Guest guest Posted February 20, 2003 Report Share Posted February 20, 2003 > The hospital food I found almost added to the nausea. This is important - most of us don't get nauseous, but some do. Make sure you have your doctor prescribe some anti-nausea drugs to be on your chart in case you need them > Also I sucked on really sour candies all the time. If you can get sugar free ones, your dentist will be happy :-). I found sugar free lemon drops at Walgreens >> I am not allowed to take anything home (I had to keep asking about >> that, too). I'm not suggesting that you ignore hospital rules :-) but if you took in some paper to write down things on, and stuffed it under your clothes as you leave, I guarantee no one'll get close enough to check :-) >> may steal some of my husband's old yucky warm ups, or even go to >> Salvation Army and grab somthing cheap. I really don't want to >> only have the gowns to wear. I took in some of hubby's old underwear and some socks with holes in them. I was given pj's rather than gowns, but had to bring rubber bands to tie up the legs, since they're a one size fits all - which made them far too big and many inches too long :-). Old yucky anything is good. >> Any other suggestions would be appreciated. Your idea of taking some LID food is good. You might try calling and asking exactly what the LID menu has and doesn't have. My hospital had an LID menu, but it wasn't exactly what I was following, and they had no breads or crackers at all. I just took in some non-perishable stuff. Glad that you've got it all worked out!!!! Let us know how it goes, ! Cheers, Alisa Currently - TSH 0.09, 140mcg Levoxyl 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: 100 mCi RAI 12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!! Age: 49 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 LID stuff - http://groups.yahoo.com/group/Thyca/message/25430 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2003 Report Share Posted February 20, 2003 > The hospital food I found almost added to the nausea. This is important - most of us don't get nauseous, but some do. Make sure you have your doctor prescribe some anti-nausea drugs to be on your chart in case you need them > Also I sucked on really sour candies all the time. If you can get sugar free ones, your dentist will be happy :-). I found sugar free lemon drops at Walgreens >> I am not allowed to take anything home (I had to keep asking about >> that, too). I'm not suggesting that you ignore hospital rules :-) but if you took in some paper to write down things on, and stuffed it under your clothes as you leave, I guarantee no one'll get close enough to check :-) >> may steal some of my husband's old yucky warm ups, or even go to >> Salvation Army and grab somthing cheap. I really don't want to >> only have the gowns to wear. I took in some of hubby's old underwear and some socks with holes in them. I was given pj's rather than gowns, but had to bring rubber bands to tie up the legs, since they're a one size fits all - which made them far too big and many inches too long :-). Old yucky anything is good. >> Any other suggestions would be appreciated. Your idea of taking some LID food is good. You might try calling and asking exactly what the LID menu has and doesn't have. My hospital had an LID menu, but it wasn't exactly what I was following, and they had no breads or crackers at all. I just took in some non-perishable stuff. Glad that you've got it all worked out!!!! Let us know how it goes, ! Cheers, Alisa Currently - TSH 0.09, 140mcg Levoxyl 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: 100 mCi RAI 12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!! Age: 49 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 LID stuff - http://groups.yahoo.com/group/Thyca/message/25430 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 haue any of you had rai.i am on a lid diet now and will go march 3rd for treatment and just curious is it as easy to handle as my doctors are telling me. Thanks for any input cindy --- The_Thyroid_Support_Group wrote: > Not ignorance, . We all have had a lot to learn. I have been > on thyroid hormones for 47 years and believe me, I learn things on > here everyday. I have an appointment with my endo on March 1st and I > am going armed and dangerous . > > Peggy > > > > > > -WOW! I guess that shows my ignorance. I thought it was something in > > women in their 30's and higher got. I'm glad I'm learning more! > > > > Thanks! > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 > > haue any of you had rai.i am on a lid diet now and > will go march 3rd for treatment and just curious is it > as easy to handle as my doctors are telling me. Thanks > for any input cindy Why are you going for RAI? RAI treatment is very easy..you taek either a radioactive pill or drink a radioactive liquid and then go home.. so the actual medical procedure is quite simple. Follow up after RAI is a different story..RAI treatment really depends on what your story is? Why are you having RAI? Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Hi ... I had RAI to destroy my gland 15 years ago. I was in thyroid storm, they zapped my gland and killed it before it killed me.. RAI treatment is easy.. they give you something to swallow, either capsule or liquid, the scoot you out of the way before you contaminate them. It's an easy, first choice, treatment for too many docs that don't understand proper thyroid care and should ONLY be considered as a last result, when no other forms of treatment are effective, or if you are dealing with thyroid storm or thyroid cancer. I have a page up at our website with a bit about RAI, preparing for quarantine and such... it's a good way to get prepared in advance if your doc isn't planning on putting you in quarantine in the hospital. If you have a bit of time, you might like to swing by and read it. www.thyrophoenix.com/rai.htm For right now... what is your diagnosis? Why do they want to destroy your gland? Have they tried any other forms of treatment yet to control what is going on? Do you have copies of your labs to post so that we can see what has been tested and what things look like? Please include the lab's ranges too... we need them to interpret the results. We can get into this more, if you like.... I'll just close by saying that RAI is a drastic form of treatment and should be taken lightly. If it's the only form of treatment in your circumstance, then it's worth taking the risks of what may happen after. But, if there are other forms of treatment that can be checked out first, they should be.... IMHO, of course. Topper () *15 years post RAI. No remaining gland function. Now dealing with lymphedema as a result of the radiation* On Sat, 18 Feb 2006 20:21:35 -0800 (PST) Schriver writes: haue any of you had rai.i am on a lid diet now andwill go march 3rd for treatment and just curious is itas easy to handle as my doctors are telling me. Thanksfor any input cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Hi ... I had RAI to destroy my gland 15 years ago. I was in thyroid storm, they zapped my gland and killed it before it killed me.. RAI treatment is easy.. they give you something to swallow, either capsule or liquid, the scoot you out of the way before you contaminate them. It's an easy, first choice, treatment for too many docs that don't understand proper thyroid care and should ONLY be considered as a last result, when no other forms of treatment are effective, or if you are dealing with thyroid storm or thyroid cancer. I have a page up at our website with a bit about RAI, preparing for quarantine and such... it's a good way to get prepared in advance if your doc isn't planning on putting you in quarantine in the hospital. If you have a bit of time, you might like to swing by and read it. www.thyrophoenix.com/rai.htm For right now... what is your diagnosis? Why do they want to destroy your gland? Have they tried any other forms of treatment yet to control what is going on? Do you have copies of your labs to post so that we can see what has been tested and what things look like? Please include the lab's ranges too... we need them to interpret the results. We can get into this more, if you like.... I'll just close by saying that RAI is a drastic form of treatment and should be taken lightly. If it's the only form of treatment in your circumstance, then it's worth taking the risks of what may happen after. But, if there are other forms of treatment that can be checked out first, they should be.... IMHO, of course. Topper () *15 years post RAI. No remaining gland function. Now dealing with lymphedema as a result of the radiation* On Sat, 18 Feb 2006 20:21:35 -0800 (PST) Schriver writes: haue any of you had rai.i am on a lid diet now andwill go march 3rd for treatment and just curious is itas easy to handle as my doctors are telling me. Thanksfor any input cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 thanks for your reply. They want to do this because i have the distenation of haveing the worst neck the top ent at u of fl had seen and that was my 3rd surg and he is worried there is regrowth.thanks again i am worried about side effcts --- The_Thyroid_Support_Group wrote: > Hi ... > > I had RAI to destroy my gland 15 years ago. I was in thyroid storm, they > zapped my gland and killed it before it killed me.. > > RAI treatment is easy.. they give you something to swallow, either > capsule or liquid, the scoot you out of the way before you contaminate > them. > > It's an easy, first choice, treatment for too many docs that don't > understand proper thyroid care and should ONLY be considered as a last > result, when no other forms of treatment are effective, or if you are > dealing with thyroid storm or thyroid cancer. > > I have a page up at our website with a bit about RAI, preparing for > quarantine and such... it's a good way to get prepared in advance if your > doc isn't planning on putting you in quarantine in the hospital. If you > have a bit of time, you might like to swing by and read it. > www.thyrophoenix.com/rai.htm > > For right now... what is your diagnosis? Why do they want to destroy your > gland? > Have they tried any other forms of treatment yet to control what is going > on? > Do you have copies of your labs to post so that we can see what has been > tested and what things look like? Please include the lab's ranges too... > we need them to interpret the results. > > We can get into this more, if you like.... I'll just close by saying that > RAI is a drastic form of treatment and should be taken lightly. If it's > the