Re: New to Board - Daughter Positional Plagio

[Guest guest]

Night time positioning can be the worse! Leah manages to push all

the rolled blankets away from her and turns herself back to her

preferred side several times a night. I have bladder issues so

everytime I get up to go I reposition her as needed. The older they

get the harder it is to position them on the non-flat side. I wish

I could help more. Other then the side sleeper accessories they

sell and rolled blankets for props I cant think of anything else

that would work? There is only so much we can do Now I have the

worry of her suffocating herself with her blankets. I am ready to

take out the blankets as she is picking them up and pulling them

over her face and head now. She rolls to her side (only her

preferred side though) and I imagine when she rolls to her tummy I

wont want blankets in the crib. Any ideas?

> > Hi everyone. It is great to find a support system on positional

> > plagiocephaly. My 4 1/2 month old daughter was recently

diagnosed

> > with positional plagiocephaly and is currently being referred to

a

> > neurosurgeon and also early intervention for possible

> torticollis.

> > My daughter wasnt even 2 weeks old and I had already noticed

> > flattening of the back and left of her skull, favoring one side.

> > Instinctively I started doing all kinds of repositioning and the

> > flattening continued to get slowly worse (not so much the side,

> but

> > the back did). I brought it up at EVERY doctors visit and until

> her

> > 4 month visit they just kept saying it happens to alot of

babies,

> > try this, this and that. Finally at the 4 month visit they

ordered

> > an xray to make sure it wasnt premature fusing of the skull. The

> > xray came back inconclusive so she went in for a catscan. The ct

> > came back ok and the diagnosis was positional. Needless to say

> the

> > last 4 1/2 months have been a battle to try and keep my

daughters

> > skull from looking deformed! Even with the constant

> repositioning,

> > head cushions, neck stretching, tummy time, massaging, etc her

> head

> > is still noticeably flat. I cant imagine what it would look

like

> if

> > I had done nothing! Unfortunately it doesnt seem that I can do

it

> > completely on my own. All my efforts I am sure have helped but

> they

> > are not going to give Leah the best opportunity at a " normal "

head

> > shape. Then I worry about the risks associated with plagio

> (vision,

> > speech, motor skills, psychological effects).

> >

> > Any advice for a newbie?

> >

> > Any ideas for toys at her age to keep the pressure off her head

> > (swings, bouncers, etc all allow pressure on their heads). I do

> > have the intellitainer by fisher price (kind of like a exosaucer

> > except it doesnt sway or bounce) and we use that a few times

daily

> > but she isnt very interested in it seeing as she cant reach any

of

> > the toys. We try tummy time many times a day and it doesnt seem

> > very successful! She absolutely hates it. CRY! SCREAM!

WHAIL!

> > Even when I put a rolled blanket under her chest to raise her.

> >

> > Any advice, tips, comments, anything would be greatly

> appreciated.

> >

> > Thanks,

> >

> > 4 1/2 mo w/ plagio

> > New York

>

>

>

>

> For more plagio info