DDH - please help!

[Guest guest]

Yesterday G. posted a site for hip problems (www.hip-baby.org)

and I took a look at it. My heart sank when I saw that has an

extra fold in her right thigh just like the baby in the picture on the

intro page. will be 6 months old on Saturday and as I continued

to read, I realized that the later DDH is diagnosed, the more

complicated the treatment can become. was diagnosed with tort and

began PT at 10 weeks. How come my ped did not notice a problem then or

at her 4 month well check? I called and made an appt to take to a

ped orthop surg but they can't see us until AUG 31. Does anyone have a

baby with an extra skin fold that did not have DDH???

BTW- thanks to G for posting the site. I had heard that DDH was

a risk for babies with tort, but since my ped never mentioned it, I

assumed that her hips were okay.

Lori

mom to / tort/ plagio/ DOC banded 7/16

[Guest guest]

I hope this puts your mind at ease in some way. My baby was

diagnosed with torticollis and plagiocephaly after much prodding of

the pediatrician by my husband and me. Our pediatrician finally

sent us to a specialist who sent us to physicial therapy. Our

physical therapist discovered the hip dysplasia, and I (like you are

doing) reacted as quickly as possible. It is not too late to treat

and it does not have to be very complicated (I am sure it depends

upon the case). They are still so young.

My sweetie Sarabeth was put in a Pavlik harness (5 months 3 weeks)

and has been wearing it for 3 weeks now. She is scheduled to wear

it for 6 months - the great thing is that it was caught before she

started walking when it is harder to slow them down. The first few

days are difficult (and I was given no guidance from the ped ortho) -

use tylenol to help them sleep for first few days and adjust sleep

position (have tempupedic pillow under head and a bean bag under

each foot) - these two comments can make ALL the difference! Plus

distract, distract, distract and they get used to it. The great

thing about this, as well as the helmet, is that there is a solution

for this problem. This is temporary and then your child can run and

play with nary a problem for the rest of their life because of the

discomfort you (and they go thru) for a few months.

We just started the helmet yesterday.

Mom to Sarabeth

tort/plag/hip dysplasia STAR banded 8-18

--- In Plagiocephaly , " laugust26 " <laugust26@y...>

wrote:

> Yesterday G. posted a site for hip problems (www.hip-

baby.org)

> and I took a look at it. My heart sank when I saw that has

an

> extra fold in her right thigh just like the baby in the picture on

the

> intro page. will be 6 months old on Saturday and as I

continued

> to read, I realized that the later DDH is diagnosed, the more

> complicated the treatment can become. was diagnosed with

tort and

> began PT at 10 weeks. How come my ped did not notice a problem

then or

> at her 4 month well check? I called and made an appt to take

to a

> ped orthop surg but they can't see us until AUG 31. Does anyone

have a

> baby with an extra skin fold that did not have DDH???

>

> BTW- thanks to G for posting the site. I had heard that DDH

was

> a risk for babies with tort, but since my ped never mentioned it,

I

> assumed that her hips were okay.

>

> Lori

> mom to / tort/ plagio/ DOC banded 7/16

[Guest guest]

Does have right or left tort? My son Connor had left tort and

his whole left side was slightly smaller. It resulted in him having

an extra roll on his right arm and leg.

Connnor (PPO helmet grad 8/04, tort resolved, mild craniofacial

microsomia)

> > Yesterday G. posted a site for hip problems (www.hip-

> baby.org)

> > and I took a look at it. My heart sank when I saw that has

> an

> > extra fold in her right thigh just like the baby in the picture on

> the

> > intro page. will be 6 months old on Saturday and as I

> continued

> > to read, I realized that the later DDH is diagnosed, the more

> > complicated the treatment can become. was diagnosed with

> tort and

> > began PT at 10 weeks. How come my ped did not notice a problem

> then or

> > at her 4 month well check? I called and made an appt to take

> to a

> > ped orthop surg but they can't see us until AUG 31. Does anyone

> have a

> > baby with an extra skin fold that did not have DDH???

