Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ To one and all ! Hi everyone hope this gets toyou as i am computer hopeless!! it was so good to meet you and have finally got some blueberries at Rick Steins in Padstow bugger all in supermarkets down hear!Well have just read about 70 emails from you guys some made me laugh and some made me SO angry,how dare Jermaines mum have to fight so hard to get help bloody paediatricians I now see them as purely yet another fence us mums have to climb over to finally get some help.Re M.P our one said he would help but I will believe it when i see it!So understand your anger Emma as I am ABSOLUTELY furious with Epilepsy Action I phoned them last week and asked if they could put the Yahoo doosesyndrome support group on there infomation database and some cretin told me that they are very fussy what they put on and we were jolly lucky to get a diagnosis it usually takes people 2 years!! I was so angry I decided it was best to get off fast before i performed telephone murder!!.I am going to write to the top of Epilepsy Action and hope they are less brain dead .Sorry as you can tell Mrs VERY angry from Cornwall.The Appeal for G.O.S is going well the 25,000 is in the bag but next years 50,000 is going to be hard work we are not setting ourselves another target but will plug away at it ,some man phoned today and is going to make our appeal document into a leaflet and send it with his business magazine to 28,000 businesses in South West what a nice chap!Dont even know his surname!Publicity has finally gone quiet no doubt Tonight with Trevor will get it going again so glad Emma you have worked so hard to get it all up and running.Had a sad call today fom desperate parent who had seen on G.M.T.V ,managed to give them lots of info including matthews freinds child is called Alfie .All this just makes me realise just how much we are going to have to stick together to fight to help today and tomorrows children.With love P.s on day39 seizure free with mummy still praying hard!I love the KETO DIET !!!! ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ To one and all ! Hi everyone hope this gets toyou as i am computer hopeless!! it was so good to meet you and have finally got some blueberries at Rick Steins in Padstow bugger all in supermarkets down hear!Well have just read about 70 emails from you guys some made me laugh and some made me SO angry,how dare Jermaines mum have to fight so hard to get help bloody paediatricians I now see them as purely yet another fence us mums have to climb over to finally get some help.Re M.P our one said he would help but I will believe it when i see it!So understand your anger Emma as I am ABSOLUTELY furious with Epilepsy Action I phoned them last week and asked if they could put the Yahoo doosesyndrome support group on there infomation database and some cretin told me that they are very fussy what they put on and we were jolly lucky to get a diagnosis it usually takes people 2 years!! I was so angry I decided it was best to get off fast before i performed telephone murder!!.I am going to write to the top of Epilepsy Action and hope they are less brain dead .Sorry as you can tell Mrs VERY angry from Cornwall.The Appeal for G.O.S is going well the 25,000 is in the bag but next years 50,000 is going to be hard work we are not setting ourselves another target but will plug away at it ,some man phoned today and is going to make our appeal document into a leaflet and send it with his business magazine to 28,000 businesses in South West what a nice chap!Dont even know his surname!Publicity has finally gone quiet no doubt Tonight with Trevor will get it going again so glad Emma you have worked so hard to get it all up and running.Had a sad call today fom desperate parent who had seen on G.M.T.V ,managed to give them lots of info including matthews freinds child is called Alfie .All this just makes me realise just how much we are going to have to stick together to fight to help today and tomorrows children.With love P.s on day39 seizure free with mummy still praying hard!I love the KETO DIET !!!! ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ To one and all ! Hi everyone hope this gets toyou as i am computer hopeless!! it was so good to meet you and have finally got some blueberries at Rick Steins in Padstow bugger all in supermarkets down hear!Well have just read about 70 emails from you guys some made me laugh and some made me SO angry,how dare Jermaines mum have to fight so hard to get help bloody paediatricians I now see them as purely yet another fence us mums have to climb over to finally get some help.Re M.P our one said he would help but I will believe it when i see it!So understand your anger Emma as I am ABSOLUTELY furious with Epilepsy Action I phoned them last week and asked if they could put the Yahoo doosesyndrome support group on there infomation database and some cretin told me that they are very fussy what they put on and we were jolly lucky to get a diagnosis it usually takes people 2 years!! I was so angry I decided it was best to get off fast before i performed telephone murder!!.I am going to write to the top of Epilepsy Action and hope they are less brain dead .Sorry as you can tell Mrs VERY angry from Cornwall.The Appeal for G.O.S is going well the 25,000 is in the bag but next years 50,000 is going to be hard work we are not setting ourselves another target but will plug away at it ,some man phoned today and is going to make our appeal document into a leaflet and send it with his business magazine to 28,000 businesses in South West what a nice chap!Dont even know his surname!Publicity has finally gone quiet no doubt Tonight with Trevor will get it going again so glad Emma you have worked so hard to get it all up and running.Had a sad call today fom desperate parent who had seen on G.M.T.V ,managed to give them lots of info including matthews freinds child is called Alfie .All this just makes me realise just how much we are going to have to stick together to fight to help today and tomorrows children.With love P.s on day39 seizure free with mummy still praying hard!I love the KETO DIET !!!! ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ To one and all ! Hi everyone hope this gets toyou as i am computer hopeless!! it was so good to meet you and have finally got some blueberries at Rick Steins in Padstow bugger all in supermarkets down hear!Well have just read about 70 emails from you guys some made me laugh and some made me SO angry,how dare Jermaines mum have to fight so hard to get help bloody paediatricians I now see them as purely yet another fence us mums have to climb over to finally get some help.Re M.P our one said he would help but I will believe it when i see it!So understand your anger Emma as I am ABSOLUTELY furious with Epilepsy Action I phoned them last week and asked if they could put the Yahoo doosesyndrome support group on there infomation database and some cretin told me that they are very fussy what they put on and we were jolly lucky to get a diagnosis it usually takes people 2 years!! I was so angry I decided it was best to get off fast before i performed telephone murder!!.I am going to write to the top of Epilepsy Action and hope they are less brain dead .Sorry as you can tell Mrs VERY angry from Cornwall.The Appeal for G.O.S is going well the 25,000 is in the bag but next years 50,000 is going to be hard work we are not setting ourselves another target but will plug away at it ,some man phoned today and is going to make our appeal document into a leaflet and send it with his business magazine to 28,000 businesses in South West what a nice chap!Dont even know his surname!Publicity has finally gone quiet no doubt Tonight with Trevor will get it going again so glad Emma you have worked so hard to get it all up and running.Had a sad call today fom desperate parent who had seen on G.M.T.V ,managed to give them lots of info including matthews freinds child is called Alfie .All this just makes me realise just how much we are going to have to stick together to fight to help today and tomorrows children.With love P.s on day39 seizure free with mummy still praying hard!I love the KETO DIET !!!! ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Quote Link to comment Share on other sites More sharing options...
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