Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Hi Sandy I saw that you already got all the links to the info you are looking for. Parents here always say that scanning is a breeze. Let us know how Dex does, and how severe his plagio is. Sandy Willow's Mom Cranio Germany Grad Tort resolved http://www.geocities.com/samipa74/Willow_Lanette.html > > Hi all, > > I haven't posted in a while and thought I'd give an update and ask > for your input. My son had x-rays of his skull, and a 3-D Cat Scan > to help with the diagnosis. > > My son saw a specialist today. He's been diagnosed with plagio and > tort. She said that he needs a helmet, and we have to do 2 > different neck stretches with him also. So, we have an appt. on > Friday to have a scan taken. > > Has anyone had a scan by STARscanner before? Is it similar to > having a CT Scan? I'm guessing they're pretty different. > > Anyhow, if you've got any input it'd be greatly appreciated. > > Sandy > & Dex 7 1/2 months old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Hi Sandy I saw that you already got all the links to the info you are looking for. Parents here always say that scanning is a breeze. Let us know how Dex does, and how severe his plagio is. Sandy Willow's Mom Cranio Germany Grad Tort resolved http://www.geocities.com/samipa74/Willow_Lanette.html > > Hi all, > > I haven't posted in a while and thought I'd give an update and ask > for your input. My son had x-rays of his skull, and a 3-D Cat Scan > to help with the diagnosis. > > My son saw a specialist today. He's been diagnosed with plagio and > tort. She said that he needs a helmet, and we have to do 2 > different neck stretches with him also. So, we have an appt. on > Friday to have a scan taken. > > Has anyone had a scan by STARscanner before? Is it similar to > having a CT Scan? I'm guessing they're pretty different. > > Anyhow, if you've got any input it'd be greatly appreciated. > > Sandy > & Dex 7 1/2 months old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 facial and ear asymmetries usually take longer to correct then the flatness in the back of the head. We noticed this with na. na went from 9 mm ear asymmetry to 4 mm. Her cranial vault went from 11 mm to 3 mm. mom to naDOC GradSouth Carolinawww.thefilyaws.comkmbrlysanchez <kmbrlysanchez@...> wrote: has anyone had luck with the eyes and ears going back to normal? My son's head is becoming more round so we are seeing results but not anything else....This is really my main concern.For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 facial and ear asymmetries usually take longer to correct then the flatness in the back of the head. We noticed this with na. na went from 9 mm ear asymmetry to 4 mm. Her cranial vault went from 11 mm to 3 mm. mom to naDOC GradSouth Carolinawww.thefilyaws.comkmbrlysanchez <kmbrlysanchez@...> wrote: has anyone had luck with the eyes and ears going back to normal? My son's head is becoming more round so we are seeing results but not anything else....This is really my main concern.For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 , Hi, you will see the rounding first and then everything else slowly follows behind. I think the ears are the last to come into place( someone correct me if I'm wrong). With Dominick (6 weeks in Doc) we are seeing the back rounding and just last week he began growth on the side of the head, but eyes and ears are still out, so I think what you are experiencing is normal. Which reminds me of a question on eyes I have to post,thanks,lol. CarolG. > > has anyone had luck with the eyes and ears going back to normal? My > son's head is becoming more round so we are seeing results but not > anything else....This is really my main concern. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 , Hi, you will see the rounding first and then everything else slowly follows behind. I think the ears are the last to come into place( someone correct me if I'm wrong). With Dominick (6 weeks in Doc) we are seeing the back rounding and just last week he began growth on the side of the head, but eyes and ears are still out, so I think what you are experiencing is normal. Which reminds me of a question on eyes I have to post,thanks,lol. CarolG. > > has anyone had luck with the eyes and ears going back to normal? My > son's head is becoming more round so we are seeing results but not > anything else....This is really my main concern. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 , Unfortunately the first two weeks can be up and down, they want it to fit just right. Now I use a Doc, so maybe some of the Starbanders can help you a little more with how many adjustments it took at the beginning. We have had some moms post pictures of the baby in the band, pointing out any areas of concern, in the files so we can all look at them and add our two cents about what we think is right or wrong, maybe you can do that. Sometimes it helps to have different eyes looking at it and gives you more specific questions to ask your ortho. Set up a folder under plagiokids in the files here with your sons name and post that it is there. CarolG. > > we've only had the starband for about 2weeks..I've already been back > three times because of redness. Today she had to put new padding in > the front because the last adjustment she made just made the helmet > loose and that's why he started getting a red spot on his forhead. We > have already seen results on his head but I'm scared of the fact that > I keep having to go back and they keep saying, " well if you see > anymore redness we'll just get him back in here tomorrow " . Shouldn't > this just be the right helmet for my little guys head? Are > adjustments a good idea? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 , Unfortunately the first two weeks can be up and down, they want it to fit just right. Now I use a Doc, so maybe some of the Starbanders can help you a little more with how many adjustments it took at the beginning. We have had some moms post pictures of the baby in the band, pointing out any areas of concern, in the files so we can all look at them and add our two cents about what we think is right or wrong, maybe you can do that. Sometimes it helps to have different eyes looking at it and gives you more specific questions to ask your ortho. Set up a folder under plagiokids in the files here with your sons name and post that it is there. CarolG. > > we've only had the starband for about 2weeks..I've already been back > three times because of redness. Today she had to put new padding in > the front because the last adjustment she made just made the helmet > loose and that's why he started getting a red spot on his forhead. We > have already seen results on his head but I'm scared of the fact that > I keep having to go back and they keep saying, " well if you see > anymore redness we'll just get him back in here tomorrow " . Shouldn't > this just be the right helmet for my little guys head? Are > adjustments a good idea? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Hello, and welcome to the group. Sometimes the first few days/wks can be kind of rocky. How much experience does your ortho have in treating plagio. I would give it a few more days, and see how it goes with the fit, but don't wait too long b/c this is all lost time. If the band can't be fitted well in the next adjustment or 2, you might want to consider them making a new one. Make sure they have experience with them. Let us know how it goes Sandy Willow's Mom Local band grad > > we've only had the starband for about 2weeks..I've already been back > three times because of redness. Today she had to put new padding in > the front because the last adjustment she made just made the helmet > loose and that's why he started getting a red spot on his forhead. We > have already seen results on his head but I'm scared of the fact that > I keep having to go back and they keep saying, " well if you see > anymore redness we'll just get him back in here tomorrow " . Shouldn't > this just be the right helmet for my little guys head? Are > adjustments a good idea? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Hello, and welcome to the group. Sometimes the first few days/wks can be kind of rocky. How much experience does your ortho have in treating plagio. I would give it a few more days, and see how it goes with the fit, but don't wait too long b/c this is all lost time. If the band can't be fitted well in the next adjustment or 2, you might want to consider them making a new one. Make sure they have experience with them. Let us know how it goes Sandy Willow's Mom Local band grad > > we've only had the starband for about 2weeks..I've already been back > three times because of redness. Today she had to put new padding in > the front because the last adjustment she made just made the helmet > loose and that's why he started getting a red spot on his forhead. We > have already seen results on his head but I'm scared of the fact that > I keep having to go back and they keep saying, " well if you see > anymore redness we'll just get him back in here tomorrow " . Shouldn't > this just be the right helmet for my little guys head? Are > adjustments a good idea? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Adjustments are necessary it accomodate for growth, but shouldn't make the helmet fit worse. Two weeks seems like a long time to still be trying to get that good fit. Can you post pictures of the band on your baby? I'm wondering if it is a good fit. Does it look symmetrical? It should sit just above the brow line. If you can't post pics, check out other good fitting band pics. If it's a STARband, go to www.orthomerica.com to see how they should fit. Generally adding anything to the inside of a band is a big red flag. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > > we've only had the starband for about 2weeks..I've already been back > three times because of redness. Today she had to put new padding in > the front because the last adjustment she made just made the helmet > loose and that's why he started getting a red spot on his forhead. We > have already seen results on his head but I'm scared of the fact that > I keep having to go back and they keep saying, " well if you see > anymore redness we'll just get him back in here tomorrow " . Shouldn't > this just be the right helmet for my little guys head? Are > adjustments a good idea? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Adjustments are necessary it accomodate for growth, but shouldn't make the helmet fit worse. Two weeks seems like a long time to still be trying to get that good fit. Can you post pictures of the band on your baby? I'm wondering if it is a good fit. Does it look symmetrical? It should sit just above the brow line. If you can't post pics, check out other good fitting band pics. If it's a STARband, go to www.orthomerica.com to see how they should fit. Generally adding anything to the inside of a band is a big red flag. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > > we've only had the starband for about 2weeks..I've already been back > three times because of redness. Today she had to put new padding in > the front because the last adjustment she made just made the helmet > loose and that's why he started getting a red spot on his forhead. We > have already seen results on his head but I'm scared of the fact that > I keep having to go back and they keep saying, " well if you see > anymore redness we'll just get him back in here tomorrow " . Shouldn't > this just be the right helmet for my little guys head? Are > adjustments a good idea? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Facial features and ears are the last thing to correct. With a good fitting band you should see results though. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > > has anyone had luck with the eyes and ears going back to normal? My > son's head is becoming more round so we are seeing results but not > anything else....This is really my main concern. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Facial features and ears are the last thing to correct. With a good fitting band you should see results though. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > > has anyone had luck with the eyes and ears going back to normal? My > son's head is becoming more round so we are seeing results but not > anything else....This is really my main concern. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Hi Patti - Ian is gorgeous. My son Sam will get his STARband on Wednesday (I think that we picked out the same design that you picked for Ian). We are a bit anxious. Wish you much success with Ian’s treatment. On 4/18/05 2:28 PM, " lyn4quin " <lyn4quin@...> wrote: Hi... Ian got his starband today!! He had to get his hair cut before he got his helmet so it is not so hot for him. Mommy did the job herself He cried when we went today for the fitting but is slowly getting use to it. He will build up to wear it 23 hours a day. Today he will wear it one hour on and then one hour off but not for sleeping tonight. Thanks for the support Patti I posted a pic of Ian in his helmet under IanM in our plagio kids For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2005 Report Share Posted April 19, 2005 Thank you! He is my little sunshine I was very nervous today but it all went well. When we went to pick it up they had to fit it which meant cutting off some of the band around the ears and face and on top. Ian cried when they put it on him and marked where to cut. Today after we got home He did well wearing it one hour on and one hour off. We will see how tomorrow goes. I think the design we got was called sky. How old is your little Sam? Is there pics of him online? I hope all goes well Wednesday. I just keep thinking it is only for a short time and he will be graduated and he will have a nice round head Patti > > > > > Hi... > > Ian got his starband today!! He had to get his hair cut before he > > got his helmet so it is not so hot for him. Mommy did the job > > herself He cried when we went today for the fitting but is slowly > > getting use to it. He will build up to wear it 23 hours a day. Today > > he will wear it one hour on and then one hour off but not for sleeping > > tonight. > > > > Thanks for the support > > > > Patti > > > > I posted a pic of Ian in his helmet under IanM in our plagio kids > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2005 Report Share Posted April 19, 2005 -Patty, What a cutie!! Hope your start goes smoothly. Keep us posted. CAROLG. -- In Plagiocephaly , " lyn4quin " <lyn4quin@y...> wrote: > > Hi... > Ian got his starband today!! He had to get his hair cut before he > got his helmet so it is not so hot for him. Mommy did the job > herself He cried when we went today for the fitting but is slowly > getting use to it. He will build up to wear it 23 hours a day. Today > he will wear it one hour on and then one hour off but not for sleeping > tonight. > > Thanks for the support > > Patti > > I posted a pic of Ian in his helmet under IanM in our plagio kids Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2005 Report Share Posted April 19, 2005 Hi Patti, It looks like a good fit. I love the color/design. mom to na DOC Grad South Carolina www.thefilyaws.comlyn4quin <lyn4quin@...> wrote: Hi...Ian got his starband today!! He had to get his hair cut before hegot his helmet so it is not so hot for him. Mommy did the jobherself He cried when we went today for the fitting but is slowlygetting use to it. He will build up to wear it 23 hours a day. Todayhe will wear it one hour on and then one hour off but not for sleepingtonight.Thanks for the supportPattiI posted a pic of Ian in his helmet under IanM in our plagio kidsFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2005 Report Share Posted April 19, 2005 Hi Patti, It looks like a good fit. I love the color/design. mom to na DOC Grad South Carolina www.thefilyaws.comlyn4quin <lyn4quin@...> wrote: Hi...Ian got his starband today!! He had to get his hair cut before hegot his helmet so it is not so hot for him. Mommy did the jobherself He cried when we went today for the fitting but is slowlygetting use to it. He will build up to wear it 23 hours a day. Todayhe will wear it one hour on and then one hour off but not for sleepingtonight.Thanks for the supportPattiI posted a pic of Ian in his helmet under IanM in our plagio kidsFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2005 Report Share Posted April 19, 2005 Yup, sky is the one we picked. I do have two pictures of him under Sam. Was just testing the upload process. Will add helmet photo tomorrow and try to get a good picture of his flat spot. How is Ian doing today? Mom to Sam On 4/18/05 8:16 PM, " lyn4quin " <lyn4quin@...