Re: new here/2 weeks on the diet..into to stella

[Guest guest]

Great to meet you, . I'm sorry to hear that your dietician was making

such mistakes. It is so important for us to double check. Did you double

check her calorie calculation too? Let us know if you need help with that.

It sounds like your daughter has been in non-convulsive status. Wow what a

lot of meds! Do you have a diagnosis from your neurologist? Many families

like mine with a diagnosis of Doose's Syndrome/Myoclonic Astatic Epilepsy

feel that it was the topamax that set our children off to the world of

multiple seizure types. That may have an impact no matter what the

diagnosis.

You may already know this, so forgive me. The diamox is going to make

Stella more acidic. You have to watch those ketone strips for readings that

are too dark. If you see this along with symptoms of acidosis like red

cheeks, rapid breathing, drunken appearance, nausea or vomiting - give a

spoonful of juice and call your doctor to make a change. The diamox may

need to be reduced or diet adjusted.

The effect of the valium will also be magnified once ketosis has a chance to

set in. Many on a benzodiazepine like valium find that it needs to be

weaned first. And then, viola! There's a lively child underneath! The

diet enables us to get to this point.

Best wishes,

Ann Shepard

Mom to Lynden, keto, prednisone, zarontin

new here/2 weeks on the diet..into to stella

Hello, My name is I am the mom to stella who is 5 years

old, she's been on the diet for almost 2 weeks now, the first

week was terrible, after being discharged from the hospital she

started seizing again. After much frustration we ended back in

the hospital to fine tune the diet.

We live in Seattle and there is only one dietician here, her

program was calculating stella's meals at a 3.5-1 ratio, I was

reading a lot of info on meal plans and saw a lot of parents use

the stanford planner, I calculated the same meal plans at a 2.8-1

or a 3.2-1 ratio, obviously not high enough! Stella is now on a

3.75-1 ratio and the dietician has switched to the stanford

planner, and so far no seizures.

To give you guys a little history of our journey w/ E, stella had 2

febrile seizures before she was 1, at 1 she had another seizure

lasting 30mins was put on topomax and jumping forward

10meds and 4 years, this year has been awful, up to 100+

seizures a day including TC's, drop,partial, absense, myoclonic

and complex partial. She's on valium, lamictal, diamox, and now

the diet w/ carnatine, calcimex added. For a while we thought

our daughter had a fate worse than death, she'd have an

absense seizure lasting almost all day with the breaks being

only to drop/ or have a GM seizure.

We are doing the diet totaly vegeterian, and i'm doing her meal

plans, so far so good, but would love some ideas from you pros

out there.

What is this about the atkins products, I looked at some and they

seem really high in carbs still. Is anyone out there using them

with success? How do you calculate the nutritional analysis

when it gives you cooked and also dry mix weights. I'd hate to

make a mista

Anyway that was long, can't wait to hear from you guys

amanda

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Great to meet you, . I'm sorry to hear that your dietician was making

such mistakes. It is so important for us to double check. Did you double

check her calorie calculation too? Let us know if you need help with that.

It sounds like your daughter has been in non-convulsive status. Wow what a

lot of meds! Do you have a diagnosis from your neurologist? Many families

like mine with a diagnosis of Doose's Syndrome/Myoclonic Astatic Epilepsy

feel that it was the topamax that set our children off to the world of

multiple seizure types. That may have an impact no matter what the

diagnosis.

You may already know this, so forgive me. The diamox is going to make

Stella more acidic. You have to watch those ketone strips for readings that

are too dark. If you see this along with symptoms of acidosis like red

cheeks, rapid breathing, drunken appearance, nausea or vomiting - give a

spoonful of juice and call your doctor to make a change. The diamox may

need to be reduced or diet adjusted.

The effect of the valium will also be magnified once ketosis has a chance to

set in. Many on a benzodiazepine like valium find that it needs to be

weaned first. And then, viola! There's a lively child underneath! The

diet enables us to get to this point.

Best wishes,

Ann Shepard

Mom to Lynden, keto, prednisone, zarontin

new here/2 weeks on the diet..into to stella

Hello, My name is I am the mom to stella who is 5 years

old, she's been on the diet for almost 2 weeks now, the first

week was terrible, after being discharged from the hospital she

started seizing again. After much frustration we ended back in

the hospital to fine tune the diet.

We live in Seattle and there is only one dietician here, her

program was calculating stella's meals at a 3.5-1 ratio, I was

reading a lot of info on meal plans and saw a lot of parents use

the stanford planner, I calculated the same meal plans at a 2.8-1

or a 3.2-1 ratio, obviously not high enough! Stella is now on a

3.75-1 ratio and the dietician has switched to the stanford

planner, and so far no seizures.

