Re: Second Band -- need some feedback please

[Guest guest]

I think that you have to just go with your own gut on this one.

Brachy is hard to completely resolve. Would you like to post some

recent pictures for us to see?

Natasha

>

> At our adjustment this morning I was informed by CT that Nicolas

is

> in the last month of his initial Doc Band. A second band was

> recommended. A few months ago my husband and I decided we did not

> want to pursue a second band even though we started with severe

> brachy. Today I had a change of heart and would probably like to

> pursue a second band. Hubby and I will discuss further (and I may

> have to convince him).

>

> Questions: How much improvement is good enough? Nicolas could

> round alot more. He's gotten to the point that the flatness isn't

> as glaringly obvious but no way could you say my son has a round

> head.

>

> Hubby says now that the skull has pushed out that further brain

> growth will head toward " normal. " I say Nico's head will never

> be " normal " unless the growth is directed.

>

> We can't afford a second band any more than we could afford our

> share of the first one. But that's a lousy reason to discontinue

> treatment.

>

> How has the second band been for others? Are you satisfied with

the

> choice to continue banding into a second?

>

> I'm sure I have other questions but that will get a discussion

> started. Thanks for the continued help via information and

feedback

> during these last few months, we really appreciate it.

>

> Lynette

> mom to Nicolas, 11 months

> plagio / brachy / resolved tort

> Murrieta, CA

[Guest guest]

Hi Lynette,

For some reason I can't see pictures tonight; keep getting error messages and

advertisements (no problem seeing those!) but if you want some help with Hubby,

I was

told that growth does NOT grow toward normal. Growth is proportional - it'll

grow the

same amount in all directions if you don't push the growth one way. Makes sense

when

you think about it.....

Now I'm getting scared that I spent all this money to get a DOC band for my

Brachy baby

and I'm flying down to San Diego for the adjustments and that it might not be

good

enough. How severe did he start out and where is he now? Are you happy with

the

progress and just want more? Or are you not even happy with the progress?

Argh!

-Monika

--- In Plagiocephaly , " noladaydreaming " <noladaydreaming@y...>

wrote:

>

> At our adjustment this morning I was informed by CT that Nicolas is

> in the last month of his initial Doc Band. A second band was

> recommended. A few months ago my husband and I decided we did not

> want to pursue a second band even though we started with severe

> brachy. Today I had a change of heart and would probably like to

> pursue a second band. Hubby and I will discuss further (and I may

> have to convince him).

>

> Questions: How much improvement is good enough? Nicolas could

> round alot more. He's gotten to the point that the flatness isn't

> as glaringly obvious but no way could you say my son has a round

> head.

>

> Hubby says now that the skull has pushed out that further brain

> growth will head toward " normal. " I say Nico's head will never

> be " normal " unless the growth is directed.

>

> We can't afford a second band any more than we could afford our

> share of the first one. But that's a lousy reason to discontinue

> treatment.

>

> How has the second band been for others? Are you satisfied with the

> choice to continue banding into a second?

>

> I'm sure I have other questions but that will get a discussion

> started. Thanks for the continued help via information and feedback

> during these last few months, we really appreciate it.

>

> Lynette

> mom to Nicolas, 11 months

> plagio / brachy / resolved tort

> Murrieta, CA

[Guest guest]

Hi Lynette,

For some reason I can't see pictures tonight; keep getting error messages and

advertisements (no problem seeing those!) but if you want some help with Hubby,

I was

told that growth does NOT grow toward normal. Growth is proportional - it'll

grow the

same amount in all directions if you don't push the growth one way. Makes sense

when

you think about it.....

Now I'm getting scared that I spent all this money to get a DOC band for my

Brachy baby

and I'm flying down to San Diego for the adjustments and that it might not be

good

enough. How severe did he start out and where is he now? Are you happy with

the

progress and just want more? Or are you not even happy with the progress?

Argh!

-Monika

--- In Plagiocephaly , " noladaydreaming " <noladaydreaming@y...>

wrote:

>

> At our adjustment this morning I was informed by CT that Nicolas is

> in the last month of his initial Doc Band. A second band was

> recommended. A few months ago my husband and I decided we did not

> want to pursue a second band even though we started with severe

> brachy. Today I had a change of heart and would probably like to

> pursue a second band. Hubby and I will discuss further (and I may

> have to convince him).

>

> Questions: How much improvement is good enough? Nicolas could

> round alot more. He's gotten to the point that the flatness isn't

> as glaringly obvious but no way could you say my son has a round

> head.

>

> Hubby says now that the skull has pushed out that further brain

> growth will head toward " normal. " I say Nico's head will never

> be " normal " unless the growth is directed.

>

> We can't afford a second band any more than we could afford our

> share of the first one. But that's a lousy reason to discontinue

> treatment.

>

> How has the second band been for others? Are you satisfied with the

> choice to continue banding into a second?

>

> I'm sure I have other questions but that will get a discussion

> started. Thanks for the continued help via information and feedback

> during these last few months, we really appreciate it.

