Re: Have you ever listened to a song....

[Guest guest]

Wow.

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Wow.

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Wow.

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Nice.

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

its lovely Crystal,

songs always remind me of certain bits of my life: 2 songs in particular

my husband shared one with me, when Amelie was born and had her first

arrest, I too wasnt great with the pulmonary embolism, he said when

driving to see us both one day and worrying himself sick about death

and being alone with out us, a song came on the car radio, I dont know

the words its by Ronan Keating 'if tomorrow never comes' and he sings:

if tomorrow never comes

will she know how much I love her

did I try in every way to show her every day

shes my everything

and if time on earth were through

and she must face this world without me

is the love i gave her in the past

gonna be enough to last

if tomorrow never comes

etc etc

now when i hear it where ever i might be, i burst out crying reminds

me of that day!!! how mad is that, the whole song is adorable, if you

get chance to hear it....not sure if youve heard of Ronan hes Irish

and was in a band before going solo.

and my eldest daughter le bought 'coldplay', because she said

there is a song for Amelie on the disc 'I will try to fix you' when

she played it for me I thought how sweet and very appropriate, as we

would all like to fix her!

sentimental songs dont you love a good ding along with your hairbrush,

all girlie house so the chanettes do it all the time!!

love Les x

> that just made you think of your child? I heard one today and I had

> to share the lyrics with you all, its by a Mcbride

>

> She's a butterfly

>

> She remembers when she first got her wings and how she opened up the

> day she learned to sing. Then the colors came, erased the black and

> white and her whole world changed when she realized

>

> (Chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> Like the purest light in a darkened world so much hope inside, such

> a lovely girl. You should see her fly, it's almost magical. It makes

> you wanna cry, she's so beautiful.

>

> (chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> God bless the butterfly,

> giver her the strenght to fly

> Never let her wings touch the ground.

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

>

> (chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

>

>

> Hugs,

> Crystal and Eva (13 month old CHARGEr)

>

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in the

> CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

its lovely Crystal,

songs always remind me of certain bits of my life: 2 songs in particular

my husband shared one with me, when Amelie was born and had her first

arrest, I too wasnt great with the pulmonary embolism, he said when

driving to see us both one day and worrying himself sick about death

and being alone with out us, a song came on the car radio, I dont know

the words its by Ronan Keating 'if tomorrow never comes' and he sings:

if tomorrow never comes

will she know how much I love her

did I try in every way to show her every day

shes my everything

and if time on earth were through

and she must face this world without me

is the love i gave her in the past

gonna be enough to last

if tomorrow never comes

etc etc

now when i hear it where ever i might be, i burst out crying reminds

me of that day!!! how mad is that, the whole song is adorable, if you

get chance to hear it....not sure if youve heard of Ronan hes Irish

and was in a band before going solo.

and my eldest daughter le bought 'coldplay', because she said

there is a song for Amelie on the disc 'I will try to fix you' when

she played it for me I thought how sweet and very appropriate, as we

would all like to fix her!

sentimental songs dont you love a good ding along with your hairbrush,

all girlie house so the chanettes do it all the time!!

love Les x

> that just made you think of your child? I heard one today and I had

> to share the lyrics with you all, its by a Mcbride

>

> She's a butterfly

>

> She remembers when she first got her wings and how she opened up the

> day she learned to sing. Then the colors came, erased the black and

> white and her whole world changed when she realized

>

> (Chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> Like the purest light in a darkened world so much hope inside, such

> a lovely girl. You should see her fly, it's almost magical. It makes

> you wanna cry, she's so beautiful.

>

> (chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> God bless the butterfly,

> giver her the strenght to fly

> Never let her wings touch the ground.

