Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Oh Mark, You're wracking up points for the ironic humor award of the week. I am so sorry you had to go through all this. Between the infection, the hospital screw-up on antibiotics, the doc with the great bedside manner and the following chest pain it's sounds like it's been a bear of a week. The one thing that really scares me about PD is the risk of infection. I hate to think the worry that was going through your mind with that killer bug and flesh eating virus. Don't those docs know that for some of us, real life is difficult enough by itself thank you without further fantasies??? In any event, I'm sorry your introduction to PD was - uh - less than ideal. I am extremely glad that the infection is clearing. Cy RE: Re: peritoneal dialysis canula insertion > Well what a fun week thats been. Last monday I started > my pd training, by Tuesday I was on anti biotics for > an infected exit site, come thursday after I had come > home for the weekend and looking forward to a W/E off > I get a call from the Hospital to say I need to come > in Friday because the antibiotics they had put me on > for the Peritonitious I had was teh wrong antibiotics. > > Friday, im sat there in the hospital when this nice > doctor comes over and tells me ive got 'the killer > bug' 'the flesh eating virus' MRSA... (his words not > mine) needles to say I started to erm poo my pants and > thought I was about to be eaten alive by this evil > bug.. > > The nice nurse was talking to me an hour or so later > after they put me on a drip and saw that I was a > little worried well a lot worried, she called the head > virus control officer for the hospital asking her to > have a chat with me. Control officer appears an hour > or so later and nicely puts my mind at rest and > managed to convince me I wasnt about to become bug > food > > Starting with monday night ater my first day of > exchanges I got little sleep because of pain in my > chest only relieved a little if i sat up. Tuesday my > exit site is infected so I start with antibiotice and > I cant see my hand through the bag its that cloudy- > ive also got peritonotious. > > Friday morning for a few hours I really thought I was > going to die, so ive had a really bad start to life on > PD but there is a little bit of good news, i'm no > longer in pain when I fill and drain (well not much) > and my bags are starting to clear.... I CAN NOW SEE MY > HAND THROUGH THE BAG HOOORAY!!!! > > Mark > > > > > > > ___________________________________________________________ > WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet Cafe Awards www.yahoo.co.uk/internetcafes > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Oh Mark, You're wracking up points for the ironic humor award of the week. I am so sorry you had to go through all this. Between the infection, the hospital screw-up on antibiotics, the doc with the great bedside manner and the following chest pain it's sounds like it's been a bear of a week. The one thing that really scares me about PD is the risk of infection. I hate to think the worry that was going through your mind with that killer bug and flesh eating virus. Don't those docs know that for some of us, real life is difficult enough by itself thank you without further fantasies??? In any event, I'm sorry your introduction to PD was - uh - less than ideal. I am extremely glad that the infection is clearing. Cy RE: Re: peritoneal dialysis canula insertion > Well what a fun week thats been. Last monday I started > my pd training, by Tuesday I was on anti biotics for > an infected exit site, come thursday after I had come > home for the weekend and looking forward to a W/E off > I get a call from the Hospital to say I need to come > in Friday because the antibiotics they had put me on > for the Peritonitious I had was teh wrong antibiotics. > > Friday, im sat there in the hospital when this nice > doctor comes over and tells me ive got 'the killer > bug' 'the flesh eating virus' MRSA... (his words not > mine) needles to say I started to erm poo my pants and > thought I was about to be eaten alive by this evil > bug.. > > The nice nurse was talking to me an hour or so later > after they put me on a drip and saw that I was a > little worried well a lot worried, she called the head > virus control officer for the hospital asking her to > have a chat with me. Control officer appears an hour > or so later and nicely puts my mind at rest and > managed to convince me I wasnt about to become bug > food > > Starting with monday night ater my first day of > exchanges I got little sleep because of pain in my > chest only relieved a little if i sat up. Tuesday my > exit site is infected so I start with antibiotice and > I cant see my hand through the bag its that cloudy- > ive also got peritonotious. > > Friday morning for a few hours I really thought I was > going to die, so ive had a really bad start to life on > PD but there is a little bit of good news, i'm no > longer in pain when I fill and drain (well not much) > and my bags are starting to clear.... I CAN NOW SEE MY > HAND THROUGH THE BAG HOOORAY!!!! > > Mark > > > > > > > ___________________________________________________________ > WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet Cafe Awards www.yahoo.co.uk/internetcafes > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Oh Mark, You're wracking up points for the ironic humor award of the week. I am so sorry you had to go through all this. Between the infection, the hospital screw-up on antibiotics, the doc with the great bedside manner and the following chest pain it's sounds like it's