Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Wow Georga. I'm struck by how many of us were brushed off or treated badly by the so-called experts. We should write a book. Put all of our stories together. We could call it " The Autism Experience " or something like that. And it would be required reading for all health care students and professionals. (((Georga))) Tuna ===== You can learn many things from children. How much patience you have, for instance. - lin P. ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 You can add mine too-- was dx when he was 2. When he was 4 he was dxed with siezure disorder. Then at 6 1/2 he was spoted with scoliosis. We had a ped doctor here in the city that told me that was not autistic and he does not have seizure disorder. So I question his judgement and asked him if he was telling me that Sick Kids Hospital in Toronto was wrong about everything. Then I told him to shove his practice up his ass and I would be reporting him to the medical association. Which I did but like they said it would be his word against mine and nothing would come of it. So I did nothing because I could never afford a lawyer to fight it. Lori -- Re: long story - talking to someone about Autism you can add my story - my family doctor told me " you are paranoid, you read too many books. you'll ruin your kid's life looking for something to be wrong with him. " that was at rowan's 18 month check up. six months later we started actively seeking a diagnosis. turns out i wasn't so paranoid afterall. if only that were the case :'o( michelle mg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 I agree!! We should send a copy to each and every " professional " that brushed us all off with a note remember us!! I have been thinking the same thing reading this thread, as far as how similar peoples stories are. I just can't believe it. I saw our GP last week and she said to give him a label would be disastrous and I said not too if it is warranted would not get him what he needs either. So what do you do??? Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 I agree!! We should send a copy to each and every " professional " that brushed us all off with a note remember us!! I have been thinking the same thing reading this thread, as far as how similar peoples stories are. I just can't believe it. I saw our GP last week and she said to give him a label would be disastrous and I said not too if it is warranted would not get him what he needs either. So what do you do??? Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 you can add my story - my family doctor told me " you are paranoid, you read too many books. you'll ruin your kid's life looking for something to be wrong with him. " that was at rowan's 18 month check up. six months later we started actively seeking a diagnosis. turns out i wasn't so paranoid afterall. if only that were the case :'o( michelle mg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 you can add my story - my family doctor told me " you are paranoid, you read too many books. you'll ruin your kid's life looking for something to be wrong with him. " that was at rowan's 18 month check up. six months later we started actively seeking a diagnosis. turns out i wasn't so paranoid afterall. if only that were the case :'o( michelle mg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 In a message dated 1/5/03 10:19:12 PM Eastern Standard Time, michellemg69@... writes: > you'll ruin your kid's life looking for something to be wrong with him. " Yea we wanted all the pity that comes with the diagnois, yea right. (insert sarcasm here) I was surprised after the dx by how long it took my Mom and my husband to come to terms with it. My Mom was and still is the worst. Every decision is second guessed and talked down. Why are you doing this? Do you really need all these people? Oh lets go shopping and then we'll " do a little ABA, " - or of course my personal favorite - " Do you really need a therapist? You have ME to talk to. " Yea I wanted to dx just for all the support and understanding. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 In a message dated 1/5/03 10:19:12 PM Eastern Standard Time, michellemg69@... writes: > you'll ruin your kid's life looking for something to be wrong with him. " Yea we wanted all the pity that comes with the diagnois, yea right. (insert sarcasm here) I was surprised after the dx by how long it took my Mom and my husband to come to terms with it. My Mom was and still is the worst. Every decision is second guessed and talked down. Why are you doing this? Do you really need all these people? Oh lets go shopping and then we'll " do a little ABA, " - or of course my personal favorite - " Do you really need a therapist? You have ME to talk to. " Yea I wanted to dx just for all the support and understanding. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 In a message dated 1/5/03 10:19:12 PM Eastern Standard Time, michellemg69@... writes: > you'll ruin your kid's life looking for something to be wrong with him. " Yea we wanted all the pity that comes with the diagnois, yea right. (insert sarcasm here) I was surprised after the dx by how long it took my Mom and my husband to come to terms with it. My Mom was and still is the worst. Every decision is second guessed and talked down. Why are you doing this? Do you really need all these people? Oh lets go shopping and then we'll " do a little ABA, " - or of course my personal favorite - " Do you really need a therapist? You have ME to talk to. " Yea I wanted to dx just for all the support and understanding. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Hi Jen! I'd still go for the diagnosis. It would give you the answers of what you're dealing with, explain his behaviors, provide you with something definite to research to get your best options to help him, provide you with something concrete for family members to help them understand the things he does, and open the door for any future services he may need. But hey, that's what I'd do. :-) Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > I saw our GP last week and she said to give him a label would be > disastrous and I said not too if it is warranted would not get > him what he needs either. So what do you do??? Well, every situation is different, but in our case, without a dx would not be getting any special help at all, and THAT would be disastrous. He desperately needs it. I honestly cannot imagine what hell our life would be now if we hadn't had him dx'd. The self-injury, the sleep disturbances, the lack of ability to communicate...It's hard enough when we HAVE the label to make people understand what he needs. Without it we would be utterly lost. I do not at all mean to tell you what to do. Your child, and your life situation, is different from mine. All I can do is share my own experiences. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > I saw our GP last week and she said to give him a label would be > disastrous and I said not too if it is warranted would not get > him what he needs either. So what do you do??? Well, every situation is different, but in our case, without a dx would not be getting any special help at all, and THAT would be disastrous. He desperately needs it. I honestly cannot imagine what hell our life would be now if we hadn't had him dx'd. The self-injury, the sleep disturbances, the lack of ability to communicate...It's hard enough when we HAVE the label to make people understand what he needs. Without it we would be utterly lost. I do not at all mean to tell you what to do. Your child, and your life situation, is different from mine. All I can do is share my own experiences. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > I saw our GP last week and she said to give him a label would be > disastrous and I said not too if it is warranted would not get > him what he needs either. So what do you do??? Well, every situation is different, but in our case, without a dx would not be getting any special help at all, and THAT would be disastrous. He desperately needs it. I honestly cannot imagine what hell our life would be now if we hadn't had him dx'd. The self-injury, the sleep disturbances, the lack of ability to communicate...It's hard enough when we HAVE the label to make people understand what he needs. Without it we would be utterly lost. I do not at all mean to tell you what to do. Your child, and your life situation, is different from mine. All I can do is share my own experiences. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Re: long story - talking to someone about Autism > > > you'll ruin your kid's life looking for something to be wrong with him. " > > Yea we wanted all the pity that comes with the diagnois, yea right. (insert > sarcasm here) Hey, don't forget my personal favorite from my kids file; " We need to address mom's need to keep her son young and disabled " This from a school social worker!! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Re: long story - talking to someone about Autism > > > you'll ruin your kid's life looking for something to be wrong with him. " > > Yea we wanted all the pity that comes with the diagnois, yea right. (insert > sarcasm here) Hey, don't forget my personal favorite from my kids file; " We need to address mom's need to keep her son young and disabled " This from a school social worker!! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 In a message dated 1/6/03 3:03:32 PM Eastern Standard Time, smgaska@... writes: > " We need to address mom's need to keep her son young and disabled " so Sue how did they address YOUR problem Did you tell them to get their heads out of their ______? Grin ~~~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 In a message dated 1/6/03 3:03:32 PM Eastern Standard Time, smgaska@... writes: > " We need to address mom's need to keep her son young and disabled " so Sue how did they address YOUR problem Did you tell them to get their heads out of their ______? Grin ~~~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 In a message dated 1/6/03 3:03:32 PM Eastern Standard Time, smgaska@... writes: > " We need to address mom's need to keep her son young and disabled " so Sue how did they address YOUR problem Did you tell them to get their heads out of their ______? Grin ~~~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > > > you'll ruin your kid's life looking for something to be wrong with him. " > > > > Yea we wanted all the pity that comes with the diagnois, yea right. > (insert > > sarcasm here) > > Hey, don't forget my personal favorite from my kids file; > " We need to address mom's need to keep her son young and disabled " > > This from a school social worker!! > > Sue ACKKKKK!!!!!! Sissi who just fainted dead away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > > > you'll ruin your kid's life looking for something to be wrong with him. " > > > > Yea we wanted all the pity that comes with the diagnois, yea right. > (insert > > sarcasm here) > > Hey, don't forget my personal favorite from my kids file; > " We need to address mom's need to keep her son young and disabled " > > This from a school social worker!! > > Sue ACKKKKK!!!!!! Sissi who just fainted dead away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > > > you'll ruin your kid's life looking for something to be wrong with him. " > > > > Yea we wanted all the pity that comes with the diagnois, yea right. > (insert > > sarcasm here) > > Hey, don't forget my personal favorite from my kids file; > " We need to address mom's need to keep her son young and disabled " > > This from a school social worker!! > > Sue ACKKKKK!!!!!! Sissi who just fainted dead away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 <sigh> Boone was diagnosed during a two hour interview with no testing whatsoever. I wrote a story about that too. http://home.isoa.net/~nitetrax/evaluation.htm Sissi -- who really thinks it's time for a humorous " Putter Tale " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 <sigh> Boone was diagnosed during a two hour interview with no testing whatsoever. I wrote a story about that too. http://home.isoa.net/~nitetrax/evaluation.htm Sissi -- who really thinks it's time for a humorous " Putter Tale " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 <sigh> Boone was diagnosed during a two hour interview with no testing whatsoever. I wrote a story about that too. http://home.isoa.net/~nitetrax/evaluation.htm Sissi -- who really thinks it's time for a humorous " Putter Tale " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Sissi, That one made me cry. Getting the diagnosis has been the hardest part of all of this. Thank you for putting into words what I haven't been able to yet. Debbie Re: long story - talking to someone about Autism <sigh> Boone was diagnosed during a two hour interview with no testing whatsoever. I wrote a story about that too. http://home.isoa.net/~nitetrax/evaluation.htm Sissi -- who really thinks it's time for a humorous " Putter Tale " Quote Link to comment Share on other sites More sharing options...
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