Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Nic, My most sincere wishes for you to find that this is an excellent option for treatment. I think you have the right approach, if there are any questions wait to cast until you are comfortable with the info. Have you look into the Angel Flights program or any options like that for travel??? Sometims Cranial Tech. has the info. and will give it to you if you call them. Just a thought. I hope all goes really well and keep me updated. Also just wanted you to know that my son Dominick is 9 months too. He is in his second Doc band from Cranial Technologies( second because of his severity), you can look at his progress pics in the photo section under Dominick in the plagiokids folder. Talk with you soon, CAROLG > Nic, > Th key to a helmet working correctly is the orthotist. With an > untrained orthotist you acn have fit issues and have the possibility > of making his head worse. You want to ask lots of questions, about > what training has the OT had in the use of the helmets, how many > babies has the OT done, what were the results of his treatments,can > you contact parents that have used him and hear thier experience. > These are the basics for finding a qualified individual. > I don't want to sound rude but the " you get what you pay for " > statement comes to mind, the average cost for a band is usually > somewhere between 1500.00-3000.00. Please do your homework on this > helmet and be sure it is worth the time and money. I would hate to > see you start with one and end up having to find another provider > after wasting time in an ill fitting band. We have had that happen > more times than I would care to remember. What kind of helmet is it > that your son will b getting? There are two Cranial Technologies in > Canada, one is at Alberta's Childrens Hospital 403-943-7957 and the > other is at University of Alberta Hospital 780-407-6203. You can take > the baby there with just a script from a pediatrician or your > Orthopaedist. They will give you an evaluation for free most times. > To answer your other questions, not all the OT's will do > measurements, but usually most who do not have a scanner will. Ask > for them if you can. His hair shouldn't be a problem, they usually > place a stockinette over the entir head anf face area before casting. > Remember to bring some comfort items with you to the casting. A > bottle, a pacifier or lollipop, a washable toy those sort of things. > Let me know what happens and what type of helmet it is, > CAROLG > > > > > > > > --- In Plagiocephaly , " nic_n_n " <navanov@y...> wrote: > > Hi everyone, > > > > I posted a couple of times back in early march I think about my > > son's flat upper right backside. I have since had him checked by a > > Pediatric Orthopedist who ruled out Torticollis. He also referred > me > > to a Plastic Neurosurgeon, but I have been unable to get an > > appointment with him. The Pediatric Orthopedist also gave me info > on > > a local clinic which manufactures helmets and so I have decided to > > take him there eventhough he hasn't been seen by the Plastic > > Neurosurgeon. Oh and by the way, the helmet here in Montreal, > Canada > > will cost us $700 Can. I was shocked when they told me how much it > > cost, I was getting ready to fork over a couple thousand and they > > even said if I have a prescription, my wife's insurance will > > reimburse it! Anyway, I just feel that we're losing out on his > > growth and I don't think repo is going to correct the plagio > enough, > > so I think we should just go with the helmet and try and take > > advantage of his growth spurts. > > > > He's gonna be 9months old. I believe we have seen some improvement > > thru repositioning and the fact that he now crawls and stands up, > > but it is so hard to keep him off his flat spot and I would imagine > > that the helmet would take care of repo although we plan on > > continuing to do all we can to keep him off the flat spot, plus it > > would help to protect him from getting his head banged around as he > > crawls and stands up and falls down...lol. > > > > I believe the Dr. at the clinic is an Orthotist and I wanted to ask > > some of u what are the most important questions I should ask him. > > I keep reading here about how much ur kids have in " mm " of > > asymmetry, will an Orthotist measure his assymetry? One more thing, > > my son was born with a lot of hair and we haven't cut it since he > > was born, except for a trim here and there as the hair was covering > > his eyes, would this be a problem in casting him for the helmet? We > > are probably about 98% sure that we'll get him the helmet and we > > already told the clinic that we might cast the same day of the > > appointment and they said it would be ok, so I don't wanna have to > > postpone the casting because his hair is too long. > > > > Alright, this was probably too long, so I thank all of you who get > > thru this whole thing. > > > > Nic (JF's dad) > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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