been a bear of a week. The one thing that really scares me about PD is the risk of infection. I hate to think the worry that was going through your mind with that killer bug and flesh eating virus. Don't those docs know that for some of us, real life is difficult enough by itself thank you without further fantasies??? In any event, I'm sorry your introduction to PD was - uh - less than ideal. I am extremely glad that the infection is clearing. Cy RE: Re: peritoneal dialysis canula insertion > Well what a fun week thats been. Last monday I started > my pd training, by Tuesday I was on anti biotics for > an infected exit site, come thursday after I had come > home for the weekend and looking forward to a W/E off > I get a call from the Hospital to say I need to come > in Friday because the antibiotics they had put me on > for the Peritonitious I had was teh wrong antibiotics. > > Friday, im sat there in the hospital when this nice > doctor comes over and tells me ive got 'the killer > bug' 'the flesh eating virus' MRSA... (his words not > mine) needles to say I started to erm poo my pants and > thought I was about to be eaten alive by this evil > bug.. > > The nice nurse was talking to me an hour or so later > after they put me on a drip and saw that I was a > little worried well a lot worried, she called the head > virus control officer for the hospital asking her to > have a chat with me. Control officer appears an hour > or so later and nicely puts my mind at rest and > managed to convince me I wasnt about to become bug > food > > Starting with monday night ater my first day of > exchanges I got little sleep because of pain in my > chest only relieved a little if i sat up. Tuesday my > exit site is infected so I start with antibiotice and > I cant see my hand through the bag its that cloudy- > ive also got peritonotious. > > Friday morning for a few hours I really thought I was > going to die, so ive had a really bad start to life on > PD but there is a little bit of good news, i'm no > longer in pain when I fill and drain (well not much) > and my bags are starting to clear.... I CAN NOW SEE MY > HAND THROUGH THE BAG HOOORAY!!!! > > Mark > > > > > > > ___________________________________________________________ > WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet Cafe Awards www.yahoo.co.uk/internetcafes > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Hello all. It is terrible what you went through Mark. One thing to say about the first antibiotic which turned out to be erroneous. The common practice in medicine is that when an infection of any kind is suspected, the doc prescribes an antibiotic on an empirical basis. He or she has no way of knowing with certainty what the microbe is. They prescribe based on a " best guess " because if they are correct and the microbe is sensitive to that antibiotic...great. They got an early start on it. Meanwhile, they run a culture to find out what the infection actually is. It normally takes a couple days to get the results. I suspect that this is what happened in your case. The results came back and the initial " guess " was wrong. Regarding the methicillin-resistant staph. aureus [MRSA]. It is unfortunate that it is often contacted in a medical setting (nosocomially). It is often transfered from one patient to another thru poor precautionary measures of the healthcare workers. Marty > Oh Mark, > You're wracking up points for the ironic humor award of the week. I am so > sorry you had to go through all this. Between the infection, the hospital > screw-up on antibiotics, the doc with the great bedside manner and the > following chest pain it's sounds like it's been a bear of a week. The one > thing that really scares me about PD is the risk of infection. I hate to > think the worry that was going through your mind with that killer bug and > flesh eating virus. Don't those docs know that for some of us, real life is > difficult enough by itself thank you without further fantasies??? In any > event, I'm sorry your introduction to PD was - uh - less than ideal. I am > extremely glad that the infection is clearing. > > Cy > RE: Re: peritoneal dialysis canula insertion > > > > Well what a fun week thats been. Last monday I started > > my pd training, by Tuesday I was on anti biotics for > > an infected exit site, come thursday after I had come > > home for the weekend and looking forward to a W/E off > > I get a call from the Hospital to say I need to come > > in Friday because the antibiotics they had put me on > > for the Peritonitious I had was teh wrong antibiotics. > > > > Friday, im sat there in the hospital when this nice > > doctor comes over and tells me ive got 'the killer > > bug' 'the flesh eating virus' MRSA... (his words not > > mine) needles to say I started to erm poo my pants and > > thought I was about to be eaten alive by this evil > > bug.. > > > > The nice nurse was talking to me an hour or so later > > after they put me on a drip and saw that I was a > > little worried well a lot worried, she called the head > > virus control officer for the hospital asking her to > > have a chat with me. Control officer appears an hour > > or so later and nicely puts my mind at rest and > > managed to convince me I wasnt about to become bug > > food > > > > Starting with monday night ater my first day of > > exchanges I got little sleep because of pain in my > > chest only relieved a little if i sat up. Tuesday my > > exit site is infected so I start with antibiotice and > > I cant see my hand through the bag its that cloudy- > > ive also got peritonotious. > > > > Friday morning for a few hours I really thought I was > > going to die, so ive had a really bad start to life on > > PD but there is a little bit of good news, i'm no > > longer in pain when I fill and drain (well not much) > > and my bags are starting to clear.... I CAN NOW SEE MY > > HAND THROUGH THE BAG HOOORAY!!!! > > > > Mark > > > > > > > > > > > > > > ___________________________________________________________ > > WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet > Cafe Awards www.yahoo.co.uk/internetcafes > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Hello all. It is terrible what you went through Mark. One thing to say about the first antibiotic which turned out to be erroneous. The common practice in medicine is that when an infection of any kind is suspected, the doc prescribes an antibiotic on an empirical basis. He or she has no way of knowing with certainty what the microbe is. They prescribe based on a " best guess " because if they are correct and the microbe is sensitive to that antibiotic...great. They got an early start on it. Meanwhile, they run a culture to find out what the infection actually is. It normally takes a couple days to get the results. I suspect that this is what happened in your case. The results came back and the initial " guess " was wrong. Regarding the methicillin-resistant staph. aureus [MRSA]. It is unfortunate that it is often contacted in a medical setting (nosocomially). It is often transfered from one patient to another thru poor precautionary measures of the healthcare workers. Marty > Oh Mark, > You're wracking up points for the ironic humor award of the week. I am so > sorry you had to go through all this. Between the infection, the hospital > screw-up on antibiotics, the doc with the great bedside manner and the > following chest pain it's sounds like it's been a bear of a week. The one > thing that really scares me about PD is the risk of infection. I hate to > think the worry that was going through your mind with that killer bug and > flesh eating virus. Don't those docs know that for some of us, real life is > difficult enough by itself thank you without further fantasies??? In any > event, I'm sorry your introduction to PD was - uh - less than ideal. I am > extremely glad that the infection is clearing. > > Cy > RE: Re: peritoneal dialysis canula insertion > > > > Well what a fun week thats been. Last monday I started > > my pd training, by Tuesday I was on anti biotics for > > an infected exit site, come thursday after I had come > > home for the weekend and looking forward to a W/E off > > I get a call from the Hospital to say I need to come > > in Friday because the antibiotics they had put me on > > for the Peritonitious I had was teh wrong antibiotics. > > > > Friday, im sat there in the hospital when this nice > > doctor comes over and tells me ive got 'the killer > > bug' 'the flesh eating virus' MRSA... (his words not > > mine) needles to say I started to erm poo my pants and > > thought I was about to be eaten alive by this evil > > bug.. > > > > The nice nurse was talking to me an hour or so later > > after they put me on a drip and saw that I was a > > little worried well a lot worried, she called the head > > virus control officer for the hospital asking her to > > have a chat with me. Control officer appears an hour > > or so later and nicely puts my mind at rest and > > managed to convince me I wasnt about to become bug > > food > > > > Starting with monday night ater my first day of > > exchanges I got little sleep because of pain in my > > chest only relieved a little if i sat up. Tuesday my > > exit site is infected so I start with antibiotice and > > I cant see my hand through the bag its that cloudy- > > ive also got peritonotious. > > > > Friday morning for a few hours I really thought I was > > going to die, so ive had a really bad start to life on > > PD but there is a little bit of good news, i'm no > > longer in pain when I fill and drain (well not much) > > and my bags are starting to clear.... I CAN NOW SEE MY > > HAND THROUGH THE BAG HOOORAY!!!! > > > > Mark > > > > > > > > > > > > > > ___________________________________________________________ > > WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet > Cafe Awards www.yahoo.co.uk/internetcafes > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Hello all. It is terrible what you went through Mark. One thing to say about the first antibiotic which turned out to be erroneous. The common practice in medicine is that when an infection of any kind is suspected, the doc prescribes an antibiotic on an empirical basis. He or she has no way of knowing with certainty what the microbe is. They prescribe based on a " best guess " because if they are correct and the microbe is sensitive to that antibiotic...great. They got an early start on it. Meanwhile, they run a culture to find out what the infection actually is. It normally takes a couple days to get the results. I suspect that this is what happened in your case. The results came back and the initial " guess " was wrong. Regarding the methicillin-resistant staph. aureus [MRSA]. It is unfortunate that it is often contacted in a medical setting (nosocomially). It is often transfered from one patient to another thru poor precautionary measures of the healthcare workers. Marty > Oh Mark, > You're wracking up points for the ironic humor award of the week. I am so > sorry you had to go through all this. Between the infection, the hospital > screw-up on antibiotics, the doc with the great bedside manner and the > following chest pain it's sounds like it's been a bear of a week. The one > thing that really scares me about PD is the risk of