Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi , I know how you feel.....I had my FNA on July 9th with a 7mm nodule suspicious for papillary. I have TT surgery scheduled for Sept. 10th. I am very nervous and angry, sad, scared.....all of it that I have to go through this. However...I am grateful that the little nodule was found due to a bad virus I had. It could have been years until it surfaced. They will take it out...and I will be cancer free......I am grateful for my life and all of the blessings ....around me. You are going to hear many different stories because everyone is different.....I understand that some of the pain you feel is due to the tube they put in you during surgery. I know that you are in the right place with this support group..Keep in mind again that you will have your own individual experience....and stay hopeful and know that you will fly right though it with a quick recovery!!! Take care, Los Angeles 7mm -papillary surgery - Sept. 10, 2002 Philbrick wrote: > Hello, > I found out last week my biopsy showed it was suspicious for > follicular neoplasm with hurthle cell change present. I am to meet > with a surgeon next week when he is back from vacation to have my > thyroid removed, (hopefully next week also) > I have been having thyroid problems that went undiagnosed for about > a year. > Is there anyone willing to tell me what you feel like right after > surgery, and maybe give me some words of encouragement. I am having > bouts of feeling very positive about the diagnosis, to having crying > jags, and feeling unsure of everything. > > Tomsrapunzel@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi , I know how you feel.....I had my FNA on July 9th with a 7mm nodule suspicious for papillary. I have TT surgery scheduled for Sept. 10th. I am very nervous and angry, sad, scared.....all of it that I have to go through this. However...I am grateful that the little nodule was found due to a bad virus I had. It could have been years until it surfaced. They will take it out...and I will be cancer free......I am grateful for my life and all of the blessings ....around me. You are going to hear many different stories because everyone is different.....I understand that some of the pain you feel is due to the tube they put in you during surgery. I know that you are in the right place with this support group..Keep in mind again that you will have your own individual experience....and stay hopeful and know that you will fly right though it with a quick recovery!!! Take care, Los Angeles 7mm -papillary surgery - Sept. 10, 2002 Philbrick wrote: > Hello, > I found out last week my biopsy showed it was suspicious for > follicular neoplasm with hurthle cell change present. I am to meet > with a surgeon next week when he is back from vacation to have my > thyroid removed, (hopefully next week also) > I have been having thyroid problems that went undiagnosed for about > a year. > Is there anyone willing to tell me what you feel like right after > surgery, and maybe give me some words of encouragement. I am having > bouts of feeling very positive about the diagnosis, to having crying > jags, and feeling unsure of everything. > > Tomsrapunzel@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi , I know how you feel.....I had my FNA on July 9th with a 7mm nodule suspicious for papillary. I have TT surgery scheduled for Sept. 10th. I am very nervous and angry, sad, scared.....all of it that I have to go through this. However...I am grateful that the little nodule was found due to a bad virus I had. It could have been years until it surfaced. They will take it out...and I will be cancer free......I am grateful for my life and all of the blessings ....around me. You are going to hear many different stories because everyone is different.....I understand that some of the pain you feel is due to the tube they put in you during surgery. I know that you are in the right place with this support group..Keep in mind again that you will have your own individual experience....and stay hopeful and know that you will fly right though it with a quick recovery!!! Take care, Los Angeles 7mm -papillary surgery - Sept. 10, 2002 Philbrick wrote: > Hello, > I found out last week my biopsy showed it was suspicious for > follicular neoplasm with hurthle cell change present. I am to meet > with a surgeon next week when he is back from vacation to have my > thyroid removed, (hopefully next week also) > I have been having thyroid problems that went undiagnosed for about > a year. > Is there anyone willing to tell me what you feel like right after > surgery, and maybe give me some words of encouragement. I am having > bouts of feeling very positive about the diagnosis, to having crying > jags, and feeling unsure of everything. > > Tomsrapunzel@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi , Welcome to the group. Hopefully, you will find a lot of information here and will be able to ease some of your fears and worries. Looking back, having thyca is a lot of work. It is a lot of bloodtests, scans, revovery and regulating. For myself, while certainly the most nerve-wracking, the surgery was the easiest part of my battle. To answer your question, after