Re: Re: Intractable seizures?Laurie -Bill

February 22, 2004

I agree, it could have been the acidity aspect rather than the actual AED

properties of the topomax that was initially a good 'recipe' for Logan. Did

he have he blood gases etc checked in hospital? I remember something about

acidosis possibly causing problems with him in there? So he may be quite one

who is super-sensitive to acidity/alkalinity? Maybe he needs to be somewhere

in between for the right balance for him. I know lots of debate on here

about the usefulness of urine ph, but personally we have always seen some

sort of correlation with urine ph and seizure control in . Poss a

catch 22 or chicken before the egg situation, but there have been times

where his urine ph has gone v alkaline (like 8 ish even) and shortly after

it has hit the fan with him seizure wise. So maybe a few spot tests in the

multistix to see what the readings are doing? How about blood sugar? Do you

test this - if so, what sort of range is he usually in?

----- Original Message -----

>You were on topamax plus the diet. This is a difficult combination as

both

> of these affect the acidity of the blood and possibly seizure control in

> a similar manner. It may have been that this caused you to be thrown off

> of seizure control when you weaned the topomax. Without topomax, you may

> need a higher ratio to get seizure control.

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