CHARGE Manual on the web!!

[Guest guest]

Hi everybody,

I have the great pleasure of being the person who gets to

announce that the CHARGE Syndrome Foundation website now has

CHARGE Syndrome: a management manual for parents available

on the Internet in pdf format.

You can access it section by section or download the entire

Manual. Photos and all! A HUGE thank you goes to Jay Bradup

(dad of the lovely Adele, recent cover girl on ADVANCE)

who’s company Kineticcom.com did all the work for us.

While you are there (www.chargesyndrome.com), check out

other Foundation info – join the Foundation (the paltry

membership dues of $15 per year for a family helps keep the

Foundation going), join a committee, or just look at all

those wonderful photos of the kids.

We are just beginning the project of updating the Manual.

As sections are updated, we’ll replace old sections. They

all have dates on them, so you can tell which sections are

new. Go, look, enjoy, send us comments (click on Future

Additions to the Manual at the bottom of the Manual page of

the website). This is so exciting, I can hardly stand it!

Meg

Meg Hefner, M.S.

Genetic Counselor

St. Louis, MO

hefnerma@... meg@...