the surgery you will feel very sore. Your neck, chest and perhaps back will feel sore and stiff. Your throat will hurt from being intubated during surgery. You will feel groggy for a few days. You may feel dizzy and lightheaded when you try to do much at once. It may take a few days to get back in the swing. But... those days pass, quickly. Before you know it, you find yourself back in your life again. I live in Maine and had my surgery in NY. Eight days after my surgery, I made the 5 hour trip back to Maine, and about one week after that, I resumed my full time graduate work - which required me to teach middle schoolers all day and take courses in the evening. I can't say that what I did wasn't difficult. I weathered some bad days - through LID, RAI, hypocalcemia and the long battle to regulate it, being hypo for a long time while I waited for my TSH to lower. I suppose what I want to let you know is that thyca will change things in your life, but it doesn't have to stop things in your life. You can and will get through it. It will seem like a long, arduous journey. You may feel like it's never going to end. But little by little, day by day, you will find yourself one step closer to recovery and survivorship. Good Luck! Pattie ===== Dx Familial Pap Thyca, Hashimoto's Thyroiditis - 11/01 TT - 12/20/01 RAI 150 mCi - 2/12/02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi , Welcome to the group. Hopefully, you will find a lot of information here and will be able to ease some of your fears and worries. Looking back, having thyca is a lot of work. It is a lot of bloodtests, scans, revovery and regulating. For myself, while certainly the most nerve-wracking, the surgery was the easiest part of my battle. To answer your question, after the surgery you will feel very sore. Your neck, chest and perhaps back will feel sore and stiff. Your throat will hurt from being intubated during surgery. You will feel groggy for a few days. You may feel dizzy and lightheaded when you try to do much at once. It may take a few days to get back in the swing. But... those days pass, quickly. Before you know it, you find yourself back in your life again. I live in Maine and had my surgery in NY. Eight days after my surgery, I made the 5 hour trip back to Maine, and about one week after that, I resumed my full time graduate work - which required me to teach middle schoolers all day and take courses in the evening. I can't say that what I did wasn't difficult. I weathered some bad days - through LID, RAI, hypocalcemia and the long battle to regulate it, being hypo for a long time while I waited for my TSH to lower. I suppose what I want to let you know is that thyca will change things in your life, but it doesn't have to stop things in your life. You can and will get through it. It will seem like a long, arduous journey. You may feel like it's never going to end. But little by little, day by day, you will find yourself one step closer to recovery and survivorship. Good Luck! Pattie ===== Dx Familial Pap Thyca, Hashimoto's Thyroiditis - 11/01 TT - 12/20/01 RAI 150 mCi - 2/12/02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi , Welcome to the group. Hopefully, you will find a lot of information here and will be able to ease some of your fears and worries. Looking back, having thyca is a lot of work. It is a lot of bloodtests, scans, revovery and regulating. For myself, while certainly the most nerve-wracking, the surgery was the easiest part of my battle. To answer your question, after the surgery you will feel very sore. Your neck, chest and perhaps back will feel sore and stiff. Your throat will hurt from being intubated during surgery. You will feel groggy for a few days. You may feel dizzy and lightheaded when you try to do much at once. It may take a few days to get back in the swing. But... those days pass, quickly. Before you know it, you find yourself back in your life again. I live in Maine and had my surgery in NY. Eight days after my surgery, I made the 5 hour trip back to Maine, and about one week after that, I resumed my full time graduate work - which required me to teach middle schoolers all day and take courses in the evening. I can't say that what I did wasn't difficult. I weathered some bad days - through LID, RAI, hypocalcemia and the long battle to regulate it, being hypo for a long time while I waited for my TSH to lower. I suppose what I want to let you know is that thyca will change things in your life, but it doesn't have to stop things in your life. You can and will get through it. It will seem like a long, arduous journey. You may feel like it's never going to end. But little by little, day by day, you will find yourself one step closer to recovery and survivorship. Good Luck! Pattie ===== Dx Familial Pap Thyca, Hashimoto's Thyroiditis - 11/01 TT - 12/20/01 RAI 150 mCi - 2/12/02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi , I had my FNA on 7/1 and surgery on 7/9. For the experience I had after surgery you can check out my first posting # 18136 it kind of explains what I went through after my hospital stay and when I first came home. I am now getting ready to go on the LID on Monday and then have my RAI on Sept. 19th. I know