infection. I hate to > think the worry that was going through your mind with that killer bug and > flesh eating virus. Don't those docs know that for some of us, real life is > difficult enough by itself thank you without further fantasies??? In any > event, I'm sorry your introduction to PD was - uh - less than ideal. I am > extremely glad that the infection is clearing. > > Cy > RE: Re: peritoneal dialysis canula insertion > > > > Well what a fun week thats been. Last monday I started > > my pd training, by Tuesday I was on anti biotics for > > an infected exit site, come thursday after I had come > > home for the weekend and looking forward to a W/E off > > I get a call from the Hospital to say I need to come > > in Friday because the antibiotics they had put me on > > for the Peritonitious I had was teh wrong antibiotics. > > > > Friday, im sat there in the hospital when this nice > > doctor comes over and tells me ive got 'the killer > > bug' 'the flesh eating virus' MRSA... (his words not > > mine) needles to say I started to erm poo my pants and > > thought I was about to be eaten alive by this evil > > bug.. > > > > The nice nurse was talking to me an hour or so later > > after they put me on a drip and saw that I was a > > little worried well a lot worried, she called the head > > virus control officer for the hospital asking her to > > have a chat with me. Control officer appears an hour > > or so later and nicely puts my mind at rest and > > managed to convince me I wasnt about to become bug > > food > > > > Starting with monday night ater my first day of > > exchanges I got little sleep because of pain in my > > chest only relieved a little if i sat up. Tuesday my > > exit site is infected so I start with antibiotice and > > I cant see my hand through the bag its that cloudy- > > ive also got peritonotious. > > > > Friday morning for a few hours I really thought I was > > going to die, so ive had a really bad start to life on > > PD but there is a little bit of good news, i'm no > > longer in pain when I fill and drain (well not much) > > and my bags are starting to clear.... I CAN NOW SEE MY > > HAND THROUGH THE BAG HOOORAY!!!! > > > > Mark > > > > > > > > > > > > > > ___________________________________________________________ > > WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet > Cafe Awards www.yahoo.co.uk/internetcafes > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Mark, Your story of starting PD sounds like a nightmare! What an ordeal. I hope your fluid is completely clear now, and that you are feeling better. I can't even imagine how terrifying that all must have been. You are due for some smooth sailing here Mark! In a message dated 4/3/2004 5:10:43 PM Pacific Daylight Time, mrowe1962@... writes: > Friday morning for a few hours I really thought I was > going to die, so ive had a really bad start to life on > PD but there is a little bit of good news, i'm no > longer in pain when I fill and drain (well not much) > and my bags are starting to clear.... I CAN NOW SEE MY > HAND THROUGH THE BAG HOOORAY!!!! > > Mark > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Mark, Your story of starting PD sounds like a nightmare! What an ordeal. I hope your fluid is completely clear now, and that you are feeling better. I can't even imagine how terrifying that all must have been. You are due for some smooth sailing here Mark! In a message dated 4/3/2004 5:10:43 PM Pacific Daylight Time, mrowe1962@... writes: > Friday morning for a few hours I really thought I was > going to die, so ive had a really bad start to life on > PD but there is a little bit of good news, i'm no > longer in pain when I fill and drain (well not much) > and my bags are starting to clear.... I CAN NOW SEE MY > HAND THROUGH THE BAG HOOORAY!!!! > > Mark > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Mark, Your story of starting PD sounds like a nightmare! What an ordeal. I hope your fluid is completely clear now, and that you are feeling better. I can't even imagine how terrifying that all must have been. You are due for some smooth sailing here Mark! In a message dated 4/3/2004 5:10:43 PM Pacific Daylight Time, mrowe1962@... writes: > Friday morning for a few hours I really thought I was > going to die, so ive had a really bad start to life on > PD but there is a little bit of good news, i'm no > longer in pain when I fill and drain (well not much) > and my bags are starting to clear.... I CAN NOW SEE MY > HAND THROUGH THE BAG HOOORAY!!!! > > Mark > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Wow Mark, You've had your share of problems. This would be a very scary event. I'm very glad that the nurse helped you get a grip on the situation by bringing in reinforcements to talk to you. She deserves a metal for being so in touch with her patients. Are you still doing OK so far this week? They say that once you have peritonitis you don't want it again! I hear that it is the worst! Keep us in the loop on how your progressing with your exchanges. Will you eventually go on the cycler for some of the exchanges? You are in my thoughts and prayers. Good Luck to you. Connie RE: Re: peritoneal dialysis canula insertion Well what a fun week thats been. Last monday I started my pd training, by Tuesday I was on anti biotics for an infected exit site, come thursday after I had come home for the weekend and looking forward to a W/E off I get a call from the Hospital to say I need to come in Friday because the antibiotics they had put me on for the Peritonitious I had was teh wrong antibiotics. Friday, im sat there in the hospital when this nice doctor comes over and tells me ive