Re: How many have a too-low TSH but still have hypo symptoms?

[Guest guest]

Add me to your list of people with too low TSH and many symptoms of Hashimotos

and low thyroid.

What I've found over the last 10 years is that there is virtually no link

between my TSH and my symptoms. (or my TSH and anything else, for that matter).

That's why they need to run the free T's with your labs. I think it's also why

so many of us have given up on doctors and are one way or another fully or

patially self-medicating.

Every time I've found a doctor who won't acknowledge that my TSH is unrelated to

my overall well being, I " ve dumped them (there have lots and I'm still looking -

I have an appointment with a new doc next Friday).

Risa

---- lymebytes wrote:

[Guest guest]

Risa - Good Luck and hopefully this doc will be the one. I found a

doc who wasn't phased when my TSH hit .06 after hitting the 3 grain

Armour mark. I was worried that she would want me to back down on

the Armour but she actually said " we'll go by how you feel " .

Robin

>

[Guest guest]

Risa - Good Luck and hopefully this doc will be the one. I found a

doc who wasn't phased when my TSH hit .06 after hitting the 3 grain

Armour mark. I was worried that she would want me to back down on

the Armour but she actually said " we'll go by how you feel " .

Robin

>

[Guest guest]

Yes, and the trouble with having high Hashi's antibodies is that they play

with the lab results, i.e., skewed. This is a well known fact among those

doctors who REALLY know what they're doing. I don't presently have a

doctor, not yet anyway. I just now have my insurance, after all these yrs

on the same job. I've been running my own tests from HealthCheck for the

last two yrs or so. Those tests play tricks on the beholder with Hashi's.

Re: How many have a too-low TSH but

still have hypo symptoms?

> Add me to your list of people with too low TSH and many symptoms of

Hashimotos and low thyroid.

>

> What I've found over the last 10 years is that there is virtually no link

between my TSH and my symptoms. (or my TSH and anything else, for that

matter). That's why they need to run the free T's with your labs. I think

it's also why so many of us have given up on doctors and are one way or

another fully or patially self-medicating.

>

> Every time I've found a doctor who won't acknowledge that my TSH is

unrelated to my overall well being, I " ve dumped them (there have lots and

I'm still looking - I have an appointment with a new doc next Friday).

>

> Risa

>

>

> ---- lymebytes wrote:

[Guest guest]

Yes, and the trouble with having high Hashi's antibodies is that they play

with the lab results, i.e., skewed. This is a well known fact among those

doctors who REALLY know what they're doing. I don't presently have a

doctor, not yet anyway. I just now have my insurance, after all these yrs

on the same job. I've been running my own tests from HealthCheck for the

last two yrs or so. Those tests play tricks on the beholder with Hashi's.

Re: How many have a too-low TSH but

still have hypo symptoms?

> Add me to your list of people with too low TSH and many symptoms of

Hashimotos and low thyroid.

>

> What I've found over the last 10 years is that there is virtually no link

between my TSH and my symptoms. (or my TSH and anything else, for that

matter). That's why they need to run the free T's with your labs. I think

it's also why so many of us have given up on doctors and are one way or

another fully or patially self-medicating.

>

> Every time I've found a doctor who won't acknowledge that my TSH is

unrelated to my overall well being, I " ve dumped them (there have lots and

I'm still looking - I have an appointment with a new doc next Friday).

>

> Risa

>

>

> ---- lymebytes wrote:

[Guest guest]

Yes, and the trouble with having high Hashi's antibodies is that they play

with the lab results, i.e., skewed. This is a well known fact among those

doctors who REALLY know what they're doing. I don't presently have a

doctor, not yet anyway. I just now have my insurance, after all these yrs

on the same job. I've been running my own tests from HealthCheck for the

last two yrs or so. Those tests play tricks on the beholder with Hashi's.

Re: How many have a too-low TSH but

still have hypo symptoms?

> Add me to your list of people with too low TSH and many symptoms of

Hashimotos and low thyroid.

