Auditory Neuropathy

[Guest guest]

My son Peyton was approved for a CI. we are waiting on insurance approval. He

also was diagnosed with Auditory Neuropathy. I have seen a few parents on list

who have children with it also (AN). Can anyone tell me what to expect after he

is turned on? He will be 6 years old soon and has worn his aids for 4 years. It

took a long time to find out why he wasn't speaking very well. His aided test

were always 20-25 db. Unaided he is at 80 db with an almost flat audiogram. We

had AVT privately for 1 and 1/2 years till my insurance would no longer cover

it. We also continued AV at home. I'm very curious if because of the AN he will

have a harder or easier time with CI.

Also how did everyone explain to their child about the surgery? Nucleolus sent

me coloring books, and a ton of information. I also printed a book from their

website. In addition they sent me a plastic doll- sized CI that we put on a

bear. His speech and understanding are about 2.6 years. I want to at least try

and let him know what's going on. He has been to hospital for tubes and adenoids

twice so he is rather familiar with that part.

thanks so much