got 'the killer bug' 'the flesh eating virus' MRSA... (his words not mine) needles to say I started to erm poo my pants and thought I was about to be eaten alive by this evil bug.. The nice nurse was talking to me an hour or so later after they put me on a drip and saw that I was a little worried well a lot worried, she called the head virus control officer for the hospital asking her to have a chat with me. Control officer appears an hour or so later and nicely puts my mind at rest and managed to convince me I wasnt about to become bug food Starting with monday night ater my first day of exchanges I got little sleep because of pain in my chest only relieved a little if i sat up. Tuesday my exit site is infected so I start with antibiotice and I cant see my hand through the bag its that cloudy- ive also got peritonotious. Friday morning for a few hours I really thought I was going to die, so ive had a really bad start to life on PD but there is a little bit of good news, i'm no longer in pain when I fill and drain (well not much) and my bags are starting to clear.... I CAN NOW SEE MY HAND THROUGH THE BAG HOOORAY!!!! Mark ___________________________________________________________ WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet Cafe Awards www.yahoo.co.uk/internetcafes To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Wow Mark, You've had your share of problems. This would be a very scary event. I'm very glad that the nurse helped you get a grip on the situation by bringing in reinforcements to talk to you. She deserves a metal for being so in touch with her patients. Are you still doing OK so far this week? They say that once you have peritonitis you don't want it again! I hear that it is the worst! Keep us in the loop on how your progressing with your exchanges. Will you eventually go on the cycler for some of the exchanges? You are in my thoughts and prayers. Good Luck to you. Connie RE: Re: peritoneal dialysis canula insertion Well what a fun week thats been. Last monday I started my pd training, by Tuesday I was on anti biotics for an infected exit site, come thursday after I had come home for the weekend and looking forward to a W/E off I get a call from the Hospital to say I need to come in Friday because the antibiotics they had put me on for the Peritonitious I had was teh wrong antibiotics. Friday, im sat there in the hospital when this nice doctor comes over and tells me ive got 'the killer bug' 'the flesh eating virus' MRSA... (his words not mine) needles to say I started to erm poo my pants and thought I was about to be eaten alive by this evil bug.. The nice nurse was talking to me an hour or so later after they put me on a drip and saw that I was a little worried well a lot worried, she called the head virus control officer for the hospital asking her to have a chat with me. Control officer appears an hour or so later and nicely puts my mind at rest and managed to convince me I wasnt about to become bug food Starting with monday night ater my first day of exchanges I got little sleep because of pain in my chest only relieved a little if i sat up. Tuesday my exit site is infected so I start with antibiotice and I cant see my hand through the bag its that cloudy- ive also got peritonotious. Friday morning for a few hours I really thought I was going to die, so ive had a really bad start to life on PD but there is a little bit of good news, i'm no longer in pain when I fill and drain (well not much) and my bags are starting to clear.... I CAN NOW SEE MY HAND THROUGH THE BAG HOOORAY!!!! Mark ___________________________________________________________ WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet Cafe Awards www.yahoo.co.uk/internetcafes To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Wow Mark, You've had your share of problems. This would be a very scary event. I'm very glad that the nurse helped you get a grip on the situation by bringing in reinforcements to talk to you. She deserves a metal for being so in touch with her patients. Are you still doing OK so far this week? They say that once you have peritonitis you don't want it again! I hear that it is the worst! Keep us in the loop on how your progressing with your exchanges. Will you eventually go on the cycler for some of the exchanges? You are in my thoughts and prayers. Good Luck to you. Connie RE: Re: peritoneal dialysis canula insertion Well what a fun week thats been. Last monday I started my pd training, by Tuesday I was on anti biotics for an infected exit site, come thursday after I had come home for the weekend and looking forward to a W/E off I get a call from the Hospital to say I need to come in Friday because the antibiotics they had put me on for the Peritonitious I had was teh wrong antibiotics. Friday, im sat there in the hospital when this nice doctor comes over and tells me ive got 'the killer bug' 'the flesh eating virus' MRSA... (his words not mine) needles to say I started to erm poo my pants and thought I was about to be eaten alive by this evil bug.. The nice nurse was talking to me an hour or so later after they put me on a drip and saw that I was a little worried well a lot worried, she called the head virus control officer for the hospital asking her to have a chat with me. Control officer appears an hour or so later and nicely puts my mind at rest and managed to convince me I wasnt about to become bug food Starting with monday night ater my first day of exchanges I got little sleep because of pain in my chest only relieved a little if i sat up. Tuesday my exit site is infected so I start with antibiotice and I cant see my hand through the bag its