RE: MPS - Devin Starlanyl's book brought me to tears last night :(

[Guest guest]

Hi Joy, I am new, I sent a intro post but it was with a chiropractor one too so

maybe others didn't see. I love the book by Devin S, haven't bought it but have

checked it out several times, it is just so thorough. You read it and go, wow,

that is another symptom of fms, and that is one... Then you think, naw, I don't

have that and then one day you discover oh yes you do.

About MPS, I didn't realize I had that too until I went to my chiropractor and

he would push on these areas and then check out other areas. I finally asked

him, are you pushing on my trigger points and checking where they can radiate

to. He told me I was observant and yes, that is what he was doing. Then he

took me into this room where he has a book that Devin recommend with the various

trigger points(you know all those pictures with the X's and where the pain

radiates to). And I thought, he takes this seriously. So what he does is work

them out by pushing on them and " breaking them up " or whatever you call it.

Does it help? Yeah, I guess so but everyone is different. My chiro doesn't do

the snap, crackle, pop type adjustments either. Although what he does hurts.

When he does it I think I don't feel any pain in my back then he starts pushing

on various places which he can seem to feel without pushing everywhere and when

he starts pushing down it is " ouch city " .

He says I have MPS too and believes it goes along with fms pretty much.

Everyone says something different, it gets a tad frustrating sometimes. And oh

the treatments, ideas and suggestions. I can't afford most of them. And then

half the time, they don't help. Sometimes I just say forget it, then when I am

having a rough time I want something and the cycle starts again. Feel like I

have wasted too much money on stuff that either zones me or doesn't help that

much.

I think it has been mostly a relief to know I have something wrong with me and

it has a name. If this makes sense. I am usually tired, my standard answer

when someone asks me how I am. " I'm tired. " Which comes the reply, you look

tired. Lovely. Or I will say I am " okay " .

I am sorry Joy, I am rambling. The tired feeling and brain fog is hitting

and it is HOT here too.

Blessings,

[Guest guest]

Hi Joy, I am new, I sent a intro post but it was with a chiropractor one too so

maybe others didn't see. I love the book by Devin S, haven't bought it but have

checked it out several times, it is just so thorough. You read it and go, wow,

that is another symptom of fms, and that is one... Then you think, naw, I don't

have that and then one day you discover oh yes you do.

About MPS, I didn't realize I had that too until I went to my chiropractor and

he would push on these areas and then check out other areas. I finally asked

him, are you pushing on my trigger points and checking where they can radiate

to. He told me I was observant and yes, that is what he was doing. Then he

took me into this room where he has a book that Devin recommend with the various

trigger points(you know all those pictures with the X's and where the pain

radiates to). And I thought, he takes this seriously. So what he does is work

them out by pushing on them and " breaking them up " or whatever you call it.

Does it help? Yeah, I guess so but everyone is different. My chiro doesn't do

the snap, crackle, pop type adjustments either. Although what he does hurts.

When he does it I think I don't feel any pain in my back then he starts pushing

on various places which he can seem to feel without pushing everywhere and when

he starts pushing down it is " ouch city " .

He says I have MPS too and believes it goes along with fms pretty much.

Everyone says something different, it gets a tad frustrating sometimes. And oh

the treatments, ideas and suggestions. I can't afford most of them. And then

half the time, they don't help. Sometimes I just say forget it, then when I am

having a rough time I want something and the cycle starts again. Feel like I

have wasted too much money on stuff that either zones me or doesn't help that

much.

I think it has been mostly a relief to know I have something wrong with me and

it has a name. If this makes sense. I am usually tired, my standard answer

when someone asks me how I am. " I'm tired. " Which comes the reply, you look

tired. Lovely. Or I will say I am " okay " .

I am sorry Joy, I am rambling. The tired feeling and brain fog is hitting

and it is HOT here too.

Blessings,

[Guest guest]

Hi Joy, I am new, I sent a intro post but it was with a chiropractor one too so

maybe others didn't see. I love the book by Devin S, haven't bought it but have

checked it out several times, it is just so thorough. You read it and go, wow,

that is another symptom of fms, and that is one... Then you think, naw, I don't

have that and then one day you discover oh yes you do.

About MPS, I didn't realize I had that too until I went to my chiropractor and

he would push on these areas and then check out other areas. I finally asked

him, are you pushing on my trigger points and checking where they can radiate

to. He told me I was observant and yes, that is what he was doing. Then he

took me into this room where he has a book that Devin recommend with the various

trigger points(you know all those pictures with the X's and where the pain

radiates to). And I thought, he takes this seriously. So what he does is work

them out by pushing on them and " breaking them up " or whatever you call it.

Does it help? Yeah, I guess so but everyone is different. My chiro doesn't do

the snap, crackle, pop type adjustments either. Although what he does hurts.

When he does it I think I don't feel any pain in my back then he starts pushing

on various places which he can seem to feel without pushing everywhere and when

he starts pushing down it is " ouch city " .

He says I have MPS too and believes it goes along with fms pretty much.

Everyone says something different, it gets a tad frustrating sometimes. And oh

the treatments, ideas and suggestions. I can't afford most of them. And then

half the time, they don't help. Sometimes I just say forget it, then when I am

having a rough time I want something and the cycle starts again. Feel like I

have wasted too much money on stuff that either zones me or doesn't help that

much.

I think it has been mostly a relief to know I have something wrong with me and

it has a name. If this makes sense. I am usually tired, my standard answer

when someone asks me how I am. " I'm tired. " Which comes the reply, you look

tired. Lovely. Or I will say I am " okay " .

I am sorry Joy, I am rambling. The tired feeling and brain fog is hitting

and it is HOT here too.

Blessings,

[Guest guest]

,

Welcome to the group! Sorry I didn't catch your intro post. I'm glad you

jumped right in and got noticed though! :-)

Age: 34

Dx'd: early 1990s

Location: southeastern Vermont

Children: 1 four-legged furry one named Missy

Siblings: 3 sisters, 1 brother (I am the youngest)

Currently renting from mom, working for mom, and typing at home. I am

divorced and been with SO since 1997.

_________________________________________________________________

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[Guest guest]

I keep hearing all

this " EXERCISE EXERCISE " stuff to help cure the FMS flare, but with MPS and

the horrible tight painful muscles, how do I do this? I walk to the deli 3

blocks away at lunchtime and I force myself to get there and back 3 times a

week, It only hurts more later.

Joy

Some people can exercise and some people can't. I think you can only do

what you can do. Maybe instead of trying to make huge strides at one time,

try walking the 3 blocks once and then build up slowly by walking around

your house to the equivalent of walking to the store twice? That way if you

slowly try over a period of weeks, you might be better able to do it, and if

not, you are right there at home instead of having to struggle to get home.

Darcy

[Guest guest]

abraxis3@...

Hi !

I missed your intro too! I want to welcome you to

this little wonderful family! There's great people

here, and it's so nice to talk to people who don't

question what you're going through, but explain your

symptoms to you better than you can yourself!

It's really uplifting!

LOL

Sue

--- s wrote:

> ,

>

> Welcome to the group! Sorry I didn't catch your

> intro post. I'm glad you

> jumped right in and got noticed though! :-)

>

>

>

> Age: 34

> Dx'd: early 1990s

> Location: southeastern Vermont

> Children: 1 four-legged furry one named Missy

> Siblings: 3 sisters, 1 brother (I am the youngest)

> Currently renting from mom, working for mom, and

> typing at home. I am

> divorced and been with SO since 1997.

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com

>

>

__________________________________________________

[Guest guest]

abraxis3@...

Hi ,

Yes, it makes perfect sense that finding out what

you have has a name! I for one went throught years

of seeing doctor after doctor to only be treated like

a nut! I began to believe it. Now, having found

it has a name and that I'm far from alone, I know I'm

not a nut!!! That in itself lifts a great burden, and

I've learned that knowledge is power. Learning all

you can about it is somewhat depressing, only because

you realize things will never be the same as they were

for you. The crying is your grief of losing that, and

it's okay and natural. Next comes forgiving yourself.

Some part of us always wants to blame ourselves for

everything that doesn't go right. Let it go. Make a

decision to do so. Next, comes 'acceptance'. I'm

not saying you can't believe that there will never be

a cure. You just accept yourself and the situation

the

way it is today. This way, you can give up being hard

on yourself! Don't take any guff off of anyone else

either. Don't argue with them, but inside yourself,

refuse to let them get to you...feel sorry for them

instead...their comments come from ignorance, and what

goes around, believe me, comes around in one form or

another. It's a law of the universe...cause and

effect. If they were aware of this, they would choose

their words more carefully, so in this respect, they

are to be pitied. Be good to yourself. Try not to

focus on the pain. Keep your mind on something else,

as much as possible, whether it's a book, a

conversation with friends, or something you can still

handle doing and love to do. Feed yourself with

positive thoughts like, I'm having a great day..even

when it is lousy, and watch how the next day will be

better...it works!

Take care, LOL

Sue

--- Wittenberg wrote:

> Hi Joy, I am new, I sent a intro post but it was

> with a chiropractor one too so maybe others didn't

> see. I love the book by Devin S, haven't bought it

> but have checked it out several times, it is just so

> thorough. You read it and go, wow, that is another

> symptom of fms, and that is one... Then you think,

> naw, I don't have that and then one day you discover

> oh yes you do.

> About MPS, I didn't realize I had that too until I

> went to my chiropractor and he would push on these

> areas and then check out other areas. I finally

> asked him, are you pushing on my trigger points and

> checking where they can radiate to. He told me I

> was observant and yes, that is what he was doing.

> Then he took me into this room where he has a book

> that Devin recommend with the various trigger

> points(you know all those pictures with the X's and

> where the pain radiates to). And I thought, he

> takes this seriously. So what he does is work them

> out by pushing on them and " breaking them up " or

> whatever you call it. Does it help? Yeah, I guess

> so but everyone is different. My chiro doesn't do

> the snap, crackle, pop type adjustments either.

> Although what he does hurts. When he does it I

> think I don't feel any pain in my back then he

> starts pushing on various places which he can seem

> to feel without pushing everywhere and when he

> starts pushing down it is " ouch city " .

> He says I have MPS too and believes it goes along

> with fms pretty much. Everyone says something

> different, it gets a tad frustrating sometimes. And

> oh the treatments, ideas and suggestions. I can't

> afford most of them. And then half the time, they

> don't help. Sometimes I just say forget it, then

> when I am having a rough time I want something and

> the cycle starts again. Feel like I have wasted too

> much money on stuff that either zones me or doesn't

> help that much.

> I think it has been mostly a relief to know I have

> something wrong with me and it has a name. If this

> makes sense. I am usually tired, my standard answer

> when someone asks me how I am. " I'm tired. " Which

> comes the reply, you look tired. Lovely. Or I will

> say I am " okay " .

> I am sorry Joy, I am rambling. The tired

> feeling and brain fog is hitting and it is HOT here

> too.

>

> Blessings,

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

abraxis3@...

Hi ,

Yes, it makes perfect sense that finding out what

you have has a name! I for one went throught years

of seeing doctor after doctor to only be treated like

a nut! I began to believe it. Now, having found

it has a name and that I'm far from alone, I know I'm

not a nut!!! That in itself lifts a great burden, and

I've learned that knowledge is power. Learning all

you can about it is somewhat depressing, only because

you realize things will never be the same as they were

for you. The crying is your grief of losing that, and

it's okay and natural. Next comes forgiving yourself.

Some part of us always wants to blame ourselves for

everything that doesn't go right. Let it go. Make a

decision to do so. Next, comes 'acceptance'. I'm

not saying you can't believe that there will never be

a cure. You just accept yourself and the situation

the

way it is today. This way, you can give up being hard

on yourself! Don't take any guff off of anyone else

either. Don't argue with them, but inside yourself,

refuse to let them get to you...feel sorry for them

instead...their comments come from ignorance, and what

goes around, believe me, comes around in one form or

another. It's a law of the universe...cause and

effect. If they were aware of this, they would choose

their words more carefully, so in this respect, they

are to be pitied. Be good to yourself. Try not to

focus on the pain. Keep your mind on something else,

as much as possible, whether it's a book, a

conversation with friends, or something you can still

handle doing and love to do. Feed yourself with

positive thoughts like, I'm having a great day..even

when it is lousy, and watch how the next day will be

better...it works!

Take care, LOL

Sue

--- Wittenberg wrote:

> Hi Joy, I am new, I sent a intro post but it was

> with a chiropractor one too so maybe others didn't

> see. I love the book by Devin S, haven't bought it

> but have checked it out several times, it is just so

> thorough. You read it and go, wow, that is another

> symptom of fms, and that is one... Then you think,

> naw, I don't have that and then one day you discover

> oh yes you do.

> About MPS, I didn't realize I had that too until I

> went to my chiropractor and he would push on these

> areas and then check out other areas. I finally

> asked him, are you pushing on my trigger points and

> checking where they can radiate to. He told me I

> was observant and yes, that is what he was doing.

> Then he took me into this room where he has a book

> that Devin recommend with the various trigger

> points(you know all those pictures with the X's and

> where the pain radiates to). And I thought, he

> takes this seriously. So what he does is work them

> out by pushing on them and " breaking them up " or

> whatever you call it. Does it help? Yeah, I guess

> so but everyone is different. My chiro doesn't do

> the snap, crackle, pop type adjustments either.

> Although what he does hurts. When he does it I

> think I don't feel any pain in my back then he

> starts pushing on various places which he can seem

> to feel without pushing everywhere and when he

> starts pushing down it is " ouch city " .

> He says I have MPS too and believes it goes along

> with fms pretty much. Everyone says something

> different, it gets a tad frustrating sometimes. And

> oh the treatments, ideas and suggestions. I can't

> afford most of them. And then half the time, they

> don't help. Sometimes I just say forget it, then

> when I am having a rough time I want something and

> the cycle starts again. Feel like I have wasted too

> much money on stuff that either zones me or doesn't

> help that much.

> I think it has been mostly a relief to know I have

> something wrong with me and it has a name. If this

> makes sense. I am usually tired, my standard answer

> when someone asks me how I am. " I'm tired. " Which

> comes the reply, you look tired. Lovely. Or I will

> say I am " okay " .

> I am sorry Joy, I am rambling. The tired

> feeling and brain fog is hitting and it is HOT here

> too.

>

> Blessings,

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________