Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Hi Lacey, Ugh, drama, it sounds like you have had your share. No one makes it easy for Mom! So glad to hear you got your son banded and that the torticollis has resolved with therapy. I will be anxious to hear your " keeping cool strategies " for the upcoming months. Keep us posted please, let us know how he does in his band next week. Lynette, mom to Nicolas, 12 months plagio/brachy/resolved tort/second DOC band Murrieta, CA (stinkin' hot desert-like weather soon) > Hello! My name is Lacey. I just found out about this group, and I > am so glad. My son will be 9 months old on May 23rd, and we hope to > be getting his first helmet fitted next week. There has been so > much drama surrounding this. When he was 2 month old, I noticed his > head was getting extremley flat on the right side. The doctor said > he had torticollis, and we were referred to physical therapy. We > went every two weeks for two months. His torticollis went away, but > no matter what positioning we did his head shape did not get > better. They recommended the helmet. We went to the doctor to get > the Rx, and she said something was wrong with his head. She said it > was too large, and it was growing too fast. She ordered a ct scan > and mri, so they had to put him to sleep. She said he probably had > fluid on his brain and they would have to put a shunt in. Needless > to say, I was freaking out. We went to a neurologist. (a > Canady, if y'all have heard of her) She is wonderful. Look her up > on the web. Anyway, she said that he just has a big head, no > worries. She measured my head and my husbands, and she said Mike's > is a lot bigger than normal. Whew......... That was a relief. > Well, all that took another 6 weeks. The orthotost then said he > couldn't band him without her approval because if he did have fluid > if would be a big no-no. We had to get another appointment with > her, and she went on and on about how we did NOT need to get the > helmet. She absolutely does not believe in them. She convinced my > husband, but I wasn't convinced. She wrote the Rx, though, and gave > it to me March 1. Mike was so against it after talking to her that > I did not go get the helmet. Two more months have went by, and I > can't take it anymore. I can know that I could do something to help > him and not do it, you know? We went to get fitted Tuesday, and now > the insurance company is giving us a hard time. Will it ever end? > The fact is, if the doctor hadn't started all the " big head " stuff > back in December, he would ge getting OUT of the helmet any day now > istead of just starting. We live in Florida five minutes from the > beach. It is already 90 degrees during the day, so imagine haw > miserable he will be this summer when the real Gulf Coast weather > kicks in. I just hate that it could have all been over by now. > Thanks for letting me vent. If anyone wants to chat, email me or im > on . belleonthebeach03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Hi Lacey, Ugh, drama, it sounds like you have had your share. No one makes it easy for Mom! So glad to hear you got your son banded and that the torticollis has resolved with therapy. I will be anxious to hear your " keeping cool strategies " for the upcoming months. Keep us posted please, let us know how he does in his band next week. Lynette, mom to Nicolas, 12 months plagio/brachy/resolved tort/second DOC band Murrieta, CA (stinkin' hot desert-like weather soon) > Hello! My name is Lacey. I just found out about this group, and I > am so glad. My son will be 9 months old on May 23rd, and we hope to > be getting his first helmet fitted next week. There has been so > much drama surrounding this. When he was 2 month old, I noticed his > head was getting extremley flat on the right side. The doctor said > he had torticollis, and we were referred to physical therapy. We > went every two weeks for two months. His torticollis went away, but > no matter what positioning we did his head shape did not get > better. They recommended the helmet. We went to the doctor to get > the Rx, and she said something was wrong with his head. She said it > was too large, and it was growing too fast. She ordered a ct scan > and mri, so they had to put him to sleep. She said he probably had > fluid on his brain and they would have to put a shunt in. Needless > to say, I was freaking out. We went to a neurologist. (a > Canady, if y'all have heard of her) She is wonderful. Look her up > on the web. Anyway, she said that he just has a big head, no > worries. She measured my head and my husbands, and she said Mike's > is a lot bigger than normal. Whew......... That was a relief. > Well, all that took another 6 weeks. The orthotost then said he > couldn't band him without her approval because if he did have fluid > if would be a big no-no. We had to get another appointment with > her, and she went on and on about how we did NOT need to get the > helmet. She absolutely does not believe in them. She convinced my > husband, but I wasn't convinced. She wrote the Rx, though, and gave > it to me March 1. Mike was so against it after talking to her that > I did not go get the helmet. Two more months have went by, and I > can't take it anymore. I can know that I could do something to help > him and not do it, you know? We went to get fitted Tuesday, and now > the insurance company is giving us a hard time. Will it ever end? > The fact is, if the doctor hadn't started all the " big head " stuff > back in December, he would ge getting OUT of the helmet any day now > istead of just starting. We live in Florida five minutes from the > beach. It is already 90 degrees during the day, so imagine haw > miserable he will be this summer when the real Gulf Coast weather > kicks in. I just hate that it could have all been over by now. > Thanks for letting me vent. If anyone wants to chat, email me or im > on . belleonthebeach03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Whew! Well the great news is that your son's head is just fine! What a scare though! Welcome to the group! Where are going for treatment? I know that you are worried about the heat but my son was banded in " Hotlanta " alll summer long and actually rarely sweated. It does depend on the child and you'll need to dress him lightly. Keep us posted! Natasha > Hello! My name is Lacey. I just found out about this group, and I > am so glad. My son will be 9 months old on May 23rd, and we hope to > be getting his first helmet fitted next week. There has been so > much drama surrounding this. When he was 2 month old, I noticed his > head was getting extremley flat on the right side. The doctor said > he had torticollis, and we were referred to physical therapy. We > went every two weeks for two months. His torticollis went away, but > no matter what positioning we did his head shape did not get > better. They recommended the helmet. We went to the doctor to get > the Rx, and she said something was wrong with his head. She said it > was too large, and it was growing too fast. She ordered a ct scan > and mri, so they had to put him to sleep. She said he probably had > fluid on his brain and they would have to put a shunt in. Needless > to say, I was freaking out. We went to a neurologist. (a > Canady, if y'all have heard of her) She is wonderful. Look her up > on the web. Anyway, she said that he just has a big head, no > worries. She measured my head and my husbands, and she said Mike's > is a lot bigger than normal. Whew......... That was a relief. > Well, all that took another 6 weeks. The orthotost then said he > couldn't band him without her approval because if he did have fluid > if would be a big no-no. We had to get another appointment with > her, and she went on and on about how we did NOT need to get the > helmet. She absolutely does not believe in them. She convinced my > husband, but I wasn't convinced. She wrote the Rx, though, and gave > it to me March 1. Mike was so against it after talking to her that > I did not go get the helmet. Two more months have went by, and I > can't take it anymore. I can know that I could do something to help > him and not do it, you know? We went to get fitted Tuesday, and now > the insurance company is giving us a hard time. Will it ever end? > The fact is, if the doctor hadn't started all the " big head " stuff > back in December, he would ge getting OUT of the helmet any day now > istead of just starting. We live in Florida five minutes from the > beach. It is already 90 degrees during the day, so imagine haw > miserable he will be this summer when the real Gulf Coast weather > kicks in. I just hate that it could have all been over by now. > Thanks for letting me vent. If anyone wants to chat, email me or im > on . belleonthebeach03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Lacey, Unfortunately plagio and drama seem to go together,lol. Look in the files for insurance help, maybe there will be something to help you. You amy have alot of sweating for the first week,but he will adjust to it soon enough. Dress him lightly,maybe just a diaper and a light t-shirt at night for sleeping. Let us know how it goes. CAROLG > Hello! My name is Lacey. I just found out about this group, and I > am so glad. My son will be 9 months old on May 23rd, and we hope to > be getting his first helmet fitted next week. There has been so > much drama surrounding this. When he was 2 month old, I noticed his > head was getting extremley flat on the right side. The doctor said > he had torticollis, and we were referred to physical therapy. We > went every two weeks for two months. His torticollis went away, but > no matter what positioning we did his head shape did not get > better. They recommended the helmet. We went to the doctor