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

>

> (chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

>

>

> Hugs,

> Crystal and Eva (13 month old CHARGEr)

>

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in the

> CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

its lovely Crystal,

songs always remind me of certain bits of my life: 2 songs in particular

my husband shared one with me, when Amelie was born and had her first

arrest, I too wasnt great with the pulmonary embolism, he said when

driving to see us both one day and worrying himself sick about death

and being alone with out us, a song came on the car radio, I dont know

the words its by Ronan Keating 'if tomorrow never comes' and he sings:

if tomorrow never comes

will she know how much I love her

did I try in every way to show her every day

shes my everything

and if time on earth were through

and she must face this world without me

is the love i gave her in the past

gonna be enough to last

if tomorrow never comes

etc etc

now when i hear it where ever i might be, i burst out crying reminds

me of that day!!! how mad is that, the whole song is adorable, if you

get chance to hear it....not sure if youve heard of Ronan hes Irish

and was in a band before going solo.

and my eldest daughter le bought 'coldplay', because she said

there is a song for Amelie on the disc 'I will try to fix you' when

she played it for me I thought how sweet and very appropriate, as we

would all like to fix her!

sentimental songs dont you love a good ding along with your hairbrush,

all girlie house so the chanettes do it all the time!!

love Les x

> that just made you think of your child? I heard one today and I had

> to share the lyrics with you all, its by a Mcbride

>

> She's a butterfly

>

> She remembers when she first got her wings and how she opened up the

> day she learned to sing. Then the colors came, erased the black and

> white and her whole world changed when she realized

>

> (Chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> Like the purest light in a darkened world so much hope inside, such

> a lovely girl. You should see her fly, it's almost magical. It makes

> you wanna cry, she's so beautiful.

>

> (chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> God bless the butterfly,

> giver her the strenght to fly

> Never let her wings touch the ground.

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

>

> (chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

>

>

> Hugs,

> Crystal and Eva (13 month old CHARGEr)

>

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in the

> CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

cool

>

> its lovely Crystal,

>

> songs always remind me of certain bits of my life: 2 songs in particular

>

> my husband shared one with me, when Amelie was born and had her first

> arrest, I too wasnt great with the pulmonary embolism, he said when

> driving to see us both one day and worrying himself sick about death

> and being alone with out us, a song came on the car radio, I dont know

> the words its by Ronan Keating 'if tomorrow never comes' and he sings:

>

> if tomorrow never comes

> will she know how much I love her

> did I try in every way to show her every day

> shes my everything

> and if time on earth were through

> and she must face this world without me

> is the love i gave her in the past

> gonna be enough to last

> if tomorrow never comes

> etc etc

>

> now when i hear it where ever i might be, i burst out crying reminds

> me of that day!!! how mad is that, the whole song is adorable, if you

> get chance to hear it....not sure if youve heard of Ronan hes Irish

> and was in a band before going solo.

>

> and my eldest daughter le bought 'coldplay', because she said

> there is a song for Amelie on the disc 'I will try to fix you' when

> she played it for me I thought how sweet and very appropriate, as we

> would all like to fix her!

>

> sentimental songs dont you love a good ding along with your hairbrush,

> all girlie house so the chanettes do it all the time!!

>

> love Les x

>

>

>

> > that just made you think of your child? I heard one today and I had

> > to share the lyrics with you all, its by a Mcbride

> >

> > She's a butterfly

> >

> > She remembers when she first got her wings and how she opened up the

> > day she learned to sing. Then the colors came, erased the black and

> > white and her whole world changed when she realized

> >

> > (Chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every gonna

> > bring her down. And everywhere she goes every body knows she's so

> > glad to be alive. She's a butterfly.

> >

> > Like the purest light in a darkened world so much hope inside, such

> > a lovely girl. You should see her fly, it's almost magical. It makes

> > you wanna cry, she's so beautiful.

> >

> > (chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every gonna

> > bring her down. And everywhere she goes every body knows she's so

> > glad to be alive. She's a butterfly.

> >

> > God bless the butterfly,

> > giver her the strenght to fly

> > Never let her wings touch the ground.

