Re: New Member of Group

Posted November 21, 2004 · November 21, 2004

thank you for you words of encouragement and advise - I can use it.

Phyllis

Posted November 21, 2004 · November 21, 2004

>

Hi Phyllis:

My 6 year old daughter also has a bit of difficulty with licking a

lolly or an ice cream cone.

I am still learning all about apraxia. (What it is, what does it

mean, what type of therapy, etc.) I now understand apraxia is a

neurological motor/speech planning disorder and causes difficulty

coordinating oral-motor movements.

I have found, for my daughter, that having 1:1 speech therapy works

the best along with 1:1 OT.

When I work with my daughter at home I would make up games with

lollypops to make it fun. (My daughter's private OT gave me some

beginning ideas such as putting peanut butter, pudding, (anything

that you think your child would like) on the bottom lip and see if

your child can touch the food with their tongue.)

With my daughter, I use positive reinforcement,love and encouragment

all the time.

I wish you the best of luck and welcome to the group. Everyone is

extremely supportive, as I am fairly new to the group as well.

Posted November 21, 2004 · November 21, 2004

thanks for the info - I already rec'd the first three videos of baby bumble

bee and Nicolas seems to like them alot too. The LeapFrog videos the Word

Factory and Letter Factory have helped him tremendously with sounds. He can say

all

the sounds of the alphabets, but not the letters - why I'm not sure??? Thanks

again. Phyllis

Posted November 21, 2004 · November 21, 2004

Hi, Phyllis -

My son, also, cannot stick his tongue out or lick a lollipop or ice cream

(even if he liked sweet stuff which, thankfully, he doesn't! go figure - I

can't live without ice cream!). Part of the problem is the motor planning

involved with the act of sticking out your tongue - it might be that the neuro

message is either getting garbled along the way (oral apraxia) or the message

might be coming through loud and clear but the muscles are not responding

appropriately (possibly dysarthria). In our son's case, it's possibly both to

some extent. Has your son been diagnosed with verbal and oral apraxia or has

there been a diagnosis of dysarthria by any chance? (of course, other people

might suggest other possibilities of what might be the reason for the inability

but these are just a couple of thoughts). Josh's SLP has been working on the

tongue thing and he actually stuck his tongue out at me about a week ago or so -

hasn't been able to do it since (the apraxia at work). So, we

keep working.

Sherry

Ratliffp@... wrote:

Hi, My name is Phyllis and I have a son, Nicolas, that is 3yrs 10mths and has

been dx w/Apraxia. I had him evaluated at the Uof Miami a couple of months

ago for autism and am supposed to get the results next week. After reading the

various messages, I have learned a lot and have ordered the book The Late

Talker I think it is. My questions are do any of your children have problems

with

licking lets say an ice cream or lollipop. My son can't get the concept nor

can he stick out his tongue the same way??? This is baffling. He is in an ESE

classroom for autism and receives speed 2X a week for 30 minute sessions with

three other children. Currently, he has about 6-8 words that I understand --

possibly 3 intelligible words to others. I am hoping once I get the final

results to receive 1-1 speech therapy for him. Any advice or comments will be

greatly appreciated.

