensuring that the 1st individual would get his knuckles

rapped for telling me the wrong thing... these peaple do care..

>

> Now i'm back at home I have a community nurse come visit me once a week to

keep an eye on things, these are specialist renal nurses btw and the things

I have learnt from these nurses is unbelievable, when she visits she has a

cup of tea and is in no rush to get off which is great, I ask questions and

she answers, I cant ask for more :)

>

> I am sleeping normally now, no pains in my chest, no pains on drain and

fill, my exit site is clearing and the peritonitious is nearly gone, i still

get stomach cramps from the cocktail of antibiotics but these are less

severe now and I only have till saturday on them. So all in all things are

looking up :)

>

> Mark

>

>

> ---------------------------------

> Yahoo! Messenger - Communicate instantly... " Ping " your friends today!

Download Messenger Now

>

>

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Yikes it is good to hear from you. Don't apologize for the whinging... I

wouldn't exactly call your previous posts whinging; moreover, you were

faced with a life threatening situation that needed to be taken seriously

(rather than with the false drama that the " flesh eating virus " doc seemed

to give). It's great to hear that things have stablized. I think the

credit is to you for being so assertive in your your own care. I'm glad you

got a chance to see a more positive face of the medical machine... It does

exist, but there are days it's just hard to find.

Cy

RE: Re: peritoneal dialysis canula insertion

>

> Thank you all for your wonderful responses, you must be getting fed up

with my whinging mails :)

>

> The latest news is good news, my peritonitious bugs are definately beeing

surrounded by the antibiotics and being pummeled into surrender, the pd pags

are very nearly clear...

>

> I cannot give enough praise to the staff on 6pdu at the Liverpool Royal

Hospital, they are kind, listen to all my daft questions and your well being

is number 1 priority stuff the cost.. last week I did a silly thing and

lightly touched the end of my line, in my training I was told if that

happens you need to phone the ward and they will tell you to come in change

the line as well as start you on antibiotics..

>

> I rang in and spoke to someone on another ward because it was evening and

6pdu is not open 24hrs so the call is transferred. This man I spoke to told

me to wipe it with an alcoholic wipe and come in the nesxt day. I questioned

him a couple of times about this and in the end he said he was going to seek

advice of his superior, the superior said for me to get in asap. I came in

and got my line changed, crises over..

>

> Next day I was in again on 6pdu and told this nurse what had happened in

passing and she took off, stormed out of the ward made a note of it in the

ward concerned book ensuring that the 1st individual would get his knuckles

rapped for telling me the wrong thing... these peaple do care..

>

> Now i'm back at home I have a community nurse come visit me once a week to

keep an eye on things, these are specialist renal nurses btw and the things

I have learnt from these nurses is unbelievable, when she visits she has a

cup of tea and is in no rush to get off which is great, I ask questions and

she answers, I cant ask for more :)

>

> I am sleeping normally now, no pains in my chest, no pains on drain and

fill, my exit site is clearing and the peritonitious is nearly gone, i still

get stomach cramps from the cocktail of antibiotics but these are less

severe now and I only have till saturday on them. So all in all things are

looking up :)

>

> Mark

>

>

> ---------------------------------

> Yahoo! Messenger - Communicate instantly... " Ping " your friends today!

Download Messenger Now

>

>

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Thank you for that reply Amy, I never thought my posts would help others, I

thought that I would be thought of as a whinger lol now I'm off to the quacks

because i've broken out in a rash over most of my body :) when you sort out one

little problem theres always a queue of others to keep you busy :)

Mark

Amy Griswold wrote:

Mark I'm happy to hear things are looking up for you! I truly admire your

ability to keep your sense of humor about all of this. It's a good thing to

be able to do that in the midst of pain and having your flesh munched on by

nasty little buggers. Thanks for posting all you have about your surgery

and recovery. Eventhough it's been a bit of a horrific time for you, your

reserve shines thru in your posts and helps give others strength in dealing

with their own troubles. :o)

I'm so glad you are doing better.

Amy

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

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Thank you for that reply Amy, I never thought my posts would help others, I

thought that I would be thought of as a whinger lol now I'm off to the quacks

because i've broken out in a rash over most of my body :) when you sort out one

little problem theres always a queue of others to keep you busy :)

Mark

Amy Griswold wrote:

Mark I'm happy to hear things are looking up for you! I truly admire your

ability to keep your sense of humor about all of this. It's a good thing to

be able to do that in the midst of pain and having your flesh munched on by

nasty little buggers. Thanks for posting all you have about your surgery

and recovery. Eventhough it's been a bit of a horrific time for you, your

reserve shines thru in your posts and helps give others strength in dealing

with their own troubles. :o)

I'm so glad you are doing better.

Amy

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

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Guest guest

Man, Mark! I'm sorry you have had such a difficult time with the

start of the PD, but glad to see that things are starting to look

up. After you get used to it, it's not that bad. Good luck!

> Mark I'm happy to hear things are looking up for you! I truly

admire your

> ability to keep your sense of humor about all of this. It's a good

thing to

> be able to do that in the midst of pain and having your flesh

munched on by

> nasty little buggers. Thanks for posting all you have about your

surgery

> and recovery. Eventhough it's been a bit of a horrific time for

you, your

> reserve shines thru in your posts and helps give others strength

in dealing

> with their own troubles. :o)

>

> I'm so glad you are doing better.