>

> Lynette

> mom to Nicolas, 11 months

> plagio / brachy / resolved tort

> Murrieta, CA

[Guest guest]

Lynette, I *totally* understand your dilemma! Our son had severe

brachy like . We decided not to get a 2nd band. He wore it

from 9-12 mos. of age. My son's growth *really* slowed down so we

didn't think there would be much benefit to continuing on (we

could've been wrong but decided that he looked much better and

specialists agreed to stop too). He is now 18 mos. old and I have no

regrets about NOT doing a 2nd band. HOWEVER, someone else may have

had a different opinion. The thing is he is your child and you have

to follow your instincts. A good fitting band can only help improve

the headshape and not make it worse. You have to factor everything

in; it's OK to think about financial too but I know what you mean

about it not being the primary issue. GOOD LUCK.

Sue

Colin F., 18 mos.

STARband grad

>

> At our adjustment this morning I was informed by CT that Nicolas is

> in the last month of his initial Doc Band. A second band was

> recommended. A few months ago my husband and I decided we did not

> want to pursue a second band even though we started with severe

> brachy. Today I had a change of heart and would probably like to

> pursue a second band. Hubby and I will discuss further (and I may

> have to convince him).

>

> Questions: How much improvement is good enough? Nicolas could

> round alot more. He's gotten to the point that the flatness isn't

> as glaringly obvious but no way could you say my son has a round

> head.

>

> Hubby says now that the skull has pushed out that further brain

> growth will head toward " normal. " I say Nico's head will never

> be " normal " unless the growth is directed.

>

> We can't afford a second band any more than we could afford our

> share of the first one. But that's a lousy reason to discontinue

> treatment.

>

> How has the second band been for others? Are you satisfied with

the

> choice to continue banding into a second?

>

> I'm sure I have other questions but that will get a discussion

> started. Thanks for the continued help via information and

feedback

> during these last few months, we really appreciate it.

>

> Lynette

> mom to Nicolas, 11 months

> plagio / brachy / resolved tort

> Murrieta, CA

[Guest guest]

Lynette, I *totally* understand your dilemma! Our son had severe

brachy like . We decided not to get a 2nd band. He wore it

from 9-12 mos. of age. My son's growth *really* slowed down so we

didn't think there would be much benefit to continuing on (we

could've been wrong but decided that he looked much better and

specialists agreed to stop too). He is now 18 mos. old and I have no

regrets about NOT doing a 2nd band. HOWEVER, someone else may have

had a different opinion. The thing is he is your child and you have

to follow your instincts. A good fitting band can only help improve

the headshape and not make it worse. You have to factor everything

in; it's OK to think about financial too but I know what you mean

about it not being the primary issue. GOOD LUCK.

Sue

Colin F., 18 mos.

STARband grad

>

> At our adjustment this morning I was informed by CT that Nicolas is

> in the last month of his initial Doc Band. A second band was

> recommended. A few months ago my husband and I decided we did not

> want to pursue a second band even though we started with severe

> brachy. Today I had a change of heart and would probably like to

> pursue a second band. Hubby and I will discuss further (and I may

> have to convince him).

>

> Questions: How much improvement is good enough? Nicolas could

> round alot more. He's gotten to the point that the flatness isn't

> as glaringly obvious but no way could you say my son has a round

> head.

>

> Hubby says now that the skull has pushed out that further brain

> growth will head toward " normal. " I say Nico's head will never

> be " normal " unless the growth is directed.

>

> We can't afford a second band any more than we could afford our

> share of the first one. But that's a lousy reason to discontinue

> treatment.

>

> How has the second band been for others? Are you satisfied with

the

> choice to continue banding into a second?

>

> I'm sure I have other questions but that will get a discussion

> started. Thanks for the continued help via information and

feedback

> during these last few months, we really appreciate it.

>

> Lynette

> mom to Nicolas, 11 months

> plagio / brachy / resolved tort

> Murrieta, CA

[Guest guest]

P.S. If this helps you at all, my son's pre- and post-STARband photos

are in his file Before & After/STARband/Colin F. The latest are from

when he was 16 or 17 mos. old...

Sue

Colin F., 18 mos.

STARband grad

>

> At our adjustment this morning I was informed by CT that Nicolas is

> in the last month of his initial Doc Band. A second band was

> recommended. A few months ago my husband and I decided we did not

> want to pursue a second band even though we started with severe

> brachy. Today I had a change of heart and would probably like to

> pursue a second band. Hubby and I will discuss further (and I may

> have to convince him).

>

> Questions: How much improvement is good enough? Nicolas could

> round alot more. He's gotten to the point that the flatness isn't

> as glaringly obvious but no way could you say my son has a round

> head.

>

> Hubby says now that the skull has pushed out that further brain

> growth will head toward " normal. " I say Nico's head will never

> be " normal " unless the growth is directed.

>

> We can't afford a second band any more than we could afford our

> share of the first one. But that's a lousy reason to discontinue

> treatment.

>

> How has the second band been for others? Are you satisfied with

the

> choice to continue banding into a second?

>

> I'm sure I have other questions but that will get a discussion

> started. Thanks for the continued help via information and

feedback

> during these last few months, we really appreciate it.

