- Re: HELP - I'M GONNA CRY!!!!

[Guest guest]

Hi, -

You've already gotten some shoulders to lean on, advice to stay out of hotels

while you're glowing, and and in general to follow the advice of the nuclear med

doctor over vague " hospital people " , all of

which I totally agree with.

As to how to speed up getting your RAI scan & treatment, hopefully there is

someone who can step in and advocate for you, since being severely hypo can be

too much of a disability, when equanimity and

patience are required.

Who told you that a bed isn't available? If it's not one of the doctors, I

would get on the phone first thing in the morning, and explain the situation to

them. First the nuclear med doctor, then the

endo. If they hear a near hysterical patient who's close to losing it, they

may miraculously find bed for you, especially if there's another hospital that

CAN admit you promptly. If your doctors can't

help you, perhaps the hospital's patient advocate can.

OTOH, if the RAI isn't being delivered because of the snow, there may be little

you can do about it.

Good luck, be tough, and please keep us posted -

NYC

" " wrote:

> I was supposed to go in tomorrow for my tracer dose, then in on

> Friday for my scan. Next Monday or Tuesday I was supposed to have my

> RAI (and be admitted at my insistance), then start replacement meds

> which I have never taken. My TT was on Jan 30th with Papillary and

> Follicular cancers. HERE'S MY PROBLEM!!!! NO one apparently got

> everything coordinated and now it is probably too late to do it this

> week. ...

> Lots of the problems are exacerbated by the huge amounts of snow. The planes

> can't land with the nuclear meds ...