that cloudy- ive also got peritonotious. Friday morning for a few hours I really thought I was going to die, so ive had a really bad start to life on PD but there is a little bit of good news, i'm no longer in pain when I fill and drain (well not much) and my bags are starting to clear.... I CAN NOW SEE MY HAND THROUGH THE BAG HOOORAY!!!! Mark ___________________________________________________________ WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet Cafe Awards www.yahoo.co.uk/internetcafes To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Hi Mark, I am glad you are on the downward side of your ordeal and that things are looking up. Getting good sleep and enough rest are essential for feeling good too, so I am happy you are not feeling as much pain and able to sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Hi Mark, I am glad you are on the downward side of your ordeal and that things are looking up. Getting good sleep and enough rest are essential for feeling good too, so I am happy you are not feeling as much pain and able to sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Hi Mark, I am glad you are on the downward side of your ordeal and that things are looking up. Getting good sleep and enough rest are essential for feeling good too, so I am happy you are not feeling as much pain and able to sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Thank you all for your wonderful responses, you must be getting fed up with my whinging mails The latest news is good news, my peritonitious bugs are definately beeing surrounded by the antibiotics and being pummeled into surrender, the pd pags are very nearly clear... I cannot give enough praise to the staff on 6pdu at the Liverpool Royal Hospital, they are kind, listen to all my daft questions and your well being is number 1 priority stuff the cost.. last week I did a silly thing and lightly touched the end of my line, in my training I was told if that happens you need to phone the ward and they will tell you to come in change the line as well as start you on antibiotics.. I rang in and spoke to someone on another ward because it was evening and 6pdu is not open 24hrs so the call is transferred. This man I spoke to told me to wipe it with an alcoholic wipe and come in the nesxt day. I questioned him a couple of times about this and in the end he said he was going to seek advice of his superior, the superior said for me to get in asap. I came in and got my line changed, crises over.. Next day I was in again on 6pdu and told this nurse what had happened in passing and she took off, stormed out of the ward made a note of it in the ward concerned book ensuring that the 1st individual would get his knuckles rapped for telling me the wrong thing... these peaple do care.. Now i'm back at home I have a community nurse come visit me once a week to keep an eye on things, these are specialist renal nurses btw and the things I have learnt from these nurses is unbelievable, when she visits she has a cup of tea and is in no rush to get off which is great, I ask questions and she answers, I cant ask for more I am sleeping normally now, no pains in my chest, no pains on drain and fill, my exit site is clearing and the peritonitious is nearly gone, i still get stomach cramps from the cocktail of antibiotics but these are less severe now and I only have till saturday on them. So all in all things are looking up Mark --------------------------------- Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Thank you all for your wonderful responses, you must be getting fed up with my whinging mails The latest news is good news, my peritonitious bugs are definately beeing surrounded by the antibiotics and being pummeled into surrender, the pd pags are very nearly clear... I cannot give enough praise to the staff on 6pdu at the Liverpool Royal Hospital, they are kind, listen to all my daft questions and your well being is number 1 priority stuff the cost.. last week I did a silly thing and lightly touched the end of my line, in my training I was told if that happens you need to phone the ward and they will tell you to come in change the line as well as start you on antibiotics.. I rang in and spoke to someone on another ward because it was evening and 6pdu is not open 24hrs so the call is transferred. This man I spoke to told me to wipe it with an alcoholic wipe and come in the nesxt day. I questioned him a couple of times about this and in the end he said he was going to seek advice of his superior, the superior said for me to get in asap. I came in and got my line changed, crises over.. Next day I was in again on 6pdu and told this nurse what had happened in passing and she took off, stormed out of the ward made a note of it in the ward concerned book ensuring that the 1st individual would get his knuckles rapped for telling me the wrong thing... these peaple do care.. Now i'm back at home I have a community nurse come visit me once a week to keep an eye on things, these are specialist renal nurses btw and the things I have learnt from these nurses is unbelievable, when she visits she has a cup of tea and is in no rush to get off which is great, I ask questions and she answers, I cant ask for more I am sleeping normally now, no pains in my chest, no pains on drain and fill, my exit site is clearing and the peritonitious is nearly gone, i still get stomach cramps from the cocktail of antibiotics but these are less severe now and I only have till saturday on them. So all in all things are looking up Mark --------------------------------- Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Thank you all for your wonderful