Re: Opinions, Links, Suggestions Please

[Guest guest]

(((((()))))),

I don't really know what to say. I don't remember 's imitation ability

as a toddler, he was ok with toys until 2 1/2 or 3, but only interested in a

toy for a few moments usually. Never lost skills, but stopped making and

forward developement from 2 1/2 to 4. Beautifully verbal and amazingly so

at 2 1/2. The spinning and rolling started at 3 with him. Most everything

else was already there, but because of the language, we were blind to it.

From what I read on sites for the other disorders, is there really any

difference between those diagnosis' and autism or aspergers? It all sounds

spectrum to me.

My recommendation would be to request testing to rule out ASD based on the

list of concerns you've just sent us. In the meantime, I'd delay his IFSP

if it doesn't contain resent testing and have it conviene after testing is

completed. I would also besure they see the list of concerns so they know

where you're coming from. At least the testing would show them what he

needs, which sounds like it's definitely more than what he's been getting!

It also sounds like he's developed more issues since the last time your doc

saw him....

I'm really sorry it's sounding like this :' (

[Guest guest]

(((((()))))),

I don't really know what to say. I don't remember 's imitation ability

as a toddler, he was ok with toys until 2 1/2 or 3, but only interested in a

toy for a few moments usually. Never lost skills, but stopped making and

forward developement from 2 1/2 to 4. Beautifully verbal and amazingly so

at 2 1/2. The spinning and rolling started at 3 with him. Most everything

else was already there, but because of the language, we were blind to it.

From what I read on sites for the other disorders, is there really any

difference between those diagnosis' and autism or aspergers? It all sounds

spectrum to me.

My recommendation would be to request testing to rule out ASD based on the

list of concerns you've just sent us. In the meantime, I'd delay his IFSP

if it doesn't contain resent testing and have it conviene after testing is

completed. I would also besure they see the list of concerns so they know

where you're coming from. At least the testing would show them what he

needs, which sounds like it's definitely more than what he's been getting!

It also sounds like he's developed more issues since the last time your doc

saw him....

I'm really sorry it's sounding like this :' (

[Guest guest]

:

I am thinking back to when I was worried about Robbie, especially the

tantrum stuff, and I must say that I see more red flags with than I

did with Robbie.

Raena is right, though, sensory integration could well be the main issue

(and I also think DSI is mild end of the spectrum stuff, and has an

unknown but definitely large number of spectrum-ish family members).

Salli

[Guest guest]

> has his annual IFSP in nine days. I've allready requested

> OT see him for the sensory issues,>

Good start...a good OT can sort through a lot of things and tell you

what may be related to what else.

> but I just have this nagging feeling there's more. >

Follow your gut, . You have a lot of experience in this

stuff...tell them what you are worried about.

> he has imitation (well developed, not traces), imagination

> (pretends nicely, jokes), and plays appropriately with toys

> (strange for us to see in a two year old). >

Those are major plusses...

> Those things that are concerning to me are:

> the sensory issues (broad in scope and varying in severity)

> sleep issues

> screaming

> tantrums (can be very intense and aggressive behaviors)

> very orderly (yes, stacking and lining up, knows homes for all the

> tapes)

> apraxia of speech

> what language he has sounds like an indian dialect

> most language is directed as a request or command

> a yet to be identified difficulty with the reciprocal part of

> communication (screams if you guess wrong and ignores you otherwise)

> frequent purposeful avoidance of other children

> purposeful avoidance of eye contact on a frequent basis

> playing with the dust in the sun

> some hand flapping and finger flicking

> spinning and jumping

> an odd attraction for chapter length books with no pictures

> and difficulty with transition.>

Well, all or most of this COULD be related to severe sensory

issues...but there may also be a cognitive or language processing

piece that needs attention. My understanding is that sensory impacts

cognitive and language because the way we initially understand the

world is through our bodies...things like " it's about the length of

my arm " show us how much we depend on our body scheme to help us get

simple concepts like distance, time, and direction. Language

processing is impacted by muscle tone because the ear has tiny

muscles inside it...so many things CAN be sensory that it gets way

tough to sort it all out in very young kids.

I will say that I would not immediately think spectrum...unless you

think (as I am inclined to) that DSI is at one end of said...

Bottom line? Severe sensory issues can look a lot like autism in

very young kids. Time and good therapy sorts it out. I would go to

thte Apraxia-kids website (possibly www.apraxia-kids.org) and print

out the info on how much difference individual therapy makes for kids

with apraxic speech...there are also materials on language

processing, cognitive challenges, learning disabilities, and sensory

issues. You can get a lot of ammunition there.

Don't know if this helps or not...but that's my .02!

Raena

[Guest guest]

> has his annual IFSP in nine days. I've allready requested

> OT see him for the sensory issues,>

Good start...a good OT can sort through a lot of things and tell you

what may be related to what else.

> but I just have this nagging feeling there's more. >

Follow your gut, . You have a lot of experience in this

stuff...tell them what you are worried about.

> he has imitation (well developed, not traces), imagination

> (pretends nicely, jokes), and plays appropriately with toys

> (strange for us to see in a two year old). >

Those are major plusses...