To give you guys a little history of our journey w/ E, stella had 2

febrile seizures before she was 1, at 1 she had another seizure

lasting 30mins was put on topomax and jumping forward

10meds and 4 years, this year has been awful, up to 100+

seizures a day including TC's, drop,partial, absense, myoclonic

and complex partial. She's on valium, lamictal, diamox, and now

the diet w/ carnatine, calcimex added. For a while we thought

our daughter had a fate worse than death, she'd have an

absense seizure lasting almost all day with the breaks being

only to drop/ or have a GM seizure.

We are doing the diet totaly vegeterian, and i'm doing her meal

plans, so far so good, but would love some ideas from you pros

out there.

What is this about the atkins products, I looked at some and they

seem really high in carbs still. Is anyone out there using them

with success? How do you calculate the nutritional analysis

when it gives you cooked and also dry mix weights. I'd hate to

make a mista

Anyway that was long, can't wait to hear from you guys

amanda

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Great to meet you, . I'm sorry to hear that your dietician was making

such mistakes. It is so important for us to double check. Did you double

check her calorie calculation too? Let us know if you need help with that.

It sounds like your daughter has been in non-convulsive status. Wow what a

lot of meds! Do you have a diagnosis from your neurologist? Many families

like mine with a diagnosis of Doose's Syndrome/Myoclonic Astatic Epilepsy

feel that it was the topamax that set our children off to the world of

multiple seizure types. That may have an impact no matter what the

diagnosis.

You may already know this, so forgive me. The diamox is going to make

Stella more acidic. You have to watch those ketone strips for readings that

are too dark. If you see this along with symptoms of acidosis like red

cheeks, rapid breathing, drunken appearance, nausea or vomiting - give a

spoonful of juice and call your doctor to make a change. The diamox may

need to be reduced or diet adjusted.

The effect of the valium will also be magnified once ketosis has a chance to

set in. Many on a benzodiazepine like valium find that it needs to be

weaned first. And then, viola! There's a lively child underneath! The

diet enables us to get to this point.

Best wishes,

Ann Shepard

Mom to Lynden, keto, prednisone, zarontin

new here/2 weeks on the diet..into to stella

Hello, My name is I am the mom to stella who is 5 years

old, she's been on the diet for almost 2 weeks now, the first

week was terrible, after being discharged from the hospital she

started seizing again. After much frustration we ended back in

the hospital to fine tune the diet.

We live in Seattle and there is only one dietician here, her

program was calculating stella's meals at a 3.5-1 ratio, I was

reading a lot of info on meal plans and saw a lot of parents use

the stanford planner, I calculated the same meal plans at a 2.8-1

or a 3.2-1 ratio, obviously not high enough! Stella is now on a

3.75-1 ratio and the dietician has switched to the stanford

planner, and so far no seizures.

To give you guys a little history of our journey w/ E, stella had 2

febrile seizures before she was 1, at 1 she had another seizure

lasting 30mins was put on topomax and jumping forward

10meds and 4 years, this year has been awful, up to 100+

seizures a day including TC's, drop,partial, absense, myoclonic

and complex partial. She's on valium, lamictal, diamox, and now

the diet w/ carnatine, calcimex added. For a while we thought

our daughter had a fate worse than death, she'd have an

absense seizure lasting almost all day with the breaks being

only to drop/ or have a GM seizure.

We are doing the diet totaly vegeterian, and i'm doing her meal

plans, so far so good, but would love some ideas from you pros

out there.

What is this about the atkins products, I looked at some and they

seem really high in carbs still. Is anyone out there using them

with success? How do you calculate the nutritional analysis

when it gives you cooked and also dry mix weights. I'd hate to

make a mista

Anyway that was long, can't wait to hear from you guys

amanda

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

amanda... I use this free meal planner.

http://www.php.com/sigsupplements/ketogenic/ketoxls.htm

It comes with some stuff built in already and you can add new foods. Since you

are doing vegitarian (wow! how do you do that with so much fat!) the mixture

part I'm sure would be helpful for you. You put in whatever foods you'll be

using in the food values section. After that you can go to the mixture section

and put in exactly the foods you use and how much (in grams) of each to make a

total recipe. It will tell you exactly how much of the total recipe you can give

Stella. For instance I made this quiche type thing with ground turkey as the

" crust " and added fat and extra cheese in the egg part. It gives you total

values of fat, protein and carbs per 1-- grams. You can then put the totals in

the food values section to make it easy to calculate Stellas meal. You can put

in at the top how much protein she gets, how much fat and carbs. Even put in her

ratio and how many meals she gets a day. Easy as pie to then pull it all

together into simple meals. I know it sounds like a lot of work but it's the

easiest thing I've found! I love to cookand the mixture area has helped loads.