> >

> > BTW- thanks to G for posting the site. I had heard that DDH

> was

> > a risk for babies with tort, but since my ped never mentioned it,

> I

> > assumed that her hips were okay.

> >

> > Lori

> > mom to / tort/ plagio/ DOC banded 7/16

[Guest guest]

Hi ,

Thanks for the reply!!! has left tort and the extra roll is on her right thigh!! I hope that is our case too. Did Connor have x-rays or an ultrasound to rule out dyplasia? How old is Connor? Congrats on his tort being resolved!! I look forward to writing that one day too.

Thanks again,

Lori

mom to (6 mos. tomorrow!)/ tort/ plagio/ DOC banded 7/16

being evaluated for DDH 8/26 <andileigh@...> wrote:

Does have right or left tort? My son Connor had left tort andhis whole left side was slightly smaller. It resulted in him havingan extra roll on his right arm and leg. Connnor (PPO helmet grad 8/04, tort resolved, mild craniofacialmicrosomia)> > Yesterday G. posted a site for hip problems (www.hip-> baby.org) > > and I took a look at it. My heart sank when I saw that has > an > > extra fold in her right thigh just like the baby in the picture on > the > > intro page. will be 6 months old on Saturday and as I > continued > > to read, I realized that the later DDH is diagnosed, the more > > complicated the treatment can become. was diagnosed with > tort and > > began PT at 10 weeks. How come my ped did not notice a problem > then or

> > at her 4 month well check? I called and made an appt to take > to a > > ped orthop surg but they can't see us until AUG 31. Does anyone > have a > > baby with an extra skin fold that did not have DDH??? > > > > BTW- thanks to G for posting the site. I had heard that DDH > was > > a risk for babies with tort, but since my ped never mentioned it, > I > > assumed that her hips were okay. > > > > Lori> > mom to / tort/ plagio/ DOC banded 7/16

Start your day with - make it your home page

[Guest guest]

Hi ,

Thanks so much for your post! I love the name Sarabeth!! You are right about this being treatable. I think I have just been so focused on 's pt and getting her through her DOC band that I was not prepared for something else like this to come up. Thanks for your support !How are things going with Sarabeth's band?

Lori

mom to (6 months)/ tort/ plagio/ DOC banded 7/16

being evaluated for DDH 8/26maryegump <maryegump@...> wrote:

I hope this puts your mind at ease in some way. My baby was diagnosed with torticollis and plagiocephaly after much prodding of the pediatrician by my husband and me. Our pediatrician finally sent us to a specialist who sent us to physicial therapy. Our physical therapist discovered the hip dysplasia, and I (like you are doing) reacted as quickly as possible. It is not too late to treat and it does not have to be very complicated (I am sure it depends upon the case). They are still so young. My sweetie Sarabeth was put in a Pavlik harness (5 months 3 weeks) and has been wearing it for 3 weeks now. She is scheduled to wear it for 6 months - the great thing is that it was caught before she started walking when it is harder to slow them down. The first few days are difficult (and I was

given no guidance from the ped ortho) -use tylenol to help them sleep for first few days and adjust sleep position (have tempupedic pillow under head and a bean bag under each foot) - these two comments can make ALL the difference! Plus distract, distract, distract and they get used to it. The great thing about this, as well as the helmet, is that there is a solution for this problem. This is temporary and then your child can run and play with nary a problem for the rest of their life because of the discomfort you (and they go thru) for a few months.We just started the helmet yesterday. Mom to Sarabethtort/plag/hip dysplasia STAR banded 8-18> Yesterday G. posted a site for hip problems (www.hip-baby.org) > and I took a look at it. My heart sank when I saw that has an > extra

fold in her right thigh just like the baby in the picture on the > intro page. will be 6 months old on Saturday and as I continued > to read, I realized that the later DDH is diagnosed, the more > complicated the treatment can become. was diagnosed with tort and > began PT at 10 weeks. How come my ped did not notice a problem then or > at her 4 month well check? I called and made an appt to take to a > ped orthop surg but they can't see us until AUG 31. Does anyone have a > baby with an extra skin fold that did not have DDH??? > > BTW- thanks to G for posting the site. I had heard that DDH was > a risk for babies with tort, but since my ped never mentioned it, I > assumed that her hips were okay. > > Lori> mom to / tort/ plagio/ DOC banded 7/16For more plagio info

