Re: Appointment with ped neurosugeon-MANON (Dr. Carson)

[Guest guest]

Crap indeed! Sounds like he's surgery or nothing, which is crazy

when plagio can be corrected so easily in a non-invasive way! Have

you looked in our referring doctor database? I'd call CT for sure

too, many have clinics you can go to that have both the ortho from

CT and a specialist at. One of those posts below mentions that, so

maybe they still do it. Have you posted both here and on the

Cranial Tech website for suggestions? Let us know what you find

out. Sorry to be such a bummer b/c I know you were excited about

the appt.

>

> > Hi Manon,

> > For some reason the name Dr. Carson stood out to me,

> > so I did a

> > little digging to figure out why. Turns out he is

> > NOT probanding

> > and if I were you I'd strongly recommend finding a

> > doctor who is to

> > get an accurate recommendation. Here are some past

> > messages you'll

> > find interesting:

> >

> > Date: Thu Jan 23, 2003 9:41 am

> > Subject: /s Hopkins Posts

> > Hi :

> > I went to the beginning of 2001 and found several

> > posts regarding

> > s Hopkins, Dr. Ben Carson in particular. From

> > these posts, I

> > remembered correct, he's not a supporter of banding,

> > they make some

> > sort of custom pillow for plagio..

> > Type these message #'s in the message # box in the

> > group:

> > 29282,26772,25390,21863,12866,12843

> > I hope this helps. Sorry it's not better news.

> > Debbie Abby's mom DOCGrad

> > MI

> >

> > (Message 56248)

> > From: lahydeebug@a...

> > Date: Thu Mar 6, 2003 5:26 pm

> > Subject: Re: Re: Please please help, has

> > anyone experianced

> > this? lahydeebug

> > My daughter was seen by Dr. Carson and Dr. DuFrense.

> > We knew, after

> > making the appt with Dr. CArson, that he is not

> > proband. It was not

> > an option mentioned to us. We did research to find

> > Dr. DuFrense. We

> > waited over a month for Carson, and less than a week

> > for Dufrense.

> > He does free clinics in the evening to check for

> > plagio. At times,

> > from Cranial Tech will be there too, to answer

> > questions if

> > banding is recommended. is super nice.

> > Dufrense didnt look at

> > my daughter too much because she had already been

> > diagnosed, just

> > confirmed it. He is knowledgable, and told us he

> > and Carson used to

> > run the clinic at Hopkins together at one point, but

> > split ways

> > because they didnt see eye to eye on some things.

> > They still remain

> > friendly. I wonder if it had something to do with

> > these bands. I

> > just think Carson leans more toward surgery, and if

> > it isnt surgery,

> > he isnt too interested. I would see Dufrense!!!

> > Where are you located? I'd love to meet up with

> > another plagio

> > baby, or maybe coordinate adjustment appointments

> > and hang out

> > after, since we will both be at cranial tech.

> > jen

> >

> > (Message 56541)

> > From: " candaceanddavid " <Candaceanddavid@a...>

> > Date: Sun Mar 9, 2003 2:17 pm

> > Subject: Re: Please please help, has anyone

> > experianced this?

> > Hi, I am also located in land. My son graduated

> > from his

> > DOCband last June with great results. We originally

> > saw Dr. Carson

> > at s Hopkins when my son was 6 months old. My

> > son was fitted

> > with the foam head cushion at 3 months that Dr.

> > Carson recommends.

> > We had zero improvement with the cushion and Dr.

> > Carson himself was

> > very negative about banding and just told us to grow

> > our son's hair

> > longer to cover his misaligned ears. I researched

> > things and found

> > Dr. Craig DuFresne whom a previous post mentioned.

> > He is terrific!

> > I highly recommend him and the Cranial Technologies

> > Center in both

> > Paramus where we started with banding and the

> > ndale office where

> > we finished. My son got about 95 percent correction

> > and looks

> > normal now. Good luck. If you have any questions,

> > you can feel

> > free to email me at daveandcandy@c...

> > Candy, mom to (DOCband grad 6/02)

> > land

> >

> > (Message 56133)

> > From: " debbieandabby " <dj2kirby@c...>

> > Date: Thu Mar 6, 2003 8:58 am

> > Subject: Re: Please please help, has anyone

> > experianced this?

> > debbieandabby

> > Offline

> > Send Email

> > Remove Author | Ban Author

> > Hi & welcome to our group!!

> > I'm SO sorry to hear of the runaround you've gotten

> > from you Drs., as

> > you called em " jerks " ...I get so sick of reading

> > stories like yours.

> > This is such a shame!!

> > Dr. Ben Carson, his name has been mentioned several

> > times in here,

> > most of which hasn't been good feedback. He's very

> > anti-banding for

> > plagio, but makes his own type of plagio foam helmet

> > thing. So

> > personally, I wouldn't recommend him.

> > Dr. Dipatri doesn't ring any bells with me.

> > BUT, I've heard nothing but great things about

> > craniofacial surgeon

> > Dr. Craig Dufresne in Chevy Chase, land.

> > 301-654-9151. From

> > everything I've heard about him, he's EXTREMELY

> > knowledgable

> > regarding plagio and could probably get you in

> > relatively fast for an

> > evaluation. I strongly suggest giving him a call to

> > see when you

> > could get in.

> > When is your appt with Dr. Dipatri?

> > I was happy to read your son's face assymetries have

> > improved, it's

> > hard to say if they'd get worse again, but odds are

> > that it won't get

> > worse.

> > Welcome again, good luck with this. Sorry to hear of

> > your runaround

> > thus far, but good for you researching this on your

> > own & being so

> > persistent.

> > Good luck!! Keep us posted please.

> > Debbie Abby's mom DOCGrad

> > MI

> >

> > (Message 52230)

> > From: " candaceanddavid <Candaceanddavid@a...> "

> > <Candaceanddavid@a...>

> > Date: Mon Jan 27, 2003 9:42 am

> > Subject: Re: About to start the banding journey.

> > Anyone in

> > land/Penn care to mentor me? candaceanddavid

> > Offline

> > Send Email

> > Remove Author | Ban Author

> >

> > I am in the polis, land, area. I'd be happy

> > to speak with

> > you or you can email me at daveandcandy@c...

> > My son wore

> > two DOCbands from Cranial Tech (NJ, then Va. office)

> > from age 9

> > months to 18 months. He got great correction. We

> > originally went

> > to Ben Carson at s Hopkins for an opinion at 6

> > months. He was

> > pretty negative on banding and just told us to grow

> > 's hair long

> > to cover his badly misaligned ears and come back to

> > see him in 6

> > months for an opinion on surgery. I researched

> > things, including

> > finding this chat group, and went to Dr. Craig

> > DuFresne for a second

> > opinion. He prescribed the DOCband and I chose to

> > make the 8 hours

> > roundtrip drive at the time to the Paramus clinic

> > before the

> > Virginia opened only an hour away. It was well worth

> > it! My son

> > got about 95 percent correction overall. Good luck

> > and feel free to

> > email me if you have any other questions.

> > Candy, mom to

> > DOCband grad 6/02

> >

> >

> >

> > You can also type those post numbers in from that

> > first post to read

> > more if you want. I think you get the picture

> > though. He seems to

> > be surgery or nothing. Have you tried calling the

> > Cranial Tech

> > you'll be using to see which doctors they recommend?

> > I woudn't even

> >

> === message truncated ===

>

>

>

>

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