Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Deana, Another nurse to the group. I am a psych nurse and your story was incredable. Thank you for sharing with us. I am so sorry your husband does not support you. You will be able to print out a lot of infor for him. Once you get connected to these groups, there are a lot of links and a lot of stories. Just remember fibro is not in your head nor is depression. I get so mad when I hear how people with invisible illnesses are treated, fibro and depression are just a few I'm referring to. I find this group will give a lot of self-confidence back. A lot of us have been treated poorly be doctor's, friends and family. Hang in there. You will get great support here. Kathy D. Diagnosed in 98 Live in Western Massachusetts Married for almost 19yrs, to a sweetheart Mother to 16 and 14 My Rottie dog Shelby Spooky the cat Hobbies: Boating, Learning this computer Arts & Crafts, and a passionate reader Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Deana, Another nurse to the group. I am a psych nurse and your story was incredable. Thank you for sharing with us. I am so sorry your husband does not support you. You will be able to print out a lot of infor for him. Once you get connected to these groups, there are a lot of links and a lot of stories. Just remember fibro is not in your head nor is depression. I get so mad when I hear how people with invisible illnesses are treated, fibro and depression are just a few I'm referring to. I find this group will give a lot of self-confidence back. A lot of us have been treated poorly be doctor's, friends and family. Hang in there. You will get great support here. Kathy D. Diagnosed in 98 Live in Western Massachusetts Married for almost 19yrs, to a sweetheart Mother to 16 and 14 My Rottie dog Shelby Spooky the cat Hobbies: Boating, Learning this computer Arts & Crafts, and a passionate reader Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Welcome Deana, Glad to have you with us. Your problems on finding out what is wrong is the way most of us have gone. I go to a rheumatologist for pain management. Are you on any kind of medication for pain? All of here will be here to support you, listen to you and help in amy way we can. Take care, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Welcome Deana, Glad to have you with us. Your problems on finding out what is wrong is the way most of us have gone. I go to a rheumatologist for pain management. Are you on any kind of medication for pain? All of here will be here to support you, listen to you and help in amy way we can. Take care, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Welcome Deana, Glad to have you with us. Your problems on finding out what is wrong is the way most of us have gone. I go to a rheumatologist for pain management. Are you on any kind of medication for pain? All of here will be here to support you, listen to you and help in amy way we can. Take care, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Deana, Thanks for sharing more about yourself with us. I feel so much for you and your struggle. I'm glad you have found support in your church. That is so important to those of us who are suffering with chronic pain. You sound like a very strong woman, hang in there! Where in CA are you? Joy nickname: Fawn 28 yrs. old dx 1/01, FMS symptoms for 19 yrs. live with Navy SO Baby cat 10 yrs old Hobbies: Cars, Gardening, Tropical Fish, Karaoke San Diego, CA ICQ: 19951984 AOL IM: Fawndles YAHOO: Fawnz73rs fibromyalgia To the group: I am a four year diagnosed fms person. But it feels like the last year has been the worse of my life. I started out with flu-like symptoms in may of 1997 and was diagnosed with fibromyalgia in July of 1997. But I believe I had it way before that. Because I had severe pain in certain parts of my body, saw my doctor she got x rays and found nothing. I would go home to a husband who would call me a hypochondriac and I was depressed due to the pain to so I got Dr Jekyll and Mr hyde. The depression got worse and worse. I had many small flu like symptoms which I would call my doctor and she would order antibiotics. Sometimes I had a sore throat and fever and other times just the achiness. This really started in the early 90's I also develop irritable bowel and endometriosis was found. I had a hysterectomy in October of 1995. then for awhile it seem except for some flu symptoms from time to time and the irritable bowel, I seem to be doing better. Even seemed like the depression subsided. Then in may of " 97 " I came down with flu like symptoms. I had a sore throat for one day. But no fever. I continued to work do my house work convincing myself that I maybe was a psycho and decided not to call the doctor. Well this so called flu lasted for a whole month. I missed tons of work was tired all the time and my husband and I was fighting constantly about me missing work and to stop my whinnying and looking for self-pity. So I desperately pushed and pushed myself to keep my husband happy. By the end of may I could no longer get out of bed. I finally called my doctor. She saw me almost immediately. She never said much mention a few thoughts and ran a bunch of test and blood work. Well everything came back negative, to my husband who was in the background laughing, I told you so was exactly what he had been waiting to say. But My doctor decided that the symptoms lasted to long and with my history sent me to a rheumatologist. My appointment with him was going to be a 2 month wait. So I continued to push myself. Finally that day arrived. I must tell you by this time I was having anxiety attacks, outbreaks of uncontrollable crying, which really had my marriage in an uproar. The appointment was the most physical and mentally exhausting hour I spent with a doctor. For he was one of these it is all in your head guys. Of course, not knowing nothing about the illness nor the controversy behind it, I truly believed I was loosing my mind. He examined me, tears streaming down my eyes and my body jumping off the bed as he hit the pressure points one at a time. He stopped without any kind word, shook