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> >

> > (chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every gonna

> > bring her down. And everywhere she goes every body knows she's so

> > glad to be alive. She's a butterfly.

> >

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> >

> >

> > Hugs,

> > Crystal and Eva (13 month old CHARGEr)

> >

> >

> >

> >

> >

> >

> >

> > CHARGE SYNDROME LISTSERV PHOTO PAGE:

> > http://www.imagestation.com/album/?id=2117043995

> >

> > Membership of this email support group does not constitute membership in

> the

> > CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org

> >

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be available at

> > www.chargesyndrome.org or by calling 1-.

> >

[Guest guest]

cool

>

> its lovely Crystal,

>

> songs always remind me of certain bits of my life: 2 songs in particular

>

> my husband shared one with me, when Amelie was born and had her first

> arrest, I too wasnt great with the pulmonary embolism, he said when

> driving to see us both one day and worrying himself sick about death

> and being alone with out us, a song came on the car radio, I dont know

> the words its by Ronan Keating 'if tomorrow never comes' and he sings:

>

> if tomorrow never comes

> will she know how much I love her

> did I try in every way to show her every day

> shes my everything

> and if time on earth were through

> and she must face this world without me

> is the love i gave her in the past

> gonna be enough to last

> if tomorrow never comes

> etc etc

>

> now when i hear it where ever i might be, i burst out crying reminds

> me of that day!!! how mad is that, the whole song is adorable, if you

> get chance to hear it....not sure if youve heard of Ronan hes Irish

> and was in a band before going solo.

>

> and my eldest daughter le bought 'coldplay', because she said

> there is a song for Amelie on the disc 'I will try to fix you' when

> she played it for me I thought how sweet and very appropriate, as we

> would all like to fix her!

>

> sentimental songs dont you love a good ding along with your hairbrush,

> all girlie house so the chanettes do it all the time!!

>

> love Les x

>

>

>

> > that just made you think of your child? I heard one today and I had

> > to share the lyrics with you all, its by a Mcbride

> >

> > She's a butterfly

> >

> > She remembers when she first got her wings and how she opened up the

> > day she learned to sing. Then the colors came, erased the black and

> > white and her whole world changed when she realized

> >

> > (Chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every gonna

> > bring her down. And everywhere she goes every body knows she's so

> > glad to be alive. She's a butterfly.

> >

> > Like the purest light in a darkened world so much hope inside, such

> > a lovely girl. You should see her fly, it's almost magical. It makes

> > you wanna cry, she's so beautiful.

> >

> > (chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every gonna

> > bring her down. And everywhere she goes every body knows she's so

> > glad to be alive. She's a butterfly.

> >

> > God bless the butterfly,

> > giver her the strenght to fly

> > Never let her wings touch the ground.

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> >

> > (chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every gonna

> > bring her down. And everywhere she goes every body knows she's so

> > glad to be alive. She's a butterfly.

> >

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> >

> >

> > Hugs,

> > Crystal and Eva (13 month old CHARGEr)

> >

> >

> >

> >

> >

> >

> >

> > CHARGE SYNDROME LISTSERV PHOTO PAGE:

> > http://www.imagestation.com/album/?id=2117043995

> >

> > Membership of this email support group does not constitute membership in

> the

> > CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org

> >

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be available at

> > www.chargesyndrome.org or by calling 1-.

> >

[Guest guest]

cool

>

> its lovely Crystal,

>

> songs always remind me of certain bits of my life: 2 songs in particular

>

> my husband shared one with me, when Amelie was born and had her first

> arrest, I too wasnt great with the pulmonary embolism, he said when

> driving to see us both one day and worrying himself sick about death

> and being alone with out us, a song came on the car radio, I dont know

> the words its by Ronan Keating 'if tomorrow never comes' and he sings:

>

> if tomorrow never comes

> will she know how much I love her

> did I try in every way to show her every day

> shes my everything

> and if time on earth were through

> and she must face this world without me

> is the love i gave her in the past

> gonna be enough to last

> if tomorrow never comes

> etc etc

>

> now when i hear it where ever i might be, i burst out crying reminds

> me of that day!!! how mad is that, the whole song is adorable, if you

> get chance to hear it....not sure if youve heard of Ronan hes Irish

> and was in a band before going solo.

