Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 , Let me assure you that once you talk to Dr. Ponseti for the first time, all your worries are gone and you start feeling so much better about all this. I really trusted him immediately when I saw him, and that felt so good after months of uncertainty and fear. Just ask as many questions as you can think of, even the silliest ones. Dr. Ponseti always listens and answers thoroughly, and he was never in a horry to leave us when we were there. I know how you must feel because I was in your shoes a few months ago. We got a lot of support from this group the and now I love the feeling that someone may benefit from our experience! Veeti was around ten months old when we were in Iowa, and the castings were pretty hard on him and me. I don't think that it was because of pain that Veeti cried so hard, but more because of the uncomfort for having to be still and having four strangers holding him. The manipulation and casting were usually done in about 10-15 minutes, and after that Veeti used to fall asleep when we pushed him around the UIHC in his stroller. When he woke up, he didn't seem to be upset at all and was as happy as always. On the tenotomy-day we went back to the hospital later and saw Dr. P again, and Veeti was smiling and playing with him, so I don't think he was traumatised at all. The only thing that I regret not doing was asking to have the EMLA cream on Veeti's heel before they did the tenotomy. It's a cream that makes the skin numb so the baby won't feel the injection of the anaesthetic. The needle was so thin that I don't know if he felt it without the EMLA, but that's just one thing I would do differently now. Looking back, I think that all the crying was a small price to pay for such an outstanding treatment and avoiding a massive surgery. The use of DBB has been like a dream. Veeti adjusted to it in a few hours. On the first night Veeti woke up several times but fell asleep immediately after I gave him the dummy. After the first afternoon and night, the DBB has been like a part of his body, and now he seems to be more confused not having it on that having it on. It has been amazing how well he moves with it. He can crawl and stand up with it, and he even takes a few steps with it! I must admit that Veeti is not very strong willed, but very adjusting to everything, and that may be why he adjusted to the DBB so easily. Still I know that children of 11 months and even older have adjusted to the DBB sooner or later. I think that it is good that a mother is in the room when the casting is done, but you need to be confident so that your baby won't sense your fear. I know it is hard for the mommy to listen your baby crying and not being able to do anything, but it's just for that short moment. It will go just fine, and sooner than you realise you will have a son with two beautiful, normal-looking feet! Are you going to be staying at the Mc house in Iowa? If you are, you will be able to access the Internet from the house and keep us posted. Please ask me anything you can think of, I'd be happy to help. Sanna & Veeti > I have decided that we have to go see Dr. Ponseti. I am a teacher so > I cannot go until the end of May. This means will be ten > months old before treatment begins. I am concerned about his reaction > to the treatment. I would be interested in other adjustments made by > older infants. If Sanni and Veeti read this I would love to hear how > Veeti handled the more aggressive casting and the DBB at 9.5 months. > My son is very strong willed and I am concerned that I will not be > strong enough to handle his pain. > I will be going alone with steven (I am from Ga and will be flying in) > and I am worried about his reaction to the castings. > > We have discovered that s previous treatment was very non > aggressive. He was casted for the first eight weeks in a fiberglass > cast with a small amount of rotation. He then had no casts or brace > but we used reverse last shoes. On 2/21 we had the heel cord > operation. He came out of a cast on March 31 after his heel cord > procedure and we do not have any brace. I learned yesterday from the > therapist that he only has 15 degrees of rotation (I have no idea what > that means) and that his entire leg is turning. I feel so in the > dark. I have emailed Dr. Ponseti for advice. > I read your emails and posts and you are all so informed. I read the > other posts and I am very concerned for each child and parent but I > can not reply because I have not experienced any of the things > discussed. > I hope that soon, I too will be able to offer someone support! > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 , Let me assure you that once you talk to Dr. Ponseti for the first time, all your worries are gone and you start feeling so much better about all this. I really trusted him immediately when I saw him, and that felt so good after months of uncertainty and fear. Just ask as many questions as you can think of, even the silliest ones. Dr. Ponseti always listens and answers thoroughly, and he was never in a horry to leave us when we were there. I know how you must feel because I was in your shoes a few months