Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 I see that has already posted an answer to your email.Please contact Ricky for more information on Partners and myself for more information on fundraising.ldbria@...I will say that Partners was born out of necessity and that much has already been accomplished.We have already had two very successful conferences to educate our members on their disease. We have the website, newsletters and our "Living with PSC" brochure to help us all.Our new motto born on the support group is " together in the fight , whatever it takes".The support group helps all of us to share information and advice to make living with PSC easier.We agree with you that research and medical advancement for better treatment is key and our first steps are being taken in this direction.Through the dedication of so many people here, we have made an incredible start and we will make a difference.This group has already made a difference for me personally.I feel that Partners has already changed our attitude and outlook and has changed how we are treating my son.I am excited by what is happening now and by what will be done in the near future.I hope to hear from you and I wish you and your daughter the best.I would be happy to speak with you about fundraising.Take care,Lee mother of Bill 23 UC/PSC 06/04 Jpouch 06/05Can I get a breakdown of where the donations to PSC Partners Seeking a Cure go to. Since my daughter was just recently diagnosed I have just started reading, reading and reading more about the disease. I have come to one definite conclusion: Research Development and Medical Avancement is key in helping all that suffer from this disease. Our family has been very quiet, keeping it to ourselves about our daughter having the disease but I think it is time. I would like to start a donation drive to all of our family, friends, neighbors and local businesses and just want to be prepared for any questions that come my way. Thanks for your help. _. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 I'm sorry to hear about your daughter's diagnosis, but thank you for starting a donation drive. Feel free to write to me offline at pscpartners@... or at thesafers@.... I'd be glad to provide you with any information that you would like about the foundation. Ricky PSC 2003 Donations Can I get a breakdown of where the donations to PSC Partners Seeking a Cure go to. Quote Link to comment Share on other sites More sharing options...
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