Re: New to group, please help.

[Guest guest]

I agree with , If I were you I would find a new Dr! Many peds

pass off parents with kids with Plagio and you, as the parent, have

to push to get a referral and/or a prescription for a helmet/band.

Do you need a referral for your Insurance of can you self refer to a

ped. neurosurgeon or a craniofacial specialist? We could self refer,

so it wasn't an issue for my Daughter even though the ped wasn't as

concerned as I was. It sounds as if your ped is not only passing you

off, but also has no bedside manner, saying he is " funny looking " !

That's appauling!

I'm sorry you are having such trouble. Hopefully you can find a new

Dr and get the referral you need to go to a qualified Orthotist and

get your Son banded.

Good luck and keep us updated!

Jen

(10 mo), tort resolved, Hanger Band GRAD

(3 years)

> I just joined this group in order to get some help and advise.

> Through research and comments from strangers, I've self diagnosed

my 7

> month old son with plagio. My son's head is completely flat in the

> back and has the classic trapezoid shape when you look down at the

top

> of his head. He also has a protruding forehead. My pediatrician

is

> of no help to me at all and basically has blown me off whenever

> I bring it up at my son's well visits. My son's plagio is severe

> enough that people do double takes when they see his side profile.

> When I told my pediatrician about that, his comment was that he was

> pretty funny looking. I almost burst into tears right in his

office.

> I have no idea where to go or what do do for help and as I write

> this, I am extremely upset. I guess I need to know where i should

> start. My pediatrician will not refer me to a specialist and

insists

> that it will self correct.

> I would appreciate any advise/comments that would help me go in the

> right direction with this.

>

> Thank you,

> Manon

[Guest guest]

Yeh, I'm going to switch peds asap. I'm asking

friends for recommendations. He's made very

condescending comments in the past and I past it off

because I felt he was giving my son good care. Now I

just think he's an a$$ and can't ignore it any longer.

Unfortunately, I cannot self refer so I have to get a

doctor to refer me.

I so much appreciate everyone's help. I had no idea

where to begin and now I feel SO much better.

:-)

Manon

--- Jen <ronandjenvelez@...> wrote:

> I agree with , If I were you I would find a new

> Dr! Many peds

> pass off parents with kids with Plagio and you, as

> the parent, have

> to push to get a referral and/or a prescription for

> a helmet/band.

> Do you need a referral for your Insurance of can you

> self refer to a

> ped. neurosurgeon or a craniofacial specialist? We

> could self refer,

> so it wasn't an issue for my Daughter even though

> the ped wasn't as

> concerned as I was. It sounds as if your ped is not

> only passing you

> off, but also has no bedside manner, saying he is

> " funny looking " !

> That's appauling!

>

> I'm sorry you are having such trouble. Hopefully

> you can find a new

> Dr and get the referral you need to go to a

> qualified Orthotist and

> get your Son banded.

>

> Good luck and keep us updated!

>

> Jen

> (10 mo), tort resolved, Hanger Band GRAD

> (3 years)

>

>

>

> > I just joined this group in order to get some help

> and advise.

> > Through research and comments from strangers, I've

> self diagnosed

> my 7

> > month old son with plagio. My son's head is

> completely flat in the

> > back and has the classic trapezoid shape when you

> look down at the

> top

> > of his head. He also has a protruding forehead.

> My pediatrician

> is

> > of no help to me at all and basically has blown me

> off whenever

> > I bring it up at my son's well visits. My son's

> plagio is severe

> > enough that people do double takes when they see

> his side profile.

> > When I told my pediatrician about that, his

> comment was that he was

> > pretty funny looking. I almost burst into tears

> right in his

> office.

> > I have no idea where to go or what do do for help

> and as I write

> > this, I am extremely upset. I guess I need to

> know where i should

> > start. My pediatrician will not refer me to a

> specialist and

> insists

> > that it will self correct.

> > I would appreciate any advise/comments that would

> help me go in the

> > right direction with this.

> >

> > Thank you,

> > Manon

>

>

>

>

>

>

__________________________________

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[Guest guest]

OMG! How insensitive of your ped! By chance do you have PPO

insurance because then you don't need a referral to see a

specialist. I see that others have already given you other helpful

advice. What area do you live? Maybe another member lives near you

and can offer advice.

Natasha

Atlanta, GA

> I just joined this group in order to get some help and advise.