>

> and my eldest daughter le bought 'coldplay', because she said

> there is a song for Amelie on the disc 'I will try to fix you' when

> she played it for me I thought how sweet and very appropriate, as we

> would all like to fix her!

>

> sentimental songs dont you love a good ding along with your hairbrush,

> all girlie house so the chanettes do it all the time!!

>

> love Les x

>

>

>

> > that just made you think of your child? I heard one today and I had

> > to share the lyrics with you all, its by a Mcbride

> >

> > She's a butterfly

> >

> > She remembers when she first got her wings and how she opened up the

> > day she learned to sing. Then the colors came, erased the black and

> > white and her whole world changed when she realized

> >

> > (Chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every gonna

> > bring her down. And everywhere she goes every body knows she's so

> > glad to be alive. She's a butterfly.

> >

> > Like the purest light in a darkened world so much hope inside, such

> > a lovely girl. You should see her fly, it's almost magical. It makes

> > you wanna cry, she's so beautiful.

> >

> > (chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every gonna

> > bring her down. And everywhere she goes every body knows she's so

> > glad to be alive. She's a butterfly.

> >

> > God bless the butterfly,

> > giver her the strenght to fly

> > Never let her wings touch the ground.

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> >

> > (chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every gonna

> > bring her down. And everywhere she goes every body knows she's so

> > glad to be alive. She's a butterfly.

> >

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> >

> >

> > Hugs,

> > Crystal and Eva (13 month old CHARGEr)

> >

> >

> >

> >

> >

> >

> >

> > CHARGE SYNDROME LISTSERV PHOTO PAGE:

> > http://www.imagestation.com/album/?id=2117043995

> >

> > Membership of this email support group does not constitute membership in

> the

> > CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org

> >

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be available at

> > www.chargesyndrome.org or by calling 1-.

> >

[Guest guest]

i like born to try ive heard that at one ofmy firends that died she liked it

and i belive it sums us all up we r all born to try born to try thats my

song now for all my favourite charge fams

>

> Nice.

>

>

>

> Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

>

>

>

[Guest guest]

i like born to try ive heard that at one ofmy firends that died she liked it

and i belive it sums us all up we r all born to try born to try thats my

song now for all my favourite charge fams

>

> Nice.

>

>

>

> Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

>

>

>

[Guest guest]

i like born to try ive heard that at one ofmy firends that died she liked it

and i belive it sums us all up we r all born to try born to try thats my

song now for all my favourite charge fams

>

> Nice.

>

>

>

> Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

>

>

>

[Guest guest]

Crystal and all the moms,

I am a fan of a McBride and there is another song she sings that will just

pull on your heart. However, you must listen to the song.

" God's Will "

When I heard it I just lost it. I like to hear it when I am having a bad day.

It makes me stop to think. Everything I do for my son, that maybe he in turn is

touching someone that may other wise not be touched. To me that is my blessing.

Happy Mother's Day to a group of Very Special Moms!

, Randy & Garland Goodwin

---- supermama95 wrote:

=============

that just made you think of your child? I heard one today and I had

to share the lyrics with you all, its by a Mcbride

She's a butterfly

She remembers when she first got her wings and how she opened up the

day she learned to sing. Then the colors came, erased the black and

white and her whole world changed when she realized

(Chorus)

She's a butterfly, pretty as the crimson sky nothing's every gonna

bring her down. And everywhere she goes every body knows she's so

glad to be alive. She's a butterfly.