my hand well glad to have meant you, you have fibromyalgia and I will send a written report to your doctor, at that point I could do nothing but run with my tail between my legs. I cried all the way home and of course had no support waiting for me there. He had, had a hard day and did not want to hear about my aches and pains. Well the following week I saw my physician who by the way has been by my side all the way. Without her support I probably would have done what I think each of us have thought in the process,...end it all. October of last year between still no emotional support at home and trying to still function the same way I finally had a nervous breakdown and went at the advice of my doctor to a psyche facility and checked myself in. The struggle has been a uphill battle then and to now. To shorten it now that I have rambled long enough. I am on a regiment of medication for depression, sleep, pain and migraine headaches. I have recently returned to work, part-time and am in the middle of deciding which route to take for the rest of my life. I do not know if life with my husband will still remain, I am giving much thought to leaving that behind me and working on obtaining SDI because even part-time I am missing work and my job is on the line. I see a wonderful therapist weekly who has helped me tremendously to pick myself up and think good things of myself, I have joined a church group and they are my spiritual brothers and sisters and I obtain my emotional sanity from my faith and trust in God and my therapist. So you could say I am doing better. But still many tough decisions to make as I have read so have all of you. I have empathy and respect for each of you and what you have been through or are going through and I would like to include this group as a part of my many supportive friends and would love to return the favor by being a support to anyone of you who I may be able to help. Thank you for listening and being there. May God bless each and everyone of you and your families and reach his hand down upon you all and heal or strengthen you to deal with what we have been dealt. Deana age:46 dx'd 1997 mother of 2 ages: 26 and 23 out of the house and on own R.N. in a NICU for 11 years hobbies: church activities, reading and computer surfing Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 You are not alone in this. I did the same thing. I finally did take as I was supposed too but I was finally put on a stronger medication. Take care, Irene > . My doctor is great and she had tried for a long > time to get me to take the Vicodon on a regular schedule and I had > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 You are not alone in this. I did the same thing. I finally did take as I was supposed too but I was finally put on a stronger medication. Take care, Irene > . My doctor is great and she had tried for a long > time to get me to take the Vicodon on a regular schedule and I had > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 You are not alone in this. I did the same thing. I finally did take as I was supposed too but I was finally put on a stronger medication. Take care, Irene > . My doctor is great and she had tried for a long > time to get me to take the Vicodon on a regular schedule and I had > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 In a message dated 5/24/01 6:27:40 PM Eastern Daylight Time, dee453@... writes: > . Are you on pain > medications too? And have you found one that helps best for you? Do you > still work? I am part-time now, but do not know how long I will > maintain at those hours. Thanks for writing back, I am just so happy > I > found this site. Deana > > Deana, Hello! I have not met you but welcome. I am also a nurse but unable to work. The pain of this is bad. I take Percocet, but it doesn't touch the pain. I have an appt on the 1st to re adjust my med's. I have tried Vicoden with no sucess. I have a real high tolerance for medicines and it's hard to treat me. I also take Neurontin, 1800mgs. I have migrains and the Neurontin has been a life saver. I wish you luck. I hope you have some pain free days. Take care of yourself. Kathy D. Diagnosed in 98 Live in Western Massachusetts Married for almost 19yrs, to a sweetheart Mother to 16 and 14 My Rottie dog Shelby Spooky the cat Hobbies: Boating, Learning this computer Arts & Crafts, and a passionate reader Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 In a message dated 5/24/01 6:27:40 PM Eastern Daylight Time, dee453@... writes: > . Are you on pain > medications too? And have you found one that helps best for you? Do you > still work? I am part-time now, but do not know how long I will > maintain at those hours. Thanks for writing back, I am just so happy > I > found this site. Deana > > Deana, Hello! I have not met you but welcome. I am also a nurse but unable to work. The pain of this is bad. I take Percocet, but it doesn't touch the pain. I have an appt on the 1st to re adjust my med's. I have tried Vicoden with no sucess. I have a real high tolerance for medicines and it's hard to treat me. I also take Neurontin, 1800mgs. I have migrains and the Neurontin has been a life saver. I wish you luck. I hope you have some pain free days. Take care of yourself. Kathy D. Diagnosed in 98 Live in Western Massachusetts Married for almost 19yrs, to a sweetheart Mother to 16 and 14 My Rottie dog Shelby Spooky the cat Hobbies: Boating, Learning this computer Arts & Crafts, and a passionate reader Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 In a message dated 5/24/01 6:27:40 PM Eastern Daylight Time, dee453@... writes: > . Are you on pain > medications too? And have you found one that helps best for you? Do you > still work? I am part-time now, but do not know how long I will > maintain at those hours. Thanks for writing back, I am just so happy > I > found this site. Deana > > Deana, Hello! I have not met you but welcome. I am also a nurse but unable to work. The pain of this is bad. I take Percocet, but it doesn't touch the pain. I have an appt on the 1st to re adjust my med's. I have tried Vicoden with no sucess. I have a real high