Re: Update/manon/attn.Debbie!

[Guest guest]

You know what Debbie, make the appointment to see her

(it's not too far from you) and take your husband. I

know he's very against the banding so any questions or

concerns he would have would be answered for him. I

think hearing it from a doctor that specializes in

plagiocephaly would carry more weight then getting the

info from us (not that we aren't the most informed

group mind you ;-) It's just that some people do not

feel satisfied unless they hear it from a doctor. I

think he will be SO impressed with the evaluation your

daughter will get that he will get on board with what

ever you decide you want to do. Like I said before,

they spent 2 hours with our son. A physical therapist

was there to make sure he was developing physically

for his age. She checked his muscle tone, range of

motion and watched him as he played to check his

mobility. Brielle may do just fine with all the hard

work your doing with repo but wouldn't it be nice to

know for sure? When you call to get your daughter's

appointment, if they tell you it'll be several months,

leave a message for Dr. Trovato and she'll get her in

sooner. That's what I did. Initially they couldn't

get us in till mid Aug. I didn't want to wait that

long because of my son's age so she got us in within 2

weeks.

You know in your heart what's best for your daughter

and you need to follow your gut. It's hard when you

don't have the support of your husband but I think you

owe it to yourself and your daughter to get the

answers you seem so desperately to want to get. In a

few years your going to look back and remember what a

wonderful thing you did for your daughter and how much

you cared about her future and you'll feel very good

about your decision. All your doing is getting

information to help you in making a decision. It's

completely non-invasive and my son just loved the

whole process. After all he got to play and get his

head rubbed by cute ladies!!! :-)

ANyway, you know what's best and I'm not trying to

push you or anything. I just wanted to let you know

that the clinic that Dr. Trovato has started there is

for people like you and me that want answers and are

confused by alot of the info that's out there.

Good luck!

--- Deborah B <aguinesslover@...> wrote:

> Hi Manon, we live in Robbinsville NJ. I feel like

> going to see her,

> but my husband will freak out, because he is alittle

> sick of this

> all. Debbie

>

>

> > > > > >

> > > > > > > I know it's been a few weeks since I've

> > > posted but

> > > > > > > I've been away and

> > > > > > > just came back from my second

> appointment

> > > this

> > > > > > week

> > > > > > > for my sons plagio

> > > > > > > . I've gotten so much help from

> everyone on

> > > this

> > > > > > > board and would not

> > > > > > > be in the position I am right now if it

> were

> > > not

> > > > > > for

> > > > > > > the guidance and

> > > > > > > support of this group. Thanks so very

> much

> > > :-)

> > > > > > > Anyway, we started on Monday at Kennedy

> > > Krieger

> > > > > > > Institute in Baltimore

> > > > > > > to meet with Dr. Trovato. She

> just

> > > > > > started

> > > > > > > a research and

> > > > > > > development clinic there in January for

> > > > > > > plagiocephaly. We met with

> > > > > > > her and a physical therapist and they

> > > evaluated

> > > > > > him

> > > > > > > for 2 hours. I

> > > > > > > finally had the answers I had been

> looking

> > > for.

> > > > > > My

> > > > > > > son has moderate

> > > > > > > to severe brachycephaly with mild plagio

> and

> > > head

> > > > > > > tilt that they felt

> > > > > > > was not due to tort. They did recommend

> > > that if

> > > > > > we

> > > > > > > decided to treat

> > > > > > > his brachy, that we do it now since he

> is

> > > going

> > > > > > into

> > > > > > > his 8th month.

> > > > > > > They said that we should consider

> > > CranioSacral

> > > > > > > therapy along with the

> > > > > > > band and that we should start stretching

> > > exercises

> > > > > > > for his head tilt.