to get > the Rx, and she said something was wrong with his head. She said it > was too large, and it was growing too fast. She ordered a ct scan > and mri, so they had to put him to sleep. She said he probably had > fluid on his brain and they would have to put a shunt in. Needless > to say, I was freaking out. We went to a neurologist. (a > Canady, if y'all have heard of her) She is wonderful. Look her up > on the web. Anyway, she said that he just has a big head, no > worries. She measured my head and my husbands, and she said Mike's > is a lot bigger than normal. Whew......... That was a relief. > Well, all that took another 6 weeks. The orthotost then said he > couldn't band him without her approval because if he did have fluid > if would be a big no-no. We had to get another appointment with > her, and she went on and on about how we did NOT need to get the > helmet. She absolutely does not believe in them. She convinced my > husband, but I wasn't convinced. She wrote the Rx, though, and gave > it to me March 1. Mike was so against it after talking to her that > I did not go get the helmet. Two more months have went by, and I > can't take it anymore. I can know that I could do something to help > him and not do it, you know? We went to get fitted Tuesday, and now > the insurance company is giving us a hard time. Will it ever end? > The fact is, if the doctor hadn't started all the " big head " stuff > back in December, he would ge getting OUT of the helmet any day now > istead of just starting. We live in Florida five minutes from the > beach. It is already 90 degrees during the day, so imagine haw > miserable he will be this summer when the real Gulf Coast weather > kicks in. I just hate that it could have all been over by now. > Thanks for letting me vent. If anyone wants to chat, email me or im > on . belleonthebeach03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Lacey, I am so sorry about your troubles! I am glad he is finally getting his helmet! I hope it goes a little more smoothly from here on! Lauri > Hello! My name is Lacey. I just found out about this group, and I > am so glad. My son will be 9 months old on May 23rd, and we hope to > be getting his first helmet fitted next week. There has been so > much drama surrounding this. When he was 2 month old, I noticed his > head was getting extremley flat on the right side. The doctor said > he had torticollis, and we were referred to physical therapy. We > went every two weeks for two months. His torticollis went away, but > no matter what positioning we did his head shape did not get > better. They recommended the helmet. We went to the doctor to get > the Rx, and she said something was wrong with his head. She said it > was too large, and it was growing too fast. She ordered a ct scan > and mri, so they had to put him to sleep. She said he probably had > fluid on his brain and they would have to put a shunt in. Needless > to say, I was freaking out. We went to a neurologist. (a > Canady, if y'all have heard of her) She is wonderful. Look her up > on the web. Anyway, she said that he just has a big head, no > worries. She measured my head and my husbands, and she said Mike's > is a lot bigger than normal. Whew......... That was a relief. > Well, all that took another 6 weeks. The orthotost then said he > couldn't band him without her approval because if he did have fluid > if would be a big no-no. We had to get another appointment with > her, and she went on and on about how we did NOT need to get the > helmet. She absolutely does not believe in them. She convinced my > husband, but I wasn't convinced. She wrote the Rx, though, and gave > it to me March 1. Mike was so against it after talking to her that > I did not go get the helmet. Two more months have went by, and I > can't take it anymore. I can know that I could do something to help > him and not do it, you know? We went to get fitted Tuesday, and now > the insurance company is giving us a hard time. Will it ever end? > The fact is, if the doctor hadn't started all the " big head " stuff > back in December, he would ge getting OUT of the helmet any day now > istead of just starting. We live in Florida five minutes from the > beach. It is already 90 degrees during the day, so imagine haw > miserable he will be this summer when the real Gulf Coast weather > kicks in. I just hate that it could have all been over by now. > Thanks for letting me vent. If anyone wants to chat, email me or im > on . belleonthebeach03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Thanks, Lauri! I hope so, too! > > Hello! My name is Lacey. I just found out about this group, and I > > am so glad. My son will be 9 months old on May 23rd, and we hope > to > > be getting his first helmet fitted next week. There has been so > > much drama surrounding this. When he was 2 month old, I noticed > his > > head was getting extremley