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MELD PSC Comment:

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>

>

> P.S. Sorry if this seems harsh but I just find it really

frustrating

> when statements are made and conclusions are drawn without

checking the

> facts first. The statements about MELD being biased against PSC

> patients is another example. New people here just learning don't

know

> how to seperate fact from fiction.

That is ok to sound harsh, because I often do the same thing. AS for

your comment about being " frustrated about not checking the facts

first. "

The MELD comment is something our specialist made in passing. I also

stated that the MELD score is not always best for those with PSC. I

did not say it was biased against PSC. Maybe it is potato pototo to

you, but there is a difference. Anyway my statement was based on

information gathered from our doctor. Who knows maybe we are the

ones who need to get a new doctor. No wait, he is Director of the

UPMC Center for Liver Diseases, and one of the liver transplant

physicians at the E. Starzl Transplantation Institute. But

who knows maybe he doesn't know the facts?

If I sound snide and upset well I am a bit. I don't enjoy being

pointed at for making false statements.

On a positive note, I will say there have been many subjects that I

have agreed with you on. I realize that I can learn a lot from your

experiences. I also know there may be a bit more banter between us,

but thats OK because I enjoy a good banter, and I learn from them.

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