> wrote: Thank you! He is my little sunshine I was very nervous today but it all went well. When we went to pick it up they had to fit it which meant cutting off some of the band around the ears and face and on top. Ian cried when they put it on him and marked where to cut. Today after we got home He did well wearing it one hour on and one hour off. We will see how tomorrow goes. I think the design we got was called sky. How old is your little Sam? Is there pics of him online? I hope all goes well Wednesday. I just keep thinking it is only for a short time and he will be graduated and he will have a nice round head Patti > > > > > Hi... > > Ian got his starband today!! He had to get his hair cut before he > > got his helmet so it is not so hot for him. Mommy did the job > > herself He cried when we went today for the fitting but is slowly > > getting use to it. He will build up to wear it 23 hours a day. Today > > he will wear it one hour on and then one hour off but not for sleeping > > tonight. > > > > Thanks for the support > > > > Patti > > > > I posted a pic of Ian in his helmet under IanM in our plagio kids > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2005 Report Share Posted April 19, 2005 Yup, sky is the one we picked. I do have two pictures of him under Sam. Was just testing the upload process. Will add helmet photo tomorrow and try to get a good picture of his flat spot. How is Ian doing today? Mom to Sam On 4/18/05 8:16 PM, " lyn4quin " <lyn4quin@...> wrote: Thank you! He is my little sunshine I was very nervous today but it all went well. When we went to pick it up they had to fit it which meant cutting off some of the band around the ears and face and on top. Ian cried when they put it on him and marked where to cut. Today after we got home He did well wearing it one hour on and one hour off. We will see how tomorrow goes. I think the design we got was called sky. How old is your little Sam? Is there pics of him online? I hope all goes well Wednesday. I just keep thinking it is only for a short time and he will be graduated and he will have a nice round head Patti > > > > > Hi... > > Ian got his starband today!! He had to get his hair cut before he > > got his helmet so it is not so hot for him. Mommy did the job > > herself He cried when we went today for the fitting but is slowly > > getting use to it. He will build up to wear it 23 hours a day. Today > > he will wear it one hour on and then one hour off but not for sleeping > > tonight. > > > > Thanks for the support > > > > Patti > > > > I posted a pic of Ian in his helmet under IanM in our plagio kids > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 hello everyone im angela the mother to Lane, he is 6 1/2 months old.Has Plagio and tort, they are going to fit him for STARband can anyone please tell me of a website that i can learn more. Or tell me what they look like or have a pic of one. My son goes to therapy three to four times a week and sees a chiro also. They are wanting to put botox in his neck, what do you think . I appreciate all the info i can get thank you very much, angela and lane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Hi , My daughter Sophie has been in her STARband for 14 weeks. We have had great rounding and are very pleased with the improvement that we have seen. She has only grown 3/8 of an inch in head circumfrance but the helmet has helped round out her flat spot. Sophie has moderate tort and we finally have her in PT and are working with her low muscle tone. She didn't start crawling on her hands and knees until she was almost 11 months so she is behind in motor skills. I personally would be very hesitant to give my baby botox shots. I would continue the therapy and chiropractic care. Sophie has seen a chiro, PT and Cranial Sacral Therapist. All three have made a big difference in different ways. Good luck with your fitting!! Sophie 11 1/2 months STARband 14 weeks Tort/Plagio MI > hello everyone im angela the mother to Lane, he is 6 1/2 months > old.Has Plagio and tort, they are going to fit him for STARband can > anyone please tell me of a website that i can learn more. Or tell me > what they look like or have a pic of one. My son goes to therapy three > to four times a week and sees a chiro also. They are wanting to put > botox in his neck, what do you think . I appreciate all the info i can > get thank you very much, angela and lane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 My son also tolerated his starband for the first few hours and then.... turns out he had an ear infection, once we treated it the night went fine. He has been wearing it for just a few days but he seems not to mind the helmet, even the sweating. Milky, Brooklyn, NY > > Hi! My son got his starband on Wednesday and he seemed to tolerate it > very well. Then last night was the first night he had to sleep with > it on. His toleration went out the window. He hardly slept at > all . . . spent most of the night crying. And today he didn't want to > take any naps. I thought b/c he did so well at the beginning that we > would " sail " right through it. Boy was I wrong. > > Has anyone else had these same or similar experiences? Is his not > sleeping to be expected or should I be concerned? > > P.S. > I have watched the red spots on his head and they do fade fairly > quickly. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 My son also tolerated his starband for the first few hours and then.... turns out he had an ear infection, once we treated it the night went fine. He has been wearing it for just a few days but he seems not to mind the helmet, even the sweating. Milky, Brooklyn, NY > > Hi! My son got his starband on Wednesday and he seemed to tolerate it > very well. Then last night was the first night he had to sleep with > it on. His toleration went out the window. He hardly slept at > all . . . spent most of the night crying. And today he didn't want to > take any naps. I thought b/c he did so well at the beginning that we > would " sail " right through it. Boy was I wrong. > > Has anyone else had these same or similar experiences? Is his not > sleeping to be expected or should I be concerned? > > P.S. > I have watched the red spots on his head and they do fade fairly > quickly. > Quote Link to comment Share on other sites More sharing options...
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