> > > > > > > So then off to CT this morning..... A 2

> hour

> > > drive

> > > > > > > there but worth

> > > > > > > every minute. They also evaluated him

> and

> > > told us

> > > > > > > the same thing the

> > > > > > > doctor had. So all we have to wait for

> now

> > > is

> > > > > > > approval from our

> > > > > > > insurance company and will

> finally

> > > get his

> > > > > > > band. My husband and

> > > > > > > I felt so good about our decision to

> pursue

> > > this

> > > > > > and

> > > > > > > where it has

> > > > > > > brought us. I'm a little freaked out

> about

> > > the

> > > > > > > casting process. The

> > > > > > > pictures of the process REALLY freaked

> me

> > > out. My

> > > > > > > son hates when

> > > > > > > anything is over his face so I can

> imagine

> > > what

> > > > > > > that's going to be

> > > > > > > like. I just have to tell myself that

> it's

> > > only a

> > > > > > > few minutes and it

> > > > > > > well worth it.... :-)

> > > > > > > Thanks again for everything and I'll be

> > > posting

> > > > > > our

> > > > > > > progress as we go

> > > > > > > along.

> > > > > > >

> > > > > > > Manon

> > > > > > > Mom to

> > > > > > > Brachy/seeking treatment

> > > > > > >

> > > > > > >

> > > > > > >

>

=== message truncated ===

Manon

Mom to T.

Brachy/seeking treatment

____________________________________________________

Sports

Rekindle the Rivalries. Sign up for Fantasy Football

http://football.fantasysports.

[Guest guest]

You know what Debbie, make the appointment to see her

(it's not too far from you) and take your husband. I

know he's very against the banding so any questions or

concerns he would have would be answered for him. I

think hearing it from a doctor that specializes in

plagiocephaly would carry more weight then getting the

info from us (not that we aren't the most informed

group mind you ;-) It's just that some people do not

feel satisfied unless they hear it from a doctor. I

think he will be SO impressed with the evaluation your

daughter will get that he will get on board with what

ever you decide you want to do. Like I said before,

they spent 2 hours with our son. A physical therapist

was there to make sure he was developing physically

for his age. She checked his muscle tone, range of

motion and watched him as he played to check his

mobility. Brielle may do just fine with all the hard

work your doing with repo but wouldn't it be nice to

know for sure? When you call to get your daughter's

appointment, if they tell you it'll be several months,

leave a message for Dr. Trovato and she'll get her in

sooner. That's what I did. Initially they couldn't

get us in till mid Aug. I didn't want to wait that

long because of my son's age so she got us in within 2

weeks.

You know in your heart what's best for your daughter

and you need to follow your gut. It's hard when you

don't have the support of your husband but I think you

owe it to yourself and your daughter to get the

answers you seem so desperately to want to get. In a

few years your going to look back and remember what a

wonderful thing you did for your daughter and how much

you cared about her future and you'll feel very good

about your decision. All your doing is getting

information to help you in making a decision. It's

completely non-invasive and my son just loved the

whole process. After all he got to play and get his

head rubbed by cute ladies!!! :-)

ANyway, you know what's best and I'm not trying to

push you or anything. I just wanted to let you know

that the clinic that Dr. Trovato has started there is

for people like you and me that want answers and are

confused by alot of the info that's out there.

Good luck!

--- Deborah B <aguinesslover@...> wrote:

> Hi Manon, we live in Robbinsville NJ. I feel like

> going to see her,

> but my husband will freak out, because he is alittle

> sick of this

> all. Debbie

>

>

> > > > > >

> > > > > > > I know it's been a few weeks since I've

> > > posted but

> > > > > > > I've been away and

> > > > > > > just came back from my second

> appointment

> > > this

> > > > > > week

> > > > > > > for my sons plagio

> > > > > > > . I've gotten so much help from

> everyone on

> > > this

> > > > > > > board and would not

> > > > > > > be in the position I am right now if it

> were

> > > not

> > > > > > for

> > > > > > > the guidance and

> > > > > > > support of this group. Thanks so very

> much

> > > :-)

> > > > > > > Anyway, we started on Monday at Kennedy

> > > Krieger

> > > > > > > Institute in Baltimore

> > > > > > > to meet with Dr. Trovato. She

> just

> > > > > > started

> > > > > > > a research and

> > > > > > > development clinic there in January for

> > > > > > > plagiocephaly. We met with

> > > > > > > her and a physical therapist and they

> > > evaluated

> > > > > > him

> > > > > > > for 2 hours. I

> > > > > > > finally had the answers I had been

> looking

> > > for.