> Through research and comments from strangers, I've self diagnosed

my 7

> month old son with plagio. My son's head is completely flat in the

> back and has the classic trapezoid shape when you look down at the

top

> of his head. He also has a protruding forehead. My pediatrician

is

> of no help to me at all and basically has blown me off whenever

> I bring it up at my son's well visits. My son's plagio is severe

> enough that people do double takes when they see his side profile.

> When I told my pediatrician about that, his comment was that he was

> pretty funny looking. I almost burst into tears right in his

office.

> I have no idea where to go or what do do for help and as I write

> this, I am extremely upset. I guess I need to know where i should

> start. My pediatrician will not refer me to a specialist and

insists

> that it will self correct.

> I would appreciate any advise/comments that would help me go in the

> right direction with this.

>

> Thank you,

> Manon

[Guest guest]

OMG! How insensitive of your ped! By chance do you have PPO

insurance because then you don't need a referral to see a

specialist. I see that others have already given you other helpful

advice. What area do you live? Maybe another member lives near you

and can offer advice.

Natasha

Atlanta, GA

> I just joined this group in order to get some help and advise.

> Through research and comments from strangers, I've self diagnosed

my 7

> month old son with plagio. My son's head is completely flat in the

> back and has the classic trapezoid shape when you look down at the

top

> of his head. He also has a protruding forehead. My pediatrician

is

> of no help to me at all and basically has blown me off whenever

> I bring it up at my son's well visits. My son's plagio is severe

> enough that people do double takes when they see his side profile.

> When I told my pediatrician about that, his comment was that he was

> pretty funny looking. I almost burst into tears right in his

office.

> I have no idea where to go or what do do for help and as I write

> this, I am extremely upset. I guess I need to know where i should

> start. My pediatrician will not refer me to a specialist and

insists

> that it will self correct.

> I would appreciate any advise/comments that would help me go in the

> right direction with this.

>

> Thank you,

> Manon

[Guest guest]

I live in the Baltimore area. Yes, my ped is indeed an

idiot. I do not have PPO insurance so it'll take a

while to go through the channels but it'll be worth

it. I wish i had this group months ago when I

realized my son had a problem. I could have tried the

whole repo thing first. I'm just happy to have this

group now..... :-)

Manon

--- Natasha Gubash <ngubash@...> wrote:

> OMG! How insensitive of your ped! By chance do you

> have PPO

> insurance because then you don't need a referral to

> see a

> specialist. I see that others have already given

> you other helpful

> advice. What area do you live? Maybe another

> member lives near you

> and can offer advice.

> Natasha

> Atlanta, GA

>

> > I just joined this group in order to get some help

> and advise.

> > Through research and comments from strangers, I've

> self diagnosed

> my 7

> > month old son with plagio. My son's head is

> completely flat in the

> > back and has the classic trapezoid shape when you

> look down at the

> top

> > of his head. He also has a protruding forehead.

> My pediatrician

> is

> > of no help to me at all and basically has blown me

> off whenever

> > I bring it up at my son's well visits. My son's

> plagio is severe

> > enough that people do double takes when they see

> his side profile.

> > When I told my pediatrician about that, his

> comment was that he was

> > pretty funny looking. I almost burst into tears

> right in his

> office.

> > I have no idea where to go or what do do for help

> and as I write

> > this, I am extremely upset. I guess I need to

> know where i should

> > start. My pediatrician will not refer me to a

> specialist and

> insists

> > that it will self correct.

> > I would appreciate any advise/comments that would

> help me go in the

> > right direction with this.

> >

> > Thank you,

> > Manon

>

>

>

>

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[Guest guest]

I live in the Baltimore area. Yes, my ped is indeed an

idiot. I do not have PPO insurance so it'll take a

while to go through the channels but it'll be worth

it. I wish i had this group months ago when I

realized my son had a problem. I could have tried the

whole repo thing first. I'm just happy to have this

group now..... :-)

Manon

--- Natasha Gubash <ngubash@...> wrote:

> OMG! How insensitive of your ped! By chance do you

> have PPO

> insurance because then you don't need a referral to

> see a

> specialist. I see that others have already given

> you other helpful

> advice. What area do you live? Maybe another

> member lives near you

> and can offer advice.

> Natasha

> Atlanta, GA

>

> > I just joined this group in order to get some help

> and advise.

> > Through research and comments from strangers, I've

> self diagnosed

> my 7

> > month old son with plagio. My son's head is

> completely flat in the

> > back and has the classic trapezoid shape when you

> look down at the

> top

> > of his head. He also has a protruding forehead.

> My pediatrician

> is

> > of no help to me at all and basically has blown me

> off whenever

> > I bring it up at my son's well visits. My son's

> plagio is severe

> > enough that people do double takes when they see

> his side profile.

