Re: New to group so very fustrated

[Guest guest]

Louise,

I just sent you an email, but will send more when I can. I forgot

to give you Hannah's website if you're interested though:

http://hannahsnoggin.typepad.com

Cape Cod, Ma

> > Hello my name is Louise, I'm from MA and I have a 6 1/2 old

> handsome

> > little boy. He has torticollis and plagio. From birth I

found he

> > had a hard time nursing to the left but i kept an eye on it.

I

> > mentioned it at his 1 mth physical pediatrician said he was

fine,

> I

> > soon reliezed that he always looked to one side and his head

was

> > getting flatter on the right side. So I did my own research

and

> > concluded he had torticollis, at two months I brought it up

again

> > and the doctor was like oh yeah he has torticollis. (I'm a

> massage

> > therapist) So she said he just needs some passive stretching.

> >

> > Well, I did more research and found that he wasn't getting

> better.

> > I went to see dr gary rodgers from the childrens hospital in

> > boston. He had measured my sons head and said he was at

8mm/cm?

> > That 2-4 was " normal " so he wasn't too far off that he would

be

> > fine. I said no he has torticollis not just plagio. He said

> > torticollis goes away on its own not to worry I dont need to

do

> > anything about it and that what he could do is send me down to

get

> a

> > molded foam pillow. I don't think they cut it right my son's

head

> > never seemed to fit it quite right. But he tolorated it for

about

> > two weeks then learned to kick it out from under his head and

it

> > went down hill from there on that. On the recheck he had said

his

> > head was measuring 4mm that he was fine. What little was left

> once

> > his head starting growing since he was rolling it wouldn't get

any

> > flatter it would reshape itself. Once again I brought up his

> > torticollis and he told me the same thing your son is fine

nothing

> > to do or worry about????????

> >

> > Now I don't know if this is related or not but my sons tongue

> > deviates to the right side of his mouth. His jaw was offset

as

> > well. Still is a bit. His ears seem abit off and eye one a

titch

> > bigger than the other? I swear I'm not crazy. It seems the

> > pediatrician and neurosurgeon thinks I'm hullucinating. So

how

> can

> > I not worry and of course I need to so something!

Pediatrician

> told

> > me to call early intervention-they stuck me with an OT. She

did

> > nothing for me. I found the stretching excerices off one of

the

> > torticollis sites which I've been doing. I was doing it after

> every

> > diaper change plus maybe 3 more times. I started off with him

> > fighting with the rom but being ok with the side bending.

Daeson

> > LOVES tummy time which he spends most of the day on. I have

> backed

> > off of the streching because he really fights me on it. I

don't

> > want him to be afraid of touch or think touch is bad so I do

as

> much

> > as he allows. We've been seeing a chiropractor who does

> biocranial

> > work- I'm extremly happy with him and the results of it. I

have

> his

> > toys on the left side oh yes now he allows the rom stretching

but

> > fights on side bending. Daeson's rom is almost the same as

his

> > right side now I trying to deal wit the head tilt. I did some

> > cranial sacral work with him in the beginning but I have a 23

mth

> > old as well and it was getting to be to much for the kids

since we

> > started off at the chiropractors twice a week and cranial

sacral

> > also twice a week plus the neurosurgeon. It seemed like all I

was

> > ever doing was bring the kids to some kind of doctor.

> >

> > Sorry I'm all over the place and my spelling is terrible

today.

> > I've just been thru so much and I feel so trapped and

fustrated.

> So

> > I made an appointment with a pt out of boston. She was so

> impressed

> > with Daeson she said she would see him in three weeks and go

from

> > there. She said to do more side laying work with him to

strenghen

> > the right scm. To come to find out my insurance won't cover

her

> so

> > I had to make an appointment with another pt in danvers ma.

Now

> > this was last week and she was like oh he needs a helmet for

his

> > head have you ever gotten his head checked out? I told her

what

> dr

> > rodgers had said and she kept pressing that I need a helmet

and

> that

> > he needs to be seen twice a week and made me feel absolutely

> > terrible. I'm going for a second opinion with another PT out

of

> > lynnfield. I didn't like the pt. She seemed very " mechanical "

> about

> > everything. And I dont think my son looks that bad I mean

from

> > where he started off he's made alot of progress. I just can't

> > understand how different of opinions I've gotten. So I;m so

lost

> I

> > don't know what to do who to go to. It seems like I can't

find

> > anyone who knows what there doing or what there talking

about.

> I'm

> > fustrated with my pediatrician because she won't do xrays, and

I

> > wanted them for his neck and to get his hips checked out. I'm

at

> a

> > loss. Does torticollis ever completely go away?

> >

> > Now my son is almost 7 months old he's too big for his co-

> sleeper.

> > He's 22 pds and he rolls so he's in a regular crib but because

> he's

> > all over the place I can't position him. So I don't know what

to

> > do. Sorry so long but I figure I'd get it all out now and

> hopefully

> > find some answers/help. Thanks Louise

>

>

>

>

>

> For more plagio info