ago. We got a lot of support from this group the and now I love the feeling that someone may benefit from our experience! Veeti was around ten months old when we were in Iowa, and the castings were pretty hard on him and me. I don't think that it was because of pain that Veeti cried so hard, but more because of the uncomfort for having to be still and having four strangers holding him. The manipulation and casting were usually done in about 10-15 minutes, and after that Veeti used to fall asleep when we pushed him around the UIHC in his stroller. When he woke up, he didn't seem to be upset at all and was as happy as always. On the tenotomy-day we went back to the hospital later and saw Dr. P again, and Veeti was smiling and playing with him, so I don't think he was traumatised at all. The only thing that I regret not doing was asking to have the EMLA cream on Veeti's heel before they did the tenotomy. It's a cream that makes the skin numb so the baby won't feel the injection of the anaesthetic. The needle was so thin that I don't know if he felt it without the EMLA, but that's just one thing I would do differently now. Looking back, I think that all the crying was a small price to pay for such an outstanding treatment and avoiding a massive surgery. The use of DBB has been like a dream. Veeti adjusted to it in a few hours. On the first night Veeti woke up several times but fell asleep immediately after I gave him the dummy. After the first afternoon and night, the DBB has been like a part of his body, and now he seems to be more confused not having it on that having it on. It has been amazing how well he moves with it. He can crawl and stand up with it, and he even takes a few steps with it! I must admit that Veeti is not very strong willed, but very adjusting to everything, and that may be why he adjusted to the DBB so easily. Still I know that children of 11 months and even older have adjusted to the DBB sooner or later. I think that it is good that a mother is in the room when the casting is done, but you need to be confident so that your baby won't sense your fear. I know it is hard for the mommy to listen your baby crying and not being able to do anything, but it's just for that short moment. It will go just fine, and sooner than you realise you will have a son with two beautiful, normal-looking feet! Are you going to be staying at the Mc house in Iowa? If you are, you will be able to access the Internet from the house and keep us posted. Please ask me anything you can think of, I'd be happy to help. Sanna & Veeti > I have decided that we have to go see Dr. Ponseti. I am a teacher so > I cannot go until the end of May. This means will be ten > months old before treatment begins. I am concerned about his reaction > to the treatment. I would be interested in other adjustments made by > older infants. If Sanni and Veeti read this I would love to hear how > Veeti handled the more aggressive casting and the DBB at 9.5 months. > My son is very strong willed and I am concerned that I will not be > strong enough to handle his pain. > I will be going alone with steven (I am from Ga and will be flying in) > and I am worried about his reaction to the castings. > > We have discovered that s previous treatment was very non > aggressive. He was casted for the first eight weeks in a fiberglass > cast with a small amount of rotation. He then had no casts or brace > but we used reverse last shoes. On 2/21 we had the heel cord > operation. He came out of a cast on March 31 after his heel cord > procedure and we do not have any brace. I learned yesterday from the > therapist that he only has 15 degrees of rotation (I have no idea what > that means) and that his entire leg is turning. I feel so in the > dark. I have emailed Dr. Ponseti for advice. > I read your emails and posts and you are all so informed. I read the > other posts and I am very concerned for each child and parent but I > can not reply because I have not experienced any of the things > discussed. > I hope that soon, I too will be able to offer someone support! > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 , I encourage you to ask Dr. Ponseti for his advise, but there is also the possibility that you could go to the Ponseti method doctors in Atlanta or Dr. Frick in Charolette N.C. Here is a prior message about the Atlanta doctors. http://groups.yahoo.com/group/nosurgery4clubfoot/message/14882 and (3-17-99) > I have decided that we have to go see Dr. Ponseti. I am a teacher so > I cannot go until the end of May. This means will be ten > months old before treatment begins. I am concerned about his reaction > to the treatment. I would be interested in other adjustments made by > older infants. If Sanni and Veeti read this I would love to hear how > Veeti handled the more aggressive casting and the DBB at 9.5 months. > My son is very strong willed and I am concerned that I will not be > strong enough to handle his pain. > I will be going alone with steven (I am from Ga and will be flying in) > and I am worried about his reaction to the castings. > > We have discovered that s previous treatment was very non > aggressive. He was casted for the first eight weeks