Like the purest light in a darkened world so much hope inside, such

a lovely girl. You should see her fly, it's almost magical. It makes

you wanna cry, she's so beautiful.

(chorus)

She's a butterfly, pretty as the crimson sky nothing's every gonna

bring her down. And everywhere she goes every body knows she's so

glad to be alive. She's a butterfly.

God bless the butterfly,

giver her the strenght to fly

Never let her wings touch the ground.

God bless the butterfly,

give her the strenght to fly

Never let her wings touch the ground.

(chorus)

She's a butterfly, pretty as the crimson sky nothing's every gonna

bring her down. And everywhere she goes every body knows she's so

glad to be alive. She's a butterfly.

God bless the butterfly,

give her the strenght to fly

Never let her wings touch the ground.

God bless the butterfly,

give her the strenght to fly

Never let her wings touch the ground.

Hugs,

Crystal and Eva (13 month old CHARGEr)

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

[Guest guest]

Crystal and all the moms,

I am a fan of a McBride and there is another song she sings that will just

pull on your heart. However, you must listen to the song.

" God's Will "

When I heard it I just lost it. I like to hear it when I am having a bad day.

It makes me stop to think. Everything I do for my son, that maybe he in turn is

touching someone that may other wise not be touched. To me that is my blessing.

Happy Mother's Day to a group of Very Special Moms!

, Randy & Garland Goodwin

---- supermama95 wrote:

=============

that just made you think of your child? I heard one today and I had

to share the lyrics with you all, its by a Mcbride

She's a butterfly

She remembers when she first got her wings and how she opened up the

day she learned to sing. Then the colors came, erased the black and

white and her whole world changed when she realized

(Chorus)

She's a butterfly, pretty as the crimson sky nothing's every gonna

bring her down. And everywhere she goes every body knows she's so

glad to be alive. She's a butterfly.

Like the purest light in a darkened world so much hope inside, such

a lovely girl. You should see her fly, it's almost magical. It makes

you wanna cry, she's so beautiful.

(chorus)

She's a butterfly, pretty as the crimson sky nothing's every gonna

bring her down. And everywhere she goes every body knows she's so

glad to be alive. She's a butterfly.

God bless the butterfly,

giver her the strenght to fly

Never let her wings touch the ground.

God bless the butterfly,

give her the strenght to fly

Never let her wings touch the ground.

(chorus)

She's a butterfly, pretty as the crimson sky nothing's every gonna

bring her down. And everywhere she goes every body knows she's so

glad to be alive. She's a butterfly.

God bless the butterfly,

give her the strenght to fly

Never let her wings touch the ground.

God bless the butterfly,

give her the strenght to fly

Never let her wings touch the ground.

Hugs,

Crystal and Eva (13 month old CHARGEr)

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

[Guest guest]

Crystal and all the moms,

I am a fan of a McBride and there is another song she sings that will just

pull on your heart. However, you must listen to the song.

" God's Will "

When I heard it I just lost it. I like to hear it when I am having a bad day.

It makes me stop to think. Everything I do for my son, that maybe he in turn is

touching someone that may other wise not be touched. To me that is my blessing.

Happy Mother's Day to a group of Very Special Moms!

, Randy & Garland Goodwin

---- supermama95 wrote:

=============

that just made you think of your child? I heard one today and I had

to share the lyrics with you all, its by a Mcbride

She's a butterfly

She remembers when she first got her wings and how she opened up the

day she learned to sing. Then the colors came, erased the black and

white and her whole world changed when she realized

(Chorus)

She's a butterfly, pretty as the crimson sky nothing's every gonna

bring her down. And everywhere she goes every body knows she's so

glad to be alive. She's a butterfly.

Like the purest light in a darkened world so much hope inside, such

a lovely girl. You should see her fly, it's almost magical. It makes

you wanna cry, she's so beautiful.