> > > > > > My

> > > > > > > son has moderate

> > > > > > > to severe brachycephaly with mild plagio

> and

> > > head

> > > > > > > tilt that they felt

> > > > > > > was not due to tort. They did recommend

> > > that if

> > > > > > we

> > > > > > > decided to treat

> > > > > > > his brachy, that we do it now since he

> is

> > > going

> > > > > > into

> > > > > > > his 8th month.

> > > > > > > They said that we should consider

> > > CranioSacral

> > > > > > > therapy along with the

> > > > > > > band and that we should start stretching

> > > exercises

> > > > > > > for his head tilt.

> > > > > > > So then off to CT this morning..... A 2

> hour

> > > drive

> > > > > > > there but worth

> > > > > > > every minute. They also evaluated him

> and

> > > told us

> > > > > > > the same thing the

> > > > > > > doctor had. So all we have to wait for

> now

> > > is

> > > > > > > approval from our

> > > > > > > insurance company and will

> finally

> > > get his

> > > > > > > band. My husband and

> > > > > > > I felt so good about our decision to

> pursue

> > > this

> > > > > > and

> > > > > > > where it has

> > > > > > > brought us. I'm a little freaked out

> about

> > > the

> > > > > > > casting process. The

> > > > > > > pictures of the process REALLY freaked

> me

> > > out. My

> > > > > > > son hates when

> > > > > > > anything is over his face so I can

> imagine

> > > what

> > > > > > > that's going to be

> > > > > > > like. I just have to tell myself that

> it's

> > > only a

> > > > > > > few minutes and it

> > > > > > > well worth it.... :-)

> > > > > > > Thanks again for everything and I'll be

> > > posting

> > > > > > our

> > > > > > > progress as we go

> > > > > > > along.

> > > > > > >

> > > > > > > Manon

> > > > > > > Mom to

> > > > > > > Brachy/seeking treatment

> > > > > > >

> > > > > > >

> > > > > > >

>

=== message truncated ===

Manon

Mom to T.

Brachy/seeking treatment

____________________________________________________

Sports

Rekindle the Rivalries. Sign up for Fantasy Football

http://football.fantasysports.

[Guest guest]

Hey Manon. Dr. Trovato was wonderful. I sent her pictures of

Brielle and she got right back to me. I would really like to see her

in person. My husband thinks I am totally obsessed about this, so he

has been upset with me, how can you not become obsessed. Anyway,

I'll try my hardest to get him to go with me, but he really trusts

the Dr. from the Children's Hospital of PA who we saw initially and

go back the end of this month to see where we should go. Dr. Trovato

said based on Brielles pictures and measurements that band or not she

will be o.k. I e-mailed her again some more questions so I'm sure

she'll get back to me. Do you see her again. Debbie

-- In Plagiocephaly , Manon <jeffandmanon@y...> wrote:

> You know what Debbie, make the appointment to see her

> (it's not too far from you) and take your husband. I

> know he's very against the banding so any questions or

> concerns he would have would be answered for him. I

> think hearing it from a doctor that specializes in

> plagiocephaly would carry more weight then getting the

> info from us (not that we aren't the most informed

> group mind you ;-) It's just that some people do not

> feel satisfied unless they hear it from a doctor. I

> think he will be SO impressed with the evaluation your

> daughter will get that he will get on board with what

> ever you decide you want to do. Like I said before,

> they spent 2 hours with our son. A physical therapist

> was there to make sure he was developing physically

> for his age. She checked his muscle tone, range of

> motion and watched him as he played to check his

> mobility. Brielle may do just fine with all the hard

> work your doing with repo but wouldn't it be nice to

> know for sure? When you call to get your daughter's

> appointment, if they tell you it'll be several months,

> leave a message for Dr. Trovato and she'll get her in

> sooner. That's what I did. Initially they couldn't

> get us in till mid Aug. I didn't want to wait that

> long because of my son's age so she got us in within 2

> weeks.