Ally

new here/2 weeks on the diet..into to stella

Hello, My name is I am the mom to stella who is 5 years

old, she's been on the diet for almost 2 weeks now, the first

week was terrible, after being discharged from the hospital she

started seizing again. After much frustration we ended back in

the hospital to fine tune the diet.

We live in Seattle and there is only one dietician here, her

program was calculating stella's meals at a 3.5-1 ratio, I was

reading a lot of info on meal plans and saw a lot of parents use

the stanford planner, I calculated the same meal plans at a 2.8-1

or a 3.2-1 ratio, obviously not high enough! Stella is now on a

3.75-1 ratio and the dietician has switched to the stanford

planner, and so far no seizures.

To give you guys a little history of our journey w/ E, stella had 2

febrile seizures before she was 1, at 1 she had another seizure

lasting 30mins was put on topomax and jumping forward

10meds and 4 years, this year has been awful, up to 100+

seizures a day including TC's, drop,partial, absense, myoclonic

and complex partial. She's on valium, lamictal, diamox, and now

the diet w/ carnatine, calcimex added. For a while we thought

our daughter had a fate worse than death, she'd have an

absense seizure lasting almost all day with the breaks being

only to drop/ or have a GM seizure.

We are doing the diet totaly vegeterian, and i'm doing her meal

plans, so far so good, but would love some ideas from you pros

out there.

What is this about the atkins products, I looked at some and they

seem really high in carbs still. Is anyone out there using them

with success? How do you calculate the nutritional analysis

when it gives you cooked and also dry mix weights. I'd hate to

make a mistake.

Anyway that was long, can't wait to hear from you guys

amanda

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

amanda... I use this free meal planner.

http://www.php.com/sigsupplements/ketogenic/ketoxls.htm

It comes with some stuff built in already and you can add new foods. Since you

are doing vegitarian (wow! how do you do that with so much fat!) the mixture

part I'm sure would be helpful for you. You put in whatever foods you'll be

using in the food values section. After that you can go to the mixture section

and put in exactly the foods you use and how much (in grams) of each to make a

total recipe. It will tell you exactly how much of the total recipe you can give

Stella. For instance I made this quiche type thing with ground turkey as the

" crust " and added fat and extra cheese in the egg part. It gives you total

values of fat, protein and carbs per 1-- grams. You can then put the totals in

the food values section to make it easy to calculate Stellas meal. You can put

in at the top how much protein she gets, how much fat and carbs. Even put in her

ratio and how many meals she gets a day. Easy as pie to then pull it all

together into simple meals. I know it sounds like a lot of work but it's the

easiest thing I've found! I love to cookand the mixture area has helped loads.

Ally

new here/2 weeks on the diet..into to stella

Hello, My name is I am the mom to stella who is 5 years

old, she's been on the diet for almost 2 weeks now, the first

week was terrible, after being discharged from the hospital she

started seizing again. After much frustration we ended back in

the hospital to fine tune the diet.

We live in Seattle and there is only one dietician here, her

program was calculating stella's meals at a 3.5-1 ratio, I was

reading a lot of info on meal plans and saw a lot of parents use

the stanford planner, I calculated the same meal plans at a 2.8-1

or a 3.2-1 ratio, obviously not high enough! Stella is now on a

3.75-1 ratio and the dietician has switched to the stanford

planner, and so far no seizures.

To give you guys a little history of our journey w/ E, stella had 2

febrile seizures before she was 1, at 1 she had another seizure

lasting 30mins was put on topomax and jumping forward

10meds and 4 years, this year has been awful, up to 100+

seizures a day including TC's, drop,partial, absense, myoclonic

and complex partial. She's on valium, lamictal, diamox, and now

the diet w/ carnatine, calcimex added. For a while we thought

our daughter had a fate worse than death, she'd have an

absense seizure lasting almost all day with the breaks being

only to drop/ or have a GM seizure.

We are doing the diet totaly vegeterian, and i'm doing her meal

plans, so far so good, but would love some ideas from you pros

out there.

What is this about the atkins products, I looked at some and they

seem really high in carbs still. Is anyone out there using them

with success? How do you calculate the nutritional analysis

when it gives you cooked and also dry mix weights. I'd hate to

make a mistake.

Anyway that was long, can't wait to hear from you guys

amanda

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

amanda... I use this free meal planner.

http://www.php.com/sigsupplements/ketogenic/ketoxls.htm

It comes with some stuff built in already and you can add new foods. Since you

are doing vegitarian (wow! how do you do that with so much fat!) the mixture

part I'm sure would be helpful for you. You put in whatever foods you'll be

using in the food values section. After that you can go to the mixture section

and put in exactly the foods you use and how much (in grams) of each to make a

total recipe. It will tell you exactly how much of the total recipe you can give

Stella. For instance I made this quiche type thing with ground turkey as the

" crust " and added fat and extra cheese in the egg part. It gives you total

values of fat, protein and carbs per 1-- grams. You can then put the totals in

the food values section to make it easy to calculate Stellas meal. You can put

in at the top how much protein she gets, how much fat and carbs. Even put in her

ratio and how many meals she gets a day. Easy as pie to then pull it all

together into simple meals. I know it sounds like a lot of work but it's the

easiest thing I've found! I love to cookand the mixture area has helped loads.