[Guest guest]

Hi ,

Thanks so much for your post! I love the name Sarabeth!! You are right about this being treatable. I think I have just been so focused on 's pt and getting her through her DOC band that I was not prepared for something else like this to come up. Thanks for your support !How are things going with Sarabeth's band?

Lori

mom to (6 months)/ tort/ plagio/ DOC banded 7/16

being evaluated for DDH 8/26maryegump <maryegump@...> wrote:

I hope this puts your mind at ease in some way. My baby was diagnosed with torticollis and plagiocephaly after much prodding of the pediatrician by my husband and me. Our pediatrician finally sent us to a specialist who sent us to physicial therapy. Our physical therapist discovered the hip dysplasia, and I (like you are doing) reacted as quickly as possible. It is not too late to treat and it does not have to be very complicated (I am sure it depends upon the case). They are still so young. My sweetie Sarabeth was put in a Pavlik harness (5 months 3 weeks) and has been wearing it for 3 weeks now. She is scheduled to wear it for 6 months - the great thing is that it was caught before she started walking when it is harder to slow them down. The first few days are difficult (and I was

given no guidance from the ped ortho) -use tylenol to help them sleep for first few days and adjust sleep position (have tempupedic pillow under head and a bean bag under each foot) - these two comments can make ALL the difference! Plus distract, distract, distract and they get used to it. The great thing about this, as well as the helmet, is that there is a solution for this problem. This is temporary and then your child can run and play with nary a problem for the rest of their life because of the discomfort you (and they go thru) for a few months.We just started the helmet yesterday. Mom to Sarabethtort/plag/hip dysplasia STAR banded 8-18> Yesterday G. posted a site for hip problems (www.hip-baby.org) > and I took a look at it. My heart sank when I saw that has an > extra

fold in her right thigh just like the baby in the picture on the > intro page. will be 6 months old on Saturday and as I continued > to read, I realized that the later DDH is diagnosed, the more > complicated the treatment can become. was diagnosed with tort and > began PT at 10 weeks. How come my ped did not notice a problem then or > at her 4 month well check? I called and made an appt to take to a > ped orthop surg but they can't see us until AUG 31. Does anyone have a > baby with an extra skin fold that did not have DDH??? > > BTW- thanks to G for posting the site. I had heard that DDH was > a risk for babies with tort, but since my ped never mentioned it, I > assumed that her hips were okay. > > Lori> mom to / tort/ plagio/ DOC banded 7/16For more plagio info

[Guest guest]

Lori-

Thanks for your sweet note. I want to apologize if anything I said upset you. Reading later what I wrote, I thought "Oh no, I frightened this poor girl and I totally meant to do the opposite!" I hope that does not have dysplasia. I really do. You have been through enough! It is possible that due to the torticollis she has favored one leg over another and so one has more muscle definition than the other. Sarabeth had one leg that was a bit longer than the other, too (due to the leg being out of the socket), which it sounds you like you don't have which is a good sign!

Just for your information, our physical therapist found it while treating torticollis - one leg longer and the fat folds not matching up. Sarabeth was X-rayed and we started treatment immediately. It really has not been that bad. MUCH better earlier than later. It is much harder on us than them (the first few days are always tough with these treatments it seems - helmet or harness - then the child does not know that life is without it). I must say I feel like a real Mom now - show me the secret handshake and give me the decoder ring!!! I am official!

Sarabeth was named for her two great grandmothers - Sara and . There is also a wonderful brunch place in New York City called Sarabeth's (they also make wonderful jams you can get in the mail) and since my husband and I met and were engaged in NYC, we call her Sarabeth. is such a dear, sweet girl's name. How did you choose it?