tolerance for medicines and it's hard to treat me. I also take Neurontin, 1800mgs. I have migrains and the Neurontin has been a life saver. I wish you luck. I hope you have some pain free days. Take care of yourself. Kathy D. Diagnosed in 98 Live in Western Massachusetts Married for almost 19yrs, to a sweetheart Mother to 16 and 14 My Rottie dog Shelby Spooky the cat Hobbies: Boating, Learning this computer Arts & Crafts, and a passionate reader Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Kathy, Thank you for responding to my story. I am happy I have found this sight and I already have had so much inspiration that I can't wait to get on my puter to check my mail. My husband and I have a fight everytime I ask him to read anything. So I have given up and I just have to work on myself. i have decided I come first and no one else but I can change any way of thinking or bring any kind of joy to my life but me. But the nice thing is now I have all of you and knowing I am not alone and hearing stories that encourage me to fight has brough a ray of sunlight to my life. I am so happy to be part of the group and wish to help and support anyone in need too. That will also bring joy to my life. Do you still work? I do not know how much longer I will be able to but I will be able to at least now fight some emotions thanks to this wonderful group. Deana Fick diagnosed 1997 live Galt, CA Mother of 2 age 26 and 23 2 special babies my cat Cheetoh and my minature schnauzer Chad On Thu, 24 May 2001 05:40:34 EDT faydra913@... writes: > Deana, > Another nurse to the group. I am a psych nurse and your story was > > incredable. Thank you for sharing with us. I am so sorry your > husband does > not support you. You will be able to print out a lot of infor for > him. Once > you get connected to these groups, there are a lot of links and a > lot of > stories. Just remember fibro is not in your head nor is depression. > I get > so mad when I hear how people with invisible illnesses are treated, > fibro and > depression are just a few I'm referring to. I find this group will > give a > lot of self-confidence back. A lot of us have been treated poorly > be > doctor's, friends and family. Hang in there. You will get great > support > here. > > Kathy D. > Diagnosed in 98 > Live in Western Massachusetts > Married for almost 19yrs, to a sweetheart > Mother to 16 and 14 > My Rottie dog Shelby > Spooky the cat > Hobbies: Boating, Learning this computer > Arts & Crafts, and a passionate reader > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Kathy, Thank you for responding to my story. I am happy I have found this sight and I already have had so much inspiration that I can't wait to get on my puter to check my mail. My husband and I have a fight everytime I ask him to read anything. So I have given up and I just have to work on myself. i have decided I come first and no one else but I can change any way of thinking or bring any kind of joy to my life but me. But the nice thing is now I have all of you and knowing I am not alone and hearing stories that encourage me to fight has brough a ray of sunlight to my life. I am so happy to be part of the group and wish to help and support anyone in need too. That will also bring joy to my life. Do you still work? I do not know how much longer I will be able to but I will be able to at least now fight some emotions thanks to this wonderful group. Deana Fick diagnosed 1997 live Galt, CA Mother of 2 age 26 and 23 2 special babies my cat Cheetoh and my minature schnauzer Chad On Thu, 24 May 2001 05:40:34 EDT faydra913@... writes: > Deana, > Another nurse to the group. I am a psych nurse and your story was > > incredable. Thank you for sharing with us. I am so sorry your > husband does > not support you. You will be able to print out a lot of infor for > him. Once > you get connected to these groups, there are a lot of links and a > lot of > stories. Just remember fibro is not in your head nor is depression. > I get > so mad when I hear how people with invisible illnesses are treated, > fibro and > depression are just a few I'm referring to. I find this group will > give a > lot of self-confidence back. A lot of us have been treated poorly > be > doctor's, friends and family. Hang in there. You will get great > support > here. > > Kathy D. > Diagnosed in 98 > Live in Western Massachusetts > Married for almost 19yrs, to a sweetheart > Mother to 16 and 14 > My Rottie dog Shelby > Spooky the cat > Hobbies: Boating, Learning this computer > Arts & Crafts, and a passionate reader > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Irene, Thank you for writing back to me. Every e-mail is so special. I am on pain medication. And we have tried many but Vicodin has helped the best. My doctor is great and she had tried for a long time to get me to take the vicodin on a regular schedule and I had refused. I suffered alot taking it only when it was so bad I wanted to end it. Being a nurse and growing up in a family of addicted members I was afraid of becoming addicted too. But I have been on a regular scheduled does since March and I must say she is right and I do not feel like I could not stop if the pain did. Are you on pain medications too? And have you found one that helps best for you? Do you still work? I am part-time now, but do not know how long I will maintain at those hours. Thanks for writing back, I am just so happy I found this site. Deana On Thu, 24 May 2001 10:28:51 EDT patidu@... writes: > Welcome Deana, > > Glad to have you with us. Your problems on finding out what is > wrong is the > way most of us have gone. I go to a rheumatologist for pain > management. Are > you on any kind of medication for pain? > > All of here will be here to support you, listen to you and help in > amy way we > can. > > Take care, > Irene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Joy, Thanks for the compliment. I do not feel strong. So many times I want to give up. But you are right many blessings with the support groups. I live in a small town called Galt, about 35 miles south of sacramento. I did not pay attention we were practically