exactly how you are feeling with your moods and emotions. I was diagnosed almost two months ago and I still feel the same way. It isn't as constant just every now and again you think " I have cancer, how can this be " I'm not going to say that will go away...because I know it won't but you just need to have faith, pray and everything will work out. My best advice is learn all that you can that way you won't be surprised by anything!! All the best to you! --- Philbrick wrote: > Hello, > I found out last week my biopsy showed it was suspicious for > follicular neoplasm with hurthle cell change present. I am to meet > with a surgeon next week when he is back from vacation to have my > thyroid removed, (hopefully next week also) > I have been having thyroid problems that went undiagnosed for about > a year. > Is there anyone willing to tell me what you feel like right after > surgery, and maybe give me some words of encouragement. I am having > bouts of feeling very positive about the diagnosis, to having crying > jags, and feeling unsure of everything. > > Tomsrapunzel@... ===== Keri :-) 29 in Seattle 5/02 ultrasound 7/1/02 FNA-Pap Carcinoma 7/9/02 TT 9/1/02 going off meds and onto LID RAI scheduled for 9/19/02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi, - and welcome to the group no one really wants to be part of :-) As others have said YMMV is the norm in here. Some folks have felt awful after surgery. I was fortunate - felt pretty good (especially compared to the hysterectomy I'd had 5 weeks earlier) - had a slightly sore throat and some asthma difficulties because of the intibation tube. I had no problems with my parathyroids (they should do calcium blood tests every 6 hours just to check them). I was walking around not too many hours postop - didn't need anything stronger than a few xtra strength tylenol. I was there overnight, and they pulled out my drain the next morning. Ate cream of wheat for breakfast that morning, and then normal foods (stuck with softer stuff - mac & cheese, salmon, soup) for lunch - no real problems swallowing any more than a sore throat would cause. Your crying jags and feeling unsure are normal - getting a diagnosis of cancer, even " the good cancer " is scary! But you WILL get through it, and this group will be there to help you, guide you, answer questions, and understand your journey. Cheers, Alisa 2/15/2002: Nodule found during bad sore throat 2/27/2002: FNA - suspicious for pap 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule, Hashimotos discovered 5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI 6/6/2002: TBS - No sign of mets Currently - 140mcg Levoxyl Age: 48 Location: near Seattle WA Please feel free to email me privately anytime Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > Hello, > I found out last week my biopsy showed it was suspicious for follicular neoplasm with hurthle cell change present. I am to meet with a surgeon next week when he is back from vacation to have my thyroid removed, (hopefully next week also) > I have been having thyroid problems that went undiagnosed for about a year. > Is there anyone willing to tell me what you feel like right after surgery, and maybe give me some words of encouragement. I am having bouts of feeling very positive about the diagnosis, to having crying jags, and feeling unsure of everything. > > Tomsrapunzel@a... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi - I went through almost a year and a half with thyroid problems. I was really blessed that my surgeon, operating for a parathyroid tumor didn't like the looks of the node sticking out of my thyroid. What was supposed to be a 1 hour surgery turned into 5. That being said, all surgeries are not the same. Don't let anyone's experience scare you. Your throat will be sore. You may have tingling - the parathyroids get moved about, " run a rampage " has been said - they are thorough. Tell your nurse right away and make sure she takes you seriously. Be as prepared and learned as you can. And remember - it is your body, your life, you are the boss - she isn't they are not. They may let you go home fairly soon. Bring (or have someone bring) a buttoned shirt to put on - pulling a pullover over the neck is not a good idea. You will be ok. take good care - ~Sus > Hello, > I found out last week my biopsy showed it was suspicious for follicular neoplasm with hurthle cell change present. I am to meet with a surgeon next week when he is back from vacation to have my thyroid removed, (hopefully next week also) > I have been having thyroid problems that went undiagnosed for about a year. > Is there anyone willing to tell me what you feel like right after surgery, and maybe give me some words of encouragement. I am having bouts of feeling very positive about the diagnosis, to having crying jags, and feeling unsure of everything. > > Tomsrapunzel@a... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi - I went through almost a year and a half with thyroid problems. I was really blessed that my surgeon, operating for a parathyroid tumor didn't like the looks of the node sticking out of my thyroid. What was supposed to be a 1 hour surgery turned into 5. That being said, all surgeries are not the same. Don't let anyone's experience scare you. Your throat will be sore. You may have tingling - the parathyroids get moved about, " run a rampage " has been said - they are thorough. Tell your nurse right away and make sure she takes you seriously. Be as prepared and learned as you can. And remember - it is your body, your life, you are the boss - she isn't they are not. They may let you go home fairly soon. Bring (or have someone bring) a buttoned shirt to put on - pulling a pullover over the neck is not a good idea. You will be ok. take good care - ~Sus > Hello, > I found out last week my biopsy showed it was suspicious for follicular neoplasm with hurthle cell change present. I am to meet with a surgeon next week when he is back from vacation to have my thyroid removed, (hopefully next week also) > I have been having thyroid problems that went undiagnosed for about a year. > Is there anyone willing to tell me what you feel like right after surgery, and maybe give me some words of encouragement. I am having bouts of feeling very positive about the diagnosis, to having crying jags, and feeling unsure of everything. > > Tomsrapunzel@a... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi - I went through almost a year and a half with thyroid problems. I was really blessed that my surgeon, operating for a parathyroid tumor didn't like the looks of the node sticking out of my thyroid. What was supposed to be a 1 hour surgery turned into 5. That being said, all surgeries are not the same. Don't let anyone's experience scare you. Your throat will be sore. You may have tingling - the parathyroids get moved about, " run a rampage " has been said - they are thorough. Tell your nurse right away and make sure she takes you seriously. Be as prepared and learned as you can. And remember - it is your body, your life, you are the boss - she isn't they are not. They may let you go home fairly soon. Bring (or have someone bring) a buttoned shirt to put on - pulling a pullover over the neck is not a good idea. You will be ok. take good care - ~Sus > Hello, > I found out last week my biopsy showed it was suspicious for follicular neoplasm with hurthle cell change present. I am to meet with a surgeon next week when he is back from vacation to have my thyroid removed, (hopefully next week also) > I have been having thyroid problems that went undiagnosed for about a year. > Is there anyone willing to tell me what you feel like right after surgery, and maybe give me some words of encouragement. I am having bouts of feeling very positive about the diagnosis, to having crying jags, and feeling unsure of everything. > > Tomsrapunzel@a... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Welcome to the list Tracey, sorry you have to be here. With a TSH of 20, you will really not be that hypo, so should be able to function until then. Altho it is usual to have a much higher TSH before RAI, I had mine done when my TSH was 19. In the last week of hypodom it had only gone from 17 to 19. We decided I had a large remnant and there was no point waiting any longer. I had already been off all meds for about seven or eight weeks. My nuclear tech told me that I had excellent uptake. I attribute part of that to LID, for I was on it longer than the standard two weeks, waiting for the TSH to raise. Good luck, and take one day at a time. Helen, TT 2/02 RAI 4/02 Scan 5/02 HP Modesto, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Welcome to the list Tracey, sorry you have to be here. With a TSH of 20, you will really not be that hypo, so should be able to function until then. Altho it is usual to have a much higher TSH before RAI, I had mine done when my TSH was 19. In the last week of hypodom it had only gone from 17 to 19. We decided I had a large remnant and there was no point waiting any longer. I had already been off all meds for about seven or eight weeks. My nuclear tech told me that I had excellent uptake. I attribute part of that to LID, for I was on it longer than the standard two weeks, waiting for the TSH to raise. Good luck, and take one day at a time. Helen, TT 2/02 RAI 4/02 Scan 5/02 HP Modesto, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Hi, Tracey, and welcome to the group. > > Hi everyone! My name is Tracey and I have just been diagnosed with > thyroid cancer in the last week. I had my thyroid completely > removed last Monday due to a goiter caused from Hashimotos disease. > Needle biopsies prior to surgery indicated no cancer BUT there was a > small mass they found once it was removed. I've been told it is > papillary and about 2cm in size. I go to see the endocrinologist > tommorrow morning to discuss treatment. He has said that I'll have > to have radiation therapy when my TSH level is at 20. This is a bit lower than normal - usually they want it at 30 or above. > I know that until after radiation is over I can't take my synthroid. > How is this going to affect my daily life? I feel OK now but a > little tired. I have three kids 12, 3 and 1. My 3 yr old has Down > Syndrome. You can see why I'm a little worried about how I'm going > to manage day to day life. You CAN take cytomel (T3) for all but the last 2 weeks before the RAI (that's the