Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Hi , just curious, what state are you in? B. (Arkansas) Mama to Leyla Jo, age 2, profound bilateral sensorineural, CI 9/03 Stepmama to Chase, age 8, hearing katie rice wrote: Thanks martha that was helpful to some degree to know what we were looking at ..Now here is this we did have him tested as anew born at Children's as well they did not find anything he was premature.how long was your daughters progression what do we do from here? who do we seek for help now that noone will do anything but give him an fm trainer at school ?what can I do to help and we do have a small amount of money which also makes it hard and we are about 1 and 1/2 from the hospital? martha soltani wrote:Hey My daughter also has a u shaped hearing loss that was progressive, however she was born with hearing loss, and just lost more later. We found out later that a u shape and progression can be an indicator for a genetic hearing loss (connexin 26). We used cued speech to teach her phonics and that has helped tremendously in her ability to read. She is 9 now and is reading at or above grade level. If you want more info you can e-mail me directly soltanm@... .. I became a teacher for the deaf and hard of hearing after my daughter started school so maybe I can help with finding services. Regards Martha Soltani Sara's Mom (cx26 severe/profound ® clarion CI, (l) odicon digifocus superpower HoH or Deaf? > > > > Hello , my name is and I have a son 10 now who 4 years ago we found out began losing his hearing noone can tell us why we are now on our 4th audiologist and 3rd specialist.We are now seeing children;s hospital. we have had bone scans and many tests.He had only a middle range loss in the left ear and no loss in the right. 6 mo. later we went back and had signifacant loss in the right ear also in the middle he can hear high and very low but no middle they say he can not hear consanants only vowels? > > One dr.says CI she says he will be 100% by age 20 the audiologist says she is wrong he needs Fm trainer. Next dr says hearing aids udio. don't know how because he is losing all the time ?so he also says fm trainer. the next say s he needs hearing aids digital and the audio disagrees says he needs 24 /7 fm trainer ? we have gone 4 years this way and in the meen time my son is 10 and can't read or hear ?Oh he can hear some things and can talk we don't know why he is losing or where it came from?we need to know what to do ?the school he attends says they are gonna give him just a pass fail grade cause they say he is giving it all he has but he just can't learn to read and I am VERY!!!! frustrated with it all?They are calling it a cookie bite Defect?Please tell me more? > > > --------------------------------- > Do you Yahoo!? > vote.yahoo.com - Register online to vote today! > > Quote Link to comment Share on other sites More sharing options...
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