roommates. haha! Deana On Thu, 24 May 2001 12:27:21 -0700 JOY writes: > Deana, > > Thanks for sharing more about yourself with us. I feel so much for > you and > your struggle. I'm glad you have found support in your church. That > is so > important to those of us who are suffering with chronic pain. You > sound > like a very strong woman, hang in there! > > Where in CA are you? > > Joy > nickname: Fawn > 28 yrs. old > dx 1/01, FMS symptoms for 19 yrs. > live with Navy SO > Baby cat 10 yrs old > Hobbies: Cars, Gardening, Tropical Fish, Karaoke > San Diego, CA > ICQ: 19951984 > AOL IM: Fawndles > YAHOO: Fawnz73rs > > fibromyalgia > > > To the group: > I am a four year diagnosed fms person. > But it feels like the last year has been the worse of my life. I > started out with flu-like symptoms in may of 1997 and was diagnosed > with > fibromyalgia in July of 1997. But I believe I had it way before > that. > Because I had severe pain in certain parts of my body, saw my doctor > she > got x rays and found nothing. I would go home to a husband who > would > call me a hypochondriac and I was depressed due to the pain to so I > got > Dr Jekyll and Mr hyde. The depression got worse and worse. I had > many > small flu like symptoms which I would call my doctor and she would > order > antibiotics. Sometimes I had a sore throat and fever and other > times > just the achiness. This really started in the early 90's I also > develop > irritable bowel and endometriosis was found. I had a hysterectomy > in > October of 1995. then for awhile it seem except for some flu > symptoms > from time to time and the irritable bowel, I seem to be doing > better. > Even seemed like the depression subsided. > Then > in may of " 97 " I came > down with flu like symptoms. I had a sore throat for one day. But > no > fever. I continued to work do my house work convincing myself that > I > maybe was a psycho and decided not to call the doctor. Well this so > called flu lasted for a whole month. I missed tons of work was > tired all > the time and my husband and I was fighting constantly about me > missing > work and to stop my whinnying and looking for self-pity. So I > desperately pushed and pushed myself to keep my husband happy. By > the > end of may I could no longer get out of bed. I finally called my > doctor. > She saw me almost immediately. She never said much mention a few > thoughts and ran a bunch of test and blood work. Well everything > came > back negative, to my husband who was in the background laughing, I > told > you so was exactly what he had been waiting to say. But My doctor > decided that the symptoms lasted to long and with my history sent me > to a > rheumatologist. > My > appointment with him was going to be a 2 month > wait. So I continued to push myself. Finally that day arrived. I > must > tell you by this time I was having anxiety attacks, outbreaks of > uncontrollable crying, which really had my marriage in an uproar. > The > appointment > was the most physical and mentally exhausting > hour I spent with a doctor. For he was one of these it is all in > your > head guys. Of course, not knowing nothing about the illness nor the > controversy behind it, I truly believed I was loosing my mind. He > examined me, tears streaming down my eyes and my body jumping off > the > bed as he hit the pressure points one at a time. He stopped > without any > kind word, shook my hand well glad to have meant you, you have > fibromyalgia and I will send a written report to your doctor, at > that > point I could do nothing but run with my tail between my legs. I > cried > all the way home and of course had no support waiting for me there. > He > had, had a hard day and did not want to hear about my aches and > pains. > Well > the following week I saw my physician who by the > way has been by my side all the way. Without her support I probably > would have done what I think each of us have thought in the > process,...end it all. > October of last year between still no > emotional support at home and trying to still function the same way > I > finally had a nervous breakdown and went at the advice of my doctor > to a > psyche facility and checked myself in. The struggle has been a > uphill > battle then and to now. To > shorten > it now that I have rambled long > enough. I am on a regiment of medication for depression, sleep, > pain and > migraine headaches. I have recently returned to work, part-time and > am > in the middle of deciding which route to take for the rest of my > life. I > do not know if life with my husband will still remain, I am giving > much > thought to leaving that behind me and working on obtaining SDI > because > even part-time I am missing work and my job is on the line. > I see a > wonderful therapist weekly who has helped me tremendously to pick > myself > up and think good things of myself, I have joined a church group > and > they are my spiritual brothers and sisters and I obtain my emotional > sanity from my faith and trust in God and my therapist. So you > could say > I am doing better. But still many tough decisions to make as I have > read > so have all of you. I have empathy and respect for each of you and > what > you have been through or are going through and I would like to > include > this group as a part of my many supportive friends and would love to > return the favor by being a support to anyone of you who I may be > able to > help. Thank you for listening and being there. May God bless each > and > everyone of you and your families and reach his hand down upon you > all > and heal or strengthen you to deal with what we have been > dealt. > Deana age:46 dx'd > 1997 > mother of 2 > ages: 26 and 23 out of the house and on own R.N. in a NICU for > 11 > years hobbies: church > activities, > reading and computer surfing > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Joy, Thanks for the compliment. I do not feel strong. So many times I want to give up. But you are right many blessings with the support groups. I live in a small town called Galt, about 35 miles south of sacramento. I did not pay attention we were practically roommates. haha! Deana On