in a fiberglass > cast with a small amount of rotation. He then had no casts or brace > but we used reverse last shoes. On 2/21 we had the heel cord > operation. He came out of a cast on March 31 after his heel cord > procedure and we do not have any brace. I learned yesterday from the > therapist that he only has 15 degrees of rotation (I have no idea what > that means) and that his entire leg is turning. I feel so in the > dark. I have emailed Dr. Ponseti for advice. > I read your emails and posts and you are all so informed. I read the > other posts and I am very concerned for each child and parent but I > can not reply because I have not experienced any of the things > discussed. > I hope that soon, I too will be able to offer someone support! > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 , I encourage you to ask Dr. Ponseti for his advise, but there is also the possibility that you could go to the Ponseti method doctors in Atlanta or Dr. Frick in Charolette N.C. Here is a prior message about the Atlanta doctors. http://groups.yahoo.com/group/nosurgery4clubfoot/message/14882 and (3-17-99) > I have decided that we have to go see Dr. Ponseti. I am a teacher so > I cannot go until the end of May. This means will be ten > months old before treatment begins. I am concerned about his reaction > to the treatment. I would be interested in other adjustments made by > older infants. If Sanni and Veeti read this I would love to hear how > Veeti handled the more aggressive casting and the DBB at 9.5 months. > My son is very strong willed and I am concerned that I will not be > strong enough to handle his pain. > I will be going alone with steven (I am from Ga and will be flying in) > and I am worried about his reaction to the castings. > > We have discovered that s previous treatment was very non > aggressive. He was casted for the first eight weeks in a fiberglass > cast with a small amount of rotation. He then had no casts or brace > but we used reverse last shoes. On 2/21 we had the heel cord > operation. He came out of a cast on March 31 after his heel cord > procedure and we do not have any brace. I learned yesterday from the > therapist that he only has 15 degrees of rotation (I have no idea what > that means) and that his entire leg is turning. I feel so in the > dark. I have emailed Dr. Ponseti for advice. > I read your emails and posts and you are all so informed. I read the > other posts and I am very concerned for each child and parent but I > can not reply because I have not experienced any of the things > discussed. > I hope that soon, I too will be able to offer someone support! > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 , I encourage you to ask Dr. Ponseti for his advise, but there is also the possibility that you could go to the Ponseti method doctors in Atlanta or Dr. Frick in Charolette N.C. Here is a prior message about the Atlanta doctors. http://groups.yahoo.com/group/nosurgery4clubfoot/message/14882 and (3-17-99) > I have decided that we have to go see Dr. Ponseti. I am a teacher so > I cannot go until the end of May. This means will be ten > months old before treatment begins. I am concerned about his reaction > to the treatment. I would be interested in other adjustments made by > older infants. If Sanni and Veeti read this I would love to hear how > Veeti handled the more aggressive casting and the DBB at 9.5 months. > My son is very strong willed and I am concerned that I will not be > strong enough to handle his pain. > I will be going alone with steven (I am from Ga and will be flying in) > and I am worried about his reaction to the castings. > > We have discovered that s previous treatment was very non > aggressive. He was casted for the first eight weeks in a fiberglass > cast with a small amount of rotation. He then had no casts or brace > but we used reverse last shoes. On 2/21 we had the heel cord > operation. He came out of a cast on March 31 after his heel cord > procedure and we do not have any brace. I learned yesterday from the > therapist that he only has 15 degrees of rotation (I have no idea what > that means) and that his entire leg is turning. I feel so in the > dark. I have emailed Dr. Ponseti for advice. > I read your emails and posts and you are all so informed. I read the > other posts and I am very concerned for each child and parent but I > can not reply because I have not experienced any of the things > discussed. > I hope that soon, I too will be able to offer someone support! > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Hi , Our son Calvin was treated as an older infant--he didn't start treatment until 8 1/2 months of age. At that time we were living overseas, and had been using a physiotherapy method. We didn't feel that his feet, which had a pretty severe deformity, were corrected, so after doing a lot of research we went to Iowa. I would also advise you to talk directly to Dr. Ponseti--but we were advised that going to Iowa would be the best thing to do, because of the experience level there in treating older infants. You might consider starting treatment at your local doctor, then take him to Iowa after you finish the school year. I do not