Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 I'm sorry to even ASK this question, but when I looked at this article it said longest record of survival of patients with PSC - is 15 years ... is that correct? I see this case the patient is alive much longer (29 years), but what is the norm/standard ... does anyone know? Although I was diagnosed last year, old records showed I had this back in 1998 and I'm guessing before then based on symptoms...this not something I normally like to talk about, but I guess I should know. Being a mother of an eight year old, I've had to fight to stay alive this long, and I want to keep fighting, but this is a little scarry. thanks barbara > > I thought this was interesting > http://www.pubmedcentral.gov/pagerender.fcgi?artid=498549 & pageindex=1 > > Lori > lucky mom blessed with wonderfully wild triplets > www.caringbridge.org/visit/braden > Quote Link to comment Share on other sites More sharing options...
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