flat on the right side. The doctor said > > he had torticollis, and we were referred to physical therapy. We > > went every two weeks for two months. His torticollis went away, > but > > no matter what positioning we did his head shape did not get > > better. They recommended the helmet. We went to the doctor to get > > the Rx, and she said something was wrong with his head. She said > it > > was too large, and it was growing too fast. She ordered a ct scan > > and mri, so they had to put him to sleep. She said he probably had > > fluid on his brain and they would have to put a shunt in. Needless > > to say, I was freaking out. We went to a neurologist. (a > > Canady, if y'all have heard of her) She is wonderful. Look her up > > on the web. Anyway, she said that he just has a big head, no > > worries. She measured my head and my husbands, and she said Mike's > > is a lot bigger than normal. Whew......... That was a relief. > > Well, all that took another 6 weeks. The orthotost then said he > > couldn't band him without her approval because if he did have fluid > > if would be a big no-no. We had to get another appointment with > > her, and she went on and on about how we did NOT need to get the > > helmet. She absolutely does not believe in them. She convinced my > > husband, but I wasn't convinced. She wrote the Rx, though, and > gave > > it to me March 1. Mike was so against it after talking to her that > > I did not go get the helmet. Two more months have went by, and I > > can't take it anymore. I can know that I could do something to > help > > him and not do it, you know? We went to get fitted Tuesday, and > now > > the insurance company is giving us a hard time. Will it ever end? > > The fact is, if the doctor hadn't started all the " big head " stuff > > back in December, he would ge getting OUT of the helmet any day now > > istead of just starting. We live in Florida five minutes from the > > beach. It is already 90 degrees during the day, so imagine haw > > miserable he will be this summer when the real Gulf Coast weather > > kicks in. I just hate that it could have all been over by now. > > Thanks for letting me vent. If anyone wants to chat, email me or > im > > on . belleonthebeach03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 I am really worried about the sweating because he sweats SO much to begin with. I have even asked the doctor about the sweating in general because I have NEVER saw a baby sweat like this. I can only imagine how much worse it will be with the helmet. I am afraid that we'll end up not being able to wear it because of the sweating. I wonder what causes him to sweat like that. I am losing faith in the pediatrician really quick, so I am takig her replies with a grai of salt at this time. Thanks for the advice! It is greatly appreciated. > > Hello! My name is Lacey. I just found out about this group, and I > > am so glad. My son will be 9 months old on May 23rd, and we hope > to > > be getting his first helmet fitted next week. There has been so > > much drama surrounding this. When he was 2 month old, I noticed > his > > head was getting extremley flat on the right side. The doctor said > > he had torticollis, and we were referred to physical therapy. We > > went every two weeks for two months. His torticollis went away, > but > > no matter what positioning we did his head shape did not get > > better. They recommended the helmet. We went to the doctor to get > > the Rx, and she said something was wrong with his head. She said > it > > was too large, and it was growing too fast. She ordered a ct scan > > and mri, so they had to put him to sleep. She said he probably had > > fluid on his brain and they would have to put a shunt in. Needless > > to say, I was freaking out. We went to a neurologist. (a > > Canady, if y'all have heard of her) She is wonderful. Look her up > > on the web. Anyway, she said that he just has a big head, no > > worries. She measured my head and my husbands, and she said Mike's > > is a lot bigger than normal. Whew......... That was a relief. > > Well, all that took another 6 weeks. The orthotost then said he > > couldn't band him without her approval because if he did have fluid > > if would be a big no-no. We had to get another appointment with > > her, and she went on and on about how we did NOT need to get the > > helmet. She absolutely does not believe in them. She convinced my > > husband, but I wasn't convinced. She wrote the Rx, though, and > gave > > it to me March 1. Mike was so against it after talking to her that > > I did not go get the helmet. Two more months have went by, and I > > can't take it anymore. I can know that I could do something to > help > > him and not do it, you know? We went to get fitted Tuesday, and > now > > the insurance company is giving us a hard time. Will it ever end? > > The fact is, if the doctor hadn't started all the " big