Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 Hi there - late here so I wont say much. Mike is 7 yrs old - seizures started for him when he was almost 4 and he has been on keto for 3 years with amazing results He was seizure free for almost 5 months (til we weaned all meds) then they started up again, but he is again after a month, almost controlled on just the diet I am in Manitoba Canada - not exactly neighbors here, but it is great to see more Canadians around Good luck with the diet initiation Jenn mom to Mike - 7yrs old - myoclonic epilepsy, 3 yrs on keto and med free (still amazed to be able to type that), asthma new and nervous Hi I've never belonged to an online anything before but I can see the beniet already. My four year old son (brain injured with global dev. delays) is about to start the kd. He's had seizures for three years but they've only become intollerably intractable over the past eight or nine months. In that time however he has lost his ability to walk, to sit up, feed himself etc. He is irritible (go figure!) and perseverative and desperatly needs his life back. I'm almost afraid to start the kd because I've put so much hope into it. We'll be crushed if it doesn't work. That said we'll take any improvement. We are in Edmonton, Alberta in Canada. Any other Canadians out there? Wish us luck and I'll keep you all posted. Thanks for being here. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 Kathleen, Welcome! I am so sorry for what you and your son are going through. But I do think you have found the right place! This group and keto have been my (and my daughter's) saving grace! Keto is tough at first, and we have certainly wondered at times whether it was worth it, but I can tell you without a doubt that it is. We don't have perfect seizure control YET but my daughter is now off of all seizure meds, developing faster than ever before, and HAPPY AND having less seizures than she ever did on all the meds. We didn't get immediate success and I was disheartened at first, but there are many of us on here that can tell you that perseverence with this diet is the way to go! Hang in there and know that we are all here for you!! I really hope that this is the answer you have been looking for! , mom to Langan, 23 months old and keto kid since 11/03; med free since 4/2/04, still working on those seizures and fighting a nasty case of acidosis > Hi > I've never belonged to an online anything before but I can see the > beniet already. My four year old son (brain injured with global > dev. delays) is about to start the kd. He's had seizures for three > years but they've only become intollerably intractable over the past > eight or nine months. In that time however he has lost his ability > to walk, to sit up, feed himself etc. He is irritible (go figure!) > and perseverative and desperatly needs his life back. > > I'm almost afraid to start the kd because I've put so much hope into > it. We'll be crushed if it doesn't work. That said we'll take any > improvement. > > We are in Edmonton, Alberta in Canada. Any other Canadians out > there? > > Wish us luck and I'll keep you all posted. > > Thanks for being here. > > Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 Kathleen, SO sorry to hear about your little ones troubles. We recently started the diet ourselves (april 26th) and I totally understand you hanging you hat on it so to speak. Just remember, it might take a little time but you'll get there. Luck to you and yours. Allyson - Colorado USA new and nervous Hi I've never belonged to an online anything before but I can see the beniet already. My four year old son (brain injured with global dev. delays) is about to start the kd. He's had seizures for three years but they've only become intollerably intractable over the past eight or nine months. In that time however he has lost his ability to walk, to sit up, feed himself etc. He is irritible (go figure!) and perseverative and desperatly needs his life back. I'm almost afraid to start the kd because I've put so much hope into it. We'll be crushed if it doesn't work. That said we'll take any improvement. We are in Edmonton, Alberta in Canada. Any other Canadians out there? Wish us luck and I'll keep you all posted. Thanks for being here. Kathleen " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 Thanks so much! We'll definately keep you posted. Kathleen > Kathleen, > > SO sorry to hear about your little ones troubles. We recently started the diet ourselves (april 26th) and I totally understand you hanging you hat on it so to speak. Just remember, it might take a little time but you'll get there. Luck to you and yours. > > Allyson - Colorado USA > new and nervous > > > Hi > I've never belonged to an online anything before but I can see the > beniet already. My four year old son (brain injured with global > dev. delays) is about to start the kd. He's had seizures for three > years but they've only become intollerably intractable over the past > eight or nine months. In that time however he has lost his ability > to walk, to sit up, feed himself etc. He is irritible (go figure!) > and perseverative and desperatly needs his life back. > > I'm almost afraid to start the kd because I've put so much hope into > it. We'll be crushed if it doesn't work. That said we'll take any > improvement. > > We are in Edmonton, Alberta in Canada. Any other Canadians out > there? > > Wish us luck and I'll keep you all posted. > > Thanks for being here. > > Kathleen > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic- unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 Thanks so much! We'll definately keep you posted. Kathleen > Kathleen, > > SO sorry to hear about your little ones troubles. We recently started the diet ourselves (april 26th) and I totally understand you hanging you hat on it so to speak. Just remember, it might take a little time but you'll get there. Luck to you and yours. > > Allyson - Colorado USA > new and nervous > > > Hi > I've never belonged to an online anything before but I can see the > beniet already. My four year old son (brain injured with global > dev. delays) is about to start the kd. He's had seizures for three > years but they've only become intollerably intractable over the past > eight or nine months. In that time however he has lost his ability > to walk, to sit up, feed himself etc. He is irritible (go figure!) > and perseverative and desperatly needs his life back. > > I'm almost afraid to start the kd because I've put so much hope into > it. We'll be crushed if it doesn't work. That said we'll take any > improvement. > > We are in Edmonton, Alberta in Canada. Any other Canadians out > there? > > Wish us luck and I'll keep you all posted. > > Thanks for being here. > > Kathleen > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic- unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 Thanks so much! We'll definately keep you posted. Kathleen > Kathleen, > > SO sorry to hear about your little ones troubles. We recently started the diet ourselves (april 26th) and I totally understand you hanging you hat on it so to speak. Just remember, it might take a little time but you'll get there. Luck to you and yours. > > Allyson - Colorado USA > new and nervous > > > Hi > I've never belonged to an online anything before but I can see the > beniet already. My four year old son (brain injured with global > dev. delays) is about to start the kd. He's had seizures for three > years but they've only become intollerably intractable over the past > eight or nine months. In that time however he has lost his ability > to walk, to sit up, feed himself etc. He is irritible (go figure!) > and perseverative and desperatly needs his life back. > > I'm almost afraid to start the kd because I've put so much hope into > it. We'll be crushed if it doesn't work. That said we'll take any > improvement. > > We are in Edmonton, Alberta in Canada. Any other Canadians out > there? > > Wish us luck and I'll keep you all posted. > > Thanks for being here. > > Kathleen > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic- unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Hi Kathleen, welcome to the group. I'm in , British Columbia and this group is very helpful. You will get lots of great advice. My daughter Kristan is not totally seizure free yet but for about the last 1.5 months her seizures are down to 1-3 a day and even has days with no seizures and she's been on the diet since August 2003. This is the best she has ever done! I was expecting immediate results too when we first started the diet, but you have to have patience and stick with it and it will be worth it. I hope the diet is a success for your son. Satnam, mom to Kristan, 18 months Keto kid since August 2003 > Hi > I've never belonged to an online anything before but I can see the > beniet already. My four year old son (brain injured with global > dev. delays) is about to start the kd. He's had seizures for three > years but they've only become intollerably intractable over the past > eight or nine months. In that time however he has lost his ability > to walk, to sit up, feed himself etc. He is irritible (go figure!) > and perseverative and desperatly needs his life back. > > I'm almost afraid to start the kd because I've put so much hope into > it. We'll be crushed if it doesn't work. That said we'll take any > improvement. > > We are in Edmonton, Alberta in Canada. Any other Canadians out > there? > > Wish us luck and I'll keep you all posted. > > Thanks for being here. > > Kathleen Quote Link to comment Share on other sites More sharing options...
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