Radioiodine treatment), which many people find helps keep their energy levels up a bit (some prefer not to use it). During the last 2 weeks, you will want to follow a LID (Low Iodine Diet). After the treatment, you will hopefully be isolated in the hospital a few days (if you're in the US, this differs from state to state), and then will need to take precautions for about another week. There are lots of posts we'll guide you to when you're at each of these steps. > Luckily I'm a stay at home mom so I don't have the stress of a job > too! Anyway, what should I ask the doctor tommorrow? I'm new to > this and want to ask the right questions. I would appreciate any > suggestions you may have. Thanks so much and have a great day! Here's a great list put together of things to ask: QUESTIONS FOR YOUR ENDO http://groups.yahoo.com/group/Thyca/message/18594 And, since you're starting this all now, start well by getting and keeping copies of all your medical reports, blood work, etc. I know I found that having knowledge was power, and that is important when dealing with cancer, where you feel powerless! Cheers, Alisa 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Currently - TSH 0.06, 140mcg Levoxyl Age: 48 Location: near Seattle WA Please feel free to email me privately anytime Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Hi, Tracey, and welcome to the group. > > Hi everyone! My name is Tracey and I have just been diagnosed with > thyroid cancer in the last week. I had my thyroid completely > removed last Monday due to a goiter caused from Hashimotos disease. > Needle biopsies prior to surgery indicated no cancer BUT there was a > small mass they found once it was removed. I've been told it is > papillary and about 2cm in size. I go to see the endocrinologist > tommorrow morning to discuss treatment. He has said that I'll have > to have radiation therapy when my TSH level is at 20. This is a bit lower than normal - usually they want it at 30 or above. > I know that until after radiation is over I can't take my synthroid. > How is this going to affect my daily life? I feel OK now but a > little tired. I have three kids 12, 3 and 1. My 3 yr old has Down > Syndrome. You can see why I'm a little worried about how I'm going > to manage day to day life. You CAN take cytomel (T3) for all but the last 2 weeks before the RAI (that's the Radioiodine treatment), which many people find helps keep their energy levels up a bit (some prefer not to use it). During the last 2 weeks, you will want to follow a LID (Low Iodine Diet). After the treatment, you will hopefully be isolated in the hospital a few days (if you're in the US, this differs from state to state), and then will need to take precautions for about another week. There are lots of posts we'll guide you to when you're at each of these steps. > Luckily I'm a stay at home mom so I don't have the stress of a job > too! Anyway, what should I ask the doctor tommorrow? I'm new to > this and want to ask the right questions. I would appreciate any > suggestions you may have. Thanks so much and have a great day! Here's a great list put together of things to ask: QUESTIONS FOR YOUR ENDO http://groups.yahoo.com/group/Thyca/message/18594 And, since you're starting this all now, start well by getting and keeping copies of all your medical reports, blood work, etc. I know I found that having knowledge was power, and that is important when dealing with cancer, where you feel powerless! Cheers, Alisa 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Currently - TSH 0.06, 140mcg Levoxyl Age: 48 Location: near Seattle WA Please feel free to email me privately anytime Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Hi, Tracey, and welcome to the group. > > Hi everyone! My name is Tracey and I have just been diagnosed with > thyroid cancer in the last week. I had my thyroid completely > removed last Monday due to a goiter caused from Hashimotos disease. > Needle biopsies prior to surgery indicated no cancer BUT there was a > small mass they found once it was removed. I've been told it is > papillary and about 2cm in size. I go to see the endocrinologist > tommorrow morning to discuss treatment. He has said that I'll have > to have radiation therapy when my TSH level is at 20. This is a bit lower than normal - usually they want it at 30 or above. > I know that until after radiation is over I can't take my synthroid. > How is this going to affect my daily life? I feel OK now but a > little tired. I have three kids 12, 3 and 1. My 3 yr old has Down > Syndrome. You can see why I'm a little worried about how I'm going > to manage day to day life. You CAN take cytomel (T3) for all but the last 2 weeks before the RAI (that's the Radioiodine treatment), which many people find helps keep their energy levels up a bit (some prefer not to use it). During the last 2 weeks, you will want to follow a LID (Low Iodine Diet). After the treatment, you will hopefully be isolated in the hospital a few days (if you're in the US, this differs from state to state), and then will need to take precautions for about another week. There are lots of posts we'll guide you to when you're at each of these steps. > Luckily I'm a stay at home mom