head " stuff > > back in December, he would ge getting OUT of the helmet any day now > > istead of just starting. We live in Florida five minutes from the > > beach. It is already 90 degrees during the day, so imagine haw > > miserable he will be this summer when the real Gulf Coast weather > > kicks in. I just hate that it could have all been over by now. > > Thanks for letting me vent. If anyone wants to chat, email me or > im > > on . belleonthebeach03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Hi, Natasha! Thanks for the reply. I grew up in Lafayette, about two hours north of Atlanta. My dad lives in Atlanta now. Hapeville, actually. What a scare indeed. Those folks are trying to give me a nervous brakedown. I am glad to hear your child did well. Hope things are still great. sweats profusely already. He has since he was born. It is just crazy at times how much he sweats for no reason. I can only imagine what it will be like when you add the helmet in the equation. I am afraid he'll end up not being able to wear it. I have asked the doctor about he sweating a thousand times, and she brushes it off. I am ready to come home to good 'ol Georgia where I know all the doctors and trust them. These doctors in Pensacola are something else. > > Hello! My name is Lacey. I just found out about this group, and > I > > am so glad. My son will be 9 months old on May 23rd, and we hope > to > > be getting his first helmet fitted next week. There has been so > > much drama surrounding this. When he was 2 month old, I noticed > his > > head was getting extremley flat on the right side. The doctor > said > > he had torticollis, and we were referred to physical therapy. We > > went every two weeks for two months. His torticollis went away, > but > > no matter what positioning we did his head shape did not get > > better. They recommended the helmet. We went to the doctor to > get > > the Rx, and she said something was wrong with his head. She said > it > > was too large, and it was growing too fast. She ordered a ct scan > > and mri, so they had to put him to sleep. She said he probably > had > > fluid on his brain and they would have to put a shunt in. > Needless > > to say, I was freaking out. We went to a neurologist. (a > > Canady, if y'all have heard of her) She is wonderful. Look her up > > on the web. Anyway, she said that he just has a big head, no > > worries. She measured my head and my husbands, and she said > Mike's > > is a lot bigger than normal. Whew......... That was a relief. > > Well, all that took another 6 weeks. The orthotost then said he > > couldn't band him without her approval because if he did have > fluid > > if would be a big no-no. We had to get another appointment with > > her, and she went on and on about how we did NOT need to get the > > helmet. She absolutely does not believe in them. She convinced > my > > husband, but I wasn't convinced. She wrote the Rx, though, and > gave > > it to me March 1. Mike was so against it after talking to her > that > > I did not go get the helmet. Two more months have went by, and I > > can't take it anymore. I can know that I could do something to > help > > him and not do it, you know? We went to get fitted Tuesday, and > now > > the insurance company is giving us a hard time. Will it ever > end? > > The fact is, if the doctor hadn't started all the " big head " > stuff > > back in December, he would ge getting OUT of the helmet any day > now > > istead of just starting. We live in Florida five minutes from the > > beach. It is already 90 degrees during the day, so imagine haw > > miserable he will be this summer when the real Gulf Coast weather > > kicks in. I just hate that it could have all been over by now. > > Thanks for letting me vent. If anyone wants to chat, email me or > im > > on . belleonthebeach03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 Hi Lacey! Sounds like you have really went through a lot dealing with your son's plagio/tort! My son is getting his helmet next week also and I'm so nervous about him adjusting to it! I hope it goes smooth! I wish you luck with getting his helmet and keep us updated! I'm sure I'll be posting a lot of questions on here after Waydon gets his helmet! It helps a lot to have these ladies who know the answers to what we're going through!! Good luck!! Lacy Mom to Waydon 6.5 months Hanger helmet th 24th!! > Hello! My name is Lacey. I just found out about this group, and I > am so glad. My son will be 9 months old on May 23rd, and we hope to > be getting his first helmet fitted next week. There has been so > much drama surrounding this. When he was 2 month old, I noticed his > head was getting extremley flat on the right side. The doctor said > he had torticollis, and we were referred to physical therapy. We > went every two weeks for two months. His torticollis went away, but > no matter what positioning we did his