responses, you must be getting fed up with my whinging mails The latest news is good news, my peritonitious bugs are definately beeing surrounded by the antibiotics and being pummeled into surrender, the pd pags are very nearly clear... I cannot give enough praise to the staff on 6pdu at the Liverpool Royal Hospital, they are kind, listen to all my daft questions and your well being is number 1 priority stuff the cost.. last week I did a silly thing and lightly touched the end of my line, in my training I was told if that happens you need to phone the ward and they will tell you to come in change the line as well as start you on antibiotics.. I rang in and spoke to someone on another ward because it was evening and 6pdu is not open 24hrs so the call is transferred. This man I spoke to told me to wipe it with an alcoholic wipe and come in the nesxt day. I questioned him a couple of times about this and in the end he said he was going to seek advice of his superior, the superior said for me to get in asap. I came in and got my line changed, crises over.. Next day I was in again on 6pdu and told this nurse what had happened in passing and she took off, stormed out of the ward made a note of it in the ward concerned book ensuring that the 1st individual would get his knuckles rapped for telling me the wrong thing... these peaple do care.. Now i'm back at home I have a community nurse come visit me once a week to keep an eye on things, these are specialist renal nurses btw and the things I have learnt from these nurses is unbelievable, when she visits she has a cup of tea and is in no rush to get off which is great, I ask questions and she answers, I cant ask for more I am sleeping normally now, no pains in my chest, no pains on drain and fill, my exit site is clearing and the peritonitious is nearly gone, i still get stomach cramps from the cocktail of antibiotics but these are less severe now and I only have till saturday on them. So all in all things are looking up Mark --------------------------------- Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Thanks Marty for your well thought our reply, all that you say is correct and is what happened. Its just unlucky I guess that they chose to give me the wrong antibiotic for my particular case. The good thing about the UK NHS is that medical insurance is not a concern so whilst they do there best to cut costs swapping medicines and esp expensive antibiotics, cost isnt the issue as it is in other countrys. So well done the UK NHS. Mark --- mrbluize2003 wrote: > Hello all. It is terrible what you went through > Mark. One thing to > say about the first antibiotic which turned out to > be erroneous. The > common practice in medicine is that when an > infection of any kind is > suspected, the doc prescribes an antibiotic on an > empirical basis. > He or she has no way of knowing with certainty what > the microbe is. > They prescribe based on a " best guess " because if > they are correct > and the microbe is sensitive to that > antibiotic...great. They got an > early start on it. Meanwhile, they run a culture to > find out what > the infection actually is. It normally takes a > couple days to get > the results. I suspect that this is what happened in > your case. The > results came back and the initial " guess " was wrong. > Regarding the > methicillin-resistant staph. aureus [MRSA]. It is > unfortunate that > it is often contacted in a medical setting > (nosocomially). It is > often transfered from one patient to another thru > poor precautionary > measures of the healthcare workers. > > Marty ____________________________________________________________ Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger.yahoo.com/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Thanks Marty for your well thought our reply, all that you say is correct and is what happened. Its just unlucky I guess that they chose to give me the wrong antibiotic for my particular case. The good thing about the UK NHS is that medical insurance is not a concern so whilst they do there best to cut costs swapping medicines and esp expensive antibiotics, cost isnt the issue as it is in other countrys. So well done the UK NHS. Mark --- mrbluize2003 wrote: > Hello all. It is terrible what you went through > Mark. One thing to > say about the first antibiotic which turned out to > be erroneous. The > common practice in medicine is that when an > infection of any kind is > suspected, the doc prescribes an antibiotic on an > empirical basis. > He or she has no way of knowing with certainty what > the microbe is. > They prescribe based on a " best guess " because if > they are correct > and the microbe is sensitive to that > antibiotic...great. They got an > early start on it. Meanwhile, they run a culture to > find out what > the infection actually is. It normally takes a > couple days to get > the results. I suspect that this is what happened in > your case. The > results came back and the initial " guess " was wrong. > Regarding the > methicillin-resistant staph. aureus [MRSA]. It is > unfortunate that > it is often contacted in a medical setting > (nosocomially). It is > often transfered from one patient to another thru > poor precautionary > measures of the healthcare workers. > > Marty ____________________________________________________________ Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger.yahoo.com/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Thanks Marty for your well thought our reply, all that you say is correct and is what happened. Its just unlucky I guess that they chose to give me the wrong antibiotic for my particular case. The good