Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Is it beta or bicarb? Bicarb levels show when you get too acidotic. The lower the level, the more acidotic. I think " normal " non-keto levels are in the 20s. Our doctor likes to see keto kids at around 16-17. Below 10 is critical. Too low or too high can cause seizures. I don't know the other dangers of too high bicarbs but know that too low can cause respiratory distress, coma, kidney problems and even death (I know this b/c we have been hospitalized twice b/c of low bicarbs). Don't know if I helped or just confused things more! In any event, sorry you are having such problems. But welcome to a wonderful group! , mom to Langan, 22 months old and keto kid since 11/03; med free since 4/2/04 > Does anyone have any idea what the ideal beta levels are? My daughter left > the > hospital after her 2nd initiation of the keto with levels at 26, now she is > at 27, what does this all mean? And she is still seizing, our dietician is > not helpful only says it could take time? But she gives me nothing to go > on, I check her keytones in her urine as she told me to, but then says it's > not helpful information. I'm confused. Stella's been on the diet almost 1 > month, so I am still very new. > Thanks > amanda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Hi , Do you mean beta-hydroxybuturate levels? If so, this is the measure of ketone levels in the bloodstream. As opposed to the urine ketones which, as your dietician says, are not horribly accurate, (too many variables like fluid consumed diluting the measurement, time between emptying the bladder each time etc) but they are still an overall indication of where the level of ketosis is. Those figures you are quoting below are nothing like the ones we use though, perhaps a different lab - measuring system? Our home meter measures from 0 up to 6.0, with 's optimum blood ketone (also termed bhb - beta-hydroxybuturate) level between 3.5 and 4.5, but this varies from child to child. ----- Original Message ----- > Does anyone have any idea what the ideal beta levels are? My daughter left > the > hospital after her 2nd initiation of the keto with levels at 26, now she is > at 27, what does this all mean? And she is still seizing, our dietician is > not helpful only says it could take time? But she gives me nothing to go > on, I check her keytones in her urine as she told me to, but then says it's > not helpful information. I'm confused. Stella's been on the diet almost 1 > month, so I am still very new. > Thanks > amanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Hi , Do you mean beta-hydroxybuturate levels? If so, this is the measure of ketone levels in the bloodstream. As opposed to the urine ketones which, as your dietician says, are not horribly accurate, (too many variables like fluid consumed diluting the measurement, time between emptying the bladder each time etc) but they are still an overall indication of where the level of ketosis is. Those figures you are quoting below are nothing like the ones we use though, perhaps a different lab - measuring system? Our home meter measures from 0 up to 6.0, with 's optimum blood ketone (also termed bhb - beta-hydroxybuturate) level between 3.5 and 4.5, but this varies from child to child. ----- Original Message ----- > Does anyone have any idea what the ideal beta levels are? My daughter left > the > hospital after her 2nd initiation of the keto with levels at 26, now she is > at 27, what does this all mean? And she is still seizing, our dietician is > not helpful only says it could take time? But she gives me nothing to go > on, I check her keytones in her urine as she told me to, but then says it's > not helpful information. I'm confused. Stella's been on the diet almost 1 > month, so I am still very new. > Thanks > amanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 , If you are talking about BHB, then the reading must be 2.7, not 27. Most kids are at 4.0 to 6.0, ideally, so that would make sense. We have a blood ketone machine that we use at home- we had a prescription for it but were able to buy it over the counter. It also tests glucose, which can be helpful for finetuning. The blood ketone strips are PRICEY, though, so we use them sparingly. The machine is made by Medisense. I don't have it here and can't remember the exact name of it but many people here use them so I am sure someone else will pipe up. If not, I can give you the name tonight. , mom to Langan, 22 months old and keto kid since 11/03; med free since 4/2/04 > > Hi , > Do you mean beta-hydroxybuturate levels? If so, this is the measure of > ketone levels in the bloodstream. As opposed to the urine ketones which, as > your dietician says, are not horribly accurate, (too many variables like > fluid consumed diluting the measurement, time between emptying the bladder > each time etc) but they are still an overall indication of where the level > of ketosis is. > Those figures you are quoting below are nothing like the ones we use > though, perhaps a different lab - measuring system? > Our home meter measures from 0 up to 6.0, with 's optimum blood > ketone (also termed bhb - beta-hydroxybuturate) level between 3.5 and 4.5, > but this varies from child to child. > > > , what is the test you do at home for has to io the lab for > monthly blood draws to check her beta-hydroxybuturate test. The restults > yesterday were 27 which our dietician said was very low, most kids being > around 50. > Stella has gained 3 pounds while on the diet and is having lots of seizures > still, what have you a found re: weight increases? She's 5 1/2 and weights > 42lbs, used to hover round 38-40lbs. > thanks > amanda > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 , If you are talking about BHB, then the reading must be 2.7, not 27. Most kids are at 4.0 to 6.0, ideally, so that would make sense. We have a blood ketone machine that we use at home- we had a prescription for it but were able to buy it over the counter. It also tests glucose, which can be helpful for finetuning. The blood ketone strips are PRICEY, though, so we use them sparingly. The machine is made by Medisense. I don't have it here and can't remember the exact name of it but many people here use them so I am sure someone else will pipe up. If not, I can give you the name tonight. , mom to Langan, 22 months old and keto kid since 11/03; med free since 4/2/04 > > Hi , > Do you mean beta-hydroxybuturate levels? If so, this is the measure of > ketone levels in the bloodstream. As opposed to the urine ketones which, as > your dietician says, are not horribly accurate, (too many variables like > fluid consumed diluting the measurement, time between emptying the bladder > each time etc) but they are still an overall indication of where the level > of ketosis is. > Those figures you are quoting below are nothing like the ones we use > though, perhaps a different lab - measuring system? > Our home meter measures from 0 up to 6.0, with 's optimum blood > ketone (also termed bhb - beta-hydroxybuturate) level between 3.5 and 4.5, > but this varies from child to child. > > > , what is the test you do at home for has to io the lab for > monthly blood draws to check her beta-hydroxybuturate test. The restults > yesterday were 27 which our dietician said was very low, most kids being > around 50. > Stella has gained 3 pounds while on the diet and is having lots of seizures > still, what have you a found re: weight increases? She's 5 1/2 and weights > 42lbs, used to hover round 38-40lbs. > thanks > amanda > > > > > Quote Link to comment Share on other sites More sharing options...
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