head shape did not get > better. They recommended the helmet. We went to the doctor to get > the Rx, and she said something was wrong with his head. She said it > was too large, and it was growing too fast. She ordered a ct scan > and mri, so they had to put him to sleep. She said he probably had > fluid on his brain and they would have to put a shunt in. Needless > to say, I was freaking out. We went to a neurologist. (a > Canady, if y'all have heard of her) She is wonderful. Look her up > on the web. Anyway, she said that he just has a big head, no > worries. She measured my head and my husbands, and she said Mike's > is a lot bigger than normal. Whew......... That was a relief. > Well, all that took another 6 weeks. The orthotost then said he > couldn't band him without her approval because if he did have fluid > if would be a big no-no. We had to get another appointment with > her, and she went on and on about how we did NOT need to get the > helmet. She absolutely does not believe in them. She convinced my > husband, but I wasn't convinced. She wrote the Rx, though, and gave > it to me March 1. Mike was so against it after talking to her that > I did not go get the helmet. Two more months have went by, and I > can't take it anymore. I can know that I could do something to help > him and not do it, you know? We went to get fitted Tuesday, and now > the insurance company is giving us a hard time. Will it ever end? > The fact is, if the doctor hadn't started all the " big head " stuff > back in December, he would ge getting OUT of the helmet any day now > istead of just starting. We live in Florida five minutes from the > beach. It is already 90 degrees during the day, so imagine haw > miserable he will be this summer when the real Gulf Coast weather > kicks in. I just hate that it could have all been over by now. > Thanks for letting me vent. If anyone wants to chat, email me or im > on . belleonthebeach03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 Lacey, I put baby powder in his helmet and that seems to help a lot w/his sweating and the smell. Hope that helps! Lauri > > > Hello! My name is Lacey. I just found out about this group, > and I > > > am so glad. My son will be 9 months old on May 23rd, and we > hope > > to > > > be getting his first helmet fitted next week. There has been so > > > much drama surrounding this. When he was 2 month old, I noticed > > his > > > head was getting extremley flat on the right side. The doctor > said > > > he had torticollis, and we were referred to physical therapy. > We > > > went every two weeks for two months. His torticollis went away, > > but > > > no matter what positioning we did his head shape did not get > > > better. They recommended the helmet. We went to the doctor to > get > > > the Rx, and she said something was wrong with his head. She > said > > it > > > was too large, and it was growing too fast. She ordered a ct > scan > > > and mri, so they had to put him to sleep. She said he probably > had > > > fluid on his brain and they would have to put a shunt in. > Needless > > > to say, I was freaking out. We went to a neurologist. (a > > > Canady, if y'all have heard of her) She is wonderful. Look her > up > > > on the web. Anyway, she said that he just has a big head, no > > > worries. She measured my head and my husbands, and she said > Mike's > > > is a lot bigger than normal. Whew......... That was a relief. > > > Well, all that took another 6 weeks. The orthotost then said he > > > couldn't band him without her approval because if he did have > fluid > > > if would be a big no-no. We had to get another appointment with > > > her, and she went on and on about how we did NOT need to get the > > > helmet. She absolutely does not believe in them. She convinced > my > > > husband, but I wasn't convinced. She wrote the Rx, though, and > > gave > > > it to me March 1. Mike was so against it after talking to her > that > > > I did not go get the helmet. Two more months have went by, and > I > > > can't take it anymore. I can know that I could do something to > > help > > > him and not do it, you know? We went to get fitted Tuesday, and > > now > > > the insurance company is giving us a hard time. Will it ever > end? > > > The fact is, if the doctor hadn't started all the " big head " > stuff > > > back in December, he would ge getting OUT of the helmet any day > now > > > istead of just starting. We live in Florida five minutes from > the > > > beach. It is already 90 degrees during the day, so imagine haw > > > miserable he will be this summer when the real Gulf Coast > weather > > > kicks in. I just hate that it could have all been over by now. > > > Thanks for letting me vent. If anyone wants to chat, email me > or > > im > > > on . belleonthebeach03 Quote Link to comment Share on other sites More sharing options...
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