Thu, 24 May 2001 12:27:21 -0700 JOY writes: > Deana, > > Thanks for sharing more about yourself with us. I feel so much for > you and > your struggle. I'm glad you have found support in your church. That > is so > important to those of us who are suffering with chronic pain. You > sound > like a very strong woman, hang in there! > > Where in CA are you? > > Joy > nickname: Fawn > 28 yrs. old > dx 1/01, FMS symptoms for 19 yrs. > live with Navy SO > Baby cat 10 yrs old > Hobbies: Cars, Gardening, Tropical Fish, Karaoke > San Diego, CA > ICQ: 19951984 > AOL IM: Fawndles > YAHOO: Fawnz73rs > > fibromyalgia > > > To the group: > I am a four year diagnosed fms person. > But it feels like the last year has been the worse of my life. I > started out with flu-like symptoms in may of 1997 and was diagnosed > with > fibromyalgia in July of 1997. But I believe I had it way before > that. > Because I had severe pain in certain parts of my body, saw my doctor > she > got x rays and found nothing. I would go home to a husband who > would > call me a hypochondriac and I was depressed due to the pain to so I > got > Dr Jekyll and Mr hyde. The depression got worse and worse. I had > many > small flu like symptoms which I would call my doctor and she would > order > antibiotics. Sometimes I had a sore throat and fever and other > times > just the achiness. This really started in the early 90's I also > develop > irritable bowel and endometriosis was found. I had a hysterectomy > in > October of 1995. then for awhile it seem except for some flu > symptoms > from time to time and the irritable bowel, I seem to be doing > better. > Even seemed like the depression subsided. > Then > in may of " 97 " I came > down with flu like symptoms. I had a sore throat for one day. But > no > fever. I continued to work do my house work convincing myself that > I > maybe was a psycho and decided not to call the doctor. Well this so > called flu lasted for a whole month. I missed tons of work was > tired all > the time and my husband and I was fighting constantly about me > missing > work and to stop my whinnying and looking for self-pity. So I > desperately pushed and pushed myself to keep my husband happy. By > the > end of may I could no longer get out of bed. I finally called my > doctor. > She saw me almost immediately. She never said much mention a few > thoughts and ran a bunch of test and blood work. Well everything > came > back negative, to my husband who was in the background laughing, I > told > you so was exactly what he had been waiting to say. But My doctor > decided that the symptoms lasted to long and with my history sent me > to a > rheumatologist. > My > appointment with him was going to be a 2 month > wait. So I continued to push myself. Finally that day arrived. I > must > tell you by this time I was having anxiety attacks, outbreaks of > uncontrollable crying, which really had my marriage in an uproar. > The > appointment > was the most physical and mentally exhausting > hour I spent with a doctor. For he was one of these it is all in > your > head guys. Of course, not knowing nothing about the illness nor the > controversy behind it, I truly believed I was loosing my mind. He > examined me, tears streaming down my eyes and my body jumping off > the > bed as he hit the pressure points one at a time. He stopped > without any > kind word, shook my hand well glad to have meant you, you have > fibromyalgia and I will send a written report to your doctor, at > that > point I could do nothing but run with my tail between my legs. I > cried > all the way home and of course had no support waiting for me there. > He > had, had a hard day and did not want to hear about my aches and > pains. > Well > the following week I saw my physician who by the > way has been by my side all the way. Without her support I probably > would have done what I think each of us have thought in the > process,...end it all. > October of last year between still no > emotional support at home and trying to still function the same way > I > finally had a nervous breakdown and went at the advice of my doctor > to a > psyche facility and checked myself in. The struggle has been a > uphill > battle then and to now. To > shorten > it now that I have rambled long > enough. I am on a regiment of medication for depression, sleep, > pain and > migraine headaches. I have recently returned to work, part-time and > am > in the middle of deciding which route to take for the rest of my > life. I > do not know if life with my husband will still remain, I am giving > much > thought to leaving that behind me and working on obtaining SDI > because > even part-time I am missing work and my job is on the line. > I see a > wonderful therapist weekly who has helped me tremendously to pick > myself > up and think good things of myself, I have joined a church group > and > they are my spiritual brothers and sisters and I obtain my emotional > sanity from my faith and trust in God and my therapist. So you > could say > I am doing better. But still many tough decisions to make as I have > read > so have all of you. I have empathy and respect for each of you and > what > you have been through or are going through and I would like to > include > this group as a part of my many supportive friends and would love to > return the favor by being a support to anyone of you who I may be > able to > help. Thank you for listening and being there. May God bless each > and > everyone of you and your families and reach his hand down upon you > all > and heal or strengthen you to deal with what we have been > dealt. > Deana age:46 dx'd > 1997 > mother of 2 > ages: 26 and 23 out of the house and on own R.N. in a NICU for > 11 > years hobbies: church > activities, > reading and computer surfing > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Joy, Thanks for the compliment. I do not feel strong. So many times I want to give up. But you are right many blessings with the support groups. I live in a small town called Galt, about 35 miles south of sacramento. I did not pay attention we were practically roommates. haha! Deana On Thu, 24 May 