only form of treatment in your circumstance, then it's worth taking > the risks of what may happen after. But, if there are other forms of > treatment that can be checked out first, they should be.... > > IMHO, of course. > > Topper () *15 years post RAI. No remaining gland function. Now > dealing with lymphedema as a result of the radiation* > > On Sat, 18 Feb 2006 20:21:35 -0800 (PST) Schriver > writes: > haue any of you had rai.i am on a lid diet now and > will go march 3rd for treatment and just curious is it > as easy to handle as my doctors are telling me. Thanks > for any input cindy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 So you've already had surgery to remove the gland? Have they given you a diagnosis, the reason for your needing to remove the gland? It is possible for tissue to regrow... but I'm still curious as to what is going on... There are circumstances where RAI is needed to remove the remaining tissue, with surgery already having been done and, I assume, most of the gland tissue removed, the amount of I-131 needed to destroy what is left will be smaller than if the gland were still there.... I'm just a bossy/nosey type and want to know the why.... but I'll be quiet if I'm over stepping.... Topper () ThyroPhoenix Donation Link:https://www.paypal.com/cgi-bin/webscr?cmd=_xclick & business=topper2%40juno%2ecom & item_name=ThyroPhoneix & no_shipping=0 & no_note=1 & tax=0 & currency_code=USD & bn=PP%2dDonationsBF & charset=UTF%2d8 On Sun, 19 Feb 2006 16:14:49 -0800 (PST) Schriver writes: thanks for your reply. They want to do this because ihave the distenation of haveing the worst neck the topent at u of fl had seen and that was my 3rd surg andhe is worried there is regrowth.thanks again i amworried about side effcts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 So you've already had surgery to remove the gland? Have they given you a diagnosis, the reason for your needing to remove the gland? It is possible for tissue to regrow... but I'm still curious as to what is going on... There are circumstances where RAI is needed to remove the remaining tissue, with surgery already having been done and, I assume, most of the gland tissue removed, the amount of I-131 needed to destroy what is left will be smaller than if the gland were still there.... I'm just a bossy/nosey type and want to know the why.... but I'll be quiet if I'm over stepping.... Topper () ThyroPhoenix Donation Link:https://www.paypal.com/cgi-bin/webscr?cmd=_xclick & business=topper2%40juno%2ecom & item_name=ThyroPhoneix & no_shipping=0 & no_note=1 & tax=0 & currency_code=USD & bn=PP%2dDonationsBF & charset=UTF%2d8 On Sun, 19 Feb 2006 16:14:49 -0800 (PST) Schriver writes: thanks for your reply. They want to do this because ihave the distenation of haveing the worst neck the topent at u of fl had seen and that was my 3rd surg andhe is worried there is regrowth.thanks again i amworried about side effcts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 So you've already had surgery to remove the gland? Have they given you a diagnosis, the reason for your needing to remove the gland? It is possible for tissue to regrow... but I'm still curious as to what is going on... There are circumstances where RAI is needed to remove the remaining tissue, with surgery already having been done and, I assume, most of the gland tissue removed, the amount of I-131 needed to destroy what is left will be smaller than if the gland were still there.... I'm just a bossy/nosey type and want to know the why.... but I'll be quiet if I'm over stepping.... Topper () ThyroPhoenix Donation Link:https://www.paypal.com/cgi-bin/webscr?cmd=_xclick & business=topper2%40juno%2ecom & item_name=ThyroPhoneix & no_shipping=0 & no_note=1 & tax=0 & currency_code=USD & bn=PP%2dDonationsBF & charset=UTF%2d8 On Sun, 19 Feb 2006 16:14:49 -0800 (PST) Schriver writes: thanks for your reply. They want to do this because ihave the distenation of haveing the worst neck the topent at u of fl had seen and that was my 3rd surg andhe is worried there is regrowth.thanks again i amworried about side effcts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 not at all nosey.the last regrowth was from only the isthmus and was a idaho potatoe on the left and an egg on the right u can only imagine how that effected me.what is lymphedema the side you had and do you think it would ruin my paras there has been no funct for a year but i still hold hope. thanks 4your input __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 not at all nosey.the last regrowth was from only the isthmus and was a idaho potatoe on the left and an egg on the right u can only imagine how that effected me.what is lymphedema the side you had and do you think it would ruin my paras there has been no funct for a year but i still hold hope. thanks 4your input __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 not at all nosey.the last regrowth was from only the isthmus and was a idaho potatoe on the left and an egg on the right u can only imagine how that effected me.what is lymphedema the side you had and do you think it would ruin my paras there has been no funct for a year but i still hold hope. thanks 4your input __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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