Re: New to Board - Daughter Positional Plagio, Bumbo Seat

[Guest guest]

I've seen the Bumbo at a store called The Right Start if you have

one near you.

> >> > Hi everyone. It is great to find a support system on

positional

> >> > plagiocephaly. My 4 1/2 month old daughter was recently

> > diagnosed

> >> > with positional plagiocephaly and is currently being referred

to

> > a

> >> > neurosurgeon and also early intervention for possible

> > torticollis.

> >> > My daughter wasnt even 2 weeks old and I had already noticed

> >> > flattening of the back and left of her skull, favoring one

side.

> >> > Instinctively I started doing all kinds of repositioning and

the

> >> > flattening continued to get slowly worse (not so much the

side,

> > but

> >> > the back did). I brought it up at EVERY doctors visit and

until

> > her

> >> > 4 month visit they just kept saying it happens to alot of

> > babies,

> >> > try this, this and that. Finally at the 4 month visit they

> > ordered

> >> > an xray to make sure it wasnt premature fusing of the skull.

The

> >> > xray came back inconclusive so she went in for a catscan. The

ct

> >> > came back ok and the diagnosis was positional. Needless to

say

> > the

> >> > last 4 1/2 months have been a battle to try and keep my

> > daughters

> >> > skull from looking deformed! Even with the constant

> > repositioning,

> >> > head cushions, neck stretching, tummy time, massaging, etc her

> > head

> >> > is still noticeably flat. I cant imagine what it would look

> > like

> >> if

> >> > I had done nothing! Unfortunately it doesnt seem that I can

do

> > it

> >> > completely on my own. All my efforts I am sure have helped

but

> >> they

> >> > are not going to give Leah the best opportunity at a " normal "

> > head

> >> > shape. Then I worry about the risks associated with plagio

> >> (vision,

> >> > speech, motor skills, psychological effects).

> >> >

> >> > Any advice for a newbie?

> >> >

> >> > Any ideas for toys at her age to keep the pressure off her

head

> >> > (swings, bouncers, etc all allow pressure on their heads). I

do

> >> > have the intellitainer by fisher price (kind of like a

exosaucer

> >> > except it doesnt sway or bounce) and we use that a few times

> > daily

> >> > but she isnt very interested in it seeing as she cant reach

any

> > of

> >> > the toys. We try tummy time many times a day and it doesnt

seem

> >> > very successful! She absolutely hates it. CRY! SCREAM!

> > WHAIL!

> >> > Even when I put a rolled blanket under her chest to raise her.

> >> >

> >> > Any advice, tips, comments, anything would be greatly

> > appreciated.

> >> >

> >> > Thanks,

> >> >

> >> > 4 1/2 mo w/ plagio

> >> > New York

> >

> >

> >

> >

> >

> >

> >

> >

> > For more plagio info