> Those things that are concerning to me are:

> the sensory issues (broad in scope and varying in severity)

> sleep issues

> screaming

> tantrums (can be very intense and aggressive behaviors)

> very orderly (yes, stacking and lining up, knows homes for all the

> tapes)

> apraxia of speech

> what language he has sounds like an indian dialect

> most language is directed as a request or command

> a yet to be identified difficulty with the reciprocal part of

> communication (screams if you guess wrong and ignores you otherwise)

> frequent purposeful avoidance of other children

> purposeful avoidance of eye contact on a frequent basis

> playing with the dust in the sun

> some hand flapping and finger flicking

> spinning and jumping

> an odd attraction for chapter length books with no pictures

> and difficulty with transition.>

Well, all or most of this COULD be related to severe sensory

issues...but there may also be a cognitive or language processing

piece that needs attention. My understanding is that sensory impacts

cognitive and language because the way we initially understand the

world is through our bodies...things like " it's about the length of

my arm " show us how much we depend on our body scheme to help us get

simple concepts like distance, time, and direction. Language

processing is impacted by muscle tone because the ear has tiny

muscles inside it...so many things CAN be sensory that it gets way

tough to sort it all out in very young kids.

I will say that I would not immediately think spectrum...unless you

think (as I am inclined to) that DSI is at one end of said...

Bottom line? Severe sensory issues can look a lot like autism in

very young kids. Time and good therapy sorts it out. I would go to

thte Apraxia-kids website (possibly www.apraxia-kids.org) and print

out the info on how much difference individual therapy makes for kids

with apraxic speech...there are also materials on language

processing, cognitive challenges, learning disabilities, and sensory

issues. You can get a lot of ammunition there.

Don't know if this helps or not...but that's my .02!

Raena

[Guest guest]

> has his annual IFSP in nine days. I've allready requested

> OT see him for the sensory issues,>

Good start...a good OT can sort through a lot of things and tell you

what may be related to what else.

> but I just have this nagging feeling there's more. >

Follow your gut, . You have a lot of experience in this

stuff...tell them what you are worried about.

> he has imitation (well developed, not traces), imagination

> (pretends nicely, jokes), and plays appropriately with toys

> (strange for us to see in a two year old). >

Those are major plusses...

> Those things that are concerning to me are:

> the sensory issues (broad in scope and varying in severity)

> sleep issues

> screaming

> tantrums (can be very intense and aggressive behaviors)

> very orderly (yes, stacking and lining up, knows homes for all the

> tapes)

> apraxia of speech

> what language he has sounds like an indian dialect

> most language is directed as a request or command

> a yet to be identified difficulty with the reciprocal part of

> communication (screams if you guess wrong and ignores you otherwise)

> frequent purposeful avoidance of other children

> purposeful avoidance of eye contact on a frequent basis

> playing with the dust in the sun

> some hand flapping and finger flicking

> spinning and jumping

> an odd attraction for chapter length books with no pictures

> and difficulty with transition.>

Well, all or most of this COULD be related to severe sensory

issues...but there may also be a cognitive or language processing

piece that needs attention. My understanding is that sensory impacts

cognitive and language because the way we initially understand the

world is through our bodies...things like " it's about the length of

my arm " show us how much we depend on our body scheme to help us get

simple concepts like distance, time, and direction. Language

processing is impacted by muscle tone because the ear has tiny

muscles inside it...so many things CAN be sensory that it gets way

tough to sort it all out in very young kids.

I will say that I would not immediately think spectrum...unless you

think (as I am inclined to) that DSI is at one end of said...

Bottom line? Severe sensory issues can look a lot like autism in

very young kids. Time and good therapy sorts it out. I would go to

thte Apraxia-kids website (possibly www.apraxia-kids.org) and print

out the info on how much difference individual therapy makes for kids

with apraxic speech...there are also materials on language

processing, cognitive challenges, learning disabilities, and sensory

issues. You can get a lot of ammunition there.

Don't know if this helps or not...but that's my .02!

Raena

[Guest guest]

That does help. Thanks Raena. I wasn't getting the feeling he was

autistic...but...so much wasn't adding up...and I wasn't sure if all

of that COULD be attributable to sensory and communication issues.

Let's just hope we keep those pluses he does have.

[Guest guest]

That does help. Thanks Raena. I wasn't getting the feeling he was

autistic...but...so much wasn't adding up...and I wasn't sure if all

of that COULD be attributable to sensory and communication issues.

Let's just hope we keep those pluses he does have.

[Guest guest]

That does help. Thanks Raena. I wasn't getting the feeling he was

autistic...but...so much wasn't adding up...and I wasn't sure if all

of that COULD be attributable to sensory and communication issues.

Let's just hope we keep those pluses he does have.

[Guest guest]

> Raena is right, though, sensory integration could well be the main

issue

> (and I also think DSI is mild end of the spectrum stuff, and

has an

> unknown but definitely large number of spectrum-ish family members).

>

As usual Salli, I tend to be thinking those same thoughts myself.

[Guest guest]

> Raena is right, though, sensory integration could well be the main

issue

> (and I also think DSI is mild end of the spectrum stuff, and

has an

> unknown but definitely large number of spectrum-ish family members).

>

As usual Salli, I tend to be thinking those same thoughts myself.

[Guest guest]

> Raena is right, though, sensory integration could well be the main

issue

> (and I also think DSI is mild end of the spectrum stuff, and

has an

> unknown but definitely large number of spectrum-ish family members).

>

As usual Salli, I tend to be thinking those same thoughts myself.