>

> What I've found over the last 10 years is that there is virtually no link

between my TSH and my symptoms. (or my TSH and anything else, for that

matter). That's why they need to run the free T's with your labs. I think

it's also why so many of us have given up on doctors and are one way or

another fully or patially self-medicating.

>

> Every time I've found a doctor who won't acknowledge that my TSH is

unrelated to my overall well being, I " ve dumped them (there have lots and

I'm still looking - I have an appointment with a new doc next Friday).

>

> Risa

>

>

> ---- lymebytes wrote:

[Guest guest]

Risa, thanks for your reply. It really is frustrating trying to get

help.

Was your appointment Friday or is it this coming Friday?

>

[Guest guest]

Risa, thanks for your reply. It really is frustrating trying to get

help.

Was your appointment Friday or is it this coming Friday?

>

[Guest guest]

Risa, thanks for your reply. It really is frustrating trying to get

help.

Was your appointment Friday or is it this coming Friday?

>

[Guest guest]

Hi Robin, you are lucky to find a doctor like that! I wish I could.

> >

>

[Guest guest]

Hi Jane. I hope your appointment goes well tomorrow. Will you be

getting your Free T3, Free T4, and thyroid antibodies tested also?

Let us know how your appointment goes okay?

> > >

> >

>

[Guest guest]

Hi Jane. I hope your appointment goes well tomorrow. Will you be

getting your Free T3, Free T4, and thyroid antibodies tested also?

Let us know how your appointment goes okay?

> > >

> >

>

[Guest guest]

Hey There,

My appointment was last Friday. I've had so many bad experiences, so I'm still

wary, but very hopeful. He essentially told me that he could tell that I was

undermedicated just by initial examination. He also told me that the TSH was a

worthless test for someone with Hashimotos - I think I might like this guy.

I'm having my blood drawn tomorrow. He didn't want me to take my meds before

the bloodwork, and wanted to check my cortisol - so I have to have it drawn

twice, once in the am and again in the afternoon.

I'm going back on this coming Friday for an updated RX - I can't wait because I

feel like !@#%. It will be interesting to see what he says.

Thanks for asking - I'm keeping my fingers crossed on this one.

Risa

Date: Mon, 06 Feb 2006 22:42:25 -0000

Subject: Re: How many have a too-low TSH but still have hypo symptoms?

Risa, thanks for your reply. It really is frustrating trying to get

help.

Was your appointment Friday or is it this coming Friday?

>

> Add me to your list of people with too low TSH and many symptoms

of Hashimotos and low thyroid.

>

> What I've found over the last 10 years is that there is virtually

no link between my TSH and my symptoms. (or my TSH and anything

else, for that matter). That's why they need to run the free T's

with your labs. I think it's also why so many of us have given up

on doctors and are one way or another fully or patially self-

medicating.

>

> Every time I've found a doctor who won't acknowledge that my TSH

is unrelated to my overall well being, I " ve dumped them (there have

lots and I'm still looking - I have an appointment with a new doc

next Friday).

>

> Risa

[Guest guest]



Risa,

good luck. Sounds like this one might be a keeper .

andrea

Re: How many have a too-low TSH but still have hypo symptoms? Risa, thanks for your reply. It really is frustrating trying to get help. Was your appointment Friday or is it this coming Friday? > > Add me to your list of people with too low TSH and many symptoms of Hashimotos and low thyroid. > > What I've found over the last 10 years is that there is virtually no link between my TSH and my symptoms. (or my TSH and anything else, for that matter). That's why they need to run the free T's with your labs. I think it's also why so many of us have given up on doctors and are one way or another fully or patially self- medicating. > > Every time I've found a doctor who won't acknowledge that my TSH is unrelated to my overall well being, I"ve dumped them (there have lots and I'm still looking - I have an appointment with a new doc next Friday). > > Risa

[Guest guest]



Risa,

good luck. Sounds like this one might be a keeper .