Last night was Sarabeth's first night sleeping in the helmet. She did not nap well so she woke up twice in the night for 5 minutes each and went back to sleep because she was so exhausted. She is not trying to fight it as much as I expected. We are lucky! It was much better than we anticipated.

I will be thinking about you on 8-26 and praying that she does not have it.

Much love and support,

Gump

Atlanta, GA

Mom to Sarabeth (6 1/2 months)

DDH/Tort/Plag/Starband 8-18 Lori Augustine <laugust26@...> wrote:

Hi ,

Thanks so much for your post! I love the name Sarabeth!! You are right about this being treatable. I think I have just been so focused on 's pt and getting her through her DOC band that I was not prepared for something else like this to come up. Thanks for your support !How are things going with Sarabeth's band?

Lori

mom to (6 months)/ tort/ plagio/ DOC banded 7/16

being evaluated for DDH 8/26maryegump <maryegump@...> wrote:

I hope this puts your mind at ease in some way. My baby was diagnosed with torticollis and plagiocephaly after much prodding of the pediatrician by my husband and me. Our pediatrician finally sent us to a specialist who sent us to physicial therapy. Our physical therapist discovered the hip dysplasia, and I (like you are doing) reacted as quickly as possible. It is not too late to treat and it does not have to be very complicated (I am sure it depends upon the case). They are still so young. My sweetie Sarabeth was put in a Pavlik harness (5 months 3 weeks) and has been wearing it for 3 weeks now. She is scheduled to wear it for 6 months - the great thing is that it was caught before she started walking when it is harder to slow them down. The first few days are difficult (and I was

given no guidance from the ped ortho) -use tylenol to help them sleep for first few days and adjust sleep position (have tempupedic pillow under head and a bean bag under each foot) - these two comments can make ALL the difference! Plus distract, distract, distract and they get used to it. The great thing about this, as well as the helmet, is that there is a solution for this problem. This is temporary and then your child can run and play with nary a problem for the rest of their life because of the discomfort you (and they go thru) for a few months.We just started the helmet yesterday. Mom to Sarabethtort/plag/hip dysplasia STAR banded 8-18> Yesterday G. posted a site for hip problems (www.hip-baby.org) > and I took a look at it. My heart sank when I saw that has an > extra

fold in her right thigh just like the baby in the picture on the > intro page. will be 6 months old on Saturday and as I continued > to read, I realized that the later DDH is diagnosed, the more > complicated the treatment can become. was diagnosed with tort and > began PT at 10 weeks. How come my ped did not notice a problem then or > at her 4 month well check? I called and made an appt to take to a > ped orthop surg but they can't see us until AUG 31. Does anyone have a > baby with an extra skin fold that did not have DDH??? > > BTW- thanks to G for posting the site. I had heard that DDH was > a risk for babies with tort, but since my ped never mentioned it, I > assumed that her hips were okay. > > Lori> mom to / tort/ plagio/ DOC banded 7/16For more plagio info

[Guest guest]

,

There is no need to apologize at all - you did not upset me. On the contrary, I appreciate you sharing your experience with me. I don't think one of 's legs is longer, but it is hard to tell without pulling her legs straight out and I have been advised not to do that. I have heard from some other parents whose tort babies had the extra fold on the non-tort side leg and there was no dysplasia - hopefully we will know one way or the other by Friday. If she does have DDH, I know we will get through it just like you are with Sarabeth. You ARE a real mom, that is for sure!

My husband and I had decided we liked the name for a girl prior to our marriage. During our wedding mass, the priest told a story of our first child- a girl named . We thought this was funny since he did not know that name was one we planned to use (he used it because it is the name of his niece). Turns out it was a sign of things to come - I got pregnant a few days later on our honeymoon and when it turned out to be a girl, we had to name her . Her full name is Margaret (Margaret was the name of my husband's favorite aunt).

