Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 think my brother non charger lol had his removed donno wat the thing was thatere it swelled if i remember > > Has anyone had HCG testing done? is going through a series of > shots > and at the end will have his levels tested. If his testicles have even > partial functionality they will just surgically bring the down (they are > undecended), but if there is not function they will be removed. > > Has anyone been through this? > > Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I believe tim had this done--his testicles were brought down at 3.5 yrs and they tested tissue then--hormone levels are low. will give around 12-13yrs. to improve growth of penis--his testicles are very small. maria RE: HCG testing for boys Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I believe tim had this done--his testicles were brought down at 3.5 yrs and they tested tissue then--hormone levels are low. will give around 12-13yrs. to improve growth of penis--his testicles are very small. maria RE: HCG testing for boys Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I believe tim had this done--his testicles were brought down at 3.5 yrs and they tested tissue then--hormone levels are low. will give around 12-13yrs. to improve growth of penis--his testicles are very small. maria RE: HCG testing for boys Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Debbie - Ethan just had all this testing and shots done and his testes decended a few months ago. His levels were low, but that was to be expected. One of his testicles was very small and the other was about 2/3 of normal size. Let me know if you have any other questions as this stuff is somewhat fresh in my mind. Jody Debbie Matasker wrote: Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Debbie - Ethan just had all this testing and shots done and his testes decended a few months ago. His levels were low, but that was to be expected. One of his testicles was very small and the other was about 2/3 of normal size. Let me know if you have any other questions as this stuff is somewhat fresh in my mind. Jody Debbie Matasker wrote: Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Debbie - Ethan just had all this testing and shots done and his testes decended a few months ago. His levels were low, but that was to be expected. One of his testicles was very small and the other was about 2/3 of normal size. Let me know if you have any other questions as this stuff is somewhat fresh in my mind. Jody Debbie Matasker wrote: Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Did they tell you what they told me? That if there is any function at all they bring them down, if there is no function at all they remove them?? Debbie RE: HCG testing for boys Debbie - Ethan just had all this testing and shots done and his testes decended a few months ago. His levels were low, but that was to be expected. One of his testicles was very small and the other was about 2/3 of normal size. Let me know if you have any other questions as this stuff is somewhat fresh in my mind. Jody Debbie Matasker wrote: Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Did they tell you what they told me? That if there is any function at all they bring them down, if there is no function at all they remove them?? Debbie RE: HCG testing for boys Debbie - Ethan just had all this testing and shots done and his testes decended a few months ago. His levels were low, but that was to be expected. One of his testicles was very small and the other was about 2/3 of normal size. Let me know if you have any other questions as this stuff is somewhat fresh in my mind. Jody Debbie Matasker wrote: Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 Hi Debbie, The boys never went through the shots, but do have very small testicles and had the undescended testicles surgery at about 2 years of age. Now that I think of it, I do believe they did have blood work done years ago from the Endocrinologist that may have included some HCG testing, but think at that time things were in the normal limits. What is making you do this now? Always curious. On another note,I will contact you again next week, some stuff to discuss regarding schooling for Matt. Hope all is well. RE: HCG testing for boys Debbie - Ethan just had all this testing and shots done and his testes decended a few months ago. His levels were low, but that was to be expected. One of his testicles was very small and the other was about 2/3 of normal size. Let me know if you have any other questions as this stuff is somewhat fresh in my mind. Jody Debbie Matasker wrote: Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 Hi Debbie, The boys never went through the shots, but do have very small testicles and had the undescended testicles surgery at about 2 years of age. Now that I think of it, I do believe they did have blood work done years ago from the Endocrinologist that may have included some HCG testing, but think at that time things were in the normal limits. What is making you do this now? Always curious. On another note,I will contact you again next week, some stuff to discuss regarding schooling for Matt. Hope all is well. RE: HCG testing for boys Debbie - Ethan just had all this testing and shots done and his testes decended a few months ago. His levels were low, but that was to be expected. One of his testicles was very small and the other was about 2/3 of normal size. Let me know if you have any other questions as this stuff is somewhat fresh in my mind. Jody Debbie Matasker wrote: Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 Hi Debbie, The boys never went through the shots, but do have very small testicles and had the undescended testicles surgery at about 2 years of age. Now that I think of it, I do believe they did have blood work done years ago from the Endocrinologist that may have included some HCG testing, but think at that time things were in the normal limits. What is making you do this now? Always curious. On another note,I will contact you again next week, some stuff to discuss regarding schooling for Matt. Hope all is well. RE: HCG testing for boys Debbie - Ethan just had all this testing and shots done and his testes decended a few months ago. His levels were low, but that was to be expected. One of his testicles was very small and the other was about 2/3 of normal size. Let me know if you have any other questions as this stuff is somewhat fresh in my mind. Jody Debbie Matasker wrote: Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 We have not had the testing done. However, Garland did have the HCG shot series and it did help on one testicle. We then had the second testicle pulled down at the age of 3 1/2. He is now at a high risk of cancer due to the fact that we waited so long to bring the testicle down. Best of luck! , Randy & Garland Goodwin ---- Debbie Matasker wrote: ============= Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 We have not had the testing done. However, Garland did have the HCG shot series and it did help on one testicle. We then had the second testicle pulled down at the age of 3 1/2. He is now at a high risk of cancer due to the fact that we waited so long to bring the testicle down. Best of luck! , Randy & Garland Goodwin ---- Debbie Matasker wrote: ============= Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 We have not had the testing done. However, Garland did have the HCG shot series and it did help on one testicle. We then had the second testicle pulled down at the age of 3 1/2. He is now at a high risk of cancer due to the fact that we waited so long to bring the testicle down. Best of luck! , Randy & Garland Goodwin ---- Debbie Matasker wrote: ============= Has anyone had HCG testing done? is going through a series of shots and at the end will have his levels tested. If his testicles have even partial functionality they will just surgically bring the down (they are undecended), but if there is not function they will be removed. Has anyone been through this? Debbie Matasker mom to w/CHARGE 9!! 11, andra 6 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
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