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Re: Baylor called - Ken's Evaluation

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Good luck to

the 9 of you!

All the best,

Mom of Zoe (13) My very normal (teenager normal) soccer player;

Noah (8) Indeterminate colitis, PSC, Osteopenia (1-4 lumbar

vertebrae);

Aidan (4 1/2) Moderately-severe SNHL bilaterally

Recycle

Yourself

Become an

Organ Donor

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Barb,This sounds like good news to  me!I wish you and Ken the best of luck.We will all be waiting to hear how it goes and hoping for the best.LeeWe were shocked….Ken’s GI didn’t even tell us, but he referred Ken to Baylor for another evaluation (his 1st was in 1999).  We were able to pick a date, so we decided to wait until June 12th.  I get the cast off my arm on the 6th, so that will make things easier.  And they told Ken to get an ERCP done before he comes and to get all his medical records together to bring with us.  Thank goodness I keep up with all his paperwork, so that job is already done.  Ken seems fairly happy & relaxed about it, hubby on the other hand isn’t looking forward to babysitting his 3 dogs and our 3 dogs! Barb in Texas - Together in the Fight, Whatever it Takes!Son Ken (32) UC 91 - PSC 99 

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Barb,This sounds like good news to  me!I wish you and Ken the best of luck.We will all be waiting to hear how it goes and hoping for the best.LeeWe were shocked….Ken’s GI didn’t even tell us, but he referred Ken to Baylor for another evaluation (his 1st was in 1999).  We were able to pick a date, so we decided to wait until June 12th.  I get the cast off my arm on the 6th, so that will make things easier.  And they told Ken to get an ERCP done before he comes and to get all his medical records together to bring with us.  Thank goodness I keep up with all his paperwork, so that job is already done.  Ken seems fairly happy & relaxed about it, hubby on the other hand isn’t looking forward to babysitting his 3 dogs and our 3 dogs! Barb in Texas - Together in the Fight, Whatever it Takes!Son Ken (32) UC 91 - PSC 99 

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Barb,

Good luck with Ken's evaluation at Baylor. He is so lucky to have you as his spokesperson. Keep us updated.

Ricky

Baylor called - Ken's Evaluation

We were shocked….Ken’s GI didn’t even tell us, but he referred Ken to Baylor for another evaluation

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99

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Barb,

Good luck with Ken's evaluation at Baylor. He is so lucky to have you as his spokesperson. Keep us updated.

Ricky

Baylor called - Ken's Evaluation

We were shocked….Ken’s GI didn’t even tell us, but he referred Ken to Baylor for another evaluation

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99

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>

> We were shocked..Ken's GI didn't even tell us, but he referred Ken to

> Baylor for another evaluation (his 1st was in 1999). >

This is great news Barb. I know you have patiently waited for a long

time.

in Seattle

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>

> We were shocked..Ken's GI didn't even tell us, but he referred Ken to

> Baylor for another evaluation (his 1st was in 1999). >

This is great news Barb. I know you have patiently waited for a long

time.

in Seattle

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Barb,

It always seems very strange saying " great news " for something so

scary. Unfortunately, that is the way it is with this disease. I am

happy for all of you that Ken will be going for evaluation and praying

that it all turns out the way you hope for. I know you have been

waiting a long time for this. Although it is good news, I am sure you

are frightened at the same time. We are here for you, the same way

you have always been there for us through the tough times. Keeping

you all in my prayers.

Together in the fight...Whatever it takes!!!

Joanne (mom of Todd, 20, psc 01, crohns 02, tx twice 03, recurrent psc

05, living life to the fullest 06)

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Barb,

It always seems very strange saying " great news " for something so

scary. Unfortunately, that is the way it is with this disease. I am

happy for all of you that Ken will be going for evaluation and praying

that it all turns out the way you hope for. I know you have been

waiting a long time for this. Although it is good news, I am sure you

are frightened at the same time. We are here for you, the same way

you have always been there for us through the tough times. Keeping

you all in my prayers.

Together in the fight...Whatever it takes!!!

Joanne (mom of Todd, 20, psc 01, crohns 02, tx twice 03, recurrent psc

05, living life to the fullest 06)

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> We were shocked..Ken's GI didn't even tell us, but

> he referred Ken to

> Baylor for another evaluation

Barb-

What wonderful news. Good luck to Ken and you & your

hubby. I can understand your hubby's fret w/watching

the fur kids-I have 4 dogs in my house and planning

vacations/get aways is always an ordeal!!!

We actually got some good news-my brother's doctor has

agreed to see him for free until he gets his medicare

coverage-so we will be able to not have to worry about

that anymore ;-)

in Texas

Brother, , UC & PSC

__________________________________________________

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> We were shocked..Ken's GI didn't even tell us, but

> he referred Ken to

> Baylor for another evaluation

Barb-

What wonderful news. Good luck to Ken and you & your

hubby. I can understand your hubby's fret w/watching

the fur kids-I have 4 dogs in my house and planning

vacations/get aways is always an ordeal!!!

We actually got some good news-my brother's doctor has

agreed to see him for free until he gets his medicare

coverage-so we will be able to not have to worry about

that anymore ;-)

in Texas

Brother, , UC & PSC

__________________________________________________

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> We were shocked..Ken's GI didn't even tell us, but

> he referred Ken to

> Baylor for another evaluation

Barb-

What wonderful news. Good luck to Ken and you & your

hubby. I can understand your hubby's fret w/watching

the fur kids-I have 4 dogs in my house and planning

vacations/get aways is always an ordeal!!!

We actually got some good news-my brother's doctor has

agreed to see him for free until he gets his medicare

coverage-so we will be able to not have to worry about

that anymore ;-)

in Texas

Brother, , UC & PSC

__________________________________________________

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