thing about the UK NHS is that medical insurance is not a concern so whilst they do there best to cut costs swapping medicines and esp expensive antibiotics, cost isnt the issue as it is in other countrys. So well done the UK NHS. Mark --- mrbluize2003 wrote: > Hello all. It is terrible what you went through > Mark. One thing to > say about the first antibiotic which turned out to > be erroneous. The > common practice in medicine is that when an > infection of any kind is > suspected, the doc prescribes an antibiotic on an > empirical basis. > He or she has no way of knowing with certainty what > the microbe is. > They prescribe based on a " best guess " because if > they are correct > and the microbe is sensitive to that > antibiotic...great. They got an > early start on it. Meanwhile, they run a culture to > find out what > the infection actually is. It normally takes a > couple days to get > the results. I suspect that this is what happened in > your case. The > results came back and the initial " guess " was wrong. > Regarding the > methicillin-resistant staph. aureus [MRSA]. It is > unfortunate that > it is often contacted in a medical setting > (nosocomially). It is > often transfered from one patient to another thru > poor precautionary > measures of the healthcare workers. > > Marty ____________________________________________________________ Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger.yahoo.com/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 I like to think its just the Dr not thinking straight. He was a jovial chap and perhaps it was just his way of making light of the situation. He probably didnt know that I am an utter newbie of this and every change in my circumstances is a new experiance for me. For me what I knew about MRSA is whats been banded around in the press and on TV ie peaple die from this or have to have limbs amputated to cut out the infection etc, I know differant know and feel silly that I was thinking I was about to be measured up for my coffin size.. Its true what I have heard Knowledge is power, dont you agree Mark --- Cy Webb wrote: > Oh Mark, > You're wracking up points for the ironic humor award > of the week. I am so > sorry you had to go through all this. Between the > infection, the hospital > screw-up on antibiotics, the doc with the great > bedside manner and the > following chest pain it's sounds like it's been a > bear of a week. The one > thing that really scares me about PD is the risk of > infection. I hate to > think the worry that was going through your mind > with that killer bug and > flesh eating virus. Don't those docs know that for > some of us, real life is > difficult enough by itself thank you without further > fantasies??? In any > event, I'm sorry your introduction to PD was - uh - > less than ideal. I am > extremely glad that the infection is clearing. > > Cy ____________________________________________________________ Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger.yahoo.com/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Hi , everything is looking up now thankyou, I will just have to put it all down to teething problems Mark --- W4JC@... wrote: > Hi Mark, > > Your story of starting PD sounds like a nightmare! > What an ordeal. I hope > your fluid is completely clear now, and that you are > feeling better. I can't > even imagine how terrifying that all must have been. > You are due for some > smooth sailing here Mark! > > > ____________________________________________________________ Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger.yahoo.com/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Hi , everything is looking up now thankyou, I will just have to put it all down to teething problems Mark --- W4JC@... wrote: > Hi Mark, > > Your story of starting PD sounds like a nightmare! > What an ordeal. I hope > your fluid is completely clear now, and that you are > feeling better. I can't > even imagine how terrifying that all must have been. > You are due for some > smooth sailing here Mark! > > > ____________________________________________________________ Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger.yahoo.com/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Hi Connie, I hope that my experiance doesnt put you off, I have learnt that in my case that the procedure was only just succesful. All the problems I have had can be put down to the extended time I was having surgery 2 hrs in total and the fact that they could not find a good placement for the canuala. Its a new procedure at this hospital and I was one of the first recipiants so it seems they havnt got it down to fine art yet and I payed the price I hope things are diferant for you, I am sure it will be. For me things are greatly improved now.. Mark --- Connie Sink wrote: > Hi Mark, > I enjoyed reading about your canula insertion. I'm > sorry that the > experience was painful though. Ouch, something that > I don't really like to > hear since this is the direction I am considering > when the time comes. I > wasn't really sure though if the surgery was more > painful or the sexy string > underpants. > > When using the gas to extend your abdomen it does > and can be painful. It > many times is more painful than the after-pain from > the actual surgery. > > Keep us posted on your training and how you're > doing. You're in my > thoughts... > > Connie ____________________________________________________________ Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger.yahoo.com/download/index.html Quote Link to comment Share on other sites More sharing options...
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