> You know in your heart what's best for your daughter

> and you need to follow your gut. It's hard when you

> don't have the support of your husband but I think you

> owe it to yourself and your daughter to get the

> answers you seem so desperately to want to get. In a

> few years your going to look back and remember what a

> wonderful thing you did for your daughter and how much

> you cared about her future and you'll feel very good

> about your decision. All your doing is getting

> information to help you in making a decision. It's

> completely non-invasive and my son just loved the

> whole process. After all he got to play and get his

> head rubbed by cute ladies!!! :-)

> ANyway, you know what's best and I'm not trying to

> push you or anything. I just wanted to let you know

> that the clinic that Dr. Trovato has started there is

> for people like you and me that want answers and are

> confused by alot of the info that's out there.

>

> Good luck!

>

>

>

>

>

> --- Deborah B <aguinesslover@h...> wrote:

>

> > Hi Manon, we live in Robbinsville NJ. I feel like

> > going to see her,

> > but my husband will freak out, because he is alittle

> > sick of this

> > all. Debbie

> >

> >

> > > > > > >

> > > > > > > > I know it's been a few weeks since I've

> > > > posted but

> > > > > > > > I've been away and

> > > > > > > > just came back from my second

> > appointment

> > > > this

> > > > > > > week

> > > > > > > > for my sons plagio

> > > > > > > > . I've gotten so much help from

> > everyone on

> > > > this

> > > > > > > > board and would not

> > > > > > > > be in the position I am right now if it

> > were

> > > > not

> > > > > > > for

> > > > > > > > the guidance and

> > > > > > > > support of this group. Thanks so very

> > much

> > > > :-)

> > > > > > > > Anyway, we started on Monday at Kennedy

> > > > Krieger

> > > > > > > > Institute in Baltimore

> > > > > > > > to meet with Dr. Trovato. She

> > just

> > > > > > > started

> > > > > > > > a research and

> > > > > > > > development clinic there in January for

> > > > > > > > plagiocephaly. We met with

> > > > > > > > her and a physical therapist and they

> > > > evaluated

> > > > > > > him

> > > > > > > > for 2 hours. I

> > > > > > > > finally had the answers I had been

> > looking

> > > > for.

> > > > > > > My

> > > > > > > > son has moderate

> > > > > > > > to severe brachycephaly with mild plagio

> > and

> > > > head

> > > > > > > > tilt that they felt

> > > > > > > > was not due to tort. They did recommend

> > > > that if

> > > > > > > we

> > > > > > > > decided to treat

> > > > > > > > his brachy, that we do it now since he

> > is

> > > > going

> > > > > > > into

> > > > > > > > his 8th month.

> > > > > > > > They said that we should consider

> > > > CranioSacral

> > > > > > > > therapy along with the

> > > > > > > > band and that we should start stretching

> > > > exercises

> > > > > > > > for his head tilt.

> > > > > > > > So then off to CT this morning..... A 2

> > hour

> > > > drive

> > > > > > > > there but worth

> > > > > > > > every minute. They also evaluated him

> > and

> > > > told us

> > > > > > > > the same thing the

> > > > > > > > doctor had. So all we have to wait for

> > now

> > > > is

> > > > > > > > approval from our

> > > > > > > > insurance company and will

> > finally

> > > > get his

> > > > > > > > band. My husband and

> > > > > > > > I felt so good about our decision to

> > pursue

> > > > this

> > > > > > > and

> > > > > > > > where it has

> > > > > > > > brought us. I'm a little freaked out

> > about

> > > > the

> > > > > > > > casting process. The

> > > > > > > > pictures of the process REALLY freaked

> > me

> > > > out. My

> > > > > > > > son hates when

> > > > > > > > anything is over his face so I can

> > imagine

> > > > what

> > > > > > > > that's going to be

> > > > > > > > like. I just have to tell myself that

> > it's

> > > > only a

> > > > > > > > few minutes and it

> > > > > > > > well worth it.... :-)

> > > > > > > > Thanks again for everything and I'll be

> > > > posting

> > > > > > > our

> > > > > > > > progress as we go

> > > > > > > > along.

> > > > > > > >

> > > > > > > > Manon

> > > > > > > > Mom to

> > > > > > > > Brachy/seeking treatment

> > > > > > > >

> > > > > > > >

> > > > > > > >

> >

> === message truncated ===

>

> Manon

> Mom to T.