>

> Lynette

> mom to Nicolas, 11 months

> plagio / brachy / resolved tort

> Murrieta, CA

[Guest guest]

P.S. If this helps you at all, my son's pre- and post-STARband photos

are in his file Before & After/STARband/Colin F. The latest are from

when he was 16 or 17 mos. old...

Sue

Colin F., 18 mos.

STARband grad

>

> At our adjustment this morning I was informed by CT that Nicolas is

> in the last month of his initial Doc Band. A second band was

> recommended. A few months ago my husband and I decided we did not

> want to pursue a second band even though we started with severe

> brachy. Today I had a change of heart and would probably like to

> pursue a second band. Hubby and I will discuss further (and I may

> have to convince him).

>

> Questions: How much improvement is good enough? Nicolas could

> round alot more. He's gotten to the point that the flatness isn't

> as glaringly obvious but no way could you say my son has a round

> head.

>

> Hubby says now that the skull has pushed out that further brain

> growth will head toward " normal. " I say Nico's head will never

> be " normal " unless the growth is directed.

>

> We can't afford a second band any more than we could afford our

> share of the first one. But that's a lousy reason to discontinue

> treatment.

>

> How has the second band been for others? Are you satisfied with

the

> choice to continue banding into a second?

>

> I'm sure I have other questions but that will get a discussion

> started. Thanks for the continued help via information and

feedback

> during these last few months, we really appreciate it.

>

> Lynette

> mom to Nicolas, 11 months

> plagio / brachy / resolved tort

> Murrieta, CA

[Guest guest]

Lynette,

Monika is correct. Without the redirection his head shape will most likely stay the same. With a 2nd band you may get more length and rounding in the back while holding the width.

Monika - Don't get discouraged. You may not get 100% correction but no one is perfect.

mom to na

DOC Grad

South Carolina

www.thefilyaw.commonikawithak2005 <monikawithak@...> wrote:

Hi Lynette,For some reason I can't see pictures tonight; keep getting error messages and advertisements (no problem seeing those!) but if you want some help with Hubby, I was told that growth does NOT grow toward normal. Growth is proportional - it'll grow the same amount in all directions if you don't push the growth one way. Makes sense when you think about it.....Now I'm getting scared that I spent all this money to get a DOC band for my Brachy baby and I'm flying down to San Diego for the adjustments and that it might not be good enough. How severe did he start out and where is he now? Are you happy with the progress and just want more? Or are you not even happy with the progress? Argh!-Monika--- In Plagiocephaly , "noladaydreaming" <noladaydreaming@y...>

wrote:> > At our adjustment this morning I was informed by CT that Nicolas is > in the last month of his initial Doc Band. A second band was > recommended. A few months ago my husband and I decided we did not > want to pursue a second band even though we started with severe > brachy. Today I had a change of heart and would probably like to > pursue a second band. Hubby and I will discuss further (and I may > have to convince him).> > Questions: How much improvement is good enough? Nicolas could > round alot more. He's gotten to the point that the flatness isn't > as glaringly obvious but no way could you say my son has a round > head.> > Hubby says now that the skull has pushed out that further brain > growth will head toward "normal." I say Nico's head will never > be "normal" unless the growth is

directed.> > We can't afford a second band any more than we could afford our > share of the first one. But that's a lousy reason to discontinue > treatment.> > How has the second band been for others? Are you satisfied with the > choice to continue banding into a second?> > I'm sure I have other questions but that will get a discussion > started. Thanks for the continued help via information and feedback > during these last few months, we really appreciate it.> > Lynette> mom to Nicolas, 11 months> plagio / brachy / resolved tort> Murrieta, CAFor more plagio info

[Guest guest]

Sue, Colin is such a cutie! What a happy smile he has. I recognize

the " before " headshape -- you had great results. What do you think

was your main reason for declining a second band?

Lynette

> >

> > At our adjustment this morning I was informed by CT that Nicolas

is

> > in the last month of his initial Doc Band. A second band was

> > recommended. A few months ago my husband and I decided we did

not

> > want to pursue a second band even though we started with severe

> > brachy. Today I had a change of heart and would probably like

to

> > pursue a second band. Hubby and I will discuss further (and I

may

> > have to convince him).

> >

> > Questions: How much improvement is good enough? Nicolas could

> > round alot more. He's gotten to the point that the flatness

isn't

> > as glaringly obvious but no way could you say my son has a round

> > head.

> >

> > Hubby says now that the skull has pushed out that further brain

> > growth will head toward " normal. " I say Nico's head will never

> > be " normal " unless the growth is directed.

> >

> > We can't afford a second band any more than we could afford our

> > share of the first one. But that's a lousy reason to

discontinue

> > treatment.

> >

> > How has the second band been for others? Are you satisfied with

> the

> > choice to continue banding into a second?

> >

> > I'm sure I have other questions but that will get a discussion

> > started. Thanks for the continued help via information and

> feedback

> > during these last few months, we really appreciate it.

> >

> > Lynette

> > mom to Nicolas, 11 months

> > plagio / brachy / resolved tort

> > Murrieta, CA