Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 LOL NICOLE!! I had to put in there everything I could cross just for you and Hayley. Hugs, Crystal and Eva ( 1 year old CHARGEr) > >> > >> Hi all just a quick note to say that Hayley has improved out of > > site and > >> is on the way home this week. > >> > >> The plan is to go home Thursday,,, so please fingers and legs > > cross to > >> this happening... I would very much love to take my Little miss > > home after > >> six weeks in hospital this coming Wednesday. > >> > >> Hope is all well for you all... ( I am way way way behind on the > > emails) > >> > >> Love NIcole xoxo > >> > >> Australia > >> > > > > > > > > > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > http://www.imagestation.com/album/?id=2117043995 > > > > Membership of this email support group does not constitute membership in > > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter), > > please contact marion@... or visit > > the web site at http://www.chargesyndrome.org > > > > 8th International > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > www.chargesyndrome.org or by calling 1-. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 LOL NICOLE!! I had to put in there everything I could cross just for you and Hayley. Hugs, Crystal and Eva ( 1 year old CHARGEr) > >> > >> Hi all just a quick note to say that Hayley has improved out of > > site and > >> is on the way home this week. > >> > >> The plan is to go home Thursday,,, so please fingers and legs > > cross to > >> this happening... I would very much love to take my Little miss > > home after > >> six weeks in hospital this coming Wednesday. > >> > >> Hope is all well for you all... ( I am way way way behind on the > > emails) > >> > >> Love NIcole xoxo > >> > >> Australia > >> > > > > > > > > > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > http://www.imagestation.com/album/?id=2117043995 > > > > Membership of this email support group does not constitute membership in > > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter), > > please contact marion@... or visit > > the web site at http://www.chargesyndrome.org > > > > 8th International > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > www.chargesyndrome.org or by calling 1-. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Hi Crystal, We live in nortwestern Illinois. We are located in the small town of Lanark, which is half way between Rockford and the Quad Cities. Going to Six Flags is a treat for the teenagers in our part of the state. I haven't been there, but Karlee has and loves the roller coasters! We travel to some locations in the suburbs to see medical specialist. from IL (Karlee 18) Re: something fun > , > Reading that gave me such a great feeling that my baby girl could go > to her prom one day. > I am so glad she got to go and had a great time. > I am also from Illinois what part are you from? I leave on the > northeast part of Illinois, near Gurnee Mills and Six Flags. > > Thanks again, > Crystal and Eva (1 year old CHARGEr) > > >> >> Last week was prom at our high school. Karlee was fortunate to > have a date - a nice young man who she has been a friend with for a > long time. >> >> She had a great time. Our high school has a grand march - which > is quite an elaborate affair. The jr. parents decorate the gym. > Each couple is announced and marches in (this year on a red > carpet).Karlee had so much poise and a wonderful smile when it was > her turn. >> >> People in our community know that Karlee has struggled with health > issues. They are so supportive. Many adults told us how beautiful > and grown up Karlee looked. Three different ladies told us that it > wasn't even their kid and they teared up. >> >> With all of the struggles it was so much fun for Karlee to have > this to look forward to. >> >> She also survived the post prom activities until 5:30 in the > morning. Part of the entertainment was a hypnotist. Karlee > volunteered along with 9 others to participate. >> >> I sent a picture to to include in the photo album. >> >> from IL (Karlee 18) >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 The quad cities are Moline, East Moline, Rock Island, IL and Davenport IA Re: Crystal > Whats the quad cities? Iv heard of the tri cities (not that i know what > cities those are either). > > > Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 I have not heard of Lanark, but I see its about a 3 hour drive from here. I hope we all get to met one day I would love to met your daughter someday!! Hugs, Crystal and Eva > >> > >> Last week was prom at our high school. Karlee was fortunate to > > have a date - a nice young man who she has been a friend with for a > > long time. > >> > >> She had a great time. Our high school has a grand march - which > > is quite an elaborate affair. The jr. parents decorate the gym. > > Each couple is announced and marches in (this year on a red > > carpet).Karlee had so much poise and a wonderful smile when it was > > her turn. > >> > >> People in our community know that Karlee has struggled with health > > issues. They are so supportive. Many adults told us how beautiful > > and grown up Karlee looked. Three different ladies told us that it > > wasn't even their kid and they teared up. > >> > >> With all of the struggles it was so much fun for Karlee to have > > this to look forward to. > >> > >> She also survived the post prom activities until 5:30 in the > > morning. Part of the entertainment was a hypnotist. Karlee > > volunteered along with 9 others to participate. > >> > >> I sent a picture to to include in the photo album. > >> > >> from IL (Karlee 18) > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 I have not heard of Lanark, but I see its about a 3 hour drive from here. I hope we all get to met one day I would love to met your daughter someday!! Hugs, Crystal and Eva > >> > >> Last week was prom at our high school. Karlee was fortunate to > > have a date - a nice young man who she has been a friend with for a > > long time. > >> > >> She had a great time. Our high school has a grand march - which > > is quite an elaborate affair. The jr. parents decorate the gym. > > Each couple is announced and marches in (this year on a red > > carpet).Karlee had so much poise and a wonderful smile when it was > > her turn. > >> > >> People in our community know that Karlee has struggled with health > > issues. They are so supportive. Many adults told us how beautiful > > and grown up Karlee looked. Three different ladies told us that it > > wasn't even their kid and they teared up. > >> > >> With all of the struggles it was so much fun for Karlee to have > > this to look forward to. > >> > >> She also survived the post prom activities until 5:30 in the > > morning. Part of the entertainment was a hypnotist. Karlee > > volunteered along with 9 others to participate. > >> > >> I sent a picture to to include in the photo album. > >> > >> from IL (Karlee 18) > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 I have not heard of Lanark, but I see its about a 3 hour drive from here. I hope we all get to met one day I would love to met your daughter someday!! Hugs, Crystal and Eva > >> > >> Last week was prom at our high school. Karlee was fortunate to > > have a date - a nice young man who she has been a friend with for a > > long time. > >> > >> She had a great time. Our high school has a grand march - which > > is quite an elaborate affair. The jr. parents decorate the gym. > > Each couple is announced and marches in (this year on a red > > carpet).Karlee had so much poise and a wonderful smile when it was > > her turn. > >> > >> People in our community know that Karlee has struggled with health > > issues. They are so supportive. Many adults told us how beautiful > > and grown up Karlee looked. Three different ladies told us that it > > wasn't even their kid and they teared up. > >> > >> With all of the struggles it was so much fun for Karlee to have > > this to look forward to. > >> > >> She also survived the post prom activities until 5:30 in the > > morning. Part of the entertainment was a hypnotist. Karlee > > volunteered along with 9 others to participate. > >> > >> I sent a picture to to include in the photo album. > >> > >> from IL (Karlee 18) > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
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