2001 12:27:21 -0700 JOY writes: > Deana, > > Thanks for sharing more about yourself with us. I feel so much for > you and > your struggle. I'm glad you have found support in your church. That > is so > important to those of us who are suffering with chronic pain. You > sound > like a very strong woman, hang in there! > > Where in CA are you? > > Joy > nickname: Fawn > 28 yrs. old > dx 1/01, FMS symptoms for 19 yrs. > live with Navy SO > Baby cat 10 yrs old > Hobbies: Cars, Gardening, Tropical Fish, Karaoke > San Diego, CA > ICQ: 19951984 > AOL IM: Fawndles > YAHOO: Fawnz73rs > > fibromyalgia > > > To the group: > I am a four year diagnosed fms person. > But it feels like the last year has been the worse of my life. I > started out with flu-like symptoms in may of 1997 and was diagnosed > with > fibromyalgia in July of 1997. But I believe I had it way before > that. > Because I had severe pain in certain parts of my body, saw my doctor > she > got x rays and found nothing. I would go home to a husband who > would > call me a hypochondriac and I was depressed due to the pain to so I > got > Dr Jekyll and Mr hyde. The depression got worse and worse. I had > many > small flu like symptoms which I would call my doctor and she would > order > antibiotics. Sometimes I had a sore throat and fever and other > times > just the achiness. This really started in the early 90's I also > develop > irritable bowel and endometriosis was found. I had a hysterectomy > in > October of 1995. then for awhile it seem except for some flu > symptoms > from time to time and the irritable bowel, I seem to be doing > better. > Even seemed like the depression subsided. > Then > in may of " 97 " I came > down with flu like symptoms. I had a sore throat for one day. But > no > fever. I continued to work do my house work convincing myself that > I > maybe was a psycho and decided not to call the doctor. Well this so > called flu lasted for a whole month. I missed tons of work was > tired all > the time and my husband and I was fighting constantly about me > missing > work and to stop my whinnying and looking for self-pity. So I > desperately pushed and pushed myself to keep my husband happy. By > the > end of may I could no longer get out of bed. I finally called my > doctor. > She saw me almost immediately. She never said much mention a few > thoughts and ran a bunch of test and blood work. Well everything > came > back negative, to my husband who was in the background laughing, I > told > you so was exactly what he had been waiting to say. But My doctor > decided that the symptoms lasted to long and with my history sent me > to a > rheumatologist. > My > appointment with him was going to be a 2 month > wait. So I continued to push myself. Finally that day arrived. I > must > tell you by this time I was having anxiety attacks, outbreaks of > uncontrollable crying, which really had my marriage in an uproar. > The > appointment > was the most physical and mentally exhausting > hour I spent with a doctor. For he was one of these it is all in > your > head guys. Of course, not knowing nothing about the illness nor the > controversy behind it, I truly believed I was loosing my mind. He > examined me, tears streaming down my eyes and my body jumping off > the > bed as he hit the pressure points one at a time. He stopped > without any > kind word, shook my hand well glad to have meant you, you have > fibromyalgia and I will send a written report to your doctor, at > that > point I could do nothing but run with my tail between my legs. I > cried > all the way home and of course had no support waiting for me there. > He > had, had a hard day and did not want to hear about my aches and > pains. > Well > the following week I saw my physician who by the > way has been by my side all the way. Without her support I probably > would have done what I think each of us have thought in the > process,...end it all. > October of last year between still no > emotional support at home and trying to still function the same way > I > finally had a nervous breakdown and went at the advice of my doctor > to a > psyche facility and checked myself in. The struggle has been a > uphill > battle then and to now. To > shorten > it now that I have rambled long > enough. I am on a regiment of medication for depression, sleep, > pain and > migraine headaches. I have recently returned to work, part-time and > am > in the middle of deciding which route to take for the rest of my > life. I > do not know if life with my husband will still remain, I am giving > much > thought to leaving that behind me and working on obtaining SDI > because > even part-time I am missing work and my job is on the line. > I see a > wonderful therapist weekly who has helped me tremendously to pick > myself > up and think good things of myself, I have joined a church group > and > they are my spiritual brothers and sisters and I obtain my emotional > sanity from my faith and trust in God and my therapist. So you > could say > I am doing better. But still many tough decisions to make as I have > read > so have all of you. I have empathy and respect for each of you and > what > you have been through or are going through and I would like to > include > this group as a part of my many supportive friends and would love to > return the favor by being a support to anyone of you who I may be > able to > help. Thank you for listening and being there. May God bless each > and > everyone of you and your families and reach his hand down upon you > all > and heal or strengthen you to deal with what we have been > dealt. > Deana age:46 dx'd > 1997 > mother of 2 > ages: 26 and 23 out of the house and on own R.N. in a NICU for > 11 > years hobbies: church > activities, > reading and computer surfing > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Deana, Yes, it was me. Sorry to be so short with you. I got the whole message but I highlighted the part I wanted to answer and replied. I did not need to resend the whole message. As I was saying, I did not take my first medication as I was supposed to and therefore it did not do any good. I have been put on MS