Posted November 22, 2004 · November 22, 2004

hi I am new to this group and my son has apraxia and is recieving therapy2

hours a week. he doesnt eat lollipops either' loves ice cream bot eill only eat

vanilla' AND LOVES cereal and french fries and popcorn chicken, he is 3and a

half, JOSH SAID mommy hold my hand yesterday. hes neversaid 4 eords in a row

before, he is also pddnonspecified, this group has given me alot of

encouragement, we are trying to get some help to pay for behavior modification

therapy as

well as st and ot, its so expensive, my son goes to a specialpreschool 3 hours

a day through the public school system, he also loves the barbie bbright

computer, he can spell his name out loud, knows letters, numbers, and colors,

likes wind up toys too, this is his 2nd year in preschool and he gets 3 years

there., im getting the late talker, he needs to be evaluated in iowa city for

autism we only have the educational diagnosis, its a struggle day by day, thanks

to everyone who writes in and his therapists couldnt be better

Posted June 15, 2005 · June 15, 2005

Hello ! I have a 2.5 month (almost 3 month) old son,

and I also have BC/BS/NJ. THey denied me already and I am in the

appeal process. Apparently STAR is in network, so they will

probably cover a STARBAND, but not a DOC band from CT. I started

with CT and like them, so I will probably stay with them and

hopefully just get out of network coverage from BCBS. That way, it

would not be so much $. I live further south, but I know that BUY

BUY Baby in Paramus has an artist there that paints the bands. Once

it is painted, the paint is there for good, I believe. They use some

sort of sealer to keep the art work on it. What were you thinking

of doing? I might do a baseball theme. NY Yankees even

> Hello Everyone,

> Just wanted to introduce myself. My name is and I

> live in Hillsborough, NJ. My son, Will, who is 3 months old has a

> flat area on the left side. He also has stiffness in his neck so

I

> have to do grueling exercises 5 times a day but sometimes it

doesn't

> get done 5 times a day since he hates them and I do too. I'm a

first

> time parent and my husband and I are very upset but we understand

that

> this is not our fault. I have Horizon Bc/Bs and am prepared to

fight

> them but am not looking forward to it. I would like to thank

everyone

> for sumbitting their appeal letters b/c without them I would have

no

> clue of what to say to my insurance company. I'm still in the

process

> of waiting for Cranial Tech. to call my insurance company about

> coverage. I would like know if anyone knows of a place that

decorates

> the DOC bands in nothern or central NJ? I do not have an ounce of

> creativity in me. Also do they need to be painted every week and

is

> it okay for Will to wear a painted band? I would appreciate any

> responses. Thanks and take care everyone.

>

> -

Posted June 15, 2005 · June 15, 2005

Hi ,

Welcome to the group. WIll is at a great young age to get his

treatment started! We have lots of NJ members who hopefully can

help you with the painting thing. Keep us posted on your journey.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> Hello Everyone,

> Just wanted to introduce myself. My name is and I

> live in Hillsborough, NJ. My son, Will, who is 3 months old has a

> flat area on the left side. He also has stiffness in his neck so

I

> have to do grueling exercises 5 times a day but sometimes it

doesn't

> get done 5 times a day since he hates them and I do too. I'm a

first

> time parent and my husband and I are very upset but we understand

that

> this is not our fault. I have Horizon Bc/Bs and am prepared to

fight

> them but am not looking forward to it. I would like to thank

everyone

> for sumbitting their appeal letters b/c without them I would have

no

> clue of what to say to my insurance company. I'm still in the

process

> of waiting for Cranial Tech. to call my insurance company about

> coverage. I would like know if anyone knows of a place that

decorates

> the DOC bands in nothern or central NJ? I do not have an ounce of

> creativity in me. Also do they need to be painted every week and

is

> it okay for Will to wear a painted band? I would appreciate any

> responses. Thanks and take care everyone.

>

> -

Posted June 15, 2005 · June 15, 2005

,

Welcome! What a good age to start a band, you should see awesome

correction. You don't have to paint the band. I used stickers from

the craft store and I am not really crafty at all. Have fun. You have

to do those exercises often and daily. Trust me I speak from

experience. Even if you both hate them it will be the only thing to

correct the torticollis. If the tort. is not treated you will not

receive good correction with the band either as tort likes to cause

facial asymmetry and will contribute to pressure on the flat side.

Keep trying to get them in 5 times a day and just give lots of hugs

and kisses afterwards, they will not hate you for it and they will

never remember it when they get older,unless you don't do them and

then you will continue to have trouble. If you are really overwhelmed

with it, you can ask your ped. to refer you to physical therapy.Are

you doing lots of tummy time play? It is really important and will

also help the tort. Let me know if you need any advice with it,

CAROLG

> Hello Everyone,

> Just wanted to introduce myself. My name is and I

> live in Hillsborough, NJ. My son, Will, who is 3 months old has a

> flat area on the left side. He also has stiffness in his neck so I

> have to do grueling exercises 5 times a day but sometimes it

doesn't

> get done 5 times a day since he hates them and I do too. I'm a

first

> time parent and my husband and I are very upset but we understand

that

> this is not our fault. I have Horizon Bc/Bs and am prepared to

fight

> them but am not looking forward to it. I would like to thank

everyone

> for sumbitting their appeal letters b/c without them I would have

no

> clue of what to say to my insurance company. I'm still in the

process

> of waiting for Cranial Tech. to call my insurance company about

> coverage. I would like know if anyone knows of a place that

decorates

> the DOC bands in nothern or central NJ? I do not have an ounce of

> creativity in me. Also do they need to be painted every week and

is

> it okay for Will to wear a painted band? I would appreciate any

> responses. Thanks and take care everyone.

>

> -

Posted June 15, 2005 · June 15, 2005