RE: Re: introduction & wig tape

[Guest guest]

,

My daughter is 22 months old and we found out when she was about 17 months

old that she was deaf. She has the same type of loss that your daughter

has. Her's runs about 75-85 in her left ear and non measurable in her right

ear. Anyhow, the biggest thing that has helped us keep Tessa's aid in was

wig tape. We bought it at a wig store in the mall. It's basically the same

thing as double-sided tape, but it's much stronger. I would cut a piece off

and attach it to the side of her aid and then put her aid on and push the

other side of the tape onto the side of her head (behind her ear). It

worked very well and kept her from pulling her aid out so often (she still

did get it sometimes). She still pulls it out 4 or 5 times a day, I'd say,

but not so often as before. Also, when she sees her little hearing aid box,

she takes it out and puts it in there. When we tell her it's sleep time,

she will take her aid out and put it in it's " sleep drawer. " We sign these

things to her, because she hasn't gotten a hold of speaking yet, but we are

getting there. She babbles and " talks " to herself more now than ever

before. Also, with the aid, I was very vigilant about putting it back in as

soon as she took it out in the beginning, however, now when she takes it

out, I think she might need a break from it, so I'll leave it out for 10 or

15 minutes and then put it back in. That's just our experience.

Sara

>

>Reply-To: Listen-Up

>To: Listen-Up

>Subject: Re: introduction

>Date: Mon, 23 Aug 2004 00:50:25 -0000

>

>Yes she has had an ABR in April. Her left ear measured at 80-90 and

>the audiologist said she didn't pick up anything in her right ear. We

>live in Houston, TX.

>

>Do infants (14 months) learn to lip read - even though they can't

>hear words?

>

>I'm so new to this, that I don't even know if I'm asking the " right

>questions "

>

>How do I keep her from pulling her hearing aid out? I've tried the

>head bands - but she doesn't like those either. The audiologist never

>told me how to deal with the loud noise it makes sometimes.

>

>Thank you for the encouragement to send more questions. I will!

>

>

>Mother of Kaila - 14 months severe to profound hearing loss

> & Tara 6 years old - normal hearing.

>

>

>

>

>

>

> > Welcome to the group .

> > I've found this group to be very supportive and highly informative.

>Let us know what state you are in -- there could very well be some

>parents who live or have lived in the past in your state. Services

>vary from state to sate so this information will help.

> >

> > I cannot supply specific info on CI's; my daughter has a moderate

>loss and wears HAs. But, when I read your post, I wondered if your

>daughter might be reading lips and has learned to say mamamam this

>way. My daughter gets wonderful benefit from her aids but also is a

>self taught lip reader. She can her in the tub/pool if I really

>project my voice but really relies in the lip reading then. My

>daughter is 3.

> >

> > Did your daughter have an ABR test? I would make sure this is done,

>especially if you suspect that she might be hearing better than

>diagnosed.

> >

> > I'm sure others will supply some helpful CI info. The whole process

>is overwhelming at first; and you have been through a lot already.

>Keep the questions coming.

> >

> > H

> > Mom to Jessie 3, moderate loss. HA

> > introduction

> >

> >

> >

> > Hello

> >

> > My name is and my daughter was born June 2, 2003 on June

>11,

> > 2003 she had open heart surgery and we finally got to bring her

>home

> > on July 22. She is repaired, and we thought the road to the

>Medical

> > Center here in Houston was in the past.

> >

> > She was diagnosed in April with severe to profound hearing loss,

> > after many test and 2 different ENT's - we finally found out why

>she

> > could not hear. Kaila's cochlea's did not fully develop. I found

>out

> > Monday August 16th that she has been referred for cochlear

>implants.

> >

> > She was wearing one hearing aid (a loaner) - when she would leave

>it

> > alone. Now the ENT has advised me not to invest in hearing aids

>yet.

> > I've done some reading and know that it is very important for her

>to

> > hear sounds. (by the way I know she can hear sounds, because I

>taught

> > her to say mamamama - and that's about all she says)the hearing

>aid

> > we have has a very loud ringing noise and she cries when I put it

> > into her " good " ear.

> > I'm not happy with her audiologist, I found out more information

>from

> > another parent I spotted at Chuck E Cheese. My insurance does not

>pay

> > for hearing aids or hearing test. And we are still trying to pay

>off

> > the hospital bills from her heart surgery.

> >

> > I would like to know more about cochlear implants before her

> > appointments, so I can bring up any questions to the doctor. From

> > what I've read, I really want her to have them - but after

>everything

> > she has been through I am a little apprehensive.

> >

> >

> > Mother of Kaila 14 months - severe to profound hearing loss

> > & Tara 6 yrs old - normal hearing

> >

> >

> >

> >

> >

> >

> > All messages posted to this list are private and confidential.

>Each post is the intellectual property of the author and therefore

>subject to copyright restrictions.

> >

> >

> >