(chorus)

She's a butterfly, pretty as the crimson sky nothing's every gonna

bring her down. And everywhere she goes every body knows she's so

glad to be alive. She's a butterfly.

God bless the butterfly,

giver her the strenght to fly

Never let her wings touch the ground.

God bless the butterfly,

give her the strenght to fly

Never let her wings touch the ground.

(chorus)

She's a butterfly, pretty as the crimson sky nothing's every gonna

bring her down. And everywhere she goes every body knows she's so

glad to be alive. She's a butterfly.

God bless the butterfly,

give her the strenght to fly

Never let her wings touch the ground.

God bless the butterfly,

give her the strenght to fly

Never let her wings touch the ground.

Hugs,

Crystal and Eva (13 month old CHARGEr)

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

[Guest guest]

,

I love God's Will also!! I love MArtina McBride and I think we

should get her to be our CHARGE singer....LOL! Or do a concert for

our CHARGErs...LOL!

Hugs,

Crystal and Eva (13 month old CHARGEr)

>

> =============

> that just made you think of your child? I heard one today and I

had

> to share the lyrics with you all, its by a Mcbride

>

> She's a butterfly

>

> She remembers when she first got her wings and how she opened up

the

> day she learned to sing. Then the colors came, erased the black

and

> white and her whole world changed when she realized

>

> (Chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> Like the purest light in a darkened world so much hope inside,

such

> a lovely girl. You should see her fly, it's almost magical. It

makes

> you wanna cry, she's so beautiful.

>

> (chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> God bless the butterfly,

> giver her the strenght to fly

> Never let her wings touch the ground.

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

>

> (chorus)

> She's a butterfly, pretty as the crimson sky nothing's every gonna

> bring her down. And everywhere she goes every body knows she's so

> glad to be alive. She's a butterfly.

>

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

> God bless the butterfly,

> give her the strenght to fly

> Never let her wings touch the ground.

>

>

> Hugs,

> Crystal and Eva (13 month old CHARGEr)

>

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute

membership in the CHARGE Syndrome Foundation; for information about

the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be

available at www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

OH MAN I wish I could do it!!! LOL!

Crystal and Eva

> >

> > =============

> > that just made you think of your child? I heard one today and I

> had

> > to share the lyrics with you all, its by a Mcbride

> >

> > She's a butterfly

> >

> > She remembers when she first got her wings and how she opened up

> the

> > day she learned to sing. Then the colors came, erased the black

> and

> > white and her whole world changed when she realized

> >

> > (Chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every

gonna

> > bring her down. And everywhere she goes every body knows she's

so

> > glad to be alive. She's a butterfly.

> >

> > Like the purest light in a darkened world so much hope inside,

> such

> > a lovely girl. You should see her fly, it's almost magical. It

> makes

> > you wanna cry, she's so beautiful.

> >

> > (chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every

gonna

> > bring her down. And everywhere she goes every body knows she's

so

> > glad to be alive. She's a butterfly.

> >

> > God bless the butterfly,

> > giver her the strenght to fly

> > Never let her wings touch the ground.

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> >

> > (chorus)

> > She's a butterfly, pretty as the crimson sky nothing's every

gonna

> > bring her down. And everywhere she goes every body knows she's

so

> > glad to be alive. She's a butterfly.

> >

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> > God bless the butterfly,

> > give her the strenght to fly

> > Never let her wings touch the ground.

> >

> >

> > Hugs,

> > Crystal and Eva (13 month old CHARGEr)

> >

> >

> >

> >

> >

> >

> >

> > CHARGE SYNDROME LISTSERV PHOTO PAGE:

> > http://www.imagestation.com/album/?id=2117043995

> >

> > Membership of this email support group does not constitute

> membership in the CHARGE Syndrome Foundation; for information

about

> the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@ or visit

> > the web site at http://www.chargesyndrome.org

> >

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be

> available at www.chargesyndrome.org or by calling 1-800-442-

7604.

> >