so I don't have the stress of a job > too! Anyway, what should I ask the doctor tommorrow? I'm new to > this and want to ask the right questions. I would appreciate any > suggestions you may have. Thanks so much and have a great day! Here's a great list put together of things to ask: QUESTIONS FOR YOUR ENDO http://groups.yahoo.com/group/Thyca/message/18594 And, since you're starting this all now, start well by getting and keeping copies of all your medical reports, blood work, etc. I know I found that having knowledge was power, and that is important when dealing with cancer, where you feel powerless! Cheers, Alisa 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Currently - TSH 0.06, 140mcg Levoxyl Age: 48 Location: near Seattle WA Please feel free to email me privately anytime Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Hi all, I have jsut been diagnosed with DCIS minimally invasive, stage II or III. I have only seen the pathology reports, and go to the surgeon and the oncologist tomorrow. I have seen my films, and the calcifications are all over. Pretty dense and covering a lot of area. I have been doing research, and while the pathologist is recommending an excision biopsy (I had a stereotactic core)to determine if it is stage II or III. I am confused on this point, and am leaning towards mastectomy as I know it's at least stage II, and covers a large area. I really don't see why a biopsy is a neccessary step. I mean, once they are in there, why not get the stuff out? Am I way off base here? I just want to be aggressive and kick this thing. Jackie in MT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Hi Jackie...I know how you feel, I felt the same way, the first biopsy I had was in the doctor's office...wasn't enough information, so the next one was done in the OR..its just the process. Any surgery is risky so they need all the information they can get before the procedure, so just have faith. If you trust your doctor, trust that he/she knows what's best. If not, don't be afraid to get a second opinion. good luck and God Bless. audrey. audreybangtaildogrescue wrote: Hi all,I have jsut been diagnosed with DCIS minimally invasive, stage II or III. I have only seen the pathology reports, and go to the surgeon and the oncologist tomorrow. I have seen my films, and the calcifications are all over. Pretty dense and covering a lot of area. I have been doing research, and while the pathologist is recommending an excision biopsy (I had a stereotactic core)to determine if it is stage II or III. I am confused on this point, and am leaning towards mastectomy as I know it's at least stage II, and covers a large area. I really don't see why a biopsy is a neccessary step. I mean, once they are in there, why not get the stuff out? Am I way off base here? I just want to be aggressive and kick this thing.Jackie in MT Yahoo! DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Hi Jackie...I know how you feel, I felt the same way, the first biopsy I had was in the doctor's office...wasn't enough information, so the next one was done in the OR..its just the process. Any surgery is risky so they need all the information they can get before the procedure, so just have faith. If you trust your doctor, trust that he/she knows what's best. If not, don't be afraid to get a second opinion. good luck and God Bless. audrey. audreybangtaildogrescue wrote: Hi all,I have jsut been diagnosed with DCIS minimally invasive, stage II or III. I have only seen the pathology reports, and go to the surgeon and the oncologist tomorrow. I have seen my films, and the calcifications are all over. Pretty dense and covering a lot of area. I have been doing research, and while the pathologist is recommending an excision biopsy (I had a stereotactic core)to determine if it is stage II or III. I am confused on this point, and am leaning towards mastectomy as I know it's at least stage II, and covers a large area. I really don't see why a biopsy is a neccessary step. I mean, once they are in there, why not get the stuff out? Am I way off base here? I just want to be aggressive and kick this thing.Jackie in MT Yahoo! DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Jackie, Talk to your dr and tell him/her your feelings. See what their reasons are. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com newly diagnosed Hi all,I have jsut been diagnosed with DCIS minimally invasive, stage II or III. I have only seen the pathology reports, and go to the surgeon and the oncologist tomorrow. I have seen my films, and the calcifications are all over. Pretty dense and covering a lot of area. I have been doing research, and while the pathologist is recommending an excision biopsy (I had a stereotactic core)to determine if it is stage II or III. I am confused on this point, and am leaning towards mastectomy as I know it's at least stage II, and covers a large area. I really don't see why a biopsy is a neccessary step. I mean, once they are in there, why not get the stuff out? Am I way off base here? I just want to be aggressive and kick this thing.Jackie in MT Quote Link to comment Share on other sites More sharing options...
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