condin and I use the Vicodon as a medication for break through pain. Please don't worry to much about the mini strokes. The blood thinner will help you. If your doctor is not worried about it, then I would pay attention to him. If he thought it was a problem, he would tell you and would do more tests. Worry will cause stress and stress can cause extra pain. I know how hard it must be to be 24 and all of these things seem to be happening. See your doctor, do what s/he says and if it makes you feel better, try not to worry. There are still a lot of things that you can do. For one, think positive. Do what you can and if you can't do it, let it go. Don't let others bother you. You know that you are not well and if they don't understand, so be it. Take care of yourself, We care for you, Irene > > Irene did you get my whole message you must have but it came to me cut > off so I was not sure you knew who was talking about the pain med. Sorry > I must be careful what I say. Deana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Deana, Yes, it was me. Sorry to be so short with you. I got the whole message but I highlighted the part I wanted to answer and replied. I did not need to resend the whole message. As I was saying, I did not take my first medication as I was supposed to and therefore it did not do any good. I have been put on MS condin and I use the Vicodon as a medication for break through pain. Please don't worry to much about the mini strokes. The blood thinner will help you. If your doctor is not worried about it, then I would pay attention to him. If he thought it was a problem, he would tell you and would do more tests. Worry will cause stress and stress can cause extra pain. I know how hard it must be to be 24 and all of these things seem to be happening. See your doctor, do what s/he says and if it makes you feel better, try not to worry. There are still a lot of things that you can do. For one, think positive. Do what you can and if you can't do it, let it go. Don't let others bother you. You know that you are not well and if they don't understand, so be it. Take care of yourself, We care for you, Irene > > Irene did you get my whole message you must have but it came to me cut > off so I was not sure you knew who was talking about the pain med. Sorry > I must be careful what I say. Deana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Deana, Yes, it was me. Sorry to be so short with you. I got the whole message but I highlighted the part I wanted to answer and replied. I did not need to resend the whole message. As I was saying, I did not take my first medication as I was supposed to and therefore it did not do any good. I have been put on MS condin and I use the Vicodon as a medication for break through pain. Please don't worry to much about the mini strokes. The blood thinner will help you. If your doctor is not worried about it, then I would pay attention to him. If he thought it was a problem, he would tell you and would do more tests. Worry will cause stress and stress can cause extra pain. I know how hard it must be to be 24 and all of these things seem to be happening. See your doctor, do what s/he says and if it makes you feel better, try not to worry. There are still a lot of things that you can do. For one, think positive. Do what you can and if you can't do it, let it go. Don't let others bother you. You know that you are not well and if they don't understand, so be it. Take care of yourself, We care for you, Irene > > Irene did you get my whole message you must have but it came to me cut > off so I was not sure you knew who was talking about the pain med. Sorry > I must be careful what I say. Deana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Irene did you get my whole message you must have but it came to me cut off so I was not sure you knew who was talking about the pain med. Sorry I must be careful what I say. Deana On Thu, 24 May 2001 20:15:41 EDT patidu@... writes: > You are not alone in this. I did the same thing. I finally did take > as I > was supposed too but I was finally put on a stronger medication. > > Take care, > Irene > > > > . My doctor is great and she had tried for a long > > time to get me to take the Vicodon on a regular schedule and I had > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Irene did you get my whole message you must have but it came to me cut off so I was not sure you knew who was talking about the pain med. Sorry I must be careful what I say. Deana On Thu, 24 May 2001 20:15:41 EDT patidu@... writes: > You are not alone in this. I did the same thing. I finally did take > as I > was supposed too but I was finally put on a stronger medication. > > Take care, > Irene > > > > . My doctor is great and she had tried for a long > > time to get me to take the Vicodon on a regular schedule and I had > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Irene, you are on the ms condin? does it work? Is that in the form of a patch? Does it make you sick? Some days when it is real bad nothing works just wondering about the combinations. Deana On Thu, 24 May 2001 23:03:19 EDT patidu@... writes: > Deana, > > Yes, it was me. Sorry to be so short with you. I got the whole > message but > I highlighted the part I wanted to answer and replied. I did not > need to > resend the whole message. As I was saying, I did not take my first > medication as I was supposed to and therefore it did not do any > good. > > I have been put on MS condin and I use the Vicodon as a medication > for break > through pain. Please don't worry to much about the mini strokes. > The blood > thinner will help you. If your doctor is not worried about it, then > I would > pay attention to him. If he thought it was a problem, he would tell > you and > would do more tests. > > Worry will cause stress and stress can cause extra pain. I know how > hard it > must be to be 24 and all of these things seem to be happening. See > your > doctor, do what s/he says and if it makes you feel better, try not > to worry. > > There are still a lot of things that you can do. For one, think > positive. > Do what you can and if you can't do it, let