Ally

new here/2 weeks on the diet..into to stella

Hello, My name is I am the mom to stella who is 5 years

old, she's been on the diet for almost 2 weeks now, the first

week was terrible, after being discharged from the hospital she

started seizing again. After much frustration we ended back in

the hospital to fine tune the diet.

We live in Seattle and there is only one dietician here, her

program was calculating stella's meals at a 3.5-1 ratio, I was

reading a lot of info on meal plans and saw a lot of parents use

the stanford planner, I calculated the same meal plans at a 2.8-1

or a 3.2-1 ratio, obviously not high enough! Stella is now on a

3.75-1 ratio and the dietician has switched to the stanford

planner, and so far no seizures.

To give you guys a little history of our journey w/ E, stella had 2

febrile seizures before she was 1, at 1 she had another seizure

lasting 30mins was put on topomax and jumping forward

10meds and 4 years, this year has been awful, up to 100+

seizures a day including TC's, drop,partial, absense, myoclonic

and complex partial. She's on valium, lamictal, diamox, and now

the diet w/ carnatine, calcimex added. For a while we thought

our daughter had a fate worse than death, she'd have an

absense seizure lasting almost all day with the breaks being

only to drop/ or have a GM seizure.

We are doing the diet totaly vegeterian, and i'm doing her meal

plans, so far so good, but would love some ideas from you pros

out there.

What is this about the atkins products, I looked at some and they

seem really high in carbs still. Is anyone out there using them

with success? How do you calculate the nutritional analysis

when it gives you cooked and also dry mix weights. I'd hate to

make a mistake.

Anyway that was long, can't wait to hear from you guys

amanda

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

on 5/29/04 9:21 AM, Allyson Kulinski at allyson@... wrote:

amanda... I use this free meal planner.

http://www.php.com/sigsupplements/ketogenic/ketoxls.htm

It comes with some stuff built in already and you can add new foods. Since

you are doing vegitarian (wow! how do you do that with so much fat!) the

mixture part I'm sure would be helpful for you. You put in whatever foods

you'll be using in the food values section. After that you can go to the

mixture section and put in exactly the foods you use and how much (in grams)

of each to make a total recipe. It will tell you exactly how much of the

total recipe you can give Stella. For instance I made this quiche type thing

with ground turkey as the " crust " and added fat and extra cheese in the egg

part. It gives you total values of fat, protein and carbs per 1-- grams. You

can then put the totals in the food values section to make it easy to

calculate Stellas meal. You can put in at the top how much protein she gets,

how much fat and carbs. Even put in her ratio and how many meals she gets a

day. Easy as pie to then pull it all together into simple meals. I know it

sounds like a lot of work but it's the easiest thing I've found! I love to

cookand the mixture area has helped loads.

Ally

new here/2 weeks on the diet..into to stella

Hello, My name is I am the mom to stella who is 5 years

old, she's been on the diet for almost 2 weeks now, the first

week was terrible, after being discharged from the hospital she

started seizing again. After much frustration we ended back in

the hospital to fine tune the diet.

We live in Seattle and there is only one dietician here, her

program was calculating stella's meals at a 3.5-1 ratio, I was

reading a lot of info on meal plans and saw a lot of parents use

the stanford planner, I calculated the same meal plans at a 2.8-1

or a 3.2-1 ratio, obviously not high enough! Stella is now on a

3.75-1 ratio and the dietician has switched to the stanford

planner, and so far no seizures.

To give you guys a little history of our journey w/ E, stella had 2

febrile seizures before she was 1, at 1 she had another seizure

lasting 30mins was put on topomax and jumping forward

10meds and 4 years, this year has been awful, up to 100+

seizures a day including TC's, drop,partial, absense, myoclonic

and complex partial. She's on valium, lamictal, diamox, and now

the diet w/ carnatine, calcimex added. For a while we thought

our daughter had a fate worse than death, she'd have an

absense seizure lasting almost all day with the breaks being

only to drop/ or have a GM seizure.

We are doing the diet totaly vegeterian, and i'm doing her meal

plans, so far so good, but would love some ideas from you pros

out there.

What is this about the atkins products, I looked at some and they

seem really high in carbs still. Is anyone out there using them

with success? How do you calculate the nutritional analysis

when it gives you cooked and also dry mix weights. I'd hate to

make a mistake.

Anyway that was long, can't wait to hear from you guys

amanda

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe