Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Hi all, Our 10 month old son is in a clarin helmet - he got it June 10. They said at that time that he'd probably wear it 3-5 months. We aren't even 3 months, and we are having a VERY difficult time getting it on/off. His head seems to look so much better. I think if I spent the money to go back, they'd tell me that we are at the end of the treatment... here's my dilema.... I love having " mr active " in a helmet, as he is learning to walk and falling alot! It seems that it is just easier to keep him in it. It takes two people to get it off/on - I pull hard, and my DH holds our son while I pull. Our son doesnt' really cry - he is so used to this - but I wonder when the day will come that I won't be able to get it off.... Ok, so online a friend found a protective hat that you can put on a toddler so that their head is protected when they fall. Has anyone heard of this before or tried such a thing? I'm thinking of ordering one and putting our son in this after the helmet (during play time) so that I don't worry about him bonking his head... He did fall on Saturday and his his lip on the corner of a stool, so we've had a swollen lip this week. I just want to protect this busy little guy! thoughts? Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Pam, First off you should not have to struggle that hard to get a helmet on and off. I would go back and see what they say, it sounds too small and that can't be a good thing. As far as the protectice hats, yes they used primarily for kids who have balance problems, head banging issues, and siezures so they do not hurt themselves. You will want to be sure that it will not be putting any pressure on the head you have tried so hard to round out. Remember the pressure of the band against the head is only the same as what a quarter on the back of your hand feels like, that's all it takes to redirect growth in another direction. I would look into the corner cushions and table bumpers they sell first, but that's just my opinion. CAROLG > Hi all, > Our 10 month old son is in a clarin helmet - he got it June 10. They > said at that time that he'd probably wear it 3-5 months. We aren't > even 3 months, and we are having a VERY difficult time getting it > on/off. His head seems to look so much better. > > I think if I spent the money to go back, they'd tell me that we are > at the end of the treatment... here's my dilema.... I love > having " mr active " in a helmet, as he is learning to walk and > falling alot! It seems that it is just easier to keep him in it. > > It takes two people to get it off/on - I pull hard, and my DH holds > our son while I pull. Our son doesnt' really cry - he is so used to > this - but I wonder when the day will come that I won't be able to > get it off.... > > Ok, so online a friend found a protective hat that you can put on a > toddler so that their head is protected when they fall. Has anyone > heard of this before or tried such a thing? I'm thinking of ordering > one and putting our son in this after the helmet (during play time) > so that I don't worry about him bonking his head... He did fall on > Saturday and his his lip on the corner of a stool, so we've had a > swollen lip this week. I just want to protect this busy little guy! > > thoughts? > Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Pam, First off you should not have to struggle that hard to get a helmet on and off. I would go back and see what they say, it sounds too small and that can't be a good thing. As far as the protectice hats, yes they used primarily for kids who have balance problems, head banging issues, and siezures so they do not hurt themselves. You will want to be sure that it will not be putting any pressure on the head you have tried so hard to round out. Remember the pressure of the band against the head is only the same as what a quarter on the back of your hand feels like, that's all it takes to redirect growth in another direction. I would look into the corner cushions and table bumpers they sell first, but that's just my opinion. CAROLG > Hi all, > Our 10 month old son is in a clarin helmet - he got it June 10. They > said at that time that he'd probably wear it 3-5 months. We aren't > even 3 months, and we are having a VERY difficult time getting it > on/off. His head seems to look so much better. > > I think if I spent the money to go back, they'd tell me that we are > at the end of the treatment... here's my dilema.... I love > having " mr active " in a helmet, as he is learning to walk and > falling alot! It seems that it is just easier to keep him in it. > > It takes two people to get it off/on - I pull hard, and my DH holds > our son while I pull. Our son doesnt' really cry - he is so used to > this - but I wonder when the day will come that I won't be able to > get it off.... > > Ok, so online a friend found a protective hat that you can put on a > toddler so that their head is protected when they fall. Has anyone > heard of this before or tried such a thing? I'm thinking of ordering > one and putting our son in this after the helmet (during play time) > so that I don't worry about him bonking his head... He did fall on > Saturday and his his lip on the corner of a stool, so we've had a > swollen lip this week. I just want to protect this busy little guy! > > thoughts? > Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 In my experience, if the shoe fits wear it, if it doesn't take it off. Boys will be boys and you will have to come to terms with that. they will get bumps and bruises, this is part of childhood. Don't cheat him out of how to cope and deal with things like that. I am a kindergarten teacher and I see this everyday where parents raise co-dependent children, who can't wipe their own bottom and want me to cut up their food and they are just total whimps. Not to be rude, but keeping your child in a helmet when not medically necessary is ridiculous. Please don't make your baby wear a helmet any longer than he has to. That is way over the line and you need to be called on it. Sorry, but this is a sore spot with most teachers. Parents being WAY overprotective does not do children any favors. > Hi all, > Our 10 month old son is in a clarin helmet - he got it June 10. They > said at that time that he'd probably wear it 3-5 months. We aren't > even 3 months, and we are having a VERY difficult time getting it > on/off. His head seems to look so much better. > > I think if I spent the money to go back, they'd tell me that we are > at the end of the treatment... here's my dilema.... I love > having " mr active " in a helmet, as he is learning to walk and > falling alot! It seems that it is just easier to keep him in it. > > It takes two people to get it off/on - I pull hard, and my DH holds > our son while I pull. Our son doesnt' really cry - he is so used to > this - but I wonder when the day will come that I won't be able to > get it off.... > > Ok, so online a friend found a protective hat that you can put on a > toddler so that their head is protected when they fall. Has anyone > heard of this before or tried such a thing? I'm thinking of ordering > one and putting our son in this after the helmet (during play time) > so that I don't worry about him bonking his head... He did fall on > Saturday and his his lip on the corner of a stool, so we've had a > swollen lip this week. I just want to protect this busy little guy! > > thoughts? > Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 In my experience, if the shoe fits wear it, if it doesn't take it off. Boys will be boys and you will have to come to terms with that. they will get bumps and bruises, this is part of childhood. Don't cheat him out of how to cope and deal with things like that. I am a kindergarten teacher and I see this everyday where parents raise co-dependent children, who can't wipe their own bottom and want me to cut up their food and they are just total whimps. Not to be rude, but keeping your child in a helmet when not medically necessary is ridiculous. Please don't make your baby wear a helmet any longer than he has to. That is way over the line and you need to be called on it. Sorry, but this is a sore spot with most teachers. Parents being WAY overprotective does not do children any favors. > Hi all, > Our 10 month old son is in a clarin helmet - he got it June 10. They > said at that time that he'd probably wear it 3-5 months. We aren't > even 3 months, and we are having a VERY difficult time getting it > on/off. His head seems to look so much better. > > I think if I spent the money to go back, they'd tell me that we are > at the end of the treatment... here's my dilema.... I love > having " mr active " in a helmet, as he is learning to walk and > falling alot! It seems that it is just easier to keep him in it. > > It takes two people to get it off/on - I pull hard, and my DH holds > our son while I pull. Our son doesnt' really cry - he is so used to > this - but I wonder when the day will come that I won't be able to > get it off.... > > Ok, so online a friend found a protective hat that you can put on a > toddler so that their head is protected when they fall. Has anyone > heard of this before or tried such a thing? I'm thinking of ordering > one and putting our son in this after the helmet (during play time) > so that I don't worry about him bonking his head... He did fall on > Saturday and his his lip on the corner of a stool, so we've had a > swollen lip this week. I just want to protect this busy little guy! > > thoughts? > Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Kids are kids. 99.9% of kids do just fine without a helmet. What would you do if he never needed it in the 1st place? He will get hurt. And it will take some time for him to realize tat he cant bang his head on the crib anymore. But he will learn. If it is that tight, I would think it is doing harm, not helping. JMHO. Crissy <julesinbama1999@...> wrote: In my experience, if the shoe fits wear it, if it doesn't take it off. Boys will be boys and you will have to come to terms with that. they will get bumps and bruises, this is part of childhood. Don't cheat him out of how to cope and deal with things like that. I am a kindergarten teacher and I see this everyday where parents raise co-dependent children, who can't wipe their own bottom and want me to cut up their food and they are just total whimps. Not to be rude, but keeping your child in a helmet when not medically necessary is ridiculous. Please don't make your baby wear a helmet any longer than he has to. That is way over the line and you need to be called on it. Sorry, but this is a sore spot with most teachers. Parents being WAY overprotective does not do children any favors. > Hi all,> Our 10 month old son is in a clarin helmet - he got it June 10. They > said at that time that he'd probably wear it 3-5 months. We aren't > even 3 months, and we are having a VERY difficult time getting it > on/off. His head seems to look so much better. > > I think if I spent the money to go back, they'd tell me that we are > at the end of the treatment... here's my dilema.... I love > having "mr active" in a helmet, as he is learning to walk and > falling alot! It seems that it is just easier to keep him in it.> > It takes two people to get it off/on - I pull hard, and my DH holds > our son while I pull. Our son doesnt' really cry - he is so used to > this - but I wonder when the day will come that I won't be able to > get it off....> > Ok, so online a friend found a protective hat that you can put on a > toddler so that their head is protected when they fall. Has anyone > heard of this before or tried such a thing? I'm thinking of ordering > one and putting our son in this after the helmet (during play time) > so that I don't worry about him bonking his head... He did fall on > Saturday and his his lip on the corner of a stool, so we've had a > swollen lip this week. I just want to protect this busy little guy! > > thoughts?> Pam__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Kids are kids. 99.9% of kids do just fine without a helmet. What would you do if he never needed it in the 1st place? He will get hurt. And it will take some time for him to realize tat he cant bang his head on the crib anymore. But he will learn. If it is that tight, I would think it is doing harm, not helping. JMHO. Crissy <julesinbama1999@...> wrote: In my experience, if the shoe fits wear it, if it doesn't take it off. Boys will be boys and you will have to come to terms with that. they will get bumps and bruises, this is part of childhood. Don't cheat him out of how to cope and deal with things like that. I am a kindergarten teacher and I see this everyday where parents raise co-dependent children, who can't wipe their own bottom and want me to cut up their food and they are just total whimps. Not to be rude, but keeping your child in a helmet when not medically necessary is ridiculous. Please don't make your baby wear a helmet any longer than he has to. That is way over the line and you need to be called on it. Sorry, but this is a sore spot with most teachers. Parents being WAY overprotective does not do children any favors. > Hi all,> Our 10 month old son is in a clarin helmet - he got it June 10. They > said at that time that he'd probably wear it 3-5 months. We aren't > even 3 months, and we are having a VERY difficult time getting it > on/off. His head seems to look so much better. > > I think if I spent the money to go back, they'd tell me that we are > at the end of the treatment... here's my dilema.... I love > having "mr active" in a helmet, as he is learning to walk and > falling alot! It seems that it is just easier to keep him in it.> > It takes two people to get it off/on - I pull hard, and my DH holds > our son while I pull. Our son doesnt' really cry - he is so used to > this - but I wonder when the day will come that I won't be able to > get it off....> > Ok, so online a friend found a protective hat that you can put on a > toddler so that their head is protected when they fall. Has anyone > heard of this before or tried such a thing? I'm thinking of ordering > one and putting our son in this after the helmet (during play time) > so that I don't worry about him bonking his head... He did fall on > Saturday and his his lip on the corner of a stool, so we've had a > swollen lip this week. I just want to protect this busy little guy! > > thoughts?> Pam__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 I just thought I would post again about . He has been off the Valtrex for a full week now after using it for 8 months and today was probably his best day ever. He was singing in the back seat on the way home from speech. At preschool I watched through the glass as he was trying to make other kids laugh. He was all smiles. He said all of the letters to me as I held up flash cards today. He even spelled his name at music therapy a few days ago. He was trying to initiate some type of conversation while we were driving home saying yellow and laughing hysterically. His articulation is very bad, but I'm just thrilled to have any language from this child who barely babbled before we started MB12 and valtrex. He now labels any word that you say. If he can't make the sound he at least tries. I'll keep everyone posted because my biggest question with valtrex was how long I would have to keep giving it to him. I am feeling very hopeful that 8 months may have done the trick. I am going to let his body rest for a couple of weeks and then try another high dose vitamin A (we did one in Jan and saw gains from it) and then we will try Valtrex again. If I don't get a rash or any reaction I think I'll keep him off. What do you think? I 'd love the feedback as this is a very tough decision. Thanks : ) Jeanine > > > > > > Hi Everyone. I haven't posted in quite sometime, but would love > > some > > > feedback from everyone. My sons Logan(4) and (3) have been > > on > > > Valtrex since the end of November 2005. They are both also on the > > > GF/CF/SF diet, daily MB12 shots, sublingual B12, many > > supplements,yucca > > > has helped a lot with ammonia toxicity, BH4, oral EDTA, diflucan > > and > > > RNA. Over the past 8 months we are we have been truly blessed to > > have > > > seen substantial gains in both of our boys. We are very thankful > > > everyday for their gains. > > > Logan is sometimes a little socially quirky and a little hyper, > > but > > > acts the way that I hoped he would if he recovered. He initiates > > > imaginative play, asks me questions, initiates conversations and > > plays > > > well with other kids. He is reading at a 2nd grade level and > > starts > > > Kdg in the fall. He is still very fragile and takes many > > supplements > > > to function at this level. Logan is still on the Valtrex. I am > > afraid > > > to take him off. He had high HHV6 level and that is why we put > > him on > > > it in the first place. > > > makes fantastic eye contact, laughs, smiles, initiates play > > with > > > others, plays imaginatively with dolls, knows his letters and > > numbers > > > and is now repeating words. His attention span has increased > > > dramatically. His OT is now calling him " modulated " made > > huge > > > social gains with Valtrex. We use PRT with him and says a word to > > > request an object if we require him to do so. He is also begining > > to > > > initiate this on his own. His language is difficult to > > understand, > > > but is improving every day. > > > Here is the thing. We went out of town this weekend and my parents > > > watched our boys. did not have his Valtrex for 5 days. He > > is > > > doing very well even though he is not taking his Valtrex. He is > > > talking up a storm and babbling to himself and speaking to us. I > > am > > > wondering if he made all of the gains that he is going to make > > from > > > Valtrex and question if I should maybe take him off for a little > > while > > > or permanently. What do you think? At what point are most > > parents > > > stopping the Valtrex? It has been fantastic for him, but since he > > has > > > been doing so well without it during the past 5 days I am > > questioning > > > if a break may give his body a rest. Stan what do you think? > > When and > > > how did you decide to stop? Thanks so much. I really would love > > > feedback. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2006 Report Share Posted July 7, 2006 These are very hard decisions, and I encourage you to trust your instincts. Ultimately, your child's functioning will tell you a lot about if this is the right time to stop or if he needs to go further with it. I wouldn't sweat it. 8 months is a goodly amount of time, so seeing what happens at this point isn't a bad thing. Keep trusting your instincts, keep your eyes open, and do what you think is working best. Worst case you start back up again.... Keep us posted. - Stan > > > > > > > > Hi Everyone. I haven't posted in quite sometime, but would > love > > > some > > > > feedback from everyone. My sons Logan(4) and (3) have > been > > > on > > > > Valtrex since the end of November 2005. They are both also on > the > > > > GF/CF/SF diet, daily MB12 shots, sublingual B12, many > > > supplements,yucca > > > > has helped a lot with ammonia toxicity, BH4, oral EDTA, > diflucan > > > and > > > > RNA. Over the past 8 months we are we have been truly blessed > to > > > have > > > > seen substantial gains in both of our boys. We are very > thankful > > > > everyday for their gains. > > > > Logan is sometimes a little socially quirky and a little hyper, > > > but > > > > acts the way that I hoped he would if he recovered. He > initiates > > > > imaginative play, asks me questions, initiates conversations > and > > > plays > > > > well with other kids. He is reading at a 2nd grade level and > > > starts > > > > Kdg in the fall. He is still very fragile and takes many > > > supplements > > > > to function at this level. Logan is still on the Valtrex. I am > > > afraid > > > > to take him off. He had high HHV6 level and that is why we put > > > him on > > > > it in the first place. > > > > makes fantastic eye contact, laughs, smiles, initiates > play > > > with > > > > others, plays imaginatively with dolls, knows his letters and > > > numbers > > > > and is now repeating words. His attention span has increased > > > > dramatically. His OT is now calling him " modulated " made > > > huge > > > > social gains with Valtrex. We use PRT with him and says a word > to > > > > request an object if we require him to do so. He is also > begining > > > to > > > > initiate this on his own. His language is difficult to > > > understand, > > > > but is improving every day. > > > > Here is the thing. We went out of town this weekend and my > parents > > > > watched our boys. did not have his Valtrex for 5 days. > He > > > is > > > > doing very well even though he is not taking his Valtrex. He > is > > > > talking up a storm and babbling to himself and speaking to us. > I > > > am > > > > wondering if he made all of the gains that he is going to make > > > from > > > > Valtrex and question if I should maybe take him off for a > little > > > while > > > > or permanently. What do you think? At what point are most > > > parents > > > > stopping the Valtrex? It has been fantastic for him, but since > he > > > has > > > > been doing so well without it during the past 5 days I am > > > questioning > > > > if a break may give his body a rest. Stan what do you think? > > > When and > > > > how did you decide to stop? Thanks so much. I really would > love > > > > feedback. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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