feel that the casting was in any way painful for him. But, for the first 24 hours, he was absolutely miserable--crying, whining, didn't sleep--it was a really rough first day. Then, he adjusted and that was it. The adjustment to the shoes was no problem at all. He wasn't a really physical infant--so he wasn't crawling by the time he started treatment, perhaps that helps, but it really wasn't bad. It was a pain, just to have a baby with big heavy casts, and then wearing those clunky shoes 24/7, but worth it to see the correction. I hope this helps. Jen > > I have decided that we have to go see Dr. Ponseti. I am a teacher > so > > I cannot go until the end of May. This means will be ten > > months old before treatment begins. I am concerned about his > reaction > > to the treatment. I would be interested in other adjustments made > by > > older infants. If Sanni and Veeti read this I would love to hear > how > > Veeti handled the more aggressive casting and the DBB at 9.5 > months. > > My son is very strong willed and I am concerned that I will not be > > strong enough to handle his pain. > > I will be going alone with steven (I am from Ga and will be flying > in) > > and I am worried about his reaction to the castings. > > > > We have discovered that s previous treatment was very non > > aggressive. He was casted for the first eight weeks in a > fiberglass > > cast with a small amount of rotation. He then had no casts or > brace > > but we used reverse last shoes. On 2/21 we had the heel cord > > operation. He came out of a cast on March 31 after his heel cord > > procedure and we do not have any brace. I learned yesterday from > the > > therapist that he only has 15 degrees of rotation (I have no idea > what > > that means) and that his entire leg is turning. I feel so in the > > dark. I have emailed Dr. Ponseti for advice. > > I read your emails and posts and you are all so informed. I read > the > > other posts and I am very concerned for each child and parent but I > > can not reply because I have not experienced any of the things > > discussed. > > I hope that soon, I too will be able to offer someone support! > > > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Hi , Our son Calvin was treated as an older infant--he didn't start treatment until 8 1/2 months of age. At that time we were living overseas, and had been using a physiotherapy method. We didn't feel that his feet, which had a pretty severe deformity, were corrected, so after doing a lot of research we went to Iowa. I would also advise you to talk directly to Dr. Ponseti--but we were advised that going to Iowa would be the best thing to do, because of the experience level there in treating older infants. You might consider starting treatment at your local doctor, then take him to Iowa after you finish the school year. I do not feel that the casting was in any way painful for him. But, for the first 24 hours, he was absolutely miserable--crying, whining, didn't sleep--it was a really rough first day. Then, he adjusted and that was it. The adjustment to the shoes was no problem at all. He wasn't a really physical infant--so he wasn't crawling by the time he started treatment, perhaps that helps, but it really wasn't bad. It was a pain, just to have a baby with big heavy casts, and then wearing those clunky shoes 24/7, but worth it to see the correction. I hope this helps. Jen > > I have decided that we have to go see Dr. Ponseti. I am a teacher > so > > I cannot go until the end of May. This means will be ten > > months old before treatment begins. I am concerned about his > reaction > > to the treatment. I would be interested in other adjustments made > by > > older infants. If Sanni and Veeti read this I would love to hear > how > > Veeti handled the more aggressive casting and the DBB at 9.5 > months. > > My son is very strong willed and I am concerned that I will not be > > strong enough to handle his pain. > > I will be going alone with steven (I am from Ga and will be flying > in) > > and I am worried about his reaction to the castings. > > > > We have discovered that s previous treatment was very non > > aggressive. He was casted for the first eight weeks in a > fiberglass > > cast with a small amount of rotation. He then had no casts or > brace > > but we used reverse last shoes. On 2/21 we had the heel cord > > operation. He came out of a cast on March 31 after his heel cord > > procedure and we do not have any brace. I learned yesterday from > the > > therapist that he only has 15 degrees of rotation (I have no idea > what > > that means) and that his entire leg is turning. I feel so in the > > dark. I have emailed Dr. Ponseti for advice. > > I read your emails and posts and you are all so informed. I read > the > > other posts and I am very concerned for each child and parent but I > > can not reply because I have not experienced any of the things > > discussed. > > I hope that soon, I too will be able to offer someone support! > > > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 Hi , Congrats on finding Dr. Ponseti. You will feel it was a blessing that you did after you spend time with him, and see the miracles he can work. I am a