Re: [matthewsfriends] Hi et al, update from Nicola

[Guest guest]

Hi ,

its Nicola, mum to , aged 7 on the MCT diet , dairy free, for 6 mths.

We are now down to 25mg epilim twice daily(1/4 tablet twice daily), next

stop zero medication.

Matt has around 65 myoclonics a week currently, this is higher than on the

when he was on 3 tablets twice daily but I will try fine tuning after the wean.

He is still constipated(since Jan 2004!),he poos twice weekly with a soapy

water enema.

He is on the calcium/magnesium liquid that I import from the States(needed

an aspartate free Ca supplement) and that has been better for us than senna re

constipation(senna worked well initially then stopped).

On a personal note, we are hoping to move to an old (1850's) house near the

sea, in Devon still and do it up ourselves.I still work as a veterinary

surgeon (very part time) but have got into college to do plumbing(yes that was

not

a typo) and am looking for a course in lime rendering.

Thought for today(says it on my mug): I CAN HANDLE ANYTHING I HAVE CHILDREN.

Fill me in on whats happening with you ,

Nicola