it go. Don't let others > bother > you. You know that you are not well and if they don't understand, > so be it. > > Take care of yourself, > We care for you, > Irene > > > > > Irene did you get my whole message you must have but it came to me > cut > > off so I was not sure you knew who was talking about the pain med. > Sorry > > I must be careful what I say. Deana > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Deanna - trust me, you cannot give up, you have to fight this! Don't feel sad and ifever eyou want to talk, I'm here... fibromyalgia > > > > > > To the group: > > I am a four year diagnosed fms person. > > But it feels like the last year has been the worse of my life. I > > started out with flu-like symptoms in may of 1997 and was diagnosed > > with > > fibromyalgia in July of 1997. But I believe I had it way before > > that. > > Because I had severe pain in certain parts of my body, saw my doctor > > she > > got x rays and found nothing. I would go home to a husband who > > would > > call me a hypochondriac and I was depressed due to the pain to so I > > got > > Dr Jekyll and Mr hyde. The depression got worse and worse. I had > > many > > small flu like symptoms which I would call my doctor and she would > > order > > antibiotics. Sometimes I had a sore throat and fever and other > > times > > just the achiness. This really started in the early 90's I also > > develop > > irritable bowel and endometriosis was found. I had a hysterectomy > > in > > October of 1995. then for awhile it seem except for some flu > > symptoms > > from time to time and the irritable bowel, I seem to be doing > > better. > > Even seemed like the depression subsided. > > Then > > in may of " 97 " I came > > down with flu like symptoms. I had a sore throat for one day. But > > no > > fever. I continued to work do my house work convincing myself that > > I > > maybe was a psycho and decided not to call the doctor. Well this so > > called flu lasted for a whole month. I missed tons of work was > > tired all > > the time and my husband and I was fighting constantly about me > > missing > > work and to stop my whinnying and looking for self-pity. So I > > desperately pushed and pushed myself to keep my husband happy. By > > the > > end of may I could no longer get out of bed. I finally called my > > doctor. > > She saw me almost immediately. She never said much mention a few > > thoughts and ran a bunch of test and blood work. Well everything > > came > > back negative, to my husband who was in the background laughing, I > > told > > you so was exactly what he had been waiting to say. But My doctor > > decided that the symptoms lasted to long and with my history sent me > > to a > > rheumatologist. > > My > > appointment with him was going to be a 2 month > > wait. So I continued to push myself. Finally that day arrived. I > > must > > tell you by this time I was having anxiety attacks, outbreaks of > > uncontrollable crying, which really had my marriage in an uproar. > > The > > appointment > > was the most physical and mentally exhausting > > hour I spent with a doctor. For he was one of these it is all in > > your > > head guys. Of course, not knowing nothing about the illness nor the > > controversy behind it, I truly believed I was loosing my mind. He > > examined me, tears streaming down my eyes and my body jumping off > > the > > bed as he hit the pressure points one at a time. He stopped > > without any > > kind word, shook my hand well glad to have meant you, you have > > fibromyalgia and I will send a written report to your doctor, at > > that > > point I could do nothing but run with my tail between my legs. I > > cried > > all the way home and of course had no support waiting for me there. > > He > > had, had a hard day and did not want to hear about my aches and > > pains. > > Well > > the following week I saw my physician who by the > > way has been by my side all the way. Without her support I probably > > would have done what I think each of us have thought in the > > process,...end it all. > > October of last year between still no > > emotional support at home and trying to still function the same way > > I > > finally had a nervous breakdown and went at the advice of my doctor > > to a > > psyche facility and checked myself in. The struggle has been a > > uphill > > battle then and to now. To > > shorten > > it now that I have rambled long > > enough. I am on a regiment of medication for depression, sleep, > > pain and > > migraine headaches. I have recently returned to work, part-time and > > am > > in the middle of deciding which route to take for the rest of my > > life. I > > do not know if life with my husband will still remain, I am giving > > much > > thought to leaving that behind me and working on obtaining SDI > > because > > even part-time I am missing work and my job is on the line. > > I see a > > wonderful therapist weekly who has helped me tremendously to pick > > myself > > up and think good things of myself, I have joined a church group > > and > > they are my spiritual brothers and sisters and I obtain my emotional > > sanity from my faith and trust in God and my therapist. So you > > could say > > I am doing better. But still many tough decisions to make as I have > > read > > so have all of you. I have empathy and respect for each of you and > > what > > you have been through or are going through and I would like to > > include > > this group as a part of my many supportive friends and would love to > > return the favor by being a support to anyone of you who I may be > > able to > > help. Thank you for listening and being there. May God bless each > > and > > everyone of you and your families and reach his hand down upon you > > all > > and heal or strengthen you to deal with what we have been > > dealt. > > Deana age:46 dx'd > > 1997 > > mother of 2 > > ages: 26 and 23 out of the house and on own R.N. in a NICU for > > 11 > > years hobbies: church > > activities, > > reading and computer surfing > > > > > > Quote Link to comment Share on other sites More sharing options...
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