I am glad that Sarabeth is doing pretty well in her band. How were the naps and nights over the weekend? Does she have any red spots? She's a real trooper with the pavlik and a band!!!

Thanks so much for the prayers and support!

Lori

mom to (6 months)/ tort/ plagio/ DOC banded 7/16

being evaluated for DDH 8/26

Gump <maryegump@...> wrote:

Lori-

Thanks for your sweet note. I want to apologize if anything I said upset you. Reading later what I wrote, I thought "Oh no, I frightened this poor girl and I totally meant to do the opposite!" I hope that does not have dysplasia. I really do. You have been through enough! It is possible that due to the torticollis she has favored one leg over another and so one has more muscle definition than the other. Sarabeth had one leg that was a bit longer than the other, too (due to the leg being out of the socket), which it sounds you like you don't have which is a good sign!

Just for your information, our physical therapist found it while treating torticollis - one leg longer and the fat folds not matching up. Sarabeth was X-rayed and we started treatment immediately. It really has not been that bad. MUCH better earlier than later. It is much harder on us than them (the first few days are always tough with these treatments it seems - helmet or harness - then the child does not know that life is without it). I must say I feel like a real Mom now - show me the secret handshake and give me the decoder ring!!! I am official!

Sarabeth was named for her two great grandmothers - Sara and . There is also a wonderful brunch place in New York City called Sarabeth's (they also make wonderful jams you can get in the mail) and since my husband and I met and were engaged in NYC, we call her Sarabeth. is such a dear, sweet girl's name. How did you choose it?

Last night was Sarabeth's first night sleeping in the helmet. She did not nap well so she woke up twice in the night for 5 minutes each and went back to sleep because she was so exhausted. She is not trying to fight it as much as I expected. We are lucky! It was much better than we anticipated.

I will be thinking about you on 8-26 and praying that she does not have it.

Much love and support,

Gump

Atlanta, GA

Mom to Sarabeth (6 1/2 months)

DDH/Tort/Plag/Starband 8-18 Lori Augustine <laugust26@...> wrote:

Hi ,

Thanks so much for your post! I love the name Sarabeth!! You are right about this being treatable. I think I have just been so focused on 's pt and getting her through her DOC band that I was not prepared for something else like this to come up. Thanks for your support !How are things going with Sarabeth's band?

Lori

mom to (6 months)/ tort/ plagio/ DOC banded 7/16

being evaluated for DDH 8/26maryegump <maryegump@...> wrote:

I hope this puts your mind at ease in some way. My baby was diagnosed with torticollis and plagiocephaly after much prodding of the pediatrician by my husband and me. Our pediatrician finally sent us to a specialist who sent us to physicial therapy. Our physical therapist discovered the hip dysplasia, and I (like you are doing) reacted as quickly as possible. It is not too late to treat and it does not have to be very complicated (I am sure it depends upon the case). They are still so young. My sweetie Sarabeth was put in a Pavlik harness (5 months 3 weeks) and has been wearing it for 3 weeks now. She is scheduled to wear it for 6 months - the great thing is that it was caught before she started walking when it is harder to slow them down. The first few days are difficult (and I was

given no guidance from the ped ortho) -use tylenol to help them sleep for first few days and adjust sleep position (have tempupedic pillow under head and a bean bag under each foot) - these two comments can make ALL the difference! Plus distract, distract, distract and they get used to it. The great thing about this, as well as the helmet, is that there is a solution for this problem. This is temporary and then your child can run and play with nary a problem for the rest of their life because of the discomfort you (and they go thru) for a few months.We just started the helmet yesterday. Mom to Sarabethtort/plag/hip dysplasia STAR banded 8-18> Yesterday G. posted a site for hip problems (www.hip-baby.org) > and I took a look at it. My heart sank when I saw that has an > extra

fold in her right thigh just like the baby in the picture on the > intro page. will be 6 months old on Saturday and as I continued > to read, I realized that the later DDH is diagnosed, the more > complicated the treatment can become. was diagnosed with tort and > began PT at 10 weeks. How come my ped did not notice a problem then or > at her 4 month well check? I called and made an appt to take to a > ped orthop surg but they can't see us until AUG 31. Does anyone have a > baby with an extra skin fold that did not have DDH??? > > BTW- thanks to G for posting the site. I had heard that DDH was > a risk for babies with tort, but since my ped never mentioned it, I > assumed that her hips were okay. > > Lori> mom to / tort/ plagio/ DOC banded 7/16For more plagio info