> Brachy/seeking treatment

>

>

>

> ____________________________________________________

> Sports

> Rekindle the Rivalries. Sign up for Fantasy Football

> http://football.fantasysports.

[Guest guest]

is going to be part of her research group so

she wants to see him in 3 months to see his progress.

She follows up with all the babies whether they decide

to treat or not.

Being obsessed is not a bad thing. It's all I've

thought about for months and i feel so much better now

that I'm actively doing something...

Manon

--- Deborah B <aguinesslover@...> wrote:

> Hey Manon. Dr. Trovato was wonderful. I sent her

> pictures of

> Brielle and she got right back to me. I would

> really like to see her

> in person. My husband thinks I am totally obsessed

> about this, so he

> has been upset with me, how can you not become

> obsessed. Anyway,

> I'll try my hardest to get him to go with me, but he

> really trusts

> the Dr. from the Children's Hospital of PA who we

> saw initially and

> go back the end of this month to see where we should

> go. Dr. Trovato

> said based on Brielles pictures and measurements

> that band or not she

> will be o.k. I e-mailed her again some more

> questions so I'm sure

> she'll get back to me. Do you see her again.

> Debbie

>

>

> -- In Plagiocephaly , Manon

> <jeffandmanon@y...> wrote:

> > You know what Debbie, make the appointment to see

> her

> > (it's not too far from you) and take your husband.

> I

> > know he's very against the banding so any

> questions or

> > concerns he would have would be answered for him.

> I

> > think hearing it from a doctor that specializes in

> > plagiocephaly would carry more weight then getting

> the

> > info from us (not that we aren't the most informed

> > group mind you ;-) It's just that some people do

> not

> > feel satisfied unless they hear it from a doctor.

> I

> > think he will be SO impressed with the evaluation

> your

> > daughter will get that he will get on board with

> what

> > ever you decide you want to do. Like I said

> before,

> > they spent 2 hours with our son. A physical

> therapist

> > was there to make sure he was developing

> physically

> > for his age. She checked his muscle tone, range

> of

> > motion and watched him as he played to check his

> > mobility. Brielle may do just fine with all the

> hard

> > work your doing with repo but wouldn't it be nice

> to

> > know for sure? When you call to get your

> daughter's

> > appointment, if they tell you it'll be several

> months,

> > leave a message for Dr. Trovato and she'll get her

> in

> > sooner. That's what I did. Initially they

> couldn't

> > get us in till mid Aug. I didn't want to wait

> that

> > long because of my son's age so she got us in

> within 2

> > weeks.

> > You know in your heart what's best for your

> daughter

> > and you need to follow your gut. It's hard when

> you

> > don't have the support of your husband but I think

> you

> > owe it to yourself and your daughter to get the

> > answers you seem so desperately to want to get.

> In a

> > few years your going to look back and remember

> what a

> > wonderful thing you did for your daughter and how

> much

> > you cared about her future and you'll feel very

> good

> > about your decision. All your doing is getting

> > information to help you in making a decision.

> It's

> > completely non-invasive and my son just loved the

> > whole process. After all he got to play and get

> his

> > head rubbed by cute ladies!!! :-)

> > ANyway, you know what's best and I'm not trying to

> > push you or anything. I just wanted to let you

> know

> > that the clinic that Dr. Trovato has started there

> is

> > for people like you and me that want answers and

> are

> > confused by alot of the info that's out there.

> >

> > Good luck!

> >

> >

> >

> >

> >

> > --- Deborah B <aguinesslover@h...> wrote:

> >

> > > Hi Manon, we live in Robbinsville NJ. I feel

> like

> > > going to see her,

> > > but my husband will freak out, because he is

> alittle

> > > sick of this

> > > all. Debbie

> > >

> > >

> > > > > > >

> > > > > > > > I was just thinking about you the

> other

> > > day

> > > > > and

> > > > > > > > wondered what the status was. I am

> glad

> > > that

> > > > > you

> > > > > > > > have

> > > > > > > > gotten the answers you were looking

> for. I

>

=== message truncated ===

____________________________________________________

Sports

Rekindle the Rivalries. Sign up for Fantasy Football

http://football.fantasysports.