> > When I told my pediatrician about that, his

> comment was that he was

> > pretty funny looking. I almost burst into tears

> right in his

> office.

> > I have no idea where to go or what do do for help

> and as I write

> > this, I am extremely upset. I guess I need to

> know where i should

> > start. My pediatrician will not refer me to a

> specialist and

> insists

> > that it will self correct.

> > I would appreciate any advise/comments that would

> help me go in the

> > right direction with this.

> >

> > Thank you,

> > Manon

>

>

>

>

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[Guest guest]

Hi Manon,

I think you're best bet would be to find a new pediatrician. You're

paying your ped to provide you w/a service, you're obviously not

happy with the service he is providing you. Where are you located?

Maybe someone here can direct you to a plagio educated pediatrician.

> I just joined this group in order to get some help and advise.

> Through research and comments from strangers, I've self diagnosed

my 7

> month old son with plagio. My son's head is completely flat in the

> back and has the classic trapezoid shape when you look down at the

top

> of his head. He also has a protruding forehead. My pediatrician

is

> of no help to me at all and basically has blown me off whenever

> I bring it up at my son's well visits. My son's plagio is severe

> enough that people do double takes when they see his side profile.

> When I told my pediatrician about that, his comment was that he was

> pretty funny looking. I almost burst into tears right in his

office.

> I have no idea where to go or what do do for help and as I write

> this, I am extremely upset. I guess I need to know where i should

> start. My pediatrician will not refer me to a specialist and

insists

> that it will self correct.

> I would appreciate any advise/comments that would help me go in the

> right direction with this.

>

> Thank you,

> Manon

[Guest guest]

Hi Manon,

That's great that you got an appt at CT. What did you decide to do

about trying to get a prescription? Are you going to try your ped

or find another one? Let us know how everythign goes.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> > > I just joined this group in order to get some help

> > > and advise.

> > > Through research and comments from strangers, I've

> > > self diagnosed my 7

> > > month old son with plagio. My son's head is

> > > completely flat in the

> > > back and has the classic trapezoid shape when you

> > > look down at the top

> > > of his head. He also has a protruding forehead.

> > > My pediatrician is

> > > of no help to me at all and basically has blown me

> > > off whenever

> > > I bring it up at my son's well visits. My son's

> > > plagio is severe

> > > enough that people do double takes when they see

> > his

> > > side profile.

> > > When I told my pediatrician about that, his

> > comment

> > > was that he was

> > > pretty funny looking. I almost burst into tears

> > > right in his office.

> > > I have no idea where to go or what do do for help

> > > and as I write

> > > this, I am extremely upset. I guess I need to

> > know

> > > where i should

> > > start. My pediatrician will not refer me to a

> > > specialist and insists

> > > that it will self correct.

> > > I would appreciate any advise/comments that would

> > > help me go in the

> > > right direction with this.

> > >

> > > Thank you,

> > > Manon

> > >

> > >

> > >

> > >

> > >

> > > For more plagio info, go to

> > > www.plagiocephaly.org/support

> > >

[Guest guest]

Hi Manon,

That's great that you got an appt at CT. What did you decide to do

about trying to get a prescription? Are you going to try your ped

or find another one? Let us know how everythign goes.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> > > I just joined this group in order to get some help

> > > and advise.

> > > Through research and comments from strangers, I've

> > > self diagnosed my 7

> > > month old son with plagio. My son's head is

> > > completely flat in the

> > > back and has the classic trapezoid shape when you

> > > look down at the top

> > > of his head. He also has a protruding forehead.

> > > My pediatrician is

> > > of no help to me at all and basically has blown me

> > > off whenever

> > > I bring it up at my son's well visits. My son's

> > > plagio is severe

> > > enough that people do double takes when they see

> > his

> > > side profile.

> > > When I told my pediatrician about that, his

> > comment

> > > was that he was

> > > pretty funny looking. I almost burst into tears

> > > right in his office.

> > > I have no idea where to go or what do do for help

> > > and as I write

> > > this, I am extremely upset. I guess I need to

> > know

> > > where i should

> > > start. My pediatrician will not refer me to a

> > > specialist and insists

> > > that it will self correct.

> > > I would appreciate any advise/comments that would

> > > help me go in the

> > > right direction with this.

> > >

> > > Thank you,

> > > Manon

> > >

> > >

> > >

> > >

> > >

> > > For more plagio info, go to

> > > www.plagiocephaly.org/support

> > >