teacher as well, and was just curious if you have any sick days banked? Perhaps you could interview for a long-term sub to finish up your school year (using your sick days) so you could make the trip earlier? I know that's a big thing to manage and get together, but it would definitely be worth it to get your treatment started as soon as possible. Of course, I'm in Michigan so things such as long-term leave are probably handled much differently than where you are in GA. I wish you luck! Your little one will be in good hands with Dr. Ponseti. We're going to Iowa City in June for a checkup (after school's out...both my husband and I are teachers). Perhaps our paths will cross! (we stay at the Mc House) Take care! Holly Zachary 7/27/02 Unilateral Right Clubfoot (moderate) Treated By Dr. Ponseti at 6 days old > I have decided that we have to go see Dr. Ponseti. I am a teacher so > I cannot go until the end of May. This means will be ten > months old before treatment begins. I am concerned about his reaction > to the treatment. I would be interested in other adjustments made by > older infants. If Sanni and Veeti read this I would love to hear how > Veeti handled the more aggressive casting and the DBB at 9.5 months. > My son is very strong willed and I am concerned that I will not be > strong enough to handle his pain. > I will be going alone with steven (I am from Ga and will be flying in) > and I am worried about his reaction to the castings. > > We have discovered that s previous treatment was very non > aggressive. He was casted for the first eight weeks in a fiberglass > cast with a small amount of rotation. He then had no casts or brace > but we used reverse last shoes. On 2/21 we had the heel cord > operation. He came out of a cast on March 31 after his heel cord > procedure and we do not have any brace. I learned yesterday from the > therapist that he only has 15 degrees of rotation (I have no idea what > that means) and that his entire leg is turning. I feel so in the > dark. I have emailed Dr. Ponseti for advice. > I read your emails and posts and you are all so informed. I read the > other posts and I am very concerned for each child and parent but I > can not reply because I have not experienced any of the things > discussed. > I hope that soon, I too will be able to offer someone support! > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 Hi , Congrats on finding Dr. Ponseti. You will feel it was a blessing that you did after you spend time with him, and see the miracles he can work. I am a teacher as well, and was just curious if you have any sick days banked? Perhaps you could interview for a long-term sub to finish up your school year (using your sick days) so you could make the trip earlier? I know that's a big thing to manage and get together, but it would definitely be worth it to get your treatment started as soon as possible. Of course, I'm in Michigan so things such as long-term leave are probably handled much differently than where you are in GA. I wish you luck! Your little one will be in good hands with Dr. Ponseti. We're going to Iowa City in June for a checkup (after school's out...both my husband and I are teachers). Perhaps our paths will cross! (we stay at the Mc House) Take care! Holly Zachary 7/27/02 Unilateral Right Clubfoot (moderate) Treated By Dr. Ponseti at 6 days old > I have decided that we have to go see Dr. Ponseti. I am a teacher so > I cannot go until the end of May. This means will be ten > months old before treatment begins. I am concerned about his reaction > to the treatment. I would be interested in other adjustments made by > older infants. If Sanni and Veeti read this I would love to hear how > Veeti handled the more aggressive casting and the DBB at 9.5 months. > My son is very strong willed and I am concerned that I will not be > strong enough to handle his pain. > I will be going alone with steven (I am from Ga and will be flying in) > and I am worried about his reaction to the castings. > > We have discovered that s previous treatment was very non > aggressive. He was casted for the first eight weeks in a fiberglass > cast with a small amount of rotation. He then had no casts or brace > but we used reverse last shoes. On 2/21 we had the heel cord > operation. He came out of a cast on March 31 after his heel cord > procedure and we do not have any brace. I learned yesterday from the > therapist that he only has 15 degrees of rotation (I have no idea what > that means) and that his entire leg is turning. I feel so in the > dark. I have emailed Dr. Ponseti for advice. > I read your emails and posts and you are all so informed. I read the > other posts and I am very concerned for each child and parent but I > can not reply because I have not experienced any of the things > discussed. > I hope that soon, I too will be able to offer someone support! > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 Hi , Congrats on finding Dr. Ponseti. You will feel it was a blessing that you did after you spend time with him, and see the miracles he can work. I am a teacher as well, and was just curious if you have any sick days banked? Perhaps you could interview for a long-term sub