Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi all Thanks Topper, , Kats3boys and others for responding to my concerns. Unless you have experienced this awful eye disease, you can't imagine how uncomfortable it really is - every day it is the same. It never seems to lessen enough to not be a part of my daily life - sore, dry, unfocused eyes. I also have that typical " staring " appearance. My doctor has measured my eyes and continues to every time I see him. I have also seen a rheumatologist - had inflammatory tests done at my family dr. and shows " connective tissue disorder " . The rheum dr. examined me, but didn't offer anything for my condition unfortunately. I see him in a few weeks again - but.....not really expecting any changes. I will look into the graves support group, as this condition is a result of the treatment for graves - you mentioned Topper that having the radioiodine may have helped with my hyper state, but it certainly caused the " antibodies " to go elsewhere - my eyes. Good point! Also I am now considered " hypo " because my thyroid does not work at all - so I will take levothyroxine for the rest of my life. Thanks again for everyone's input - I will try the graves support site and see if there are others who may be going through the same thing as me in terms of the eye disease. But will continue to try to get info from this site as well. All the best to everyone. Barb Quote Link to comment Share on other sites More sharing options...
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