andrea

Re: How many have a too-low TSH but still have hypo symptoms? Risa, thanks for your reply. It really is frustrating trying to get help. Was your appointment Friday or is it this coming Friday? > > Add me to your list of people with too low TSH and many symptoms of Hashimotos and low thyroid. > > What I've found over the last 10 years is that there is virtually no link between my TSH and my symptoms. (or my TSH and anything else, for that matter). That's why they need to run the free T's with your labs. I think it's also why so many of us have given up on doctors and are one way or another fully or patially self- medicating. > > Every time I've found a doctor who won't acknowledge that my TSH is unrelated to my overall well being, I"ve dumped them (there have lots and I'm still looking - I have an appointment with a new doc next Friday). > > Risa

[Guest guest]



Risa,

good luck. Sounds like this one might be a keeper .

andrea

Re: How many have a too-low TSH but still have hypo symptoms? Risa, thanks for your reply. It really is frustrating trying to get help. Was your appointment Friday or is it this coming Friday? > > Add me to your list of people with too low TSH and many symptoms of Hashimotos and low thyroid. > > What I've found over the last 10 years is that there is virtually no link between my TSH and my symptoms. (or my TSH and anything else, for that matter). That's why they need to run the free T's with your labs. I think it's also why so many of us have given up on doctors and are one way or another fully or patially self- medicating. > > Every time I've found a doctor who won't acknowledge that my TSH is unrelated to my overall well being, I"ve dumped them (there have lots and I'm still looking - I have an appointment with a new doc next Friday). > > Risa

[Guest guest]

Add me to the list as well...When I was feeling my best, my Free Ts

were in the very Mid-Range and my TSH was .02 My STUPID

Endocrinologist wanted to lower my meds. I told him, " HECK NO...If

it aint broke, dont fix it. I feel Great, dont mess it up. " He was

a TSH Worshiper, though, so there was no way some lowly thyroid

patient, such as myself, was going to convince him that me having

Autoimmune disease should tell him to throw TSH out the window and

concentrate on Free Ts results. That was when I started self-

medicating...until I found this Great doctor that I am seeing now. I

dont understand why almost ALL Endocrinologist concentrate so much on

the TSH. You would think...so many out there like all of us dealing

with this stuff...They should have learned by now and shared

this " new information " with eachother. So Frustrating!!

~Amber

> >

> > Add me to your list of people with too low TSH and many symptoms

> of Hashimotos and low thyroid.

> >

> > What I've found over the last 10 years is that there is virtually

> no link between my TSH and my symptoms. (or my TSH and anything

> else, for that matter). That's why they need to run the free T's

> with your labs. I think it's also why so many of us have given up

> on doctors and are one way or another fully or patially self-

> medicating.

> >

> > Every time I've found a doctor who won't acknowledge that my TSH

> is unrelated to my overall well being, I " ve dumped them (there have

> lots and I'm still looking - I have an appointment with a new doc

> next Friday).

> >

> > Risa

>

[Guest guest]

Add me to the list as well...When I was feeling my best, my Free Ts

were in the very Mid-Range and my TSH was .02 My STUPID

Endocrinologist wanted to lower my meds. I told him, " HECK NO...If

it aint broke, dont fix it. I feel Great, dont mess it up. " He was

a TSH Worshiper, though, so there was no way some lowly thyroid

patient, such as myself, was going to convince him that me having

Autoimmune disease should tell him to throw TSH out the window and

concentrate on Free Ts results. That was when I started self-

medicating...until I found this Great doctor that I am seeing now. I

dont understand why almost ALL Endocrinologist concentrate so much on

the TSH. You would think...so many out there like all of us dealing

with this stuff...They should have learned by now and shared

this " new information " with eachother. So Frustrating!!

~Amber

> >

> > Add me to your list of people with too low TSH and many symptoms

> of Hashimotos and low thyroid.

> >

> > What I've found over the last 10 years is that there is virtually

> no link between my TSH and my symptoms. (or my TSH and anything

> else, for that matter). That's why they need to run the free T's

> with your labs. I think it's also why so many of us have given up

> on doctors and are one way or another fully or patially self-

> medicating.

> >

> > Every time I've found a doctor who won't acknowledge that my TSH

> is unrelated to my overall well being, I " ve dumped them (there have

> lots and I'm still looking - I have an appointment with a new doc

> next Friday).

> >

> > Risa

>