to finish up your school year (using your sick days) so you could make the trip earlier? I know that's a big thing to manage and get together, but it would definitely be worth it to get your treatment started as soon as possible. Of course, I'm in Michigan so things such as long-term leave are probably handled much differently than where you are in GA. I wish you luck! Your little one will be in good hands with Dr. Ponseti. We're going to Iowa City in June for a checkup (after school's out...both my husband and I are teachers). Perhaps our paths will cross! (we stay at the Mc House) Take care! Holly Zachary 7/27/02 Unilateral Right Clubfoot (moderate) Treated By Dr. Ponseti at 6 days old > I have decided that we have to go see Dr. Ponseti. I am a teacher so > I cannot go until the end of May. This means will be ten > months old before treatment begins. I am concerned about his reaction > to the treatment. I would be interested in other adjustments made by > older infants. If Sanni and Veeti read this I would love to hear how > Veeti handled the more aggressive casting and the DBB at 9.5 months. > My son is very strong willed and I am concerned that I will not be > strong enough to handle his pain. > I will be going alone with steven (I am from Ga and will be flying in) > and I am worried about his reaction to the castings. > > We have discovered that s previous treatment was very non > aggressive. He was casted for the first eight weeks in a fiberglass > cast with a small amount of rotation. He then had no casts or brace > but we used reverse last shoes. On 2/21 we had the heel cord > operation. He came out of a cast on March 31 after his heel cord > procedure and we do not have any brace. I learned yesterday from the > therapist that he only has 15 degrees of rotation (I have no idea what > that means) and that his entire leg is turning. I feel so in the > dark. I have emailed Dr. Ponseti for advice. > I read your emails and posts and you are all so informed. I read the > other posts and I am very concerned for each child and parent but I > can not reply because I have not experienced any of the things > discussed. > I hope that soon, I too will be able to offer someone support! > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 , Your story sounds very similar to mine. Only I waited until Dylan was 14 months old and his old ortho was talking about breaking bones and putting in pins in his foot. That's when we went to see Dr. Herzenberg. Dylan wasn't in any pain during the castings, but because he hated being held still for anything it took several of us to get him still and he screamed the whole time. Again - not because of pain, but because he was being made to stay still and just didn't want to be fussed with. He was always fine immediately afterwards. He would crawl around in his casts and even stood up in them. They didn't bother him at all. Unfortunately because we waited so long to seek other treatment Dylan did end up needed a posterior release. Dr. H tried to do just the tenotomy, but it had no effect whatsoever on Dylans foot. He didn't have to go so far in as to have the posterior medial release, but did have the posterior release. I just know in my heart that had we switched to Dr. Herzenberg when I initially had doubts about our old ortho at about 7 or 8 months we could have avoided this surgery altogether. But the important thing now is that Dylans foot is corrected. My advice is to see Dr. Ponseti as soon as possible while your little ones foot is still flexible. Theresa > I have decided that we have to go see Dr. Ponseti. I am a teacher so > I cannot go until the end of May. This means will be ten > months old before treatment begins. I am concerned about his reaction > to the treatment. I would be interested in other adjustments made by > older infants. If Sanni and Veeti read this I would love to hear how > Veeti handled the more aggressive casting and the DBB at 9.5 months. > My son is very strong willed and I am concerned that I will not be > strong enough to handle his pain. > I will be going alone with steven (I am from Ga and will be flying in) > and I am worried about his reaction to the castings. > > We have discovered that s previous treatment was very non > aggressive. He was casted for the first eight weeks in a fiberglass > cast with a small amount of rotation. He then had no casts or brace > but we used reverse last shoes. On 2/21 we had the heel cord > operation. He came out of a cast on March 31 after his heel cord > procedure and we do not have any brace. I learned yesterday from the > therapist that he only has 15 degrees of rotation (I have no idea what > that means) and that his entire leg is turning. I feel so in the > dark. I have emailed Dr. Ponseti for advice. > I read your emails and posts and you are all so informed. I read the > other posts and I am very concerned for each child and parent but I > can not reply because I have not experienced any of the things > discussed. > I hope that soon, I too will be able to offer someone support! > > & (7-11-02) Quote Link to comment Share on other sites More sharing options...
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