[Guest guest]

--

What a month you guys have had. Pavlik harnass and Starband. Sarabeth must be quite the trooper. I don't know whether I am glad that we dealt with each issue at a different time or it is better to jump in with both feet and tackle everything at once. LOL. Georgia went into her Pavlik harnass at 9 weeks. Naturally, after the first few days she was fine, it took me a little longer. We are now out of the harnass after nearly 4 months of treatment (as of 7/21/05). Georgia got her Starband on Saturday (8/20). Now we are trying to adjust to that. Tomorrow night will be the first night we try to sleep her in it overnight. My fingers are crossed....

Good luck with everything. I hope that Sarabeth responds well to both her harnass and helmet. And I hope her tort resolves.

As for the Tylenol advice....we weren't even told that, but I quickly figured it out. In addition, I used to give her a dose of Tylenol at her ped ortho visits when he adjusted the abduction straps. Eventually I was able to stop doing this but as long as she was tightly harnassed, even slight changes seemed to cause her some discomfort. (It's a little hard to tell sometimes because she is a very intense baby...no whimpering, only screeching...no matter how insignificant her complaint! LOL. It's a good thing I have learned to tolerate it and I love her none the less!!)

(mom to Georgia, 7 mos old. DDH/plagio. Starband 8/20/05)

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of maryegumpSent: Friday, August 19, 2005 5:06 AMPlagiocephaly Subject: Re: DDH - please help!I hope this puts your mind at ease in some way. My baby was diagnosed with torticollis and plagiocephaly after much prodding of the pediatrician by my husband and me. Our pediatrician finally sent us to a specialist who sent us to physicial therapy. Our physical therapist discovered the hip dysplasia, and I (like you are doing) reacted as quickly as possible. It is not too late to treat and it does not have to be very complicated (I am sure it depends upon the case). They are still so young. My sweetie Sarabeth was put in a Pavlik harness (5 months 3 weeks) and has been wearing it for 3 weeks now. She is scheduled to wear it for 6 months - the great thing is that it was caught before she started walking when it is harder to slow them down. The first few days are difficult (and I was given no guidance from the ped ortho) -use tylenol to help them sleep for first few days and adjust sleep position (have tempupedic pillow under head and a bean bag under each foot) - these two comments can make ALL the difference! Plus distract, distract, distract and they get used to it. The great thing about this, as well as the helmet, is that there is a solution for this problem. This is temporary and then your child can run and play with nary a problem for the rest of their life because of the discomfort you (and they go thru) for a few months.We just started the helmet yesterday. Mom to Sarabethtort/plag/hip dysplasia STAR banded 8-18> Yesterday G. posted a site for hip problems (www.hip-baby.org) > and I took a look at it. My heart sank when I saw that has an > extra fold in her right thigh just like the baby in the picture on the > intro page. will be 6 months old on Saturday and as I continued > to read, I realized that the later DDH is diagnosed, the more > complicated the treatment can become. was diagnosed with tort and > began PT at 10 weeks. How come my ped did not notice a problem then or > at her 4 month well check? I called and made an appt to take to a > ped orthop surg but they can't see us until AUG 31. Does anyone have a > baby with an extra skin fold that did not have DDH??? > > BTW- thanks to G for posting the site. I had heard that DDH was > a risk for babies with tort, but since my ped never mentioned it, I > assumed that her hips were okay. > > Lori> mom to / tort/ plagio/ DOC banded 7/16