> Amy

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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Guest guest

Man, Mark! I'm sorry you have had such a difficult time with the

start of the PD, but glad to see that things are starting to look

up. After you get used to it, it's not that bad. Good luck!

> Mark I'm happy to hear things are looking up for you! I truly

admire your

> ability to keep your sense of humor about all of this. It's a good

thing to

> be able to do that in the midst of pain and having your flesh

munched on by

> nasty little buggers. Thanks for posting all you have about your

surgery

> and recovery. Eventhough it's been a bit of a horrific time for

you, your

> reserve shines thru in your posts and helps give others strength

in dealing

> with their own troubles. :o)

>

> I'm so glad you are doing better.

> Amy

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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Guest guest

Man, Mark! I'm sorry you have had such a difficult time with the

start of the PD, but glad to see that things are starting to look

up. After you get used to it, it's not that bad. Good luck!

> Mark I'm happy to hear things are looking up for you! I truly

admire your

> ability to keep your sense of humor about all of this. It's a good

thing to

> be able to do that in the midst of pain and having your flesh

munched on by

> nasty little buggers. Thanks for posting all you have about your

surgery

> and recovery. Eventhough it's been a bit of a horrific time for

you, your

> reserve shines thru in your posts and helps give others strength

in dealing

> with their own troubles. :o)

>

> I'm so glad you are doing better.

> Amy

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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Guest guest

Oh and are you using Baxter or Fresenius products?

> > Mark I'm happy to hear things are looking up for you! I truly

> admire your

> > ability to keep your sense of humor about all of this. It's a

good

> thing to

> > be able to do that in the midst of pain and having your flesh

> munched on by

> > nasty little buggers. Thanks for posting all you have about your

> surgery

> > and recovery. Eventhough it's been a bit of a horrific time for

> you, your

> > reserve shines thru in your posts and helps give others strength

> in dealing

> > with their own troubles. :o)

> >

> > I'm so glad you are doing better.

> > Amy

> >

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

> supported by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

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Guest guest

Oh and are you using Baxter or Fresenius products?

> > Mark I'm happy to hear things are looking up for you! I truly

> admire your

> > ability to keep your sense of humor about all of this. It's a

good

> thing to

> > be able to do that in the midst of pain and having your flesh

> munched on by

> > nasty little buggers. Thanks for posting all you have about your

> surgery

> > and recovery. Eventhough it's been a bit of a horrific time for

> you, your

> > reserve shines thru in your posts and helps give others strength

> in dealing

> > with their own troubles. :o)

> >

> > I'm so glad you are doing better.

> > Amy

> >

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

> supported by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

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Oh Mark, Ugh! now a rash...I'm still recovering from the total body rash

that hit me as a drug reaction back in the end of Jan. Do they have you on

any sulfa based antibiotics? They have a tendency to cause drug reactions

in the form of rashes.

I hope yours doesn't get as bad as mine was...mine ended up like total

body sunburn, painful and then peeled for weeks on end. Even my eyes

peeled, it was so very fun. I still have very patchy red blotches on my

legs that the docs say should clear up in another month or so. (however

that's what they have been saying since Jan! lol. ah well.....)

Hope they find out what is causing yours quickly so it can get cleared up.

Amy

Re: Re: peritoneal dialysis canula insertion

> Thank you for that reply Amy, I never thought my posts would help others,

I thought that I would be thought of as a whinger lol now I'm off to the

quacks because i've broken out in a rash over most of my body :) when you

sort out one little problem theres always a queue of others to keep you busy

:)

>

> Mark

>

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Oh Mark, Ugh! now a rash...I'm still recovering from the total body rash

that hit me as a drug reaction back in the end of Jan. Do they have you on

any sulfa based antibiotics? They have a tendency to cause drug reactions

in the form of rashes.

I hope yours doesn't get as bad as mine was...mine ended up like total

body sunburn, painful and then peeled for weeks on end. Even my eyes

peeled, it was so very fun. I still have very patchy red blotches on my

legs that the docs say should clear up in another month or so. (however

that's what they have been saying since Jan! lol. ah well.....)

Hope they find out what is causing yours quickly so it can get cleared up.

Amy

Re: Re: peritoneal dialysis canula insertion

> Thank you for that reply Amy, I never thought my posts would help others,

I thought that I would be thought of as a whinger lol now I'm off to the

quacks because i've broken out in a rash over most of my body :) when you

sort out one little problem theres always a queue of others to keep you busy

:)

>

> Mark

>

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Guest guest

Oh Mark, Ugh! now a rash...I'm still recovering from the total body rash

that hit me as a drug reaction back in the end of Jan. Do they have you on

any sulfa based antibiotics? They have a tendency to cause drug reactions

in the form of rashes.

I hope yours doesn't get as bad as mine was...mine ended up like total

body sunburn, painful and then peeled for weeks on end. Even my eyes

peeled, it was so very fun. I still have very patchy red blotches on my

legs that the docs say should clear up in another month or so. (however

that's what they have been saying since Jan! lol. ah well.....)

Hope they find out what is causing yours quickly so it can get cleared up.

Amy

Re: Re: peritoneal dialysis canula insertion

> Thank you for that reply Amy, I never thought my posts would help others,

I thought that I would be thought of as a whinger lol now I'm off to the

quacks because i've broken out in a rash over most of my body